I am in so much pain tonight. Just no idea what is wrong with me.

[HarryPotterFan436]

My entire body aches from head to toe. I have terrible pain in my sides like I've pulled all my muscles from vomiting so much but I haven't been sick at all. My joints hurt, knees and fingers in particular. I was reasonably ok yesterday.
This happens on a regular basis. Sometimes its accompanied by an upset stomach. Sometimes it's just so much pain. I am so uncomfortable my bed is hurting me. My clothes are hurting me.
Even on a good day with very low pain I have to wear stretchy clothes now and nothing too tight or they hurt me. My skin feels so strange at times that it's like there are insects crawling over it or sometimes like its burning inside. Even my eyes hurt. They itch and burn so much.
And I cant think straight. I forget what I'm saying halfway through a sentence or forget a word I'm looking for. I just dont know what's going on now. I've had blood tests and they are all normal. I dont really know how to deal with this pain that seemingly has no cause.

What does the intolerance to noise feel like if you dont mind me asking?

I also read your post and straight away thought fibromyalgia too OP. I have fibromyalgia and your symtpoms sound very much like mine. I think you should ring 111 and get triaged then see your GP next week if you can.

Stay warm and take care

I've just been looking up fibromyalgia symptoms and I really do fit quite a lot of them.

Intolerance to noise is when everyday noise feels like it hurts, you can’t stand it. You want to run away and hide in a quiet dark room.

Your symptoms sound just like I have from Fibromyalgia & CFS/ME, I have problems with my stomach & bowels, I can turn from feeling ok to feeling like death in a second, I feel permanently exhausted & ache all over. Make sure you are eating a good diet, I take a gentle iron supplement, take pain relief if you need it & having a bath with magnesium flakes & Epsom salts in the hottest water you can stand really does help. Get plenty of sleep & drink plenty of fluids as well.

I have fibro and ME and those are some of my symptoms. Also an inability to regulate body temp, intolerance of noise and bright light and an inability to cope with lots of movement or hustle and bustle round about me. Diabolical nerve pain is another thing and the bone crushing fatigue.

You need to go back to your doctor and insist that they take you seriously. Although I know how hard that is when you are shattered and in awful pain. In the meantime, you could add a magnesium supplement to your regime. It can help a wee bit.

Magnesium does help but a side note if you have prone stomach - the skin spray is much more tolerable (speaking from bitter experience)

Another one who thinks it sounds like Fibromyalgia.I also have this and have the same symptoms.I would definitely go back to see your Dr.

Might not be helpful OP but I was recently hospitalised with a b12 deficiency after collapsing whilst out the house following a long decline in health due to it. It caused nerve damage, tingling, nerve pain, joint pain, gastric issues, headaches, has potentially permanently affected my vision and I spent months prior to collapse virtually bedbound my b12 was so low. My cognitive function and memory got so bad I was not able or capable to book my own medical appointments or manage my diary and had to have my DP do this for me. It was missed and not tested for time and time again and only picked up at a&e by a consulting neurologist. Do you have any other symptoms?

I took a b12 supplement routinely prior but discovered I have pernicious anaemia and therefore cannot absorb it, apparently this is not that uncommon. Have been having b12 injections and slowly mending.

I would ask for a copy of your blood tests and see what's been done and the results, request those that are missing and ask for a rheumatology referral if you suspect fibromyalgia. So sorry you are feeling so bad, I can really empathise

Hmmm other symptoms. I dont know if any of them are related but I feel like I have a permanent cold. My nose is all stuffy and blocked. I get headaches probably once a week on average at the moment which I put down to tiredness. Sometimes my hands and feet literally feel like they are on fire. They burn so much and are so very painful that I could cry with the pain. When that happens it tends to last about 10-20 minutes at a time and then passes. I believe I may experience the noise intolerance mentioned above but never thought it could go along with all my physical symptoms. I have anxiety as well. Also I have stiffness when i stand up if my pain is bad.

I requested a B12 check but my doctor here wont do that. I tried to do a home test but just couldn't produce enough blood to fill the vial so I chose to add a B complex vitamin in the Hope's that would help if my B12 is low. I will look into a magnesium spray. It's only been about 2 weeks since my last really bad spell of pain and it easily takes a week after it starts to recover. In between times I never feel right but its much more manageable. I am willing to try. anything in the hope it will lengthen the time between really bad pain episodes.

If you can afford it go see a private GP. I did and paid for bloods to be done. This was after about two years of going to the NHS GPs (four in total) and telling them that at times I felt as though all cells in my body were reporting in sick. Once armed with the private blood results I skipped back into the NHS system. I'm not fixed but trial and error (in my case with Vit D, Magnesium Malate, and Calcium) has got me to an okay most of the time place.

If you can't afford the private tests, just keep going back to your GP. If they still won't test your B12 etc. write to the practice manager.

You should definitely have your B12 tested. I have pernicious anaemia as well and the burning hands and feet were an early symptom.B12 deficiency is really, really dangerous and can cause permanent neurological damage if not treated. It's potentially fatal. Why won't your doctor test for it? Deficiency is not uncommon. I would change doctors if you can't get a test.

Practice manager? I'd go direct to the CQC. Testing for B12 deficiency is basic, surely?

I also have Pernicious Anaemia and Rheumatoid Arthritis and my symptoms are very similar as well. I have Sero-Negative RA so my bloods appear relatively normal as well. I was only because of my rheumatologist piecing together all my symptoms that I was diagnosed.

ChopinIn10Minuets what's the CQC?

OP this sounds just like me, particularly noticed this part
Even my eyes hurt. They itch and burn so much.
This happens to me a lot.

I’ve been diagnosed with fibromyalgia but I believe it’s actually hypothyroidism- my levels are borderline so they won’t treat me. You say your meds have increased but have they checked your levels lately?

Apparently they dont test for B12 deficiency in my area unless your red blood cells I think it is are showing signs of something wrong with them. As my full blood count is normal they wont do it. Maybe it would be worth contacting the practice manager in that case. I'll look into how to do it next week. I dont know who the CQC are. I'll have to look them up.

My TSH was 4 in june. I'm due another check next month I think.

That’s way way too high if you’re medicated as I’m sure you know. I have friends with Hashimotos whose thyroid levels cycle up and down as they thyroid is attacks which leads to these flare ups - I wouldn’t be surprised if your thyroid is responsible for this.

You really need to know your FT4 and FT3 levels as well as TSH and ideally antibodies too - I would do a private test via someone like medichecks, first thing in the morning, while you’re in a bad patch. I know you struggled to fill the vial before but if you soak your hand in warm water for 10 mins first it’s much easier. Or you can pay extra for a nurse to draw blood for you. Without these additional tests you really can’t judge how your thyroid is doing and the fact the NHS doesn’t generally do them when you’re symptomatic is awful.

Medichecks do a package that includes all the thyroid tests plus vit D, B12 and other things. I would do that personally.

I'd love to do that package but its £99 even without paying for a nurse to draw the blood for me. That's way too expensive for me right now as much as I'd love to get it done. Hopefully I will at least see that my TSH has come down after my next blood test.

Just looked up the CQC and it is the Care Quality Commission. I think I had heard if them and just didnt realise it. According to their website they inspect, monitor and regulate health and social care services. @MrsMozartMkII

Any help?

Ah, thank you HarryPotterFan436