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Can I begin my life at 38? I’m Even with neurodiversity? Or am I kidding myself?

81 replies

Nosuchthingasover · 24/07/2022 10:08

So, I’m 38, with ASD and ADHD, which probably isn’t relevant to be honest. I was only diagnosed as an adult a few years ago.
My life has been a complete failure. At primary school I was extremely clever and got top grades in everything with zero effort, then the same at secondary school, until we got to the last couple of years and had to submit coursework, procrastination and poor time management won, and I did terribly. Got a couple of A-C grades, and the rest D’s.
Left home at 16, ended up pregnant with my first born within a year, due to grooming/exploitation, ended up with 3 children.
My children are all neurodiverse, mainly Adhd/ASD. Spent the last 15 years on benefits and receiving carers allowance with my children receiving DLA.
I get PIP for myself, which will most likely end in may due to me attending a pre access course, and due to start the full access course in sept (only got it awarded after applying for the first time last year) and that’s fine, if it ends because of this; it’s a risk I’m willing to take, to improve my life. I don’t want this life, I’m bored, I’m doing nothing, I have no direction, no passion, nothing. I add nothing to society, and often wonder what the point in my existence actually is.
In September when I start this course, I will lose carers allowance and income support (plus disability premiums that are added) so I’ll lose £880 a month.
Am I being unreasonable thinking that it’s the right decision, and a risk worth taking?

The following year will be much more tough as I’ll have lost PIP by then most likely. But I’m thinking about the long term, 4 years from now I could have graduated, and have the potential to earn.
I have no experience of anything right now, so I’m basically unemployable. But is it right to knowingly do something that I know will cause us, including my children, to be much worse off over the next few years? I can’t help but feel selfish for considering it. But I can’t just carry on with life as it is. It’s a completely bleak future. If I look forwards 5 years with me taking no action, then it’s miserable, there’s no point in it. So I need to change the outcome.

I worked out what I need to do to get where I want to be, and it includes the access course, alongside doing my maths GCSE (I’m enrolled for both) plus I need work experience, so I found a work coach who is hoping to get me volunteering with the CAB one day a week, who will provide training.
Plus, I need to drive! So many job opportunities not available to me due to me not being able to drive. So, I was thinking about starting lessons again in an automatic and hoping I can pass.
I can achieve this in 1 year can’t I???
Oh, I forgot to say, my children are 15… almost 16 (about to attempt his switch from DLA to PIP, which I don’t see being successful) and I have an 11 year old, who’s starting secondary school this year. They’re both still under camhs/sen etc. but nowhere near as much appointments as in the past, so there’s no reason I can’t work or study, other than my complete fear of it all going wrong and failing 😭
I’ll be doing the voluntary work/driving this year in preparation for next year living on student finance, hoping I could possibly get some paid work alongside the course once I have some experience and the ability to drive.
All I keep getting told is that I’d be mad to give up our benefits, and it won’t work out (by family)

But I don’t think they understand, I don’t want the benefits, I want a life, and one that I’ve built and makes me happy.
I feel like people think I’m incapable because of adhd/asd, but I can’t see why I shouldn’t be able to change things around if I really want to and work hard enough.
Or is it me that’s being unrealistic?
Sorry about the essay! Need to learn how to be concise!

OP posts:
onlymyselftoanswerto1 · 24/07/2022 15:11

Go for it! I did my access course in my 30's as a single parent and still say it's the best thing I ever did - went on to get a degree, masters and am now doing a PhD in my 40's. My kids were high school age and for the past 10 years have encouraged me to keep going. It will be tough, there's no doubt about it - but take all the support you can get and know you can do it! Good luck 😊🍀

Nosuchthingasover · 30/07/2022 01:40

I’m sorry for such a late reply! Life well and truly got in the way!
thankyou for all the encouragement! I went for an interview today for work experience, for a work placement. I start Wednesday! I’ll be working for our local advice service as an advocate, I’ll be shadowing at first while waiting for checks to be completed (dbs check and another check which I’m sure they said was called a pps check, but I can find no evidence of this checks existence online 😕 lol) my work coach came with me to the appointment which I’m so grateful for.
They’ll provide training up to level 4 in advocacy in return for my time. I’m just so excited about it! This is something I absolutely will love doing. I’ll be working with ex offenders on probabtion.

OP posts:
Nosuchthingasover · 30/07/2022 01:42

So, I’ll be doing this instead of working with citizens advice.

OP posts:

Interested in this thread?

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PetalParty · 30/07/2022 02:28

Congratulations!!!
You are so brilliant and likeable. A real inspiration. Well done!!!

