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Chat for those who are shielding

956 replies

AuntieSocia1 · 22/04/2020 16:06

Apologies for the very unsnazzy title but as it suggests a place to chat for those who have to shield at the moment. A few of us have been talking on the the Shielding after lockdown thread in the coronavirus topic.

Thought I'd put this in chat as some days I'm guessing we'll want to chat about anything other than coronavirus!

I know all of our circumstances are quite different as well as the reason we need to shield but it's a pretty big thing to have in common. Despite my username I look forward to interacting with you and as my username suggests I might also slink off from time to time!

OP posts:
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MarieVanGoethem · 14/05/2020 05:34

Apparently my brain’s new spin on please enjoy dreaming of dancing because you can’t any more is remember pas de deux? let’s dream about that... & maybe a little bit of rep - let’s focus on parts where you’re Uncomfortably Close to other dancers - for good measure... you know, so you can wake up & be sad about No More Ballet AND Lack Human Contact. Thanks brain. Helpful. I mean, in the moment it’s almost nice to feel myself dancing again, but... owch... (I know it’s a completely ridiculous thing, but it’s currently stopping me from sleeping, so there we are Blush)

Well I’ve certainly distracted myself, but on reflection, possibly not my finest plan. Now need to do migraine injection & curl up in ball of self-pity & photophobia. Fail, self, epic EPIC fail. Hope that Thursday treats you all with some common or garden decency. And ideally cake. Cake is good.

@brainstories568
Trying to make sure your baby doesn’t have to grow up without you is being an awesome mum.

@Redcherries
I’m choosing to believe that is the actual name of your dog’s food. It would be refreshingly honest, if nothing else. Not surprised he wasn’t on for the extreme diet option...
Love the sound of your experimental!garden - you’ll tell us how it grows, won’t you?

@OneNightTimeMenaceStrikesBack
Hope they can get your dosing sorted out: trying to get that organised must be stressful in & of itself.
I’ve a Tesco shop coming tomorrow too. Really sodding expensive. I normally do the occasional online shop for big/heavy stuff & then wee shops as needed. Can’t seem to get any basics range stuff atm & I can’t accept subs as I’ve food allergies so I’m ending up with an expensive weird mix of things. Good luck with your shop...
Your GP surgery should be able to resend you another copy of your shielding letter. The amount of help being offered does seem to vary rather depending on where you are though - some people on here have had nothing; I’ve had my GP surgery call me to check I’m doing ok; I’ve had an email to signpost me to local services; & my local council have called me to check on me. (I’ve also had food boxes in error, but managed to get them stopped).

