what ever happened to the This Is my child campaign?

Yes. Bishop, that's a good explanation.

Disablism isn't just calling people retards or pushing ahead of wheelchair users or calling autistic kids 'cunts'. It's mostly more subtle and pervasive.

This is a good read and was posted, but largely ignored, in one of the earlier threads about Charlie:
www.rumersrainbow.co.uk/2017/07/myth-of-irrational-parent.html?m=1

If I have got the wrong end of the stick re this thread, I'm also interested to know what is going on with TIMC at the moment

A lot of sentiment on the CG threads is that brain damage is the end of the world, that brain damaged people have no quality of life and that they'd not want their children to have brain damage.

There are posters here who live that life. Their children do have brain damage, they didn't get a choice about it and their children do have an amazing quality of life. That is going to hurt.

The posts are very definite that there is no hope. This is mainly based on media coverage. I don't have a definite feeling either way, I'm too mistrustful of the media to take against the parents' view. I believe though that GOSH are a centre if excellence and are genuinely doing what they believe to be best. But again as a parent I've had bad experiences with medical staff and had to get PALS back up so that also colours my view somewhat. I'm actually so far on the fence my arse has splinters.

Plus 13k posts feels gratuitous.

Samcro, I replied to you with respect explaining why I didn't believe that posters on the other threads were against people with any form of disability. I linked to this thread so that people on it, with far more experience than I, could also comment.
Please welcome honest debate.

Though I guess the title is re TIMC, so I guess I see why you'd have that interpretation, zzzz.

Which is it samcro? Just so people don't unintentionally derail in the wrong direction?

Well, given that the CG thread was directly referenced, yes, people are going to insinuate that it was about that.

zzzzz I don't know, you can post very 'assertively' yourself at times.

It's pretty rude to call people who have had similar experiences of a child with a terminal illness, 'ignorant' and 'rubberneckers'.

That will also include the medics,researchers and ethicists on the thread too.

So apologies if I was abrasive but I am getting pretty sick of the critism which consists of little more than shrieks of disablism without explaining why they think it is.

Given the huge social media campaign run by the family, the thousands of tweets, newspaper comments and columns, you want to stop all discussion of it on mumsnet?

Samcro's op reads as being about the CG threads in relation to TIMC? Am I reading that wrong?

The threads are far from disablist and have many parents of disabled children giving fair and frank views.

Tinsel, people have been saying on the thread why they don't like it. They have been shut down

Shut down how? by being asked questions about their views which they don't answer?

How does it tie in, Samcro?

I'm afraid I don't understand the issue but will try to.

Tinsel, people have been saying on the thread why they don't like it. They have been shut down.
This thread was started. The op is not being listened to but is being told where she's gone wrong.

I followed the link from the disabilism thread that you posted, samcro

And I've held back from disagreeing so far as you are entitled to your opinion, plus being on your "side" on the disabilism threads, I felt a bit like a hypocrite to be honest, despite being very careful to be sensitive in my posts. And yes - as you said - there have been some posts that were horrible, and they have been deleted. But that's a few posts over 12,000 of them, so many as it is an ongoing court case. We're not discussing something that was a one off two weeks ago, theyve been back in court this morning.

cheer to the poster who called her mates over here.
proves that all other debate is not allowed

Posters on this thread were also invited back to the CG thread so that a meaningful discussion could take place about exactly what about the threads it is that they find disablist, which is the opposite of not allowing debate

"I don't like what you're saying but I won't engage and tell you why" is not debate or discussion.

In fairness, the majority of the threads here aren't 'helpful' in the sense that they necessarily domanything purposeful or meaningful, and nor should they have to.

People are just giving a balanced view Samcro

i have read enough to know that they are not helpful

Okay so they're not helpful to you

But they may be helpful to parents who have been through the heartbrake of watching a terminally ill child die, only to read on facebook that they obviously don't love their kid enough, to read that not everyone thinks like that?

It might be helpful to people who have to put their childrens lives in GOSHs care to read that they're not in fact delivering them to the gallows etc

It might be helpful to HCPs working in similar situations to read that not everyone thinks they're all liars and murderers

Certainly when I last looked, the CG threads did not have anything I would have described as prejudiced or unpleasant against people with disabilities.

Forgive me, but I sometimes think there is an eagerness not to understand, and I think this can apply equally to both sides of the debate.

Of course, parents of children with disabilities form strong bonds with them, and these bonds I imagine will be in some ways even stronger than parents of NT children (the bond, not love itself) because of the nature of caring for them, interceding on their behalf and so on, lasts beyond childhood in many cases.

The debate around Charlie isn't just about disability, however, it's about pain. They are different things. Many people without disabilities experience pain; many people with disabilities do not (or at least, not notably more than any other person.)

It is therefore not disabilatist to express concerns that prolonging Charlie's life prolongs his pain. Nor is it disabilatist to contemplate what his quality of life might be if he were 'allowed' to live.

I am sorry to hear of your daughter's condition. I think he CG threads are treading a fine line; open discussion is vital but there is a lot of denigrating of the parents.