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Original poster

Anyone up? feeling really shit after another ambulance trip with dear ds

37 replies

colouringindoors · 06/05/2020 00:25

He blacked out on swing (I wasn't there) flew and landed on head. Unconscious. Woke to severe neck pain and loss of sensation and movement in legs. Already had no movement for last week due to functional neurological disorder of 18ths resulting from ptsd.

I cant keep doing this 😔

OP posts:
Original poster
colouringindoors · 06/05/2020 00:26

my head feels like its exploding

OP posts:
UhKevin · 06/05/2020 00:26

I have nothing to say to help but wanted to offer Flowers Brew

Original poster
colouringindoors · 06/05/2020 00:28

I want to walk out the front door. But I can't get off the sofa

OP posts:

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Original poster
colouringindoors · 06/05/2020 00:29

thanks x

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Original poster
colouringindoors · 06/05/2020 00:30

just rambling a bit cos I don't know what to do with myself tonight!

OP posts:
Luckingfovely · 06/05/2020 00:31

It sounds horrendous, and also as if you have been through an awful lot already.

For now, just focus on breathing, in and out, slowly. Deal with everything else tomorrow. You need to rest and deal with this first before processing anything else.

Hugs x

Luckingfovely · 06/05/2020 00:32

How old is he? Are you on your own or other family members there?

ThisTooShallPassHopefully · 06/05/2020 00:33

What a rough time you're all having. Flowers
How old is your ds?

You can do this though, because you love him. You might need to pause and gather your thoughts, or howl in frustration, but you can do this.

Original poster
colouringindoors · 06/05/2020 00:34

xx he's 11 and lovely. kids in bed. separated from OH after 10 years undiagnosed bipolar (part of ds ptsd)

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Original poster
colouringindoors · 06/05/2020 00:34

thank you x its been do hard for so long. second 999 and ambulance this year

OP posts:
NeverTwerkNaked · 06/05/2020 00:35

Sometimes everything feels like it comes at once. Just take it a minute at a time for now.

Luckingfovely · 06/05/2020 00:37

Everything that is hard is made to feel so much worse at the moment because of lockdown and all the other worries associated with it.

Almost everyone I know admits to feeling overwhelmed and low at times, even with nothing major going on.

You have got this far, with serious challenges, and you will be fine. This too shall pass. But it's okay to feel totally exhausted and broken at the moment.

Original poster
colouringindoors · 06/05/2020 00:39

its been 10 years. Its calmed down with ex DH but seems to have switched to ds. Nearly drowned in Jan, nearly paralysed last night

OP posts:
chunkycoke · 06/05/2020 00:39

Sorry you’ve had such a bad timeFlowers have a relax now, breath and maybe have a cuppa

Original poster
colouringindoors · 06/05/2020 00:39

thank u for posting x

OP posts:
Luckingfovely · 06/05/2020 00:43

Try and remember the positives - both were terribly scary accidents, as are fairly common with children, but he is fine.

He has you, and you sound like a totally loving and engaged mother, and that's all he needs right now.

I know what it's like to feel you can't go another step - and all I can say is, just stop. Just for a moment. Give yourself a break and breathe. Try anxiety techniques if any help you. Just be kind to yourself, and don't ruminate too much on worst case scenarios.

Paperdolly · 06/05/2020 00:46

Sending a virtual hug. ((0)). Your son is so lucky to have you. Life is sometimes very c*#p and you need a good sob! Go for it. Try to get some kip because who knows what pleasures tomorrow may bring into your life. 💐

Original poster
colouringindoors · 06/05/2020 00:47

thanks so much mums xx really appreciate your kindness xx going to try and go to bed x

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Luckingfovely · 06/05/2020 12:19

Hope you are feeling better and stronger today.

spiderlight · 06/05/2020 12:24

Oh bless you - that must have been terrifying. My DS had a swing-related accident a year or so ago, landed on his back from height and said he couldn't feel his legs, and I still remember the utter, utter terror of those few seconds before his shock wore off and he was fine. My heart goes out to you, it truly does. I don't know much about FND - is he having any treatment?

Puddlelane123 · 06/05/2020 12:31

Hope you managed some sleep last night OP and have recovered from the shock of yesterday.

Is your son still receiving appropriate CAMHS support through lockdown? Or having access to play therapy or similar?

Original poster
colouringindoors · 06/05/2020 14:34

lucking thanks. kids are with dad now so have some peace. Feel totally wiped out. Head hurts when I try and do any thinking.

OP posts:
Lynda07 · 06/05/2020 14:36
Flowers How is your son?
Original poster
colouringindoors · 06/05/2020 14:37

thanks spider sorry to hear u had such a scary time too. Treatment for fnd is v thin on ground and contentious dep on speciality of consultant. He did have some private trauma therapy last year which helped, but still regular episodes.

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Milbo · 06/05/2020 14:37

Have you managed to find a doctor with experience of FND? It made the world of difference to my DSis and she has now recovered, thankfully. She was treated by a neuro, psych and neuropsychologist but it took a look time to access what she needed.

A huge handhold for what you’re going through, it’s so tough 💐