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Original poster

Any one know about Thyroids?

67 replies

Jodie569 · 09/10/2022 10:18

Hi, I have a lump on the front of my neck its growing bigger (seen doctor/ had TSH-normal/ENT & ultrasound booked). I really do not want to google because I have HA. Everyone I know, don't have Thyroid problems and have no advice. I am obviously thinking the worst now.

OP posts:
Original poster
Jodie569 · 10/10/2022 09:35

interstatelovesong · 10/10/2022 09:25

I had a total thyroidectomy last year after 15 years of having slowly growing nodules (aka lumps) on my thyroid plus my thyroid was out of whack and making me feel poorly

Sadly I had to pay £7000 to get this done privately as the nhs is now in the toilet . But I feel like a new woman now

Most thyroid nodules are harmless and they're very common. Often they're so small people can't feel them so don't notice them. They're also way more common in women

I am sure yours will be benign - however it is good it's being checked.

Hugs x

Show quote history

Thank you for replying, that’s made me a bit more reassuring. If they don’t do anything about it I will do the same. I don’t really have that sort of money but I will get a loan if I have to. I think this is exactly what I have had happening to me, I have all the symptoms (apart from weight loss). I am so glad that you feel better. I know it’s it’s a lot of money but it’s so worth it when you feel completely miserable for years.

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winterspiceandallthingsnice · 10/10/2022 12:26

@Jodie569 the doctor may perform a biopsy when you have your ultrasound, they will decide from there what the best course of action will be, I was advised to have a hemi thyroidectomey because my results were inconclusive and there was a small chance it was cancerous, totally treatable. Keep pushing with the doctors you know your body better than them, I buried my head in the sand and mine was quite large in the end. Haven't looked back since my operation, have a very under active thyroid now, so bad my results were off the scale but it is controlled well with thyroxine. Don't let them fob you off especially if you are having all the symptoms x

winterspiceandallthingsnice · 10/10/2022 12:33

Jodie569 · 09/10/2022 10:19

Forgot to add the doctor specialist said i had nodules on my thyroid no idea what that means.

This might be useful to you, I did a lot of reading on this before my operation www.btf-thyroid.org/what-is-thyroid-disorder x

Interested in this thread?

Then you might like threads about this subject:

General health
AndStand · 10/10/2022 12:39

My husband had a lump in his thyroid which doctors said was likely to be a nodule. His thyroid levels were totally normal so we weren't worried. A fine needle biopsy followed which showed cancer. And unfortunately a type that's not easily treatable. This is very rare, but it can happen. However his surgeries on his neck were strangely painless, his consultant said there's not very many nerves that are affected by a thyroidectomy. He was back at work in 4 days.
The odds are you'll be fine.

Original poster
Jodie569 · 10/10/2022 14:08

winterspiceandallthingsnice · 10/10/2022 12:26

@Jodie569 the doctor may perform a biopsy when you have your ultrasound, they will decide from there what the best course of action will be, I was advised to have a hemi thyroidectomey because my results were inconclusive and there was a small chance it was cancerous, totally treatable. Keep pushing with the doctors you know your body better than them, I buried my head in the sand and mine was quite large in the end. Haven't looked back since my operation, have a very under active thyroid now, so bad my results were off the scale but it is controlled well with thyroxine. Don't let them fob you off especially if you are having all the symptoms x

Hi winterspiceallthingsnice, thank you for your great advice. I am hoping the doctor will do the biopsy at the same appointment but I got a feeling they don’t unless they can see something?. I will definitely be getting this removed. I’m hoping it’s all benign but won’t know until results. I can’t believe I’ve read on different posts that some ladies have swollen necks and they haven’t even gone to the doctors or have and they have been sent away saying it’s a goiter. Shocking! My doctors wasn’t going to refer me either, my TSH was normal.

i hope you feel loads better now? Is your medication under control now?.

OP posts:
Original poster
Jodie569 · 10/10/2022 14:12

AndStand · 10/10/2022 12:39

My husband had a lump in his thyroid which doctors said was likely to be a nodule. His thyroid levels were totally normal so we weren't worried. A fine needle biopsy followed which showed cancer. And unfortunately a type that's not easily treatable. This is very rare, but it can happen. However his surgeries on his neck were strangely painless, his consultant said there's not very many nerves that are affected by a thyroidectomy. He was back at work in 4 days.
The odds are you'll be fine.

Hi Andstand, im so sorry your husband went through that. I’m glad to hear he is better now and back to work.

