Anyone else with a chronic illness having a bad day

[Saladcrab]

I’ve got endometriosis I’m in so much pain I’m about to have a bath and hope my morphine kicks in so I can get some sleep before work tomorrow

@BelterDelta I feel a bit of a fraud coming onto that board as my pain is limited to about 4 days every menstrual cycle which is less than the standard quoted 28 days so my pain can be 6 days a month. Every day I have fatigue and sometimes cotton wool head where I feel out of it but not pain every day.

My friend has fibromyalgia, is in a wheelchair and takes high dose codeine every day just to function. That is chronic pain. It feels like I am crying over a splinter in my toe when someone else has had their leg amputated.

@ArabellaStrange

Better but still a total mess. Partner doesn't get how tired I am or how much pain I actually suffer. He'll be like well I am tried too and in pain. And then thirty minutes later will be grabbing my boobs and trying to get me into bed. Which suggests to me that he is not tired or in pain to the degree that I am. He is a huge mess as a person but so am I and I thought may be our messiness would kind of work as we can sympathise. I worry a lot about him dying so that isn't very helpful.. Anyway brain is full of cotton wool and circular saw across the road is making my wrists ache. Does anyone else get noise related pain, it's really quite unbearable. Place I live now is quieter than the last place but still get DIY/building work/car alarms and they are all bad for my pain levels. Can't wear sound defenders in the day, my job is a lot of phone work. Oh well at least I work from home now, have no idea how I used to manage commuting. *@Saladcrab* it sucks it really really does.

I get the noise thing too but I also have tinnitus and nerve damage in my inner ear so that's probably why.

I have to have the tv very quiet and can't wait to turn it down when DH sets off to work. I also have to tell him to be very quiet on a morning as his voice sounds so loud to me and it makes my head hurt when he talks to me so early.

There is no pain threshold for the pain board . Being in agony for 6 days a month certainly is no walk in park. Many of us have good and bad days but we know bad days come around at regular intervals and that affects your life in lots of ways.

But pain is still pain and we all have varying tolerances. Come over, we’d love to see you.

I have Fibromyalgia, costochondritis, hypermobility, asthma, tendonitis, plantar fasciitis & autoimmune inflammatory arthritis and I feel bad when I hear people moan….

EveryBODY is different. As I said on a different thread, the battle these days is explaining our pain to the ignorant.

Not exactly a chronic illness but I'm currently awaiting gallbladder surgery and have had a rough day after a particularly unpleasant gallbladder attack last night. I'm feeling much better than I was at four o'clock this morning, but not back to normal yet. It's shit.

I hope you feel better soon, OP.

Been to the docs today, inflammation in hips and back due to major operation six weeks ago and big reduction in steroids. He's added Pregabalin to the mix. Good grief it makes you feel odd! Here's hoping it does something other than make me feel drunk!

Had a really long day out with family was so painful but had to be brave got home and had a nap but made sure I woke up so I would sleep tonight. Been sick since I’ve been home am not seeing my partner tonight either so feeling a little alone I always get like this when I’m really unwell he’s the most supportive person in the world but when I’m ill I just crave attention I’ve caused myself a panic attack earlier just so frustrated by all the pain. I’ve said yes to 4 extra days at work in august I need the money but I’m so worried about coping I barely cope on 3 days a week at the moment

Feel awful in bed house needs to be tidied but I can’t even get up with out being sick I hate this I feel for anyone of us who has to experience this

Sorry to feel so bad @Saladcrab, no help I’m afraid but sympathy xx

So sorry to all of you.

Long Covid, chronic fatigue and really struggling today. It's so frustrating because I'm 9 months in and little seems to be changing. Just so exhausted today.