@outnumberedwoman
I’d no joy arranging to get this week cancelled I’m afraid: will keep trying though...
Luckily - well, relatively speaking - I’m not well enough to work so me sleeping most of the day didn’t matter. Other than that I didn’t manage to eat & drink enough due to said being asleep. So luckily in sense I’ve not to worry about work - but for avoidance of all doubt I’d much rather be well enough to be working. (Don’t THINK the lack of mental stimulation is what’s caused my brain to literally atrophy, but...)
That’s v frustrating re: schools for your wee lad. I suppose the good thing is that starting P1 somewhere you know, at least, is better than it being somewhere totally new & strange - & he’ll be ahead of some of his peers in at least having a diagnosis so the school might be able to start from there at least. And Stormont have now remembered that they’ve a part of the UK to run & a strop over [not] using the Irish language does exactly nothing to help the people of NI so while COVID-19’s going to take a lot of focus for obvious reasons they should also be sorting out all the things that were stacking up while they were off in a sulk.
Imagine that the clergy felt they’d to dress for the occasion Zoom-call wise. Presumably not full crook & mitre for the archbishops though, pleasing as that would be... suppose they’d worry their flocks might be Shocked And Appalled if they saw them underdressed. To be fair I remain a bit scarred by my Confirmation catechist wearing jeans & sweatshirt on our weekend away. She’d still her veil on, but it was deeply disconcerting & Just Quite Wrong. Can’t have semi-stealth nuns going about the place, it upsets the natural order.
That’s hard about the checkpoints. And not being flippant, in some circles, just there being checkpoints will cause... discontent. Even with it being very different circs & different people on them. Speaking of PSNI, feel they took policing by consent to a whole new level with this business where a whole load of officers decided to “work from home” for a few weeks. Amazing.
On supermarket front, I know that sometime mid-late April there was still no list at all for supermarkets in NI to work from - my relatives who’re shielding are mostly relying on neighbours to get their messages for them & they’ve a couple of small businesses locally who’ve started delivering to them. But that’s another one where people in the border counties will be harder hit, isn’t it - if you usually do [lots of] your food shopping in the South as your closest supermarket is there (& maybe you work there so your paid in € as well) then that’s another change to make at a time where you’re needing some stability.
Oh pet - you’re not a failure at all. Am sure your DH only said what he did as you’re all worn down at the moment. You’re also not at all to blame for the issues your DC2 has: & you’re getting them the support they need as far as you’re able which is never easy. Nobody can watch a child every moment & it will always be the instant your eye is off them they manage to do something spectacular & in an extraordinarily short space of time. Do you think it would be worth looking into bodysuits for your DC2 to stop him from taking off his nappies? There are lots of varying designs but with the basic aim of stopping older children & adults who wear nappies from being able to either get their hands into the contents or to remove them themselves. They’re not all as prohibitively expensive as they used to be either & they tend to be designed with children with sensory issues in mind. I mean, obviously I hope he’s not one for acting the maggot on the nappy front, but maybe something to consider if it turns out he thinks it’s a great game? Am really sorry you’ve been so upset: a bit of a toppling-Jenga-tower of a horrible thing.

@NervousInYorkshire
Ooh, sunflowers. Nice. And hurrah for feline company - I have excellent conversations with my cats. In normal times it’s usually just me & them most of time - though my brother moved back here at Christmas his job means he leaves at 0600 & gets home 2200-2300 most nights & spends lots of weekends buried in libraries/archives or at meetings. The cats are feeling very proud they’ve finally managed to train us into staying at home & me into not leaving the house at all.
Re: sudoku compliance - be subversive, do a crossword. That’ll show them...

@kirstinm
Good. Grief. I know there have been cases of people being tricked into handing over money but I think your Council has, like so many others, got the 70+ vulnerable group & the extremely vulnerable shielding group mixed up. (And ofc lots of people in the 70+ group would be hugely offended at said letter as well, because they’d have taught people the age of those responsible for the letter about not letting randomers into the house & to ask people for ID & to basically Trust Nobody etc). Also, it’s not tremendously helpful of them to send a letter to suggest that people are basically under threat in their homes that they can’t (if adhering to guidelines) leave. Saying they’ll visit if you don’t contact them after all that Stranger Danger stuff isn’t exactly reassuring either - how on earth would people know if someone really WAS from the Council, it’s not like their ID is very sophisticated. And whole flipping point of shielding is that we’re not meant to be seeing people. Am actually really cross thinking about how many people that stupid letter will probably have really upset & worried now. Is it beyond them to make a phonecall? My crazily under-resourced Council has presumably managed to ring the several thousand people shielding in the Borough if they rang me. Jesus Mary & Joseph
Will you let us know what response you get to your complaint? I know that These Are Unprecedented Times, but if we don’t provide feedback & criticism (which I mean in fullest sense) the bodies responsible can’t actually know if what they’re doing is helpful/useful/making people want to throw things at them.

@Egghead68
Hope you managed your walk after your trip to A&E (& that latter didn’t take too long).

@ClientQ
Excellent news on the car & hope bloods go ok. On Starbucks front, you do need to consider that you’ve found you HAVE to take your car out regularly... Halo

@TitsalinaBumSquash
Am sorry you’re having such a rough time. I’m starting to think it feels a bit like being trapped in an endless Fifth Week. Always Fifth Week, never Mays... Am really sorry you’re having to deal with such selfish neighbours on top of the shielding stress. And indeed overconfident rodents. Which presumably nobody is dealing with at the moment Because Pandemic. Where’s the Pied Piper when you need him?

