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Madmouse's open letter to MNHQ about the treatment of those with disabilities on MN

555 replies

madmouse · 20/06/2012 19:05

Dear MNHQ

I joined MN when I was pregnant with my lovely ds. That heady autumn with bump before such words as NICU, neonatal seizures, brain damage, cerebral palsy, speech delay, special school entered my vocabulary.

That was 5 whole years ago - and all that time MN has been a part of my life. Got a lot of support from my ante- and postnatal buddies and from experienced SN mums. Gave back where I could. Became ill with PTSD, found the MH threads, recovered, started to give support on the MH threads.

Now I've come to the point that the only thing stopping me from leaving MN is that I would let down people on the MH threads. Other than that your (MNHQ) behaviour today has been an eye opener and a bit of a final straw.

MN has become, like RL, a place where disabled people and people with disabled children are not safe, not treated equally and not extended the same courtesy and respect as those without disabilities.

What happened today is just a tip of the ice berg. Day in day out threads appear with the same old theme. AIBU to use this disabled space because my baby's maxi cosy is too big and the P&T spaces are full, AIBU to use the wheelchair space on the bus (those two appear weekly by and large), AIBU to think it's nice to be disabled because you get lots of benefits, AIBU to think disabled people have it easy, AIBU to think I should have a free car too seeing as that I pay taxes.

It goes on and on and on. And none of it is ever challenged other than by a small group of us who do all this fighting in RL too - because it affects us and our children.

There is such thing as discrimination. And you do have a duty to stamp it out. Hand off moderation is no excuse certainly seeing how quick you were to delete 2shoes thread when some of us started fighting back against the endless threads of threads which in turn are copies of last week's threads.

I am very disappointed. And I think you have some thinking to do.

Best wishes

OP posts:
CelstialNavigation · 20/06/2012 20:29

I too see far more prevalent disabilist attitudes on Mumsnet than in RL.

And it makes me wonder if it increases because this is a place that permits it. Because MNHQ do permit it. They "let it stand" as its "useful" for posters to "be educated." And when one post stands, other people seem to feel its okay to join in with equally disabilist views.

I've seen similar happen in groups where one person makes a racist remark and others seem to realise this is somewhere permissive for them to voice racist beliefs.

MNHQ would not sit back and allow that to happen. Any racist remark gets deleted and rightly so. They send a message.

They send a different message when its people with disabilities being discriminated against, that disabilism is not bad enough to actually delete. That they value self-moderation above preventing disabilist attitudes on their site. And for the life of me I do not understand their priorities there.

It would be different if people with disabilities or their families or carers were saying to let such posts stand and that they want to engage in debate with the people who post such things. But they aren't. they are asking for such posts to be deleted, not sanctioned by leaving them there.

I think HQ are utterly utterly misguided when it comes to this and there is a risk of disailist attitudes becoming more and more prevalent on this site as a consequence.

cakeismysaviour · 20/06/2012 20:28

I'm furious too. I think I need to step away from Mumsnet for tonight at least. Before I spontaneously combust

2shoes · 20/06/2012 20:25

I keep typing replies to mn hq, but give up I am too angry Angry
imo they have made their position clear.

veritythebrave · 20/06/2012 20:24

This reply has been deleted

Message withdrawn at poster's request.

RowanMumsnet · 20/06/2012 20:19

Hello,

We've just posted this on the other Site Stuff thread, but thought it might be worth putting here too:

First off, we're very sorry to see that what's happened over the past couple of days has upset some of you. We at MNHQ are immensely proud of the SN boards, and of the incredible advice and support that the posters on there offer each other. (I've held meetings with some disability rights organisations/lobbying groups, and they've been open-mouthed at the quality of the postings on those boards; one of them told me that it was as good, if not better than, the advice offered by their paid phone-staffers.)

We'd hope that this goes without saying, but just in case it doesn't: we take disablism seriously, and we will delete it when it's reported to us. We also appreciate that those caring for other people with SN (or those with SN themselves) don't need any unnecessary hassle in their lives, and we try to take that into account when we consider reported posts.

