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Defining the purpose of SN:Children

33 replies

lougle · 02/03/2013 22:29

Hi MNHQ

The SN:Children topic has been an absolute life-line to me since my DD was suddenly diagnosed with significant SN at 2 years 9 months. She's now 7 years 3 months, so I have been posting there 4½ years now.

For many of us there, it is a place where we can share our deepest fears for our children, our most hideous experiences and our darkest journeys. As well as cake, chat and frivolity, of course.

I'm sure you didn't expect that topic to be so widely used, nor so powerful when you created it. I know there were issues around inadvertent offence when posters stumbled across threads in Active Convos and posted as if the child were NT. You made the topic 'opt in' for that reason.

Recently, we have had a surge of posters who have no intention of sharing the community we have created. No intention of giving and taking support as the opportunity arises. They are simply there to 'educate' us. To raise the subject of their agenda.

Please could you define the purpose of the board in the top intro thingy which would make clear that SN: Children is a topic for supporting people who care for children with SN, not a topic to harass the parents who are already tired, downtrodden and vulnerable?

It's kind of like shooting fish in a barrel Sad

OP posts:
BeerTricksPotter · 02/03/2013 22:52

This reply has been deleted

Message withdrawn at poster's request.

devientenigma · 02/03/2013 22:50

which is why I agree it should be opt in again, that way me posting about SN elsewhere won't upset the applecart Grin

lougle · 02/03/2013 22:48

Thank you, IamtheZombie - I feel so passionately that our community shouldn't be invaded by people who have no interest in us or our children, simply to use us for their agendas.

OP posts:
IamtheZombie · 02/03/2013 22:46

lougle, another thread made me do a bit of checking and I've just seen some of what you are concerned about.

I hope MNHQ can help you.

devientenigma · 02/03/2013 22:45

sorry cross posted Blush

devientenigma · 02/03/2013 22:44

I agree define SN and choose to opt in again, that way those of us with children with severe disabilities/special needs feel able to return.

It does seem to be a supportive board, most do pick up when posters are down and tired etc. However it's not always the case and it can become a place where you know your not welcome.

For me the board has never been the same since the Riven scenario. I have had hurtful stuff said and really brought down by some, so apologies if this is because I am posting my SN stuff elsewhere.

lougle · 02/03/2013 22:42

Oh lovely devient! No. Nothing to do with that...haven't seen those threads (out of interest, are you hoping to avoid input from us lot, because if you are, I won't find the thread. If not...I'll take a peek Wink).

It's about people coming to the SN board simply to post rants about a topic of their interest, with no intention to engage in a mutually supportive fashion.

OP posts:
devientenigma · 02/03/2013 22:39

I don't know what's happened but I hope it has nothing to do with me posting my SN problems elsewhere on MN.