@KatyMac
Am so sorry you & your DH are stuck like this. Is his consultant not able to add him to The List given the circs? Are you able to get hold of his respiratory physio for advice on how to improve his mucus clearance - if you’ve not already been trained they should be able to send you instructions on correct methods for basically beating it out of him in combination with his usual postural drainage & The Special Cough & steam-cleaning-if-he-can-do-it [& presumably he has a flutter]. Wonder if they’d be able to arrange the loan of a vest for him? Must be insanely frustrating for you, am so sorry. Especially as sounds as if your GP isn’t very helpful/isn’t working well with hospital. Flowers

Egghead68 · 14/05/2020 07:25

@MarieVanGoethem thank you so much for thinking of and responding to us all. I hope you got some more sleep and that your dreams were all happy ones.

Sorryoo · 14/05/2020 07:33

ACTING THE MAGGOT! I've not heard that for years! Now I have memories of acting like a bold girl and these days the state of my house makes me a slut (according to my MIL which should cheer Irish people up Smile)

Yes this week should definitely be cancelled. It can fuck right off, frankly. Especially those of us with DC that are hard work and those of us dealing with loneliness and the work worries and financial worries on top of health worries. I hope I've covered us all there! I'm sorry I can't namecheck everyone but I prescribe Ginall round and Brew for those that don't drink. (That's me and oh boy am I ever tempted to restart).

Marie I also have epilepsy. Because my op has been cancelled my GP has prescribed tramadol and I've had to weigh the risk of seizure versus the pain - but it's stopping me sleeping which is a trigger plus it hurts so much I've gone for the drugs. It's a worry though especially as I have had to go to A and E for injuries before now.

The easing of lockdown has me really worried I admit. I know it's a contentious issue and other people can't live like this for ever but I think the government's failure to take action earlier is going to come back to seriously bite them, and us, on the arse. I've made the decision mine won't be going back to school in September (we got an email from the HT heavily suggesting it will be January before the necessary alterations to the school eg extra toilets will be in place).

Everything just feels too worrying atm and there are too many hours in the day.

PS I've brought my coffee outside and there is frost on the tent this morning Hmm Frost! WHY THO as my DC would say!

TitsalinaBumSquash · 14/05/2020 08:29

Thank you so much for the kind words. Today is a new day, I'm going to get dressed and do something, probably tidying and sorting but it's something.

The kicker with housing is that we have a house waiting for us, we were in the process of viewing to see if it needed any adaptations and the OT was going to sign off and then get the transfer process going. I figure if we can't use this current garden anyway I can clear out and sort things and store it out there for when we can move and then it's closer to the gate to all go in a skip.

I'm not sure what to do with the kids, they'll do their school work but after that they've been going straight on mine craft for hours on end and are starting to get ratty, stiff and low.

Potentialmadcatlady · 14/05/2020 09:19

Hi, can I please join.. we having been in shielding since middle of March to keep my DS safe... single mum with two adult teens in house including my DS...
I only just found this thread.. some of the other threads are just to hard now as people look forward to getting back to ‘normal’ and are being bitchy about those who are still concerned..
We have also had the sort of week that I would rather just cancel but today I’m going to try and be constructive in our tiny garden to try and push through.. our routine is out the window apart from feeding the cats ( who tell me exactly when it’s their teatime etc), too much Netflix, too much gaming but at least the youngest is still ‘attending’ his college online so he does have daily study to do...

Egghead68 · 14/05/2020 10:09

Welcome @potentialmadcatlady!

I am glad you are feeling more positive Tits. That is a bummer about your house but maybe there will be a bit of movement now some restrictions have been lifted.

Redcherries · 14/05/2020 10:30

Morning All.

Lovely catching up with the thread, @TitsalinaBumSquash that sounds like a good plan, fingers crossed you can get into the new house soon.

My husband has just starting receiving the shielding texts from the gov, he absolutely doesn't need to shield and I registered under my phone number so I'm not sure whats happened there, I think the Drs have his number on my records so I think it must be that.

Welcome to the thread @Potentialmadcatlady. Its hard isn't it, seeing people talking about some normality returning and the comments about those who are concerned. I love the ones that point out shielding is a choice, yes it is, but when the alternative is the risk of being extremely ill, potentially life threateningly so its doesn't feel like much of a choice really.