All that said, we think Mumsnet is a place where people without much experience of SN should be able to explore issues around this topic (as with almost any other topic). There's a big difference between someone rocking up and posting abuse about those with SN (which would be deleted), and someone posting a genuine query about the ethics and etiquette of a situation like that described in the original thread. Those of us who've been around for a while have seen these issues rehashed time and again, but we need to bear in mind that every week we have many new members for whom these are not familiar arguments.

The original thread seemed to us at MNHQ to be a genuine query posted by someone whom we have no reason whatever to be suspicious of. The second thread was started when the first maxed out at 1000 posts; again, we think that it's not unusual, in MN terms, for follow-up threads to be started in these situations - so the second one did not seem to us to be an unreasonably bitchy thread-about-a-thread (ie the kind of thread we'd delete), nor did it seem to be unnecessarily goading.

We have been through both of those threads and deleted anything we thought to be a beyond-the-pale personal attack (if you think we've missed any, do please report them). I think I'm right in saying that we did not spot any posts that seemed to us to be disablist; but again, PLEASE report them if you think we've missed some and we will consider them carefully.

The third thread came to our notice some time after it was started; this is our bad, and we're sorry about this. Some days are heavier than others in terms of reported posts, and today was one of those days. When we got around to the reports of it, we thought that its wording - unlike those of the first two threads - was very likely to inflame the situation, and so it was deleted. This was also our reasoning with 2Shoes's subsequent thread.

MABS · 20/06/2012 20:16

beautiful post OP :)

seeker · 20/06/2012 20:14

I'm not a fan of thread deletions. Or really of post deletions either- I would rather people's awfulnesses stayed for all to see.

And I haven't really been following this debate- it looked to me as if it was atypical git's outing so I left it alone. But if a thread started to challenge the gist was deleted for "goading" ffs, mumsnet really needs to think about it's policies.

Pooka · 20/06/2012 20:13

I find it incredibly depressing, the sheer "I'm alright jack" attitude that the thread about wheelchair space on buses displayed. I mean really? At what stage did it became reasonable for mummies to equate their practical considerations in using public transport to those of a person in a wheelchair?

Just plain wrong.

cakeismysaviour · 20/06/2012 20:13

Just to add - I think that the fact that the original wheelchair space on bus thread was allowed to stand was discriminatory in itself. The fact that it is considered reasonable to have a debate over whether a disabled person should be allowed to access facilities put in place for them, is disgusting and an insult to all disabled people and their loved ones.

ArthurPewty · 20/06/2012 20:11

This reply has been deleted

Message withdrawn at poster's request.

PurplePidjin · 20/06/2012 20:11

How many years and pounds did pushchair users spend campaigning for better access for prams on public transport?

chickensaresafehere · 20/06/2012 20:08

Just to say I'm with you MM.
I have a dd with SN&have not encountered in real life the disabilist attitudes that I have read on MN.
Is it because there is a certain anonymity attached??
What scares me is,all those people out there,if they are harbouring these views,my dd&I are not as accepted as I thought we were.Sad

LRDtheFeministDragon · 20/06/2012 20:07

Well said madmouse

landofsoapandglory · 20/06/2012 20:04

Do you know what I often wonder where these posters come from. I mean I don't know anyone who would refer to a disabled person as a 'wheelchair' not even any of my teens' friends. It makes me feel sick to my stomach that there are people like that out there, but not only that they don't see anything wrong in what they are doing!

cakeismysaviour · 20/06/2012 20:02

D0oinMeCleanin - Exactly! The clue is in the name. Its a wheelchair space, its for wheelchairs. Not pushchairs, wheelchairs.

They have allowed people with pushchairs to use the space when it is not needed for its intended purpose, as a favour. Is this too complex for some people to understand, or does their own sense of entitlement overide the rights of disabled people to access the facilities that have been provided for them?

There shouldn't even be a debate about it. There is nothing to debate, and we need to get away from this perception that disabled people get some sort of favouritism.

A Mumsnet campaign perhaps?