Nosuchthingasover · 07/10/2022 23:09

Just an update.:: which no one is likely to be interested in!… I started the access course, in social sciences, and need to get my uni application in by the end of November (internally)
I have been working at the advice centre (voluntarily) since the end of July, Got a meeting with the boss in just under 2 weeks for a review, but he said that before the review, he would just like to say that my work has been phenomenal and he would like to discuss progress and that salaried positions are available, he did also say “no promises”though, so I shall see what he says at review! I’m absolutely loving the social science course, I’m also doing maths alongside and also an advocacy course (paid for through work)
I am so so very happy!
I just wanted to update really to say to anyone else in my situation to just go for it!
Af the beginning of this year I was in hospital, and sectioned for a short time (a week) Which I haven’t mentioned yet on this thread.
I just want to say…. Go for it. Life can change! And you are good enough ❤️

OP posts:
Rummikub · 07/10/2022 23:20

Well done!! I’m v pleased for you. Good luck with uni application too

Nosuchthingasover · 07/10/2022 23:27

Every pound I lost in benefits was more than worth it

OP posts:
Spookysparkles · 07/10/2022 23:34

Good for you, very brave decision to make.
just be cautious of the finances, as most entry level jobs pay badly and you might be shocked to find yourself worse off. Flaw of the system

SomeSquirrelsAreBlack · 07/10/2022 23:49

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SomeSquirrelsAreBlack · 07/10/2022 23:50

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SomeSquirrelsAreBlack · 07/10/2022 23:52

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SomeSquirrelsAreBlack · 07/10/2022 23:54

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Caroffee · 07/10/2022 23:55

Study through the Open University instead. It's open entry so you don't need A Levels. You won't lose benefits. You can apply for student loans to cover your fees. And yes, you can actually study full-time and graduate in three years. I am an OU graduate and worked for them for years.

SomeSquirrelsAreBlack · 07/10/2022 23:56

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SomeSquirrelsAreBlack · 07/10/2022 23:57

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SommerTen · 08/10/2022 00:01

Good for you OP

JlL2013 · 08/10/2022 00:07

Good for you.

Ignore the dickhead, you've done amazingly well.

GobbolinoTheWitchesCat · 08/10/2022 00:08

Congratulations, op!

Ignore the ignorant and malicious troll - they're talking out of their arse

Antarcticant · 08/10/2022 00:09

That's a wonderful, inspirational update, OP!Star

ladydimitrescu · 08/10/2022 00:15

@SomeSquirrelsAreBlack oh go away

Asparagoose · 08/10/2022 00:21

I have ASD myself. I don’t want to put you off but there are some issues you may want to consider.

I have a postgraduate degree. I’ve also really struggled to get jobs because of being autistic. Employers discriminate. Interviewers discriminate. I’ve been turned down for jobs for reasons solely related to ASD, including not smiling enough, not wanting to shake hands because I dislike physical contact with strangers, not making eye contact, not being good at small talk, appearing nervous or withdrawn, etc. I hadn’t disclosed my disability to any of these employers - they just disliked my autistic traits and rejected me. Even when I thought I’d done a good job at masking and acting normal, they still disliked me. Of course when I replied and said I was autistic they scrambled to make up additional reasons for rejecting me!

What I’m saying is, don’t under-estimate the difficulty of getting hired as a person with ASD. A degree means nothing if employers dislikes you because of your autism. You can have a great degree and still be virtually un-employable because of autism. They will hire a less qualified person who is neurotypical and more personable. They prioritise choosing someone who’s socially competent and easy to work with, above someone with better qualifications. It’s devastating to discover that your 1st class degree is worthless because nobody wants to hire someone with ASD.

There are some employers who are more disability tolerant. Usually big employers like the BBC or the Civil Service. Research job opportunities and employers before you commit to this course of action. Look at their hiring policies, their diversity and disability policies. Make sure you’ll actually be able to get a job after making this huge sacrifice.

Also carefully consider the subject you’re studying and the jobs you might apply for. If there’s any social aspect to the job, pick something else. Even if you think you can do the job - you won’t be allowed to. The NTs won’t want you as a public facing part of their business.

Truthfully - given the high cost of education and the benefits you’ll lose, plus discrimination against autistic people which prevents us getting jobs - I wouldn’t. There are other ways into employment which aren’t so risky.

TheSausageKingofChicago · 08/10/2022 00:23

Only skimmed the thread, so apologies if this has been said before…

I wouldn’t count on losing your PIP/DLA. It’s based on need, not income or occupation. You could be working full time and earning six figures but if you need help and support in the relevant areas you’d still get it. It’s based on how many points you score on the assessment, which doesn’t change if you start studying.

It might not be as catastrophic as you think.

Good luck! Sounds like you are really motivated to make something of your life - and 38 is definitely not too late.

twilightermummy · 08/10/2022 00:33

Aww bless you! I just wanted to say that you absolutely do add to society already; Being a parent /career to neurodiverse children is a tough gig and if you weren’t looking after them, who would be?

I hope all this works for you. I didn’t start driving until I was 34, I failed many times but kept at it because I didn’t want to die without achieving that. I have to say, despite my academic and career achievements, that was my proudest moment so please keep at it when you begin!

Take one step at a time. A year will fly by so be realistic with your time frames and if you slip up a little bit, forgive yourself and continue on. It won’t take much to change your life. Sounds like the social side will give you some light relief also. Good luck!

Hawkins001 · 08/10/2022 00:42

Id like to retrain and go into banking and do a degree in finance

Antarcticant · 08/10/2022 01:00

Hawkins001 · 08/10/2022 00:42

Id like to retrain and go into banking and do a degree in finance

What do you feel is stopping you? I don't mean that in a challenging way, but if you can post what the barriers are, people might be able to help.