Any doctors around? How fucked am I?

[Metabolicallycomplicated]

I had an MRI on my liver due to some lesions found on a totally unrelated ultrasound. They suspected NAFLD given my weight etc but instead They’ve found something more worrying, but the GP I spoke to couldn’t give me a straight answer as to what the MRI report means. Is this most likely benign or most likely not? GP treated me like I was going to crumble but I’m a very pragmatic person, I just need to understand what I’m looking at here.

Im 33, I have a 2 year old DS and I just need to know how worried I need to be here instead of waiting another few weeks for the next MRI and results from that. If I’ve got liver cancer I know how bad that is and I need to start getting ducks lined up and quacking sooner rather than later.

So if you’re a doctor/ medical and you read the below report, what would you be thinking? You can be honest, I’m completely aware no one can diagnose me from the below, I just need probabilities and ballparks.

They mention adenoma which is a benign tumour and metastases - these are possibilities to be ruled out with another scan not diagnoses.

If there’s a tiny % possibility that something is cancer it must be treated as suspicious until confirmed otherwise, that doesn’t mean it’s that likely.

Carcinoma isn’t just a synonym for cancer, it’s a particular type of cancer that forms in epithelial cells.

Yes no symptoms at all other than abnormal vaginal bleeding but they found endometrial hyperplasia to explain that one. The irony is I’m currently waiting for biopsy results to find out whether that’s endometrial cancer, so there’s a world where I have two completely unrelated cancers at the same time aged 33. Madness.

I'm sorry you are going through this. Urgent recall should get you seen for the contrast MRI asap. I hope all is ok once they have those results. The waiting is horrendous in these situations

@Metabolicallycomplicated vaginal bleeding after gb surgery needs attention. Be pro-active.

https://www.allohealth.care/healthfeed/bleeding-after-sex/vaginal-bleeding-after-gallbladder-surgery

Had my gallbladder removed when I was 18, vaginal bleeding started 15 years later and has been constant for 4 months so far. As I said they found the issue is endometrial hyperplasia on the end, they’re just working out if that’s been caused by cancer or unopposed oestrogen (PCOS)

i would be calling GP to see what was going on as regards if it was actually my report given they mentioned a gall bladder that shouldnt exist. I think its more likely its someone else’s scan than a typo. Hopefully the GP could call the scan people and ask them to check.
I would also make sure anyone looking at your scan results knows you have biopsy results pending for another potential cancer as they are unlikely to know about it automatically and it might make a difference to the urgency of how they process you.
Start getting on the phone every morning and become the squeaky wheel with the MRI team. “Just calling to see if you have had any cancellations or no shows today.” The number of referrals that fall through the cracks is appalling.

I've had an ultrasound report that mentioned an ovary that I no longer have, so I don't think it's that unlikely that mistakes are made when typing the report.

"The irony* is I'm currently waiting for biopsy results to find out whether that's* endometrial* cancer, so there's a world where* I have two* completely unrelated cancer*s at the same time aged 3*3."
*
No, it's far more likely that the liver lesions are secondary to a primary cancer somewhere else, possibly endometrial (hence the differential diagnosis of metastasis). So sorry OP. Hopefully there's another explanation-and if you have no systemic symptoms, such as weight loss or night sweats, this is far more likely.

Oops no idea what went wrong with formatting there 😬

I'm waiting on results from an endometrial biopsy too, @Metabolicallycomplicated I had a hysteroscopy where they found a couple of polyps too. How did you know you have endometrial hyperplasia before the biopsy results have come back? Could they tell from the scan?

I agree it might be a good idea to make sure your GP is trying to coordinate - that you're waiting on a biopsy and the liver MRI. I've noticed hospital departments don't tend to communicate very well.

the differencial diagnosis list is almost the most scary part. anything that might possibly perhaps cause the symptoms or findings.

tbh you need to wait for the further scan.

all the best

Oh gosh hope they hurry up with the next scan so you know what is going on

I’ve actually been really well treated by the NHS so far - got referred by GP for an MRI in September (non-urgent at that point) and was scanned beginning of Jan. the GP today was really good, just too cautious with my feelings but that’s understandable, he’s never met me before and I suspect my reactions to bad news aren’t typical.

My Endometrial biopsy happened less than 2 weeks after my endometrial hyperplasia diagnosis. I was diagnosed in hospital after being admitted for the PV bleed 18 hours after I was told to go to and e by the GP following a request I put in for an appointment when the bleeding got scary
heavy. I turned up at an and e as I was told, they already had my notes and the GP had called ahead so I was bypassed from a and e straight to gynae as soon as I turned up pretty much and had a bed on the ward waiting for me. I was taken for a quick examination which confirmed the scale of the bleeding. They took my obs, gave me IV fluids because my blood pressure was a bit low and spent the night investigating and stabilising me. By the next morning I’d been scanned, diagnosed, started on a treatment plan, been seen by 2 specialists and been booked in for my biopsy for a couple of weeks time. I was discharged with meds to stabilise it and a free pass back to the ward at any time if the bleeding got worse again or I was worried about the blood loss.

You have absolutely no way of knowing this, appearances are non-specific and without contrast scan none of us can make any true estimation one way or another. I seriously hope you’re not a medical professional making such rash, scaremongering posts on the basis of incomplete imaging that you don’t have any access to in the first place.

Back. Off.

OP, please just wait for the next scan. In your position I would actually ask for this thread to be deleted, as while there are some helpful posters, you will get far more nonsense like the above which is only going to make you feel worse. Best of luck moving forward.

I'm so sorry you've got this worry, OP.

I'll be thinking of you.

I have those lesions on my liver! Multiple focal lesions!

They are benign and don’t cause any issues at all. They can be caused by being on the pill and I was younger than you when they found them. But doctors do not worry about them. In fact, after they found them they planned to discharge me and never see me again but agreed to do so after I panicked (there was actually a miscommunication from another doctor who told me I have cancer, so after that I wasn’t comfortable never being followed up again!).

But I had MRIs for 3-4 more years and then they finally told me to go away.

Yeah they knew from my scan. My endometrial measurement was 22mm on the ultrasound which is very thick. Endometrial hyperplasia just means ‘thick endometrium’ it doesn’t tell you why the endometrium is thick. I don’t have any polyps or fibroids at all so the biopsy was just to find out if any of the cells were atypical.

Don’t worry, I can handle it. I know this post isn’t likely, endometrial cancer spreads to cervix, ovaries etc etc long before it goes near the liver and I know my ovaries and cervix etc are all fine so if I do have endometrial cancer it’s very very early stages, likely only pre-cancer.

Ah, that makes sense. I didn't realise it meant 'thick endometrium'. Good news they didn't see any polyps for you though. I've got to go back this week and have them removed. The heavy bleeding is scary enough - you don't need this extra worry on top.

OP, Endometrial cancer could metastasise to the liver, in which case, they wouldn’t be two unrelated cancers.
But there is absolutely no way of knowing without further investigation. It could all be nothing.

Yep there is stock text that the radiologist edits when they are reporting, and it is fairly common for bits of text that should have been deleted, not to have been deleted.

In fabulous news the bleeding has actually stopped as of 2 days ago and my iron is back up to 8 which although still low is a whole lot better than it has been previously so that at least feels like I’m on the mend!

Oh, that is good! Hopefully no more bleeding until your iron stores have gone up a bit more. Low iron can make you feel shocking. I had trouble swallowing at one point.

Yeah but very very unlikely, most likely outcome is the endometrial hyperplasia has no atypia and is a result of rampant PCOS (unopposed oestrogen), and that the liver is completely unrelated.