Jux · 20/06/2012 19:59

I agree mad mouse, and I applaud you for starting this thread.

I am never closer to leaving MN than when I lurk, or occasionally post, on those sort of threads. I am disabled, not a 'wheelchair' yet, but it's pretty inevitable. Those threads make me cry. There is a chance that dd will have ms too - might be showing signs of it now - and the sheer unpleasantness and selfishness of some people makes me so miserable.

The fact that a post will be deleted with such apparent ease and speed in so many other contexts, but will stand when it is, not in so many words, actually saying "disabled people are lesser beings" and nothing happens, is soul destroying.

I am not an advocate of deletions as a rule, in general threads I think all posts should stand so everyone can see who is being a cunt, but so much of the stuff that goes on in the SN threads etc is surely illegal.

But we live in an intolerant, unkind, and devil-take-the-hindmost (that's me then) society.

silverfrog · 20/06/2012 19:57

yes, MAryz - thankyou for putting it so much more clearly than I did (am breathing through Braxton Hicks atm, so thought processes a bit muddled).

but yes, I agree. it's like philosophy exam qustions, isn't it? is there ever a way to justify the unjustifiable? and so on.

and thin end of the wedge is right.

I have been on the receiving end of funny looks occasionally in the past - we didn't have a Mac Major for dd1, we used a P&T instead (suited us better), and so of course we 'looked' like we just had a buggy we were refusing to fold. it's amazing how many people wouldn't listen when we tried to explain - we nearly got thrown out of dnephew's Holy Communion (yes, that's right, thrown out of a church!) because they had a 'no buggy' rule, and seemed to be unable ot comprehend that actually, we were not keeping our 5 year old in a buggy for fun - that she needed it. I honestly thought dh and the oh-so-friendly (Hmm) warden were going to come to blows - the warden even tried to wheel dd1 out of the church at one point Shock.

it's just all so bloody tiring, and for us it was temporary at least. I cannot imagine facing it for the rest of my life, iyswim.

Maryz · 20/06/2012 19:50

This reply has been deleted

Message withdrawn at poster's request.

D0oinMeCleanin · 20/06/2012 19:49

I don't understand why anyone would need educating about this?

It's simple, no?

Situations where it is okay to use the wheelchair space on a bus when there is a wheelchair user waing to get on the bus include and are limited to:

  1. You are also a wheelchair user or you are accpmanied by a wheelchair user.

Situations where it is not okay include:

  1. Anything that is not in the above list of reasons.
Puffinsaresmall · 20/06/2012 19:45

Thanks Maryz Smile

chibi · 20/06/2012 19:43

unless they think you are going to bring a suit against them based on their violation of a law (is there a law against creating a hostile environment for people with disabilities? Are they included in legislation against hate crimes), MN see revolting threads as teachable moments.

Yet another thrilling chance to justify your/your child's continued existence to bigoted arsebrains who don't give a damn Sad

PurplePidjin · 20/06/2012 19:41

Hear hear!

Imagine how fast it'd get pulled if the title was "AIBU to think this black woman should have sat at the back of the bus where she belongs?" Hmm

2shoes · 20/06/2012 19:40

well said Madmouse

Rumours · 20/06/2012 19:39

Well said madmouse. I avoid those types of threads now as I just get too Angry and upset.

Lougle · 20/06/2012 19:39

An unwelcome voice of dissent, I'm sure, but the thread was not disablist. It is not 'disablist' to debate the use of a wheelchair space by non-wheelchair users. Some of the posts on that thread may well be disablist, and they should be deleted. That doesn't make the whole thread 'disablist'.

However, in general, as a parent of a child with disability, I have been shocked by the number of truly disablist posts and/or threads that have been allowed to stand despite being reported.

Although I disagree with MadMouse's thread of choice to raise this issue, I also support her in saying that Disability has more protection in law than any other 'designated person' category, because not only is the disabled individual themself protected by the Equalities Act, but also their carers by extension.

I do feel that MNHQ should give that some thought - bear in mind that you are publishers, and that the people protected under the Act are your posters.