Not sure what todays plan is yet, waiting to see if we will receive the bounce back loan which will help hugely with stress, theres no reason we shouldn't but some people have been refused with no understanding of why.

I need to do some studying, should really clean the house mmmm

kirstinm · 14/05/2020 10:34

@potentialmadcatlady welcome to the club that no one wants to be in ;-)

Repeated mentions of 'the vulnerable' in other threads is needling me this morning...I realise this is a bit unreasonable of me but its an unhelpful term which reinforces the universalising stereotypes we were talking about yesterday and also comes with a side order of Princess Di concerned head tilt... where you know they are simultaneously thinking 'what a bunch of sad no-hopers they'll be either dead or staying in till 2026' and 'thank god it's not me'

kirstinm · 14/05/2020 10:38

@Redcherries What do you study? I'm a student too!

Also re. the 'they're staying in for their own good' school of thought...of course we are to an extent but it of course suits the government very well if we aren't out and about and risking over-running the NHS

Redcherries · 14/05/2020 10:54

Dear lord, I've just read a comment stating that the poster wasn't going to restrict there life to protect the vulnerable until things had been put in place to protect us properly, have they even looked at the things we are being asked to do! What more can be done other than ship us all off to an island.

Anyway, I might start avoiding all threads except this one and obvious light hearted stuff.

I'm studying interior design @Kirstinm Its with KLC school of design which is the leading school for design in the country, its way more indepth than I expected but you do come away at the end with letters after your name ;) hard to stay motivated though. What are you studying?

Haenow · 14/05/2020 11:09

The othering of us is horrible. We are a diverse group of people. You are all worthy humans. Flowers it’s nice to see us supporting each other through these times. It’s threads like this that remind me there’s so much good in the world.

I saw this on Facebook and thought it was apt for this thread.

Chat for those who are shielding
Potentialmadcatlady · 14/05/2020 11:20

Ta Guys... Redcherries that exact thing has already happened to me.. I was basically told by a ‘friend’ ( won’t be one going forward) that taking my dog for a walk was more important than shielding my son because the dog would get depressed... I was extremely reserved in my reply... some of my other friends ( who will be my friends going forward) were not so reserved on my behalf which was nice in a strange sort of way...
I think next month will be the hardest tbh.. things will move on and we won’t and that is when things will get extremely hard for my teens...

ClientQ · 14/05/2020 11:56

Blood tests all done. Have discovered Starbucks drive through is back open GrinGrinGrin so I might go for a drive later or tomorrow Grin

OneNightTimeMenaceStrikesBack · 14/05/2020 12:12

Dr is sendign me for xrays on my hands, have to wait to hear from the xray department with a time and day to go in. he thinks, on top of everything else ive got wrong, that ive got arthritis in my hands :( not what i needed but im struggling to grip things and i rely on crutches or a wheelchair to get around so if i cant grip anything, i cant move. ugh

Pebble21uk · 14/05/2020 12:19

Just received my first government food box! Like others I got it because I needed to register for priority supermarket slots and it appears to come with!!
I've just wiped it all and taken a photo to put in a 'lockdown' album I shall create when this is all over! I'm glad I don't have to survive on it for a week but some of it will be useful... oranges, red cabbage (makes a good coleslaw!), Granny Smiths apples. Not so sure about the Fray Bentos pie but I'm sure I'll find somebody who can use it - or try the foodbank.

