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Feminism: Sex and gender discussions

Meet the new CEO of Endometriosis South Coast

666 replies

Maaate · 12/11/2023 20:52

I don't know why I'm surprised really

Meet the new CEO of Endometriosis South Coast
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PatatiPatatras · 13/11/2023 06:03

EmmaGrundyForPM · 13/11/2023 04:48

I don't think you have to experience a condition in order to work for an organisation that advocates for people experiencing that condition.

I used to work for a sight loss charity. There is nothing wrong with my sight. I'd like to think I did a good job.

I know a woman who was CEO of a men's cancer charity. She was good at her job.

He doesn't have to experience the condition to work for the charity.

He will need to listen to biological women and be able to name them to work for this particular type of charity. It's a biological condition: he'll need to be "transphobic" to carry out his function.

This is out of his reach if a woman clocks him as a bloke. His discomfort will be way more important than her story.
Already happening if he's blocked women with endo on twitter.

EmmaGrundyForPM · 13/11/2023 04:48

I don't think you have to experience a condition in order to work for an organisation that advocates for people experiencing that condition.

I used to work for a sight loss charity. There is nothing wrong with my sight. I'd like to think I did a good job.

I know a woman who was CEO of a men's cancer charity. She was good at her job.

Bloodeehell · 13/11/2023 02:03

@Agrona your avocado comment made me really giggle, mainly because I initially got it confused with an aubergine 🤭

My favourite of the comments…

catduckgoose · 13/11/2023 01:34

Per his tweets he's been worming his way in since mid-2022:

Meet the new CEO of Endometriosis South Coast
Bloodeehell · 13/11/2023 01:30

At least there will be some publicity for the disease. Shame it took a man to get it.

unwashedanddazed · 13/11/2023 01:24

Endometriosis is trending on Twitter. And it's not because people are happy this bloke has blundered into yet another women's space.

Chronicallyknackered · 13/11/2023 01:12

I really think this is where positive action has gone a tad too far.. I'm a women with Endo, I'm 30, had 9 operations to date. It's Damaged my bladder and bowel. Doubly incontinent, likely infertile , sexual dysfunction. So many invasive procedures I couldn't even count.
How can a transwoman who has never even experienced mild period pain vaguely relate?
Having to go to work on morphine to function. Losing relationships due to treatment. Missing out on life because of a gynaecological condition.
If they had a highly experienced charity career, CEO experience, wife's or children with Endo I would be more supportive. But from what I've read can't see the qualifications to support the title. Publicity stunt gone too far. Do they really have enough experience of the condition to advocate and understand what women with Endo need ??

NeighbourhoodWatchPotholeDivision · 13/11/2023 01:11

Needmoresleep · 12/11/2023 23:22

Steph’s professional training was as a hairdresser, though appears to have moved into other retail businesses and run some sort of social group for cross dressers.

Steph’s blog suggests Steph is very empathetic , has nursed two wives through cancer and have been both mum and dad to fairly young children. Steph seems quite focussed on Stephself.

Endo is horrid. A close friend of DDs has it and in her mid 20s is already two or this operations in, and is often seriously unwell. An empathetic man with the right professional charity or health service background would be fine. Someone who would be effective. However, like Lily Madigan and period poverty and TWs trying to join workplace menopause groups, this seems like a man using a woman’s issue to promote their own perceived feminity. It then becomes all about them. It needs to be all about endo.

Richards has emphasised the age of the youngest child on two different entries about the end of the marriage. I have not seen Richards explicitly clarify the ages of the two older sons. However, if they are the same people as the younger males of the same surname (and in one case same address) as Richards who have been registered as officers with Richards' company, then they were approximately 19 and 15 when their parents' marriage ended.

Parental divorce is hard at any age, but I wouldn't have described being the lone parent to a 19 year old, 15 year old and 7 year old as parenting three young children. I don't think most MNers would phrase it that way. Having noticed that, it does lead me to wonder what other parts of the situation might be described differently to how most MNers would describe them.

Bloodeehell · 13/11/2023 00:21

MariaLuna · 13/11/2023 00:04

^Oh my god. Even their explanation of the disease is bananas. BA-NA-NAS

“Endometriosis is a systemic disease that affects the metabolism in the Liver and Adipose tissue which leads to systemic inflammation which in turn alters gene expression in the brain and causes pain sensitisation and mood disorders.”^

They're fucking clueless. Spreading lies too. Fuck them.

