Azaylia Cain

[LetsGoChamp]

I can’t stop thinking about this poor little girl. My heart hurts for her family. I know she’s not the only child fighting a life threatening illness but she’s all I’ve thought about today.

Sorry if this post upsets anybody that is familiar with this little girl.

Everyone uses social media differently. People their age are going to post wider aspects of their lives compared to older people whom didn’t grow up with social media, and that’s okay. It’s modern life; their content is not “ghoulish” and they shouldn’t cease posting to appease some random on mumsnet.

They had an outpouring of support - worldwide - which has comforted them. Experiencing tragedy behind closed doors can be isolating, particularly during lockdown. I’m not going to begrudge them if they continue to post.

It’s very sad how poorly Azaylia looks. Life has been very cruel to her family.

@OR101 it was probably some absolute jobsworth who reported them for “breaking Covid rules”.
I for one would be doing the exact same in their situation, no question.

Poor baby girl

@OllietheOwl that is a good point, that happening hadn't even crosses my mind, but now you have said that, I bet you are right, although I hope you're not for their sake, they should be able to enjoy their baby as a family, in the time they have left. Covid shouldn't even figure. And I agree, I would-be doing the exact same thing too. Life is cruel x

Iv just seen the little video the rock did for her their family. It's So sweet. She really has touched the world ❤️

This has touched me too. I find myself silently wishing for a miracle that she will somehow still pull through.
Her poor parents. Such a brave little girl and such a brave family

The latest update from Ash just highlights to me how dignified they have all been throughout this awful journey. They have not only educated themselves about Azaylias disease and always put her needs and comfort first but they always show such respect to the health professionals, even when they have been given the worst possible news. They are all so strong and brave xx

@BurnerPhone Very true, and also despite everything they have gone through and are going through, all their set backs, they've always wanted to and have helped so many other families in the same position. They're always thinking about others too. Just an amazing little family. X

It also highlights to me why they are showing us Azaylia at the moment. Because even though she’s on end of life care, it doesn’t always have to be sad. They don’t have to hide her away when she’s in her bouncer or eating her strawberries. I’ve been amazed at how strong she’s been this past week and I don’t blame them for wanting to show us all.
Praying the poor little mite passes peacefully and in no pain

Id like to take back my first comment about feeling
Like I shouldn’t be seeing her looking exhausted etc. I think it just really upset me at the time but now on reflection it wasn’t a nice comment and I feel awful now.
The whole thing is just so heartbreaking, and if I feel this emotional than that’s obviously the tiniest fraction of what Ashley and safiyya feel. They are all just incredible people

The whole story is heart breaking. Such a beautiful baby girl 😢

I can’t believe how much this little girl has got me checking in on them too, our baby is 6 weeks older then her and I can’t help but squeeze ours a little tighter, I’ve barely put him down last few days. It’s so incredibly sad to watch what they are all going through.

@Wingingthis don't feel awful it's an absolute terrible reality and sadly one that many families face, we have kindly been shown this journey, but there are many other Instagram accounts following children's palliative care from all different illnesses, I think this one has been shocking as she was so tiny and they have reached a much wider veiwer than other accounts that document similar content. You were completely in your right to feel how you thought you did, you wasn't offensive in what you said. Like I said previously I think they post because they're just wanting to treat her like a baby and show her off to everyone while they still have the strength to, and while they sadly, still can. Be easy on yourself xx

The update from Safiyya this morning is just so heartbreaking, I honestly think they are both amazing the way they have managed to put on such brave faces when inside you can't even begin to imagine how they are feeling. So much love for this little girl. Xxx

I honestly don't know where they find their strength. I've not slept properly for days from thinking about her. Still holding out for a miracle 🙏🤞

@MrsDSalvatore I am exactly the same. I know that there is no cure for her but I don't think you can give up on the smallest possibility that someone somewhere has a treatment for her. Azaylia has really found a place in my heart but I also pray for all the other babies, children, teens and adults who are fighting to live because of a horrible disease. Xxx

Every time I think of precious azaylia I cry, I find it so unbelievably cruel that for pretty much her whole life she has had so much treatment and procedurew and because she doesn't know any different all that was just normal for her. I don't think I am explaining myself very well on what I mean but for this to happen to a baby is just so unbelievably cruel xxx

This story haunts as it will (especially) every parent and makes me unbelievably sad - such a beautiful soul of a little girl with the best parents in the world.

Oh those pictures of her on Safiyyas Instagram this morning 💔 she looks so so fragile

My heart breaks for her and I can’t not think of her and cry, how can life be so cruel to put an innocent baby through all this?

I think it haunts me so much because they are living my absolute worst nightmare. They are truly amazing parents, so strong, so dignified. I hope they get some more time with their beautiful baby and that when she does pass it is peaceful.

Witnessing this has certainly demonstrated to me that I must never take my children or life for granted, it is so precious and can change in an instant.

@JLR12 Exactly. I'm hoping that her story reaches far and wide and that someone somewhere sees it and can offer her treatment. I just can't bring myself to believe there's no other options for her, it's too heartbreaking. Yes it goes without saying that I wish no one had to suffer from this horrible disease. My brother passed from it in 2009. But with children it just seems to hit harder. You definitely are explaining yourself properly, I completely understand what you mean. Its cruel and there us just so sense or reason to it

I've just seen saffiyas last story post, she looks so unwell
They are so brave. My heart broke when I saw her singing to her .

Those last posts are heartbreaking. Azaylia looks so poorly and you can see the pain and fear of what’s going to happen in the mums eyes. I can’t even imagine their pain.

Yes, just awful. I haven’t followed in as much detail as some but from what I have seen Safiyya has always held it together pretty well and put a brave face on. In those stories, she just looks broken.

Life is so unfair

My heart is breaking watching the most recent stories. I haven’t been able to stop thinking about Azaylia all day.
Ashley has recently posted a video of her playing. It must be so, so hard during this period. I imagine there are moments of pure torture but still moments of happiness.
I have nothing but the utmost admiration for Saf and Ash. They deserve a medal for what they’re going through.