Page 20 | Azaylia Cain

LetsGoChamp · 2021-03-28T20:23:29+00:00

I can’t stop thinking about this poor little girl. My heart hurts for her family. I know she’s not the only child fighting a life threatening illness but she’s all I’ve thought about today. Sorry if this post upsets anybody that is familiar with this little girl.

kirinm · 19/04/2021 08:31

It's very hard to read how unwell she's becoming. I can't imagine anything more cruel than watching your baby dying. I'm pleased she was able to have some playtime and I just wish her and her family as peaceful and pain-free time as possible.

gratefulmum1 · 19/04/2021 11:10

Hi Everyone,
Thank you for starting this thread, I have been looking for a community to share this pain with, relating to this story. It's been such a tough experience for the world to see her journey and the fact it is a tiny percentage of what her family are feeling right now is beyond comprehension.

My best friend died when we were children of Leukaemia and I saw her the week before she died. I will never ever forget it. She looked very different but was totally aware of my presence. Not many people in this life get so close to the death of a child and I just wanted to pass on from my experience that though there are very tough times, there are also some lovely times to be had. The one saving grace here is that this beautiful baby is not old enough to comprehend what is happening and all she knows is that her family never let her down and they are always there. Whilst we all love our children, Azaylia is experiencing the highest love possible from those around her. Her extended family are a constant presence in their household which is beautiful for her and her parents. I have worked on maternity wards, my sister is a childrens intensive care nurse and my brother is a doctor and talking to them about this situation has helped and they have given me inspiration on how we can help, as a community of people touched by their story but not physically knowing them. (I have done and will continue to do the below)

Send her family a message of support (Whilst they won't have time to read them all now it could help them later on)
Set up a monthly donation to Leukaemia research or a relevant charity (No pressure if you aren't financially able, even sharing a post on social media can generate funds for them)
Donate to Azaylia's Go Fund Me which is going to help other children in the future
Sign up to DKMS (Or Anthony Nolan) to be on the bone marrow register
Sign up to organ donation
Sign up to start giving blood to the NHS to help with these all important transfusions
I Sent a video of my daughter dressed as a Lion for the doorstep clap video to the cow shed social email address they set up to make a beautiful tribute video, I don't think it is to late to send
Look at how we can support the aftercare services available for those who have lost children, counselling etc
Support local palliative care teams, including mental health support for those workers who sadly see these situations on a daily basis
Use every ounce of compassion and love we feel towards this little girl and project them onto our own children or children who are in our lives
Keep them in mind for future fundraising efforts

I hope this post is helpful. Wishing you all strength and love today and may Azaylia be pain free and comfortable for as long as possible. Ashley and Safiyya and all your family, if you ever come across this post - we love you. Thank you for sharing your daughter with us and teaching us lessons we otherwise may never have learnt.

withpeaceandlove · 19/04/2021 11:55

@gratefulmum1 thank you for that post and for sharing your experience, I have already done some of the things on the list but will be sure to set up a monthly donation!
Your family sound incredible as well by the way, like they are helping a lot of family's just like little Azaylia's who are going through unimaginable pain.
Safiyya has posted that they've had a lovely morning and that Azaylia's had a nice bath and is going for a nap now, I'm so glad they're surrounded by family support at this tough time.

gratefulmum1 · 19/04/2021 12:03

Thank you for such a lovely message, so many people pulling together - I have never known anything no like it - even though the pandemic! It’s beautiful. And thank you for the kind words for m family, I think the world of them and I know they have been a rock for other families.

I just saw that post, she looks very content and there’s a house full of love, it’s very comforting and wonderful to see 🧡 Let’s Go Champ!

kirinm · 19/04/2021 12:42

Devastating to hear how laboured her breathing is. I can't get over the strength of her parents.

Skittles98 · 19/04/2021 12:43

Oh my god, the last update broke me. Her breathing sounds so laboured. I hope she is not in any pain.

I'm crying. Why is the world so fucking cruel.

gratefulmum1 · 19/04/2021 13:39

Bless her, Her breathing is loud but from a medical point of view it doesn't represent pain for the patient. It's often more distressing for those hearing it as it doesn't sound natural but there is no evidence it is linked to any discomfort. (That was from a nurse on a post I saw, thought it might provide some comfort) xxx

MumToBe1980 · 19/04/2021 13:56

Aw she is having cuddles with her grandma, what an amazing family and a truly amazing little girl.
I'm so glad she is not aware of what is going on, hopefully she is just enjoying lots of love and cuddles. Life is so cruel, my heart is breaking for her.
Thank you beautiful Azaliyah for showing us what is important in life, love, family, good friends and health. This has truly changed my outlook on life, I have played and hugged my babies much more, spent time watching them sleep, talking and playing with them, taking in every little moment, because that is what life is about.

Praying for you sweet princess, I'm so glad you are making beautiful memories with your mummy and daddy xxx

kirinm · 19/04/2021 14:58

Her little face 🥰. I'm so glad she has been able to open her eyes.

I have a friend who works in paediatric palliative care and I knew it was likely to be a very difficult job but it is only having seen Azaylia's story, that I appreciate how traumatic a job it must be.

