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Extreme lack of sense of direction - dyspraxia?

47 replies

DirectionlessTurkey · 01/02/2024 16:49

Ever since I was a small child I've had this secret problem that I've been ashamed of - I get lost everywhere I go. I cannot remember directions even if I've been somewhere numerous times. To this day, as an adult, the only place I know my way around is basically a few streets (five minutes walk) around my childhood home where my parents still live.

I get lost in people's houses, in buildings, in offices, in doctors surgeries. As soon as I have gone through a door, once I leave I cannot find my way back again. In supermarkets, I can't remember which way I've come from once I reach the end of the aisles.

I'm lucky that google maps exist because everywhere I've lived I've needed to use them to go anywhere - even places I go regularly. When getting taxis to places I've lived for years I pretend to be new to the area to explain why I can't aid with directions even once we are almost at the destination.

For me, every time I turn a corner it's like being picked up, spun around and placed somewhere randomly because I suddenly have no idea where I am or where I've just come from. Sometimes I look behind me and don't recognise things I've passed. I try to remember routes. I try to pay attention. I try to remember. I try and memorise and look for landmarks and repeat them to myself. But it's like my brain does not absorb it at all.

To put it into perspective, I have lived in my current home for over a year and the only route I know is an L-shape down the street and turn right to one specific shop. I need google maps for anything else including the playground I go to regularly (5 minutes walk away) and the high street (about 7 minutes walk away). And yes I have tried without google maps and yes I have ended up lost and gone completely the wrong way with no idea where I am.

I've always felt that it's something similar to how people describe dyslexia but for directions instead of letters. It's like I cannot learn them. I have always been academically reasonably intelligent, have a degree and a job that requires high-level knowledge. My memory is otherwise fine.

I have some other physical issues. I've never enjoyed going for walks, especially while talking to people as I cannot concentrate on walking while they talk to me. Apparently most people don't have to concentrate on walking. If the ground is in anyway uneven (like a very slight slope) I have to really focus on where I am putting my feet.

I cannot drive. I've had probably 100 hours of learning (spread over a few instructors and over many years) and still could never stay in the correct position in the road. I kept veering off. I couldn't steer. Couldn't turn. I have no spatial awareness and cannot judge the speed of oncoming traffic or space between vehicles. I would also struggle to take notice of all the different things at once like hazards, road signs, checking mirrors etc. When I had to look in my mirror like at a roundabout I always felt like I couldn't take in the information quickly enough. I ended up giving up learning as I do not think I would ever be safe.

I am completely unable to read a map unless I can physically spin it around to orient it in the right direction with me which is why google maps works well.

I have always been terrible at all team sports or anything requiring physical coordination like skating or skiing. My fine motor skills are fine. I've always been able to tie my shoelaces and write (although my handwriting is a little messy but nothing extreme). I'm simply quite bad at a lot of things. I struggle to cut vegetables. I have grown up with video games and played them regularly but still cannot play games where I have to react quickly or steer or aim.

I was always so embarrassed growing up and had no idea what was wrong with me. I find ways to pretend and have little techniques I use to try to hide it but it takes a lot of energy.

When I was younger I used to dream of being a "scientist" and later specifically a psychologist so that I could do research and find out about it and give it a name. That didn't happen but I did later find out, as an adult, that my grandmother (who I only saw once or twice a year growing up) had exactly the same problem as me. I really wish I'd known and could have spoken with her about it. Once I found that out, I started to wonder if it's an actual real "thing" that has a genetic element to it. Googling found stories of people exactly like me who were describing exactly what I had always experienced but there didn't seem to be any label for it. Some people coined the term 'geographical dyslexia'.

I later came across someone online who had the same thing and explained it was a symptom of their dyspraxia. I did a lot of googling and do identify with a lot of the symptoms but the lack of sense of direction only seems to be mentioned sometimes and is not one of the main symptoms. I'm wondering if anyone else has the same and if they have dyspraxia / it is linked to dyspraxia.

To be clear, it is not the same as not knowing my left and right - although perhaps it does take me a second longer than most adults to think of it, but nothing major. It's that I have no sense of direction, no spatial awareness and am unable to memorise even basic routes even after doing them many times.

