Private Endocrinologist in Sussex or London

[brightonrocker]

Hello, I've been struggling to keep my thyroid levels correct on medication for Graves Disease. Over the five years since diagnosis I have developed osteopenia and some extra heart beats and am now, reluctantly, considering giving up the fight for my thyroid. I find the hospital endocronologist unhelpful. They are quite glib about RAI. Two things: could anyone give me their experience and outcome during and after RAI and does anyone have a recommendation of a descent private endocrinologist in either Sussex, Surrey or London? I need to get some informed advice from someone who can listen to my concerns and answer my questions so I can make this big decission. Thanks everyone

Just giving this a bump for you OP

Advice from patient groups would be to avoid RAI if at all possible and, if absolutely necessary, look at surgery instead.

Thyroid UK and Thyroid Patient Advocacy each have a list of recommended endocrinologists.

thank you NaToth. I was wanting a recommendation but I will give Thyroid Patient Advocacy a try. I am afraid I was underwhelmed by the Thyroid Uk one.

Dr lulsegged at the Sloane or chelsfield. Very very good and answers questions out of your Apts by email if knows you are self funding

Sorted me in a few weeks and I'd been unwell for months and was facing a 14 month nhs wait to see him under nhs

Private apt cost £200 and worth every penny

Thanks ou Lotsalotsagiggles, I appreciate you taking the time. May I ask if you had a thyroid disease and if so which one? Is he aggressive and conventional in his approach re treatment or might he be more open to trying alternatives? Many thanks.

Yes, I can. I saw for suspected graves and other endocrine investigates Professor Grossman.
I saw him at Oxford Hospital but he has private office in London too.

I couldn’t recommend him more.

Thank you bebeboeuf, Im glad he helped and hope you are keeping well.

Hello again,

Do you know if he has retired can he still order tests on the NHS?

Many thanks, B