OllietheOwl · 19/04/2021 15:09

I have just booked an appointment to give blood I’ve done it quite a few times before but not since having DC and this has given me the kick up the bum to get it booked.

I’m so pleased to see she is having cuddles with her nanny and her daddy today.

Can anyone with palliative care experience answer a question for me? The doctors gave her only 1-2 days to live. She’s still fighting two weeks on. Is this typical? I guess a part of me has a tiny glimmer of hope that maybe they got it wrong? Would there ever be a case to bring her back into hospital and try more treatment?

It’s just so hard to accept there is nothing more they can do for her

Original poster

LetsGoChamp · 19/04/2021 15:15

So grateful for all the messages today. Being totally honest I’ve spent the last hour crying my eyes out. My DS is with family today as I’ve been working and I’m glad to have some time to just let it all out.

I want to scream at the world because it’s so unfair. She is so beautiful and deserves to live a long and happy life. She has truly taught me so much about myself, and I can’t wait until my baby comes home so I can cuddle him and tell him how wonderful he is.

I wish there was a way to help her. I really really wish, and hope, and pray.

Thank you all for still being here. I am as always, sending my love and strength to the ones truly suffering, Azaylia, her family and any other families doing through this.

We love you little lion 🦁 🧡

OP posts:

withpeaceandlove · 19/04/2021 15:39

It's very sad that they're having to address fake Facebook pages that are scamming people into sending gifts and such. They already have the weight of the world on their shoulders, I'm so angry on their behalf. Some people just have no morals. I hope they can now put it to the back of their minds and focus on darling azaylia, the good people who are genuinely moved by this far outweigh the awful people taking advantage.

lobster12 · 19/04/2021 15:47

It's lovely to see all the tributes around the world raising awareness for childhood cancer and the plane was very touching. I'm still praying for a miracle that she'll get better. Azayliah is so beautiful and such a fighter. Her family are amazing and so strong.
I hope this thread is read by them one day and they take some comfort that so many people who don't know that sweet baby love her very much.

lobster12 · 19/04/2021 15:49

@withpeaceandlove

It's very sad that they're having to address fake Facebook pages that are scamming people into sending gifts and such. They already have the weight of the world on their shoulders, I'm so angry on their behalf. Some people just have no morals. I hope they can now put it to the back of their minds and focus on darling azaylia, the good people who are genuinely moved by this far outweigh the awful people taking advantage.

God that is awful 😢 some people are vile.

OllietheOwl · 19/04/2021 15:56

@withpeaceandlove The Facebook page is run by her grandmother though, right? Are they saying they don’t endorse that one?

withpeaceandlove · 19/04/2021 16:44

@OllietheOwl they've said that they don't endorse any Facebook pages and the only sources of info are Ashley and Safiyya so maybe it's fake? I've not seen it so couldn't say for sure

Mugginyouleftrightandcentre · 19/04/2021 16:49

The FB page is run by Safiyya's mum, who is very active on there, but it looks like there are family issues.... Its the last thing they need right now on top of everything else.

BurnerPhone · 19/04/2021 17:02

I knew something was off about that Facebook page but I find it so sad that it probably means the family are not all getting along right now. Obviously nobody knows what goes on behind closed doors but seems so sad to be rifts in the family at this time. Sending love to them all x

BashfulClam · 19/04/2021 17:06

This is the reason there is no god! If there was why would they do this to a beautiful innocent baby?

goldielockdown2 · 19/04/2021 17:57

I'm not religious in the slightest, but God isn't supposed to be a person so He doesn't do or allow anything....some people find a lot of comfort in faith at times like these. I don't find all the 'there's no god' comments respectful or helpful at all.

Cinderellashoes · 19/04/2021 18:40

@OllietheOwl as much as I’d like to say differently they haven’t got it wrong. This disease is unpredictable. I’ve know not them say maybe a month and it’s been days. I’ve also known them say a day and it’s been a month. It’s so so sad.

Kate3150 · 19/04/2021 18:58

I pray for a miracle for that gorgeous family every night when I go to bed. She’s a fighter, let’s go champ 🧡

Butterfry · 19/04/2021 19:57

Seems like the nan started a Facebook page with 150 thousand followers against their will.

The family have asked people block it. It all turned a bit nasty with the nan claiming they won't open the door to her, filming herself knocking on their door and dumping a load of gifts on the drive ( and subsequently revealing their address). The nan made a comment about family rifts and that she was upset they had aired them in public

I've left the Facebook group now

withpeaceandlove · 19/04/2021 20:01

@Butterfry wow that is a terrible thing to do with all they're going through, makes me admire their strength even more

OllietheOwl · 19/04/2021 20:06

This is just awful - as if Ashley and Safiyya haven’t got enough on their plates. I thought the Facebook group was weird. It was like the grandmother was more involved with posting and adding people on social media than actually seeing her granddaughter. Some quite personal shots posted to 180k people! And giving out her address too. Very strange.
I’m sure the last thing A&S need is all that unwanted attention. I really hope the grandmother shuts all the social media groups down now and this can blow over.