The drug I inject to boost my white cell count is £62 per vial on the BNF. I pay one prescription cost so just under £9 for 12 vials
This is the cost in America as told by the parent of a small child (my disease is rare in children but one in a million in adults)
Edited text so as not to share personal details
Without the injection there is a severe risk of neutropenic sepsis especially with infection
Some of you might be following little X
We've been hospitalized 4 times since April and been on 7 rounds of antibiotics. We've had pseudomonas twice. ANC is almost always considered severe. We finally got them to agree to prescribe neupogen and we went to pick it up and it's $2,400+. We can't afford it. What do we do?! The copay is $2,400 and the actual cost of the medication is $9,000. Starting the process of getting on the registry takes time. We will definitely do that and are starting the process. What do we do in the meantime? We need it asap. We have literally had infection every three weeks. Ideas??? Help!!!
Maybe the registry can send an emergency supply?