The above doesn't even make sense! To a lay person like me.

They've drunk the Kool Aid.

@MariaLuna it does appear that endometriosis is now being seen as a systemic disease with connections to autoimmune disease etc.

My issue is that they have copied and pasted a small part of a paper, without keeping women in the definition and the reference to the gynae impacts.

Everyone with endo knows you have a tonne of other health problems on top. This isn’t new. It’s the way they’ve presented the information to suit an agenda, it isn’t helpful.

Another interesting paper here
https://www.frontiersin.org/articles/10.3389/fimmu.2022.758440/full

Genomic Evidence Supports the Recognition of Endometriosis as an Inflammatory Systemic Disease and Reveals Disease-Specific Therapeutic Potentials of Targeting Neutrophil Degranulation

BackgroundEndometriosis, classically viewed as a localized disease, is increasingly recognized as a systemic disease with multi-organ effects. This disease is highlighted by systemic inflammation in affected organs and by high comorbidity with immune-m...

https://www.frontiersin.org/articles/10.3389/fimmu.2022.758440/full

MariaLuna · 13/11/2023 00:04

^Oh my god. Even their explanation of the disease is bananas. BA-NA-NAS

“Endometriosis is a systemic disease that affects the metabolism in the Liver and Adipose tissue which leads to systemic inflammation which in turn alters gene expression in the brain and causes pain sensitisation and mood disorders.”^

They're fucking clueless. Spreading lies too. Fuck them.

The above doesn't even make sense! To a lay person like me.

They've drunk the Kool Aid.

Ereshkigalangcleg · 13/11/2023 00:03

I have had really great male doctors so I wouldn’t necessarily require a women’s advocate to be a cis woman.

There's no such thing as a "cis woman" all women are female. Steph is a male misogynist.

Bloodeehell · 13/11/2023 00:00

In their description of the disease they have taken what they wanted out of this paper to mould endometriosis into a disease that men could have too… unbelievable.

https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(21)00389-5/fulltext

MariaLuna · 12/11/2023 23:58

I advocate for parents without having children so why can’t someone without a uterus advocate for people with endo?

You cannot possibly compare the two.

Everyone can relate to people, even small ones called children.

A man cannot relate in any emotional or physical way how it is to have endometriosis.

It would be like a woman saying she knows how it is to have prostate cancer or some such bullshit.

I've had it and it's hell.

If he brings in a shitload of money for research and treatment etc. I'm all for it.

I wouldn't wish it on my worst enemy.

Bloodeehell · 12/11/2023 23:47

Agree with you @Slothtoes

The charity does seem a bit strange speaking about being inclusive before speaking about endometriosis.

I would say there’s some backstory with the founders.

Remarkably odd.

Oh my god. Even their explanation of the disease is bananas. BA-NA-NAS

“Endometriosis is a systemic disease that affects the metabolism in the Liver and Adipose tissue which leads to systemic inflammation which in turn alters gene expression in the brain and causes pain sensitisation and mood disorders.”

Vs this from endo U.K.

”Endometriosis (pronounced en- doh – mee – tree – oh – sis) is the name given to the condition where cells similar to the ones in the lining of the womb (uterus) are found elsewhere in the body.
Each month these cells react in the same way to those in the womb, building up and then breaking down and bleeding. Unlike the cells in the womb that leave the body as a period, this blood has no way to escape.
In the UK, around 1.5 million women and those assigned female at birth are currently living with the condition, regardless of race or ethnicity. Endometriosis can affect you from puberty to menopause, although the impact may be felt for life….”

Annoying to see even endo U.K. and the who are posturing to the trans gang.

Life as a woman would have been so much easier had I been born male first. 🙄

TheChristmasPig · 12/11/2023 23:45

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Slothtoes · 12/11/2023 23:35

Inappropriate because it’s a job any woman (with direct experience of endometriosis or not) could do better than any man because of the need for charity service users/beneficiaries and staff and whoever the charity are trying to influence, to be able to focus solely on the aims of a charity.

Whether the aim is to raise money from the public or raise awareness with women, medical practitioners, researchers, employers whoever it is. Having a man leading in a role that’s all about a uniquely female health condition is a massive inappropriate distraction because there will be a lot of talking to validate and spare his feelings, rather than direct talking about women’s health and women’s experiences.