I have an ADHD diagnosis which I pursued for the sake of medication. I know no treatments exists for dyspraxia and that a lot of places won't do adult diagnosis but part of me would like to get assessed just so I know and also in case my children have the same thing.

While the symptoms are going to stay the same no matter what, I would really like there to be a label that explains it. There are adjustments that would help me at work but I am simply too embarrassed to try and explain as is because I worry people would assume I'm just stupid. What triggered this is that my grandmother passed away recently. We weren't very close or anything but it made me think about the "shameful" secret we shared and if I will ever find an answer.

OP posts:
AllProperTeaIsTheft · 01/02/2024 16:52

I have a lack of sense of direction very nearly as bad as yours, but I have none of your other symptoms. It may be that you have dyspraxia but that the directions thing is unrelated.

Daftasabroom · 01/02/2024 17:01

I started typing, one of the characteristics of dyslexia is thinking in 3D, and then I reread and realized you'd written dyspraxia.

My daily doh🙄moment, I'm dyslexic wouldn't you know?

Elderflower14 · 01/02/2024 17:01

I have dyspraxia. I feel your pain. I have failed six driving tests and wouldn't try now.
The DYSPRAXIA FOUNDATION ARE EXCELLENT.
My son has it too. I could see dyspraxic traits when he was five and made the school get him diagnosed.
We stayed in touch with his OTand when ds did his Level 2 and 3 BSL his OT wrote a report so he could have someone with him and extra time!

Home

Supporting individuals and families affected by dyspraxia/DCD

https://dyspraxiafoundation.org.uk/

BertieBotts · 01/02/2024 17:11

Dyspraxia is quite well known to overlap with ADHD apparently. I have ADHD too and also have a lot of the symptoms you describe though not quite as severe - I can find my way around OK in familiar places, and follow maps.

I haven't been able to learn to drive, I walk into furniture constantly, I really struggle to follow instructions which are like "copy this movement". Reaction time is terrible and affects which games I enjoy. Was totally useless at PE at school. My handwriting is atrocious, it also doesn't have a consistent style. I think I have some degree of hyperflexible joints. I once tried to join a gym and the personal trainer doing my induction was baffled at me Blush

suggestionsplease1 · 01/02/2024 17:12

I worked with someone who has a condition called visuospatial agnosia who had experiences very similar to yours OP.

suggestionsplease1 · 01/02/2024 17:17

Sorry posted too soon. Their experiences were similar but possibly more extreme than yours in that they could not recall the layout of their own home despite having lived there for many years and would have to search for correct drawers in the kitchen as they would have no recollection for where anything was kept.

They would regularly have to ring their partner or parents if they went out on their own to describe what they could see in front of them so that they could be stay on the phone and be given directions on how to get home, I think they couldn't manage with Google maps easily.

In sports they would not know which goal they were aiming for but had no motor co-ordination difficulties that I recall.

Elderflower14 · 01/02/2024 17:20

BertieBotts · 01/02/2024 17:11

Dyspraxia is quite well known to overlap with ADHD apparently. I have ADHD too and also have a lot of the symptoms you describe though not quite as severe - I can find my way around OK in familiar places, and follow maps.

I haven't been able to learn to drive, I walk into furniture constantly, I really struggle to follow instructions which are like "copy this movement". Reaction time is terrible and affects which games I enjoy. Was totally useless at PE at school. My handwriting is atrocious, it also doesn't have a consistent style. I think I have some degree of hyperflexible joints. I once tried to join a gym and the personal trainer doing my induction was baffled at me Blush

I used to go to aquarobics with two very patient friends. When everyone was at the back of the pool, I was at the front and vice versa. Same with the left and right sides of the pool. 😫

suggestionsplease1 · 01/02/2024 17:24

https://en.wikipedia.org/wiki/Visuospatial_dysgnosia

Did you have any accidents, brain injury, operations, trauma etc at a young age?

I'm thinking if you can recall your childhood area then it's possible something happened after that age as this doesn't seem to be an experience you've had from birth?

The person I worked with sustained a brain lesion after an operation.

