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Dd developing a hump what can we do

106 replies

Tigersonvaseline · 22/02/2022 15:41

Doctor has referred her before Xmas and we are still waiting to hear something.
On one side it looks like hers shoulder blade is massively sticking out.
Is there anything we can do?

OP posts:
user1481840227 · 22/02/2022 17:02

Posture specialists seem to be a thing now, I would imagine it's the kind of thing where you really need to check out someones credentials before you go as maybe people call themselves that without having the education to prove it.

But it might be worth looking around for a good one and seeing if they can help in the meantime!

Yubaba · 22/02/2022 17:14

Scoliosis isn’t caused by bad posture or carrying heavy bags.
My DD only had a hump on one side, basically the spine curves and twists at the same time so one side sticks out more than the other.

Yubaba · 22/02/2022 17:20

I’d also go back to your GP and request an X-ray, it would give you a definite diagnosis.
Our GP diagnosed DD initially and then she was referred to the paediatrics ward at the hospital who did the referral to the spinal team, because the gp said it would be quicker than him referring directly to spinal himself.
She was seen and diagnosed within 4 weeks of seeing the GP.

Interested in this thread?

Then you might like threads about these subjects:

godmum56 · 22/02/2022 17:21

@Piglet80

Amazon sell back straps to keep you in a good position.. quite a good idea really
no! don't do anything until she has been seen by someone in a position to say what the problem is. @MyNameIsAngelicaSchuyler is right, if you have to wait, can you get her seen by a decent physio privately?
Maflingo · 22/02/2022 18:44

No-one is suggesting scoliosis is caused by bad posture or bags.
Pretty much everyone has said to follow up with GP first.
Just that IF there is no other underlying reason - like scoliosis - then here are some other things she could try.

HollyBollyBooBoo · 22/02/2022 18:46

Scarily common, you need to really push the GP, get an MRI, sounds like she'll need a body brace to try and correct it.

RandomMess · 22/02/2022 18:58

My DD has scoliosis due to one mid shaped vertebrae and it makes one of her shoulder blades stick out. We didn't notice until she was 13 despite being born with it.

She was given physio and does them to stop it being painful but she's a gym bunny anyway.

A brace can help many abs surgery is really a last resort for severe cases and not to be opted for lightly as it's brutal.

If you can visibly see it worsening I would be phoning the hospital and asking for cancellation appointments and you can come at short notice.

At Alderhay they do a standing X-ray but my friends DD has several wasted journeys whenThe machine wasn't working (she had a brace).

There is a good support group she is part of in the UK, that may help you?

Tigersonvaseline · 22/02/2022 19:00

GP Said they don't do x ray any more

She has to see consultant first then x-ray

OP posts:
Yubaba · 22/02/2022 19:12

Which hospital have you been referred to?

Tigersonvaseline · 22/02/2022 19:38

We don't know!
I don't know who we have been referred to or where.
Assume it's local to us

OP posts:
anothernamedoesntsmellsosweet · 22/02/2022 19:40

My daughter had/has scoliosis. Hers was discovered when she was 3. It was a 45 degree curve and twisted her left side forward. She wore a brace and it straightened out. It's now 12 degrees

anothernamedoesntsmellsosweet · 22/02/2022 19:43

What area are you in. We are sw and the orthos in Bristol are world class

GeorgiaGirl52 · 22/02/2022 20:04

I was diagnosed with scoliosis at 14. Mine was the "candy cane curve" and was treated with 24 months in a back brace. If it is an "S shape curve" it will likely require surgery and alignment with a metal rod. A common surgery (here in the US) and permanent.

The important thing is to get treatment before her growth is completed. After complete growth it is harder to correct.

AleynEivlys · 22/02/2022 20:06

May I suggest Scoliosis SOS? Where do you live? There's a clinic in Bristol and one in London and I think maybe another one or two in other areas of the country.

They're a bunch of therapists not dissimilar to physiotherapists who specialise in a special type of therapy called scolio-therapy. They can assess your daughter using a scoliometer and scan to give you some idea of what is going on with her spine. She will be given specific exercises to do to help decrease and stabilise any curve that may be developing.