MarieVanGoethem · 14/05/2020 12:41

@Egghead68
Sadly-frustratingly no more sleep. Also frustratingly, it’s almost 2 hours past the time of my vascular surgery appointment & I don’t dare go to the loo as it seems certain that’ll make them call... debating ringing the department on my landline to ask if they’re running late or... Confused

@Sorryoo
I am “bolder than the Gruffalo’s child”. According to one of my wee cousins, anyway. Transgression in question was having the temerity to return home to London when clearly I should stay in Belfast “forever and ever. Amen.” (The Gruffalo’s Child is very VERY bold because she goes out of the cave without her parents & no grown-up knows where she is; THEN she goes wandering away; & THEN she talks to strangers. And we never ever do those things, do we?)
Ach, epilepsy can be such a nightmare to manage, can’t it? I’d a horrible patch in February after a really good few years & had 3 trips to A&E (with overnight stays) as a result Blush Could your anti-seizure medication (I really dislike the term “anti-epileptic”, sounds as if it’s to eradicate the person not the problem!) be increased to cover you, even if only on a temporary basis? It’s such a difficult balancing act, isn’t it - & a house of cards you REALLY don’t want falling down at the moment. I mean, never good, but particularly ungood just now. Will hold my thumbs for you that everything stays stable.
As for your tent, who knew the weather was on for making literary allusions. Or possibly just suggesting what to read next?

@TitsalinaBumSquash
Oh how frustrating re: house move. Do you think there’s any chance of OT doing the necessary given the circs with crowding/garden/eejits?
Would your children be able to do something like a seated ballet class to help with stiffness? I think Scottish Ballet & English National Ballet are both offering them online - they’re designed for people with very limited mobility to be able to participate. (You mentioned needing OT in to check the new house, so assuming there are some mobility issues, sorry if that’s a wild leap in wrong direction.)

@Potentialmadcatlady
Hello. Suppose at least this experience is useful for weeding out the eejits from one’s life. May the Donkey Of Destiny shower shite all over She Who Thinks Your Dog Will Be Depressed.

@Redcherries
Do you think if said great ignorant eejit of a poster who clearly understands feck all about why there was a sodding lockdown catches the virus it’ll somehow be our fault? Think some people probably would be on for creating some kind of postmodern leper colonies for us. For Our Own Good, naturally. Hmm

@ClientQ
Excellent. Will you be planning your Starbucks order for the next 24 hours then? Grin

@OneNightTimeMenaceStrikesBack
What a complete PITA. Will they arrange bloods for you at the same time so you’ve not to make another trip or have they already managed those?

@Pebble21uk
There now, do you not feel Loved & Special? Enjoy...

MadisonAvenue · 14/05/2020 12:47

Hello all and a big socially distanced wave to the new faces here.

I’m angry today. Angry that life is on hold and that we’re not being treated like adults, the cynic in me has come to the forefront today and taken me back to childhood and being threatened with the bogeyman getting me if I did anything wrong, this feels like the adult version of those threats and we’re being scared into complying.
Angry that the government think they’re helping us with food boxes and suggestions of sudoku but nothing practical is being done with regard to employment rights.

Anewuser · 14/05/2020 12:53

Same as Pebble, we received a food parcel today as well. Also 2 texts and a phone call from our local council asking if we need any support. I know we should be grateful but as pebble said we only got the parcel because we needed the supermarket delivery slots and couldn't get them without. We've only been asking for help the last 7 weeks! And I realise I should be grateful for it all, and I am. I'd still much prefer to be able to go shopping myself though but obviously can't.

TitsalinaBumSquash · 14/05/2020 13:03

@MarieVanGoethem - I've spoken to the OT today, he's putting pressure on the HA to hurry things along, we don't have mobility issues as such, he's there to make sure any property we have is 'future proof' and can be adapted for DS's needs as his condition progresses. They're all stiff from having no space to move. We're 6 people in a tiny, tiny house, there is 2.5 bedrooms that the 4 kids share and DH and I have a small sofa bed in the only available living room space. Our house was adapted to have a treatment room area so we lost any excess playing/moving room.
I think it's more just a case of being utterly fed up, very little to do and even less space to do it and the different ages means they're not natural playmates.