OP posts:
queenofarles · 10/10/2022 14:46

I had a hemi-thyroidectomy a few years ago,

Had a 3mm nodule and the biopsy came back as malignant.
thankfully it was very tiny and I didn’t need any radiation. I started taking thyroxine 6 years after my Surgery ,as my TSH levels were slightly higher than normal and my periods were starting to get heavy.
All is good now and I just need to do an ultrasound every year and blood tests every 3 months.

winterspiceandallthingsnice · 10/10/2022 15:39

@Jodie569 my medication took a few months to get right, blood tests every six weeks, they put you on a small dosage to start with and increase it gradually because too much thyroxine can cause problems. I feel absolutely fine now, energy levels are back to where they should be, had absolutely no energy because my blood test results were so off the scale. I'm sure they will do a biopsy at the same time as your ultrasound, I only went to have an ultrasound and they decided to do a biopsy at the same time, I was like you had no symptoms just this large lump. Try not to worry too much, hardly felt the biopsy and the operation was straight forward only one night in hospital and back at work after two weeks, the lack of energy was the worst bit and have a very neat and hardly noticeable scar x

Original poster
Jodie569 · 10/10/2022 16:47

queenofarles · 10/10/2022 14:46

I had a hemi-thyroidectomy a few years ago,

Had a 3mm nodule and the biopsy came back as malignant.
thankfully it was very tiny and I didn’t need any radiation. I started taking thyroxine 6 years after my Surgery ,as my TSH levels were slightly higher than normal and my periods were starting to get heavy.
All is good now and I just need to do an ultrasound every year and blood tests every 3 months.

Hi Queenofarles, I’m so glad you was okay after I’m so scared if I had left it too long because I’ve had issues for over 5 years… hopefully what ever it’s benign or what ever is. I have my ultrasound Friday & and another ENT appointment November (not sure why that’s been booked already).

that’s good you didn’t need radiation!

OP posts:
Original poster
Jodie569 · 10/10/2022 16:52

Jodie569 · 10/10/2022 16:47

Hi Queenofarles, I’m so glad you was okay after I’m so scared if I had left it too long because I’ve had issues for over 5 years… hopefully what ever it’s benign or what ever is. I have my ultrasound Friday & and another ENT appointment November (not sure why that’s been booked already).

that’s good you didn’t need radiation!

Show quote history

when he was checking my neck he said he could feel “nodules” so not sure that’s worse 😩

OP posts:
asitwere · 10/10/2022 16:54

It sounds like you have a multinodular goitre which is fairly common.

Original poster
Jodie569 · 10/10/2022 16:56

winterspiceandallthingsnice · 10/10/2022 15:39

@Jodie569 my medication took a few months to get right, blood tests every six weeks, they put you on a small dosage to start with and increase it gradually because too much thyroxine can cause problems. I feel absolutely fine now, energy levels are back to where they should be, had absolutely no energy because my blood test results were so off the scale. I'm sure they will do a biopsy at the same time as your ultrasound, I only went to have an ultrasound and they decided to do a biopsy at the same time, I was like you had no symptoms just this large lump. Try not to worry too much, hardly felt the biopsy and the operation was straight forward only one night in hospital and back at work after two weeks, the lack of energy was the worst bit and have a very neat and hardly noticeable scar x

I’m so glad you feel better now, I bet it’s made you realise how poorly you felt before having it. I have panic attacks just thinking about the appointment. I don’t like to wish life away but I want this year over with. Thank you so much for replying.

OP posts:
Original poster
Jodie569 · 10/10/2022 17:00

asitwere · 10/10/2022 16:54

It sounds like you have a multinodular goitre which is fairly common.

Hi asitwere, the specialist said that I had nodules and its swollen all over my thyroid not just one part. The doctor just said it felt prominent but checked all lymph nodes and said wasn’t worried (she wasn’t even going to refer me to have it scanned).

I am worried it’s been growing for years and now it’s tuned nasty because it’s never been checked ( never knew it was there)

OP posts:
asitwere · 10/10/2022 17:05

Yes…. Multinodular goitres = many nodules around your neck.

Precipice · 10/10/2022 17:07

Sort of a similar situation - when I was back home (abroad) in the summer, I had an endo visit and she found a nodule in my thyroid. TSH normal, but a few other things high (very high prolactin, slightly high DHEA-SO4 and androstenedione) - I went in because I've had a big increase in body hair over the last year or two: lots of chin hairs, longer and thickening leg hair etc.) She recommended a biopsy ('don't put it off, aim to have it done by the end of the year'), but it was impossible to book for in the short time I was there and I, apparently very naively, thought it would be easier and quicker to have it done in the UK, where I live, than to have to travel just for it.

Not that I've had any luck so far having it looked at here - the GP I talked to (hardly 'saw' over a phone appointment!) seemed more interested in why I'd had an ultrasound at all (because it was part of the endo visit) and 'did they tell me to have it [biopsy] done in Scotland?" (no, but she told me to have it done and as I live here, I expect to be able to access medical advice and treatment here) and what I did with the chin hair than the cause of it, told me that what I had too high results for wasn't something they would test for (okay, but here is an abnormal result, does it suggest anything to you?).

For greater comfort of mind, the endo told me that only about 10% of them need to be operated following the biopsy, so that most likely it's not anything problematic.

Original poster
Jodie569 · 10/10/2022 17:13

asitwere · 10/10/2022 17:05

Yes…. Multinodular goitres = many nodules around your neck.