My seven year old daughter, who has a very tiny positional curve (they called it pre-scoliosis) and some issues with poor posture, has been attending since around August last year. Her condition is very mild obviously, but her spine is now almost completely straight, and as long as we keep up with her exercises as she grows, she should (fingers crossed) not develop scoliosis.

The change in her body has been rapid and incredible. They help all sorts of people - children, adults, people with huge, severe curves and those with mild issues, like my little girl. They also deal with postural problems as well as scoliotic spines and are truly amazing.

Please check it out. It's pricey but totally worth it.

StringFellow · 22/02/2022 20:14

@Tigersonvaseline

We don't know! I don't know who we have been referred to or where. Assume it's local to us
Ok first thing is I would ask the GP practice to send you a copy of the referral letter so you’ll know which hospital, which team etc.

What exactly did the GP say?

BailOutChapsGingersGornSquiffy · 22/02/2022 20:22

If one shoulder blade is sticking out but both shoulder blades are level (rather than one is lower than the other) it sounds more like a winged scapula, which is caused by nerve damage.
This is treated with physical therapy to strength the muscles.

Tigersonvaseline · 23/02/2022 09:36

Thanks everyone.

Obviously I'm worried about her! She's quite blissfully unaware of looks at the moment but I think this will cause her distress by 16.

She's not on board I guess what I'm sayinylg she can't see it.
Maybe when we actually see the professional it may make her more on board to sort it out if something physical is needed.

It's so bloody tricky!!

OP posts:
RandomMess · 23/02/2022 10:34

TBH DD just wasn't that bothered how it looks. One of the questions asked of her was how she felt about it. Of course for her it was easier as it's not going to get worse tbf.

Laserbird16 · 23/02/2022 10:40

A shoulder blade sticking out or 'winging' can be caused by damage to the nerves to the muscles in the back. It's usually a sign of poor posture/weak muscles. I'd Google winged scapula and that might give you more ideas

Tigersonvaseline · 23/02/2022 10:42

Unfortunately being in her room over lock down probably caused weak muscles etc.

I never noticed it before!
I took her to get a bra, first proper bra and that's when it saw her; I was shocked!

OP posts:
HelenRose1111 · 23/02/2022 11:33

My sister had this, it was noticed by my mum when dressmaking and fitting her dress.
Our Dr referred to Othopaedics and she had a titanium rod inserted to correct it (hers was S shape)
Time was of the essence as if she'd had her growth spurt before correction it would have been a far harder curvature to correct.
She went in to hospital 2" shorter than me and came out 1" taller! I'm 2 years younger.

Please, please, OP ask for urgent referral or pay to get initial consult privately. My sister's was done at Gobowen, one of the leading orthopaedic hospitals and has been incredibly successful.

inheritancetrack · 23/02/2022 11:40

It sounds like scoliosis. She will need a brace

ApricotCrush · 23/02/2022 16:46

They used to check for scoliosis at school, but don't now which is a shame as it's so easy to spot. My daughter was diagnosed at 12 and we had six-monthly x-rays at hospital to compare the progression. Hers is in her lower spine with her waist and hips uneven. Fortunately by the time she stopped growing at 16 it wasn't severe enough to need an operation. We were told that it wouldn't get any worse and she was discharged. She's in her 40's now, has had a child of her own and it hasn't caused her any problems.

An operation isn't always necessary so don't be too alarmed. Hope you get a diagnosis soon for your daughter. Flowers

fussygalore118 · 23/02/2022 17:15

My daughter was diagnosed with scheuermann's disease at 14, had x-rays, MRIs etc.. we are waiting on surgery. Private orthopaedic consultant was great and we are on his nhs list for surgery.

Ferny123 · 17/03/2022 20:12

Hope you managed to get your daughter checked out tigersonvaseline. Both our daughters aged 11 and 13 have recently been diagnosed with IAS and know all too well that feeling of hopelessness while you wait. Date she started her period and Risser stage are important indicators to determine progression. After our initial gp referral we were seen by ortho consultant and then for initial x-ray. Both daughters are braced now and completing a scoliosis specific exercise program. In all honesty we felt let down by lack of scoliosis knowledge by both our NHS consultants but suppose it's up to us to find out all we can and then choose which path we want to take. Not easy so good luck to you x