Visuospatial dysgnosia - Wikipedia

https://en.wikipedia.org/wiki/Visuospatial_dysgnosia

Strawberrycheesecake7 · 01/02/2024 17:33

You sound very similar to me and I was diagnosed with dyspraxia when I was 17. My main thing is lack of sense of direction as well. I remember as a child being told off because a teacher had sent me off on a job in a different part of the school (I think photocopying or something) and it took me ages to get back because I got lost. I was too embarrassed to tell her the reason because I’d been at that school for years and everyone else seemed to know their way around. I’m still just as bad now and also use google maps to get everywhere. I have also lied to taxi drivers about being new to the area because I can’t give them directions. I struggle with driving as well and have been trying to learn unsuccessfully for years. Also can’t do team sports. The only difference is I do struggle with fine motor skills as well. I can write but I’m very slow to the point I’ve failed exams where I knew the material because I ran out of time. I don’t have a lot of the typical symptoms in that I’m not particularly clumsy. I don’t walk into things, drop things or fall over very often which a lot of people with dyspraxia do. I think everyone with dyspraxia presents slightly differently but it definitely sounds like you have it to me.

TheWeight · 01/02/2024 17:42

If you read about proprioception, it is the ability to sense what you're doing or where you are in space. Poor proprioception (which, btw, is common in neuro diverse people, including those with ASD & dyspraxia) can cause a lot of the problems you're talking about.

Curlygirl06 · 01/02/2024 20:09

My sense of direction is phenomenally bad. I could give you a million examples of getting lost in shops, houses, roads, toilets but you get the picture. It's the family joke. I'm clumsy, trip over fresh air, walk into the bed, stair gate and coffee table several times a week, drop things, knock things over.
However, I can drive and my fine motor skills are fine.
I have no "mental picture" of places; for example I know where the next town is and I know where the nearest town in the next county is but I can't "see" where they are in relation to each other, so I couldn't travel from one to the other if I didn't have road signs to follow. I'd have to go back to where I know to start from and start from there. Maddening.

notknowledgeable · 01/02/2024 20:22

I have a lot of the same problems and I am dyspraxic

Hmmmmaybe · 01/02/2024 20:26

Yep sounds like dyspraxia

i think I’m dyspraxix

c

BertieBotts · 01/02/2024 20:27

YY I relate to that Curlygirl. Actually I get a bit confused because I can't drive myself, so I know how to get around places by bus routes basically. The problem is that the bus route isn't usually the most direct way so I confuse people if I'm trying to direct them. Google maps is brilliant!!

I can sort of work out the layout of things if I've been there a few times and then see it on a map but it isn't intuituve to me at all. Where I used to live, it was a place with a lot of Victorian terraces so the streets were mostly laid out in a sort of rectangular grid. I got really confused when I walked down one specific street because it curved 90 degrees so it ended up connecting to another street which, in my head, it shouldn't connect to (it was as though I was thinking it was straight and not registering the curve). The thing is, I must have walked down that street many, many times before I thought to look at a map and understood the layout of it.

illbethereforyouuuu · 01/02/2024 20:37

This is me, also. I have diagnosed ADHD and have always wondered if there's some dyspraxia, too.

The worst part for me is that I have a peripatetic job that involves me going into lots of different schools and so I never get my bearings and am constantly getting lost. It's embarassing.

BuddhaAtSea · 01/02/2024 20:43

I have dyspraxia. No sense of direction whatsoever and I get lost all the time. Can’t read a map to save my life. I’m in my 50’s though, I don’t really care anymore, I’ve adapted. I memorise by association, I do that with absolutely everything. I also had to really push myself to learn to drive, swim etc, because my coordination is shot to pieces.

What I’m saying is that I managed to push through, but only after my diagnosis in my 30s. I realised I’m not stupid, I was just born wired differently so I decided to rewire what I can.

Lovemusic82 · 01/02/2024 20:46

I get lost too, I can walk out of a shop and forget which direction I was walking in. I am being accessed for ADH but have a DC with dyspraxia, they be honest her sense of direction is much better than mine, I was worried sick when she started uni.

