what ever happened to the This Is my child campaign?

I know what they're about Tinsel, I was on the earlier ones.

Some posts are really not clearly about Charlie

Yeah, posts about the behaviour of pro-lifers and right wingers and the press and dignity in dying in general are not just about charlie

posts about charlies quality of existance are clearly about Charlie

It's the number of threads I find distasteful. 12,000+ comments and counting. It does feel voyeuristic.

case law becomes law, judicial precident and all that
now that it's in court it actually affects us all
Also the case is being used to attack our health system and justice system "in general"

'Have any of you that are claiming disablist behaviour in those threads actually read them?'

Yes its all very odd to complain about disablist posts that arent actually there. Mnhq do delete any offensive stuff you know?

It's the number of threads I find distasteful. 12,000+ comments and counting. It does feel voyeuristic.

Not all 13, no.
It's depressing, upsetting (after having read a few) and feels horribly voyeuristic.

Sigh. Ok. I see, thank you.

Have any of you that are claiming disablist behaviour in those threads actually read them? I have and I really don't see your point of view at all. I find them to be very informative, inclusive and not at all disablist.
The fact that there are parents on them who are, unfortunately for them, able to share their similair experiences makes me find your thread fucking insulting. Disablist indeed

'do you think that every post that is clearly specifically about Charlie should have a footer explaining that this view doesn't apply to all variations of brain injury, illness and disability?'

Yes just because a tragic case has been discussed that does not mean people hold the same views on all disabled dc. It's insulting and rather simplistic to suggest they do.

Bish I agree.

It isn't vic, it's about how disablism can be so insidious.

Some posts are really not clearly about Charlie.

TAAT

Tinsel I've seen nothing to say it isn't about brain damaged people in general either

well that's a leap.

do you think that every post that is clearly specifically about Charlie should have a footer explaining that this view doesn't apply to all variations of brain injury, illness and disability?

Tinsel I've seen nothing to say it isn't about brain damaged people in general either.

Hmm. I'm pretty sure the numerous professionals who read my kids' reports believe they really know their situation too.

They don't.

This is what I'm saying. There is far, far more to this.

Shame on you for using this campaign to further your own agenda.
It has been explained. Read the thread.

The posts are very definite that there is no hope. This is mainly based on media coverage.

No. I think many who have reached that viewpoint have done so because they have read much more widely than the media coverage (court transcripts, position statements etc.). See the note at the top of the thread, it's all there.

Lougle and BishopBrennan's posts capture the complexity of the issues around the CG case in a nutshell. It is inherently a difficult, emotive subject. I think it's an interesting point made by the OP as to how the TIMC campagin could potentially relate to the lengthy discussion threads about the CG case.

A lot of sentiment on the CG threads is that brain damage is the end of the world, that brain damaged people have no quality of life

no, not "people", plural. Just this individual person given his individual circumstances. I've seen nothing generic about "all" brain injured people on that side of the discussion.

So, a TAAT, thinly disguised as interest in a completely different campaign, then.

Shame on you for using this campaign to further your own agenda. A bit like Charlie's Army using the autism awareness photos.

'cheer to the poster who called her mates over here.proves that all other debate is not allowed.'
Ironic, because it seems like that on many other threads discussing disability issues.

'The posts are very definite that there is no hope This is mainly based on media coverage..'
Based on the extensive medical evidence presented at court that the media then relay.
Agree with other posters, I've seen lots of posts from people with disabled dc, HCP's and many others and have not seen any disablist comments. They must be deleted very swiftly.
Nobody has said 'brain damaged people do not have a quality of life'.

Also, yes what an awful expression 'rubberneckers' when some contributors are bereaved parents or parents of disabled DC.

But who are we (the collective we) to decide in a general way where that line is drawn? It's a deeply individual situation. Again knowledge on this specific case is largely media based, there are health care professionals who don't think it's over yet. When the professionals are in agreement perhaps then but I don't think I'm in a position to draw the line.

I disagree. I've read each and every thread, all 13 of them, and whilst at times I have felt the need to point out that needing a ventilator does not mean no quality of life per se, and being both deaf and blind does not equal no quality of life, and nor does paralysis from the neck down, etc., as so many of our children with PMLD live very fulfilling lives regardless of those things, there does come a point where a combination of severe life-limiting conditions and illness equals no quality of life.

I don't think we can silence discussion about where that line is drawn, when the anonymity that would otherwise be given to a family, has been stripped away be their own desire for publicity.