Could we please have a vaccination place please..PLEASE...PLEASE...

enjoy ..many didn't

I haven't read the thread, Saintly, couldn't find it when I did a quick search earlier.

I have been reading some research by Chen and DeStefano who have critiqued Wakefields research and have recreated their own, which was interesting.

Ive found it really does depend on how you search for info, ive found some studies into inflammatory bowel disease and autism which are also very good.

Thanks for that, will keep searching.

saintlydamemrsturnip IMO it wouldn't be safe, the trouble is people will not listen to anything out side their own buble( I know this as I used to be like this until my bubble got bigger)
I remember the first person who told me their was a link, dd was diddy and I was so caught up with that, i hate to say it but I looked at her as if she was mad iynwim.
It is only since expanding my bubble that I now can see the link, sadly not every one gets that chance and still live in the "it won't happen to me bubble"

Well the main evidence really is that the Lancet paper has never (despite claims to the contrary) been discredited because Wakefield's hypothesis has never been tested. Plenty of research telling you MMR is safe for most children- but everyone knows that anyway. None of the papers take on board the idea of a small subgroup (except one but they didn't identify the subgroup correctly anyway).

The issue is particularly complicated because it depends on whether you're talking just about the Wakefield mechanism or MMR in general. Recent research for example suggests that up to 1 in 10 children with autism could have a mitochondrial disorder which would give them an increased risk of regression following a virus (live or vaccine). There's not a huge amount published on that (although google Kennedy Kreiger institute), although I have been to conference presentations and spoken to people in the States and there has been payouts in the States.

There have been other suggestions by other groups of different roles that vaccines may play. The University of California, Davis has done quite a bit on autism and the immune system and if you search say last years IMFAR abstracts you may well find more (certainly the role of vaccinations was discussed although it will probably show up in fewer abstracts that talks it appeared in).

The area is huge tbh. You won't get clear answers because they're not there. If you look at something like Autism Speaks, or the IMFAR abstracts, you will get more idea of the sort of work being done now.

I cant find that thread, (although im still trying to get to grips with the site!) ive seen afew but all the links are more antedoctal.

Thanks anyway, will continue to search the medi engine!

oh here we go.

Have you read the thread AllBuggiedOut. The research linked to is proper peer reviewed etc etc.

It would be a HUGE task. For starters it's something that's constantly changing. And there would need to be a critique of all the papers that get wheeled out each time as supposedly proving Wakefield wrong when they don't even test his hypothesis.

Not only would it be a huge task I've been on enough vaccination threads to know it would be a fairly thankless task.

There are other safe-havens that are respected - the termination threads spring to mind.

Can someone post me a link to a medical site which supports Andrew wakefields research?

Thanks.

By safe haven I mean, it will be good to have a place where research and experiences can be exchanged without it necessarily turning into a debate, as often/usually happens. And hopefully less hostility. But, you know. Who knows.

I think people know what Mumsnet is all about. I wouldn't want to keep anyone out of anywhere unless they're being ghastly rude.

A separate section that can be hidden by those who don't want to see it every time they log on seems like a good idea to me. But I hope stuffitlllama isn't suggesting that it will also be this "safe haven" as that suggests those pro-vaccination should keep out. And that isn't what a public forum like Mumsnet is about.

A link to some of the research wouldn't necessarily be a mammouth task - but please if it is done, make sure it is to properly conducted research not to opinion pieces from non-experts.

Yup, it's crap it really is. But you see I realise now that I belong to a different species, the 'special needs' species and that alongside our gills, tentacles and very bad breath we have the skills to have our experiences invalidated and not mind. Apparently.

I really just stick to the special needs area of the board now, I lurk in other places and post occasionally but prefer it in SN.

Am shocked.. had little idea before that last thread just how unremorsefully insensitive people could be. I hope there is some kind of "safe haven" now for an exchange of ideas.

As I've never posted about mine I feel a duty to do it now, to some extent: my ds is definitely not one I could ever say with any certainty was damaged by a vaccine, particularly not MMR. But I feel quite strongly that he has been affected by mercury in his infant vaccines, he has many ASD traits, and when I started to examine the link between testosterone, mercury poisoning and the ASD condition I made connections. Which I then followed up after reading about zinc as a helpful element in removing mercury. Seeing its positive effect I became more convinced.

I find the research done by Beachcomber, Yurt and others incredibly interesting and not only that, am absolutely stunned that they do so much under such difficult personal circumstances. It's unbelievable. That's why it pisses me off so much to see such bile thrown in their direction.

I know I'm shouty and soap boxy rather than helpful and resourceful and that's not always constructive. But am so pleased this section will be there and I hope so much it will be productive and supportive.

Thankyou MN Towers.

Yes saintly. It is absolutely shit. People outraged and calling other people selfish and then not giving an absolute crap about those who do have autistic children. the latest thread was really quite shocking in that regard.

I hadn't seen that thread slightlycrumpled. sorry it made you feel so bad.

"used" is the word me thinks.
if you look at how the "sn posters" are treated on mn, the ammount of abuse they have to put up with, some of it very sick, surely to ask them to do this is just well.....sick

I think over- exposure is a real risk on a vaccination thread because 9 times out of 10 when people ask what happened to your child they're not actually interested other than as a reassurance that it won't happen to their child. It's happened to me in rl - sat their quietly for my eye test when suddenly I'm being asked all about when did I know, how did I know, he was always odd wasn't he; then you find out their child has the mmr the next day. I was pretty pissed off tbh.

slightlycrumpled so sad that you have been made to feel that way
I really do tire of the cry for people to post to educate, yet their feelings are often ignored.
I have lond since stopped posting too much info about dd(or ds nt as well, after a poster slagged him off) as it lays me too open.

Justabout, I know you are now on holiday but just in case you check thread on your return I just wanted to pick up on the point you raised about the other thread. No one jumped on you but objections were made and in fact I am one of the people that mrsturnip speaks of.

I felt so over exposed, that my deepest thoughts had been trampled on that I asked for all of my posts on that thread to be deleted. Should the thread on ante natal choices be turned into a debate I shall ask for my post there to be deleted as well.

Anyway sorry about making a comment on a thread about a thread type thing but couldn't really ignore. Hope you enjoyed your hols.

That's really great. I think it could be a place of great resource and help instead of the other.

Can't we just have a seperate section for those who think that if they disagree with something it's ok to make hate posts about it. It could have a subsection called "My mind is made up, don't confuse me with the facts"

That would have saved us having the other new section too.

wow, that's great news.

You lovely mums on that thread taught me so much because of all the hard work and research you have done over the years. I am forced to admit that my knowledge on the subject is very limited.

I should research more, but am very head in the sand about what has happened and the line I'm subsequently taking with the other dc's as a result of what happened to ds 1.

I'm sure on a personal level I will benefit greatly from having an area to go to.

I am gojng to re read that other thread as there is so much I missed out on there.

It would be really nice to be able to have proper discussions about vaccine research, etc without having to go round and round endlessly with the same old argument. In those threads you just get somewhere with a few people when 10 other people plough in with exactly the same old argument and then you have to start at the beginning again. Bonkers. Not sure how the topic will be respected in practice though.