Thank you I haven’t got a clue and I definitely won’t be googling….

OP posts:
winterspiceandallthingsnice · 10/10/2022 17:15

@Jodie569 please don't worry yourself silly that it's turned nasty only a very small percent are and it is treatable x

asitwere · 10/10/2022 17:18

You can Google, in the vast majority of cases they are completely benign! You’ll be fine 😊

Original poster
Jodie569 · 10/10/2022 17:22

Precipice · 10/10/2022 17:07

Sort of a similar situation - when I was back home (abroad) in the summer, I had an endo visit and she found a nodule in my thyroid. TSH normal, but a few other things high (very high prolactin, slightly high DHEA-SO4 and androstenedione) - I went in because I've had a big increase in body hair over the last year or two: lots of chin hairs, longer and thickening leg hair etc.) She recommended a biopsy ('don't put it off, aim to have it done by the end of the year'), but it was impossible to book for in the short time I was there and I, apparently very naively, thought it would be easier and quicker to have it done in the UK, where I live, than to have to travel just for it.

Not that I've had any luck so far having it looked at here - the GP I talked to (hardly 'saw' over a phone appointment!) seemed more interested in why I'd had an ultrasound at all (because it was part of the endo visit) and 'did they tell me to have it [biopsy] done in Scotland?" (no, but she told me to have it done and as I live here, I expect to be able to access medical advice and treatment here) and what I did with the chin hair than the cause of it, told me that what I had too high results for wasn't something they would test for (okay, but here is an abnormal result, does it suggest anything to you?).

For greater comfort of mind, the endo told me that only about 10% of them need to be operated following the biopsy, so that most likely it's not anything problematic.

Hi precipice, gosh what a nightmare for you. Some doctors are useless aren’t they. It’s taken me years to realise that It was my thyroids. The doctors should do a full thyroid blood test but mine don’t and TSH comes back normal even though I’ve had all Thyroid symptoms.

are you trying to get an ultrasound scan? It’s been okay down here I’ve had ENT appointment where a specialist checked my neck and put a camera down my nose, I’ve got ultrasound booked for this Friday and they have booked me for another ENT in November (not sure why). I live in south so not sure if it’s different. I did beg to be seen.

OP posts:
PickledLillee · 10/10/2022 17:22

I had a prominent thyroid lump. Had numerous ultrasounds on it and all said the same - multinodular and benign. Had radioactive iodine a little under 12mths ago and within 6 months, it was back to normal. I will have to take thyroid medication for ever but so common and absolutely nothing to worry about. Oh, and it was over 4 years from me noticing it to having the treatment so it was very much a wait and see situation.

Original poster
Jodie569 · 10/10/2022 17:23

winterspiceandallthingsnice · 10/10/2022 17:15

@Jodie569 please don't worry yourself silly that it's turned nasty only a very small percent are and it is treatable x

Thank you Winter, I really hope it’s not. I am one of them people that always think the worst 🤦🏽‍♀️ I will keep telling myself that at least I’m being seen very quickly and it will all be over soon 🤞🏼 Xx

OP posts:
Original poster
Jodie569 · 10/10/2022 17:35

PickledLillee · 10/10/2022 17:22

I had a prominent thyroid lump. Had numerous ultrasounds on it and all said the same - multinodular and benign. Had radioactive iodine a little under 12mths ago and within 6 months, it was back to normal. I will have to take thyroid medication for ever but so common and absolutely nothing to worry about. Oh, and it was over 4 years from me noticing it to having the treatment so it was very much a wait and see situation.

Hey PickleLilliee, Thats good to hear that you didn't have to have surgery. How was the radioactive Iodine? 😵Did you have any problems with thyroids before lump?. I am hoping mine is the same as yours, but I can't breath when I lay down, this has been going on for years. I am so glad you messaged this thank you.

OP posts:
Original poster
Jodie569 · 10/10/2022 17:38

asitwere · 10/10/2022 17:18

You can Google, in the vast majority of cases they are completely benign! You’ll be fine 😊

I do feel better coming on here I have learned a lot.

OP posts:
ehb102 · 10/10/2022 17:40

I have a multi nodular goiter. I live with it as it's not my biggest problem and I don't feel it. I keep my TSH low because I have Hashimoto's syndrome. If my TSH rises my goiter pings to let me know! Short sharp pain stabs.

Original poster
Jodie569 · 10/10/2022 17:49

ehb102 · 10/10/2022 17:40

I have a multi nodular goiter. I live with it as it's not my biggest problem and I don't feel it. I keep my TSH low because I have Hashimoto's syndrome. If my TSH rises my goiter pings to let me know! Short sharp pain stabs.

I have heard of that, I did the antibody test it came out negative. I suppose its good that it lets you know when you need, but sounds painful. Do you have to have your thyroid taken out because of the Hashimotos? Does it destroy your thyroid? Or do the medication stop that?.

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