Meet the new CEO of Endometriosis South Coast

Even if a teeny tiny number of men can get this, why is that even being mentioned? Would a prostate cancer charity suddenly hire a load of women and wang on about the women with poorly prostates and expect to be taken seriously?

You've mis-heard, it was 29 cases in males and about 5,500 cases (I think) in trans men.

And i thought Emma would go easy on him!
I'm so glad she was robust.

It appears to be a very rare combination of an issue with Mullerian tissue, hormone disruption (due to treatment for prostate cancer for example) and other risk factors such as cirrhosis and obesity - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833878/

By chance I caught this absolute balls-up (pun intended) of an interview as I was dashing out in the car. Pulled in to listen properly. Wow. Emma Barnett I have newfound respect for you.

Who are these trustees so keen to push trans issues they will throw women under the bus to save the TWENTY-NINE trans-men (women) with endo? Who is pulling the strings here? What is going on? I think anyone who heard that nonsense will have been peak-transed this morning, if they weren’t already.

Well done Woman’s Hour.

No it has to be nice and fluffy or soulful.

No angry uppity women

That was a fantastic bit of radio.

I bet Anita Rani doesn't include it on Weekend Woman's Hour though.

But Emma's point was that, so we have to take it seriously NOW because 29 men have it so we??

I'm still baffled by that, too.

Honestly I don't know, I believe it affects the reproductive ducts in (a very small) number of men as an inflammatory disease.

I only mention it as it meant Emma had to backtrack slightly and it was a small weak spot in the interview.

Did Jodie say that maybe it’s because it’s been classed as a gynaecological condition that it’s been ignored for 200 yrs? And that it ISN’T one?
I mean I get that there are v rare cases of men with it, but it’s overwhelmingly a gynae condition and MAYBE gynae stuff SHOULD JUST BE TAKEN MORE SERIOUSLY!
Emma got it right - “so we have to rebrand it to include men to be taken seriously?”

Thank you wholeheartedly Emma Barnett and Woman's Hour for this interview. Showed Endometriosis South Coast up for what they are...

Jodie is technically correct here to be fair. Men can suffer from endometriosis even if it is in very small numbers.

How does that work, exactly? Surely by definition you have to have a uterus to have endometriosis? (Genuine question - not intended to be read as hostile.)

Yes, technically correct but a very poor reason to erase women, and indeed uteruses, from the definition of endometriosis.

I wonder if the 29 men diagnosed with the condition suffered 7-10 years of pain and misery before their symptoms were taken seriously?

I'm rewinding to listen again

Mn locked me out for the last 10 mins, so frustrating!

God Emma was on fire.

Thank you Emma!!

Jodie is totally out of her depth. I am thinking this is a charity run as a vanity project for her. Sorry she has endo, but that doesn't make her a good spokesperson or representative of the majority of fellow sufferers. She is far too focussed on being an ally and inclusive to give out clear, factual information. It's going to be all about rainbow celebrations and star studded charity events for this one. Too many "inclusive" charities do more harm than good (as we know from all the trans charities) - they are dangerous, because the uninitiated and vulnerable will trust them for guidance, and it will not be good guidance.

Well done Emma!

Jodie is technically correct here to be fair. Men can suffer from endometriosis even if it is in very small numbers. I thought Emma wasn't being careful enough on that point but otherwise she was fantastic.

Jodie - we have to step away from the gynaecology

WTF??

A fine example of let them speak being the finest way forward - they always show exactly who they are

Wow - what an ending.

Emma let the last word go to Steph. 'The trustees of Endo South Coast appointed me, and they can fire me.'

Emma. Pause for effect.

'Thanks for your time. Now, moving on...'

Jodie sounded like she was close to tears of rage over the idea that endo is primarily a gynaecological disease.

YOU HAVE TO BE BORN WITH A WOMB JODIE

Unfortunately, this will be framed by the Be Kind brigade as Emma heartlessly bullying poor Jodie who is writing a PhD and is a SINGLE MUM. Emma, who has had horrible struggles with endo and knows damned well what's involved and what you have to be in order to suffer it.

As opposed to the 176 million women who have endometriosis world wide -

https://www.endometriosis-uk.org/endometriosis-facts-and-figures

And I still bet those 26 men are taken more seriously than any of the women.