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MN Can we please support/highlight this? Pelvic Organ Prolapse

89 replies

Shakey15000 · 13/10/2017 19:55

PELVIC ORGAN PROLAPSE

There. In big letters. Affects so many of us (there are some really supportive threads on MN) but it needs awareness raising.

I belong to APOPS-

www.pelvicorganprolapsesupport.org/pelvic-organ-prolapse-the-silent-epidemic-3

A really informative and helpful site. There is also a FB site that again, is extremely informative and supportive.

The founder has recently embarked on a large campaign to highlight awareness. I enquired if she had approached Mumsnet (as it seems obvious) and she informs me that yes, she had approached MN but sadly had no response?

Is this something that can be rectified revisited? It's such a huge, invisible and relatively unknown condition that I'm sure MN would be a great advocate. Perhaps MN could invite the founder to a Webchat?

I, for one, have suffered, am still suffering in fact. I considered myself to be quite well informed and I'd never heard of it! I actually though it was predominantly a "male" thing, then realised I was muddling it up with prostate Blush

Anyhow, would anyone like to badger suggest a Webchat about it? The founder has said she is more than happy to send the book and I'm quite sure she's also jump at the chance to use MN's worldwide platform to raise awareness.

Thanks in advance

OP posts:
meltingmarshmallows · 23/10/2017 17:16

Great idea! I think this would be really useful.

FlaviaAlbia · 22/10/2017 22:31

Adding my support to this. I'd love information on how best to prevent this if possible. I'm on my second pregnancy and had never heard of it before this thread.

bookbook · 22/10/2017 21:16

I support this idea wholeheartedly. When I first realised I had a problem, ( and I had at least heard of it ) and wanted to research, the threads highlighted here on MN were the only ones that gave me any insight to all the problems , and some solutions. It gave me the information to make an informed choice as how I wanted to proceed.

colouringinagain · 21/10/2017 21:34

Thanks Caroline

Shakey15000 · 21/10/2017 21:23

Thanks @CarolineMumsnet Smile

Look forward to an update

OP posts:
Shakey15000 · 21/10/2017 21:22

Good to highlight that hold Similarly, men can also experience prolapse.

OP posts:
holdthewine · 21/10/2017 20:48

Another sufferer here whose problem has recently been cured by surgery.

I was okay until menopause so luckier than many. Just wanted to add that I asked the surgeon this, and whilst childbirth is a significant factor, of course, I think he said 56% of women who have had vaginal deliveries will have a prolapse against 16% of women who have never had children. He said the rejection in oestrogen and progesterone after the menopause are major factors so we cant entirely blame giving birth.

CarolineMumsnet · 21/10/2017 19:10

Thanks everyone for taking the time to comment on this. We can see there is a fair bit of support and so we're passing all your thoughts onwards and upwards, and will keep you posted here Flowers.

Gotofriggingsleep · 21/10/2017 19:02

I am awaiting surgery for mine and agree that it's a subject that needs more awareness of.

NoLoveofMine · 21/10/2017 18:50

Please do support this!

Seeingadistance · 21/10/2017 00:25

Another supportive voice here.

BeyondNoone · 20/10/2017 16:13

(Tears excepted too)

BeyondNoone · 20/10/2017 16:12

I don't know how accurate it is and how much was hinting at not choosing a planned section, but I was told when I had ds2 that the damage was done from carrying the pregnancy, not from (an instrument free) birth itself

powershowerforanhour · 20/10/2017 10:43

Count me in too. First child was C-section birth, we may have another baby and I want all the info before I decide about VBAC

BeyondNoone · 20/10/2017 08:51

I'm not sure if kegels help at the mild end. I've done them religiously (and properly - I checked) since I was a teen, but my genes obv weren't onside (with the EDS) so I don't know if it would have made a difference otherwise? My surgeon did comment that I had a ridiculously strong pelvic floor for someone in having the op

BeyondNoone · 20/10/2017 08:48

DJ they generally don't check. The problem is, prolapse isn't always obvious on looking when you are lying down - you'll need to bear down or have gravity on it for it to show unless it's at the very most severe end

lottiegarbanzo · 20/10/2017 00:04

Sounds terrifying. I want to know how to prevent it, if that's possible.

DJBaggySmallpox · 19/10/2017 23:55

I'd support this and I'm shocked I've never heard it discussed. I'm curious, does anyone know if your GP checks you when they do a PAP? If you have a mild one do Kegel exercises help?

colouringinagain · 19/10/2017 17:57

Completely agree really screening. If I'd known I definitely wouldn't have done a trampolining class which made it worse.

sjpPOP · 18/10/2017 22:51

I would be happy to mail a copy of the 3rd edition to MN as Shakey15000 mentioned for MN review, to see if appropriate info to share (info can be found on the link in her post). It is so important women know signs of POP that seldom get talked mentioned in multiple posts above, such as urinary incontinence, fecal incontinence, vaginal tissue bulge, chronic constipation, pain with intimacy, back pain, pelvic pressure, vaginal pressure, rectal pressure, bloat, tampons pushing out. Women may only have 1 really pronounced symptom or may have multiple less pronounced symptoms. These symptoms do not always mean POP, but very often do-50% of women will experience this condition. It is imperative we educate ourselves, and pass the info on to our mothers, sisters, daughters, and friends in order to raise general awareness. POP has been on medical record for nearly 4000 years, long past time to open the closet door. Childbirth is the leading cause, followed by menopause, two of the most significant life events women navigate, we women should be screened for POP during routine pelvic exams but are not. Much is in motion, zero doubt POP will generate the next significant shift in women's health directives.

BartlebyTheScrivener · 18/10/2017 21:45

Yes please MN for web chat with Sherie Palm. POP has had a major impact on my life, we need to spread the word in the hope of preventing suffering.

colouringinagain · 18/10/2017 20:15

For my prolapse diagnosis made me feel immediately like an Old Lady. Medical professionals commenting it was less likely this side of the menopause did not help. For me it was a hugely depressing diagnosis

MacaroonMama · 18/10/2017 20:03

Adding my support to this. Have v mild POP (I think) - no incontinence but it feels all wrong - sent to the bladder and bowel clinic where the nurse (?) was lovely but said it was not the right clinic for my issues. So still waiting to see whoever the right person is...

The French post-natal care sounds excellent. I read an article ages ago saying it was so wives could make their vaginas ready for their husbands again and I thought "how ridiculous!" Except three kids later, one by forceps, one weighing 9'4" and two with retained placentas, I TOTALLY get it. I want that French vaginal physio!

Shakey15000 · 18/10/2017 18:38

@sleeponeday I know the lack of energy of which you speak Brew

OP posts:
BeyondNoone · 18/10/2017 15:44

There is a mner here who is a POP specialist of some kind (maybe a physiotherapist??), I'm sure I remember. Will have a think what her name is...

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