Azaylia Cain

[LetsGoChamp]

I can’t stop thinking about this poor little girl. My heart hurts for her family. I know she’s not the only child fighting a life threatening illness but she’s all I’ve thought about today.

Sorry if this post upsets anybody that is familiar with this little girl.

@Gottashiftit couldn't agree more. Lots of emotions, it could be anyone at anytime that gets dealt this hand

It’s really hammered home with me today, to the point where it’s stopping me doing my work, sleeping properly etc. It’s so gutting to think so many people would do anything to help save her and all the other children fighting yet we are powerless. Seeing how much support they have is beautiful though. Hope you guys are all doing ok xxx

It’s just crazy to think that in 2021, this baby will just continue to deteriorate and suffer until she passes away. I know they’re making her as comfortable as she possibly can be but it just cruel all around

It’s so heart wrenching.

Such a beautiful little girl such incredible love and devotion from her family if only this was enough

Such a cruel cruel world at times

@Hyacinth88

It's so sad for them all. However a few things they've said don't quite make sense to me I have a bit of oncology experience through work. However that's. Pretty irrelevant. Poor baby

Such as?

@Hyacinth88

It's so sad for them all. However a few things they've said don't quite make sense to me I have a bit of oncology experience through work. However that's. Pretty irrelevant. Poor baby

Just out of interest - what bits don’t make sense? I have no experience with this kind of thing!

"Needing a blood transfusion because her tears were blood."
" the hospital won't do anything not even a blood test."
I'm not suggesting these things are made up maybe misunderstood.

I thought it was a platelet transfusion? If this makes any difference. I’m not sure about the blood test thing

Hi everyone, is anyone feeling depressed and down because of seeing Azailya unwell? I know her family are being so positive and that makes me feel like I need to pull myself together as I don’t know even know them! However Azaliya is the first child who has ever touched my heart after my own children which is so rare. I don’t know what it is about her, she’s so innocent and sweet and vulnerable and seeing her unwell is making me just want to spend time with my children only and not see friends or go out as much. Trying to make each day special for children right now too more than ever as I know I’m so lucky to have them. We had some lovely stories and laughs before bed which was lovely. I’ve always hated seeing children unwell or suffer and this is the first time I’ve seen a small baby unwell so maybe that’s what it is.

Thanks for this thread x

Honestly my mental health has deteriorated these past few days.

I think of her I burst into tears every second... her face gets me all the time.. her strength..such a fighter..she just tries to get through it despite all..

I'm hoping they can try alternative treatments just as a last resort.. anything at the moment just to try...

I just feel so so sad

It’s sad seeing the sharp change in her face and her smaller range of movement/activity since her relapse etc

I have never seen the reality of a severely unwell baby before and it is harrowing

@Hannsmum

Honestly my mental health has deteriorated these past few days.

I think of her I burst into tears every second... her face gets me all the time.. her strength..such a fighter..she just tries to get through it despite all..

I'm hoping they can try alternative treatments just as a last resort.. anything at the moment just to try...

I just feel so so sad

It's probably best you stop checking their socials and take some time away from it

@Hyacinth88

"Needing a blood transfusion because her tears were blood." " the hospital won't do anything not even a blood test." I'm not suggesting these things are made up maybe misunderstood.

They've never said it's a blood transfusion. And I think the reference to no treatment probably meant the hospital aren't trying to treat her, just provide end of life care.

They said that the platelet transfusions were to stop her 'bleeding out' because they 'don't want her to go that way'. I guess they mean they don't want her to die of internal bleeding, but I don't know the ins and outs, just what they have said.

She is definitely not having any more active treatment.

Absolutely, I feel guilty for doing normal things. The drive to the nursery, working, I went to the gym tonight for 2 hours just to feel physical pain instead of mental anguish but to be honest they were on my mind the whole time.

I Tried stepping back but couldn’t, because my head was making me go to extremes and be so sad, when actually seeing the love and positivity from Ashley and Safiyya has been a beautiful lesson. I actually cancelled my birthday plans because I felt so angry with the world last week. Seeing other celebs who personally know the family on Instagram go about their usual selfies, flogging products, laughing etc really got under my skin. I guess there’s no right or wrong way to react, we are obviously empaths who feel and carry the pain of others. Sorry you are struggling too, the ripple effect of this disease knows no bounds. Xxx

I think they meant the hospital won't do anything, even a blood test as in the hospital won't be monitoring her obs because it won't tell them anything they don't already know. All treatment has stopped, including tests. Platelet transfusions and even blood transfusions would just be to make her more comfortable and to prolong her time.

I have a lot of oncology experience and everything they’ve said makes sense to me.

I’m so glad this thread exists and to know I’m not the only one feeling very down at the moment. I have sobbed a lot over the past week and said to my Husband I just cannot understand how in this day and age there is no more that can be done for her:
I remember how ecstatically happy the family were when they raised the money for Singapore, imagine the high they must of been, raising all that money and believe their baby can be saved, to be told just days later they can’t even go anymore to have the treatment. Its just awful, horrendous.
I’m not religious but every night before I go to sleep I say “Please God. Save Azaylia” x

@Hannsmum- I’ve been hoping/praying alternative methods might help her too. I don’t know they’re using any but I just want her to get better 😞

@Cinderellashoes

I have a lot of oncology experience and everything they’ve said makes sense to me.

Thanks for saying that.

It's pretty shitty for someone to come on here and claim they have 'a bit of oncology experience' to question the parents somehow. The baby is very obviously incredibly unwell and to imply the parents who are already grieving are lying in some way is horrible.

I don’t know what parts of it wouldn’t make sense to be honest, even if you did only have a small amount of experience.

Palliative care and end of life care means doing no harm, NOTHING that would take away from what the child has. They won’t do blood tests because it doesn’t matter what the results are. They will treat symptoms (ie, bleeding with platelet transfusions, or pain with analgesia)

Also if you are struggling you need to take a step back to protect your mental health. Trained professionals struggle with this and we have counselling and debriefs etc to give us some closure. Crying at things isn’t normal or good for you and your families. It doesn’t mean you don’t care if you don’t look at Instagram every day.

@Hyacinth88 unless you’re a consultant oncologist get out of here with you’re limited ‘experience’. This is not the right time.

It's pretty shitty for someone to come on here and claim they have 'a bit of oncology experience' to question the parents somehow

Agreed. Not sure what point the pp was trying to make with that one?