I have learnt to use google maps for directions but only on satellite mode so I can see buildings.

Hmmmmaybe · 01/02/2024 20:56

Does everyone on this threat know about the thing in Google maps where you can point it and it shows on the map what way to go according to which way yiur facing?

SoulMole · 01/02/2024 21:02

I have dyspraxia. I could have written that. Everything you said. I passed my 13th driving test though 🙃.

Psychoticbreak · 01/02/2024 21:09

ADHD and directional dyslexia is a thing. I have adhd and asd but not dyspraxia and I never know where I am going. My friends joke I could get lost in my own garden and its the size of a stamp.

Curlygirl06 · 01/02/2024 21:10

BertieBotts · 01/02/2024 20:27

YY I relate to that Curlygirl. Actually I get a bit confused because I can't drive myself, so I know how to get around places by bus routes basically. The problem is that the bus route isn't usually the most direct way so I confuse people if I'm trying to direct them. Google maps is brilliant!!

I can sort of work out the layout of things if I've been there a few times and then see it on a map but it isn't intuituve to me at all. Where I used to live, it was a place with a lot of Victorian terraces so the streets were mostly laid out in a sort of rectangular grid. I got really confused when I walked down one specific street because it curved 90 degrees so it ended up connecting to another street which, in my head, it shouldn't connect to (it was as though I was thinking it was straight and not registering the curve). The thing is, I must have walked down that street many, many times before I thought to look at a map and understood the layout of it.

The infamous trip to another work place for a course sticks in my mind! My dh went over the route on Google maps, the picture version to help me see where I was going. There were road works on the Salisbury Plain and my manager had drawn a map to help me. At a particular junction I was told not to go this way, turn the other way and I wouldn't go past Stonehenge.
When I came over the brow of the hill and those bloody stones were right in front of me I couldn't believe it. I'd followed the instructions and still went wrong. It was 22 miles to the training place and I got so lost I traveled 46 miles in total and was late for my course. If I'd known where I was I'd have turned round and gone home but I couldn't guarantee I'd find my way back home. I even stopped in a garage and asked for directions, dragged the poor chap outside so he could point to the right road I needed to take as telling me I needed to go on the A334 or whatever was no use whatsoever.
That's just one example, I could give you loads.

Diversion · 01/02/2024 21:14

I understand you! I can get lost anywhere. If I go to the ladies I come out and I am lost, I need landmarks! I can drive but hate it, I am useless with a sat nav and need to do the same journey over and over before I know where I am going and am comfortable. I know three ways to get to work but my brain cannot work out how all of the roads connect. I know one way to get to pretty much anywhere and if there is a diversion or a road closed I have to stop. If I need to drive locally for work I have to go onto google maps and follow the route by the photos before I set off and find particular landmarks such as a shop or a pub. If I go onto an estate I can never remember how to get out or if I turn left or right at a junction when I am doing the return journey. Everyone thinks that it is hilarious, but it is actually quite scary at times.

Hmmmmaybe · 01/02/2024 21:20

@Diversion wjy doesn’t sat nab work for you?? I LOVE it - it’s just do whatever it says and I panic and don’t take a turn it just patiently adjusts

hiredandsqueak · 01/02/2024 21:28

@DirectionlessTurkey You are my long lost twin I think. I have exactly the same thing. My children laugh because I get lost in shops. I hate it now people tend not to buy carrier bags because following somebody with the shop's carrier bag was always my tip to find the exit.
I had so many driving lessons and was hopeless for all the reasons you describe added to which I could never recognise a route so every road I drove down was like I had never seen it before so could never pre empt the upcoming junction or roundabout.
I have lived here all my life but couldn't tell you how to get to the local town and if anyone asks for directions I have to pretend I am visiting as well.
I have dc with dyspraxia and dc with autism and none of them have the trouble with directions that I have.

parietal · 01/02/2024 21:34

Difficulties with spatial navigation is a known thing that is not the same as dyspraxia. Look up this lab

www.plymouth.ac.uk/facilities/the-cognition-and-behaviour-laboratory

And this one

spierslab.com/research/

Do research on this in psychology