i’ve been in isolation for 16 days now. was starting to think i wouldn’t be in the Shielding group but the letter came today.
and now i’m frightened. i’m on methotrexate for arthritis, and have a massive substernal thyroid goitre that makes breathing difficult anyway when lying down. i was supposed to have thyroid removed in january but they had to stop the operation as they couldn’t keep me oxygenated under anaesthetic.
my thyroid has squished my trachea off to one side and into a pronounced curve (ultrasound shows this) so now i’m panicking that if i do get the virus i’m dead, because they won’t be able to ventilate me anyway.
i’m not ready to die. my mental health is shot anyway, bit today for the first time i had a big cry. i don’t usually let myself cry because if i start it’s hard to stop. but today, all this seems terrifying.
on paper i’m financially fine. i get ESA and PIP and housing benefit. my income and outgoings aren’t affected. but healthwise i feel like i’m utterly fucked.
and what happens after the 12 weeks are up? i still won’t be able to be ventilated if i end up seriously ill. my methotrexate suppresses my immune system but it also makes me prone to chest infections, and i have scarring on my lungs.
the one point of progress i have made is that i gave up smoking after the failed surgery. i vape now. and i know the medical jury is out on that, but i haven’t smoked a cigarette for 2 months now. my smoker’s cough has completely gone, and i was starting to sound like my Nan.
all of which is a very long-winded way of saying: i’m not ok today.
sending love to everyone feeling shit.