A sensible charity would steer well clear of ever being put in this position.

catduckgoose · 12/11/2023 23:33

Wouldn't be at all surprised if he gets a kick out of women's suffering.

MathsIs · 12/11/2023 23:28

“Steph is a huge advocate for what people on the endo community go through. “

Don’t you advocate for something you want? So Steph wants “people on (in?) the endo community” to go through the experience of endometriosis?

This is giving me unpleasant reminders of reading about how some people born male would like to experience periods etc.

Meet the new CEO of Endometriosis South Coast
Meet the new CEO of Endometriosis South Coast
Angrymum22 · 12/11/2023 23:27

Since it is a charity I think as women we should withdraw any monetary support.
Any charity that is solely supporting adult human females with a disease that only adult human females can develop needs adult human female leadership.
Next he will be claiming that trans men can develop endo because they take hormones.
Many years ago, in the early days of the internet, one of the forums I joined was the endo society. It was a pretty niche forum and the support was immeasurable because endo was still a contentious condition.
I feel for the women who rely on the support forums to just exist when his friends decide to fabricate an adult humans female disease.
Utter bollocks. I will be writing a firm letter/email expressing just how misguided their choice of CEO is.

catduckgoose · 12/11/2023 23:24

BlessedKali · 12/11/2023 23:01

Thing is, this isn't just a man as a CEO of an endo charity. It's worse that that.

Here's an analogy;

There is an organisation for people of colour. The CEO is white - not a great choice as this person has no lived experience, however maybe they are just good for the role...

BUT then imagine if that white CEO denied the existence of people of colour as any meaningful category, and if he actively campaigned for POC to lose certain rights. Now they are worse than 'not a great choice', and are actually a TERRIBLE CHOICE.

Reminds me of this powerful tweet from Magdalen Berns (rest in peace), she knew exactly what these men were up to.

Meet the new CEO of Endometriosis South Coast
Bloodeehell · 12/11/2023 23:22

Also, in my experience of endometriosis charities the people involved either have the condition themselves or have been a carer for someone close to them.

This is helpful because they can interact with the women affected and truly understand not only the illness but how day to day life is impacted for them, their ability to engage in life, employment prospects, family life, social life. All of it. And you are ignored for decades, told you are being hysterical, exaggerating, that it is normal. You can barely walk at times nor eat, and in so much pain you shake. But normal. You are a woman and must get on with it.

10% of the female population are going through this crap and absolutely sweet fuck all is done about it. There is limited research and treatment. Little public awareness.

0.1% of the male population identifies as trans. They have nothing physically wrong with them. Yet the NHS is expected to pay for surgeries, therapies and the world is awash with trying to accommodate them to make their lives easier.

That is why this appointment is wholly inappropriate. Women who are ignored are now to be represented by a man presenting as a woman who clearly has more rights than they do under the patriarchal system.

Needmoresleep · 12/11/2023 23:22

Steph’s professional training was as a hairdresser, though appears to have moved into other retail businesses and run some sort of social group for cross dressers.

Steph’s blog suggests Steph is very empathetic , has nursed two wives through cancer and have been both mum and dad to fairly young children. Steph seems quite focussed on Stephself.

Endo is horrid. A close friend of DDs has it and in her mid 20s is already two or this operations in, and is often seriously unwell. An empathetic man with the right professional charity or health service background would be fine. Someone who would be effective. However, like Lily Madigan and period poverty and TWs trying to join workplace menopause groups, this seems like a man using a woman’s issue to promote their own perceived feminity. It then becomes all about them. It needs to be all about endo.

Feliciacat · 12/11/2023 23:20

WandaWomblesaurus · 12/11/2023 22:40

Can I ask you a question? Why would a man be better in this post than a woman who has lived experience of endometriosis?

It is very unlikely that a man would be better than a woman with endometriosis. Where I was coming from with thinking maybe Steph was the best one for the job is that jobs often get very few applicants (despite what LinkedIn would have you believe). So maybe there were only ten applicants, five were shortlisted, two dropped out and only three were interviewed on the day. Maybe Steph performed best at interview and got the role. So it’s believable under these theorised circumstances that Steph could have legitimately got the role. So they were the ‘best’ but that doesn’t mean ‘better’.

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