OneNightTimeMenaceStrikesBack · 14/05/2020 14:18

dr said they'd co ordinate with the bloods clinic to try and get them done on the same day so that i only have to be out of the house once. im gutted but doctor seems pretty sure its arthritis, just needs to be confirmed witht he xrays

MarieVanGoethem · 14/05/2020 15:56

Well today’s 1100 hospital appointment might in fact be any time between then & somewhen Monday, apparently. And no narrowing of that timescale à la Amazon/DPD/Tesco-for-the-shielded or anything. Have politely pointed out that although I’m shielding I do have a life. And also, as is a thing with humans, I do things like use the loo that might cause me to risk a call that could be any time over several days. My endocrinology appointment yesterday was 2 hours early. I can see how that can happen - only need everyone to need a few minutes less than’s allocated to them & then one or two people not to answer & you’ll very quickly get ahead... Expecting patients to be 72 hours-worth of flexible not 2 hours, though... Hmm

@Anewuser
I get a bit giddy at the idea of being able to go & select my own fruit & veg. It seems like a crazy dream from here...

@TitsalinaBumSquash
That is EXCELLENT news from the OT. Would planning for the new house interest/help the kids, or will the uncertain timescale of it all just leave them (not entirely unreasonably) in a frustrated grump?

@OneNightTimeMenaceStrikesBack
Good you can get your bloods done at the same time at least. I know it’s easy for me to say, but try not to get ahead of yourself with worrying - your GP should have done you an urgent referral to rheumatology if they think it’s rheumatoid arthritis, partly because it’s such a nightmare to diagnose. If it IS arthritis, treatments keep improving (as does the & R&D funding).

OneNightTimeMenaceStrikesBack · 14/05/2020 16:05

He seems pretty sure its arthritis, just not sure which kind. My index fingers are so twisted at the top my nail is almost on the side of my fingers. same on both hands. Should really have had it seen to sooner but it wasnt causing issues until recently. really not what i needed as i have a ton of things wrong with me but it is what it is, i cant help it and theres nothing i can do either way

Redcherries · 14/05/2020 20:30

Evening my lovelies. I do believe that’s a day done and nearly put to sleep!

@OneNightTimeMenaceStrikesBack it’s a blinkin nightmare when it’s your hands isn’t it, completely unrelated to my shielding but I have crohns too, very moderate and currently in remission in my intestines, stomach and mouth but it causes a temporary arthritis in my hands and feet quite a bit and it’s tough to deal with, I consider my type to be getting off lightly so I hope they get you sorted and some relief ASAP., especially as you need them for your mobility.

I’ve had a nice but tiring day, my best friend disappeared from messenger when we were chatting while I studied, the doorbell rang and she had driven to see me, we sat at a more than socially distant distance and chatted (my house is very isolated) and it was so bloody good to see her! We’ve been best friends since I was 11 (she’s a nudge older but not much 😁) so nearly 30 years.

Lots of study, lots of paperwork, an hour on the phone with dd teacher making a support plan as she’s struggling emotionally and hit a wall but hopefully working between us all we can get her back on track and less overwhelmed.

How has everyone else’s days been?

Redcherries · 14/05/2020 20:32

Sorry @OneNightTimeMenaceStrikesBack that sounded like I meant you have crohns, I meant in addition to my shielding condition I have crohns too!

Babysharkdoodoodood · 14/05/2020 22:26

Hi, all. Only been shielded since last week. I've been at work and got a text&letter and email from the GP on Thursday morning. I rang the surgery as I wasn't sure about it, and due in in an early shift on Friday. Apparently due to T2, past cancer and an ongoing issue with my bladder (growths) and my operation for biopsy cancelled, they were concerned that I'd been working. Should've shielded since the beginning apparently.

It was only when I'd had a chat to the gp earlier in the week that they realised I was still working. They were quite insistent that I isolated immediately. Like the past 5 weeks with working shifts, doing handover with other teams etc hadn't t already happened.

Luckily I've only been home or work. Have managed online shopping ok and stocked up at Costco in late March. I did get a strange call a few weeks ago from the shielding team, asking if i needed anything, so I probably missed out on the original letter.

My youngest is at a residential college and was originally at a very rural setting (agricultural) and all the staff just left him and 8 other students there with a helpline. None of them drive and the college buses stopped. I went apeshit as they were supposed to be catered and there was nothing. So they (after a week of eking out supplies) moved them all into the town based college. OH was going to bring him back to shield at home if they didn't move him. I miss him so much, and my eldest who lives down south.

I'm just waiting for work to drop me off a laptop now so I can wfh.