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Found out my little niece has cancer and not coping

20 replies

Sunshine3105 · 27/01/2023 16:48

Last month we found out that my little nice has a bone marrow cancer....is progressing so quick and all family is in pieces right now....she is waiting for bone marrow donor but in mean time have to have blood transfusions every other day....they are really strugling to pay all the bills and is so hard for my brother....i set up gofundme page but not sure where to share it really.... i have gave them all my savings to help them cope but there is not much I could do anymore....it really affected my health as i got such a big deppresions.....i really dont know what to do.....
Plz help i need someone to talk to

OP posts:
Tabitha888 · 27/01/2023 16:51

So sorry just want to give you a hand hold x

Johnnysgirl · 27/01/2023 16:57

Is your brother not being paid while he takes compassionate leave?

FatAgainItsLettuceTime · 27/01/2023 17:02

The must be so hard for you and your family.

Have you all been tested to see if you could be a bone marrow donor? Could you do any kind of drive within your community or social groups to ask others to be tested, especially if your niece is from a minority ethnicity group that's under represented on the donor list?

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PomRuns · 27/01/2023 17:04

Your bother should ask to speak to a social worker, they are likely entitled to some financial support. Also, the hospital could write a letter to the employer to support him being paid for a while.

2bazookas · 27/01/2023 17:12

This reply has been deleted

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worstusernameeverx2 · 27/01/2023 17:12

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Ignore this absolute twat OP

thefirstmrsrochester · 27/01/2023 17:14

So sorry for what you are going through as a family and I send every best wish for your niece treatment.

in terms of practical help, McMillan and the Maggies Centrez are great at assisting with financial supports/benefits and often there are specialist workers in the hospitals who will be able to provide advice also.

Geneticsbunny · 27/01/2023 17:16

Leukaemia has really good recovery rates in kids nowdays. She is very likely to be ok although it will be hard for her family. I am not sure how a go fund me will help? The treatments are all free and theoretically it shouldn't impact their income?

Cannottryasp00 · 27/01/2023 17:16

What a terrible situation for your niece and all her family.
Suggest to your brother that he speaks to his workplace and potentially ask for help with any benefits that the family can claim .
The Macmillan nurses or the childrens equivalent will be able to advise him and his partner. Am so sorry 💐

Felicity42 · 27/01/2023 17:16

You could call The Samaritan's helpline they might provide help and support for yourself and someone to talk to.
Also be careful about putting too many specific details of the child's situation on a public discussion forum without the parents permission.
Sorry this is happening to you and the family.

mbosnz · 27/01/2023 17:17

Oh dear. You poor soul. It's so hard, isn't it? You just want to do all you can do, and no matter what you do, it feels like it's never enough. (My wee niece had cancer as well, by marriage in my case, although it didn't make a difference to me.)

It may be very hard for you to help given that you have depression as a complicating factor. Is there anything you could do to help that also gives you a degree of peace? Baking? Cooking? Cleaning? Gardening? (If you're nearby that is!) Also, there's washing and ironing, that can be a flipping God send, as can looking after other children, pot plants and/or pets.

TheFormidableMrsC · 27/01/2023 17:20

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Reported. What a disgusting comment.

JustDanceAddict · 27/01/2023 17:26

Really sorry to hear that. Maybe you can speak to someone yourself to help you cope. Mscmillan or similar. I hope she receives speedy treatment and makes a full recovery.

CCmumsnet · 27/01/2023 17:35

Hello everyone
We've had a number of reports from people concerned about this thread so, as we usually do in these circs, we're putting our heads round the door with some important reminders.
Right now we can't see any evidence to indicate that the OP isn't above board – if we did, we'd remove the thread straight away. But the truth is that, sadly, we at MNHQ can't know with 100% certainty that any poster is genuine, no matter who they are or how long they have been here. As frustrating as it is, we're not able to vouch for anyone here.
So we always ask users to remember that not everyone on the internet is who they say they are – and remind folk not to give more to another poster, either financially (in cash or gifts) or emotionally (in time or care and support) than they'd be prepared to lose if things went wrong. We strongly advise against parting with any cash or giving away your personal details, and if you receive a PM which makes you uneasy - report it to us and we’ll take a look.

Sorry to hijack your thread briefly there, OP – we're sorry you're going through this. 💐

Tamarindtree · 27/01/2023 17:41

Is the family aware of the Ronald McDonald house charity so that they can stay nearby to their child?

Sunshine3105 · 27/01/2023 18:46

Im so sorry if I broke the rules here....I have been on this platform for years and somehow thought I could let my emotion out as it is very hard....My post is genuine and I could send you proof if you need any more details...
Just to be clear.....my niece is in Slovakia and not in UK..... gofund me is to help them to fund all the trips to the hospital and for my brother stay in hospital with her....She is covered by insurance company...Im not asking for money here just some emotional support....

OP posts:
fairysimples · 27/01/2023 18:56

I am very sorry. Is your niece's family claiming all help and benefits they're entitled to?

DeliberatelyObtuse · 27/01/2023 18:57

Sunshine3105 · 27/01/2023 18:46

Im so sorry if I broke the rules here....I have been on this platform for years and somehow thought I could let my emotion out as it is very hard....My post is genuine and I could send you proof if you need any more details...
Just to be clear.....my niece is in Slovakia and not in UK..... gofund me is to help them to fund all the trips to the hospital and for my brother stay in hospital with her....She is covered by insurance company...Im not asking for money here just some emotional support....

It was probably the mention of the GoFundMe that made people suspicious

Justmeandthedog1 · 27/01/2023 19:10

Contact Clic Sergeant register-of-charities.charitycommission.gov.uk/charity-details/?regId=1107328&subId=0
they were brilliant when my friend’s child had leukaemia. He recovered 100%, now a strapping adult.

Young Lives versus Cancer www.younglivesvscancer.org.uk

Children with Cancer. www.childrenwithcancer.org.uk/?gclid=EAIaIQobChMIkKOWtrno_AIVAuvtCh1sLQkiEAAYASAAEgI_jfD_BwE

The unknown is very scary, my friend found knowledge helped her cope. The outlook for childhood leukaemia is far, far better than it was even 10 years ago.

Justmeandthedog1 · 27/01/2023 19:12

Sorry, just seen your niece is in Slovakia. UK charities will still answer any questions you may have and offer emotional support. They recognised years ago that when a child is I’ll the whole family is affected. I hope your niece makes a good recovery. 💐

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