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Madmouse's open letter to MNHQ about the treatment of those with disabilities on MN

34 replies

madmouse · 20/06/2012 19:05

Dear MNHQ

I joined MN when I was pregnant with my lovely ds. That heady autumn with bump before such words as NICU, neonatal seizures, brain damage, cerebral palsy, speech delay, special school entered my vocabulary.

That was 5 whole years ago - and all that time MN has been a part of my life. Got a lot of support from my ante- and postnatal buddies and from experienced SN mums. Gave back where I could. Became ill with PTSD, found the MH threads, recovered, started to give support on the MH threads.

Now I've come to the point that the only thing stopping me from leaving MN is that I would let down people on the MH threads. Other than that your (MNHQ) behaviour today has been an eye opener and a bit of a final straw.

MN has become, like RL, a place where disabled people and people with disabled children are not safe, not treated equally and not extended the same courtesy and respect as those without disabilities.

What happened today is just a tip of the ice berg. Day in day out threads appear with the same old theme. AIBU to use this disabled space because my baby's maxi cosy is too big and the P&T spaces are full, AIBU to use the wheelchair space on the bus (those two appear weekly by and large), AIBU to think it's nice to be disabled because you get lots of benefits, AIBU to think disabled people have it easy, AIBU to think I should have a free car too seeing as that I pay taxes.

It goes on and on and on. And none of it is ever challenged other than by a small group of us who do all this fighting in RL too - because it affects us and our children.

There is such thing as discrimination. And you do have a duty to stamp it out. Hand off moderation is no excuse certainly seeing how quick you were to delete 2shoes thread when some of us started fighting back against the endless threads of threads which in turn are copies of last week's threads.

I am very disappointed. And I think you have some thinking to do.

Best wishes

RowanMumsnet · 20/06/2012 22:16

Just to spell it out: we would never discriminate against, or fail to value, one group of MNers on the basis of their notional lack of appeal to advertisers.

Obviously there are posters here who feel that their perspectives have not been valued, and for that to have happened we must have fallen down at some point. But whatever the explanation is, it's not about money or commercial reach.

RowanMumsnet · 20/06/2012 22:03

Actually, I don't 'think' that would go - I know it would go.

RowanMumsnet · 20/06/2012 22:01

@CelstialNavigation

"RowanMumsnet: I think the grey area here, as some have pointed out, is whether it's disablist to express the view that facilities designed for (for example) wheelchair users might not always exclusively be accessed by wheelchair users."

And the OP asked that question by referring to the person with a disability as "a wheelchair". More than once. She referred to the actual person as "a wheelchair." And that was just the first post on that thread.

I can see from your posts that you would not do that yourself. You can obviously see that it's wrong. So why was the OP allowed to do that and have their post stand?

Yes, that's ugly. I can't say (obviously) what was going through the poster's head when she wrote that. I can imagine that some people almost literally only 'see' the wheelchair, and so refer to that rather than to its owner. But if we thought someone was deliberately and persistently referring to wheelchair users as 'wheelchairs', I think that would go.

RowanMumsnet · 20/06/2012 21:47

@EightiesChick

Rowan, I wonder if you could respond to my McCann analogy?

I think (and I'm not the expert on this) there are two elements to our treatment of McCann postings. The first is that the situation they're in is unimaginably terrible to most of us, and we think speculation about their possible involvement is simply beyond the pale. The second is that quite a lot of what gets posted about them is libellous, and we will always delete potentially libellous posts when they're reported.

RowanMumsnet · 20/06/2012 21:36

@cakeismysaviour

Maybe when trying to decide whether a post is disablist or not, MNHQ should replace the disabled person in the scenario with someone from a different minority (eg a racial or religious minority) and if it is considered discrimatory then, it needs to be deleted.

This may help MNHQ to see the disabilism that is currently accepted on MN.

The thing is, if someone were to start a thread about (to grab an example) why the Black Police Association exists, we would absolutely let it stand. Or if someone were to start a thread questioning the need for taxpayers' money to be spent on furthering equal opportunities for BME groups.

What we would delete is a thread saying 'should BME people be allowed to use public transport?' - and we would delete that thread if you substituted 'people with SN' for 'BME people'.

I think the grey area here, as some have pointed out, is whether it's disablist to express the view that facilities designed for (for example) wheelchair users might not always exclusively be accessed by wheelchair users.

RowanMumsnet · 20/06/2012 21:02

@madmouse

Rowan I think that maybe MNHQ and some of us have different ideas about what disablist is.

Yes, this may well be true - and this is an issue we've encountered on other boards as well (for example, definitions of 'sexism' in FWR, and definitions of 'rape apology/rape myth' after we began the We Believe You campaign).

We believe in light touch moderation, because we think it makes for the best discussions. But every so often that butts up against some MNers' (understandable) wish for more moderation in a particular area - often because, as someone (sorry) has said here, because they have an entirely understandable wish for Mumsnet to be a safe space.

As ever, we are ready and willing to listen to what you all think; I'm sure nobody at MNHQ is going to claim that we have nothing to learn here.

RowanMumsnet · 20/06/2012 20:52

@madmouse

MNHQ I'm not surprised by your reply but certainly disappointed. Because I do not actually believe you are this naive.

Naive enough that after 999 comments on her first thread the OP then needs to fill another page justifying using the disabled space with her buggy during which she takes great care to show how great the similarities are between having babies and being disabled. Followed by another few hundred responses. You call it genuine, I call it anti-disability attitude.

We're sorry to disappoint - genuinely.

But, yes - we think that, on balance, it's better to allow people to air a genuine misconception (in this case, broadly speaking, that in some circumstances it might be OK for a pram to take a wheelchair space), for a couple of reasons. Firstly, it allows other posters (by no means exclusively posters from the SN boards) to put them right. Secondly, we believe that hosting these debates (always with the caveat that they remain reasonably civil) does an awful lot to inform the opinions and attitudes of those who do not deal with disability issues on a daily basis. Over the years, we've seen countless posts by MNers that show how far our members are informed by the experience of reading these threads.

RowanMumsnet · 20/06/2012 20:42

@CelstialNavigation

I too see far more prevalent disabilist attitudes on Mumsnet than in RL.

And it makes me wonder if it increases because this is a place that permits it. Because MNHQ do permit it. They "let it stand" as its "useful" for posters to "be educated." And when one post stands, other people seem to feel its okay to join in with equally disabilist views.

Can you give us an example of the kind of thing you mean, Celstial? Our Guidelines say that we will delete disablist posts, and (as a team) that's what we strive to do. We're extremely sorry if that's not the way it seems to some of you.

RowanMumsnet · 20/06/2012 20:19

Hello,

We've just posted this on the other Site Stuff thread, but thought it might be worth putting here too:

First off, we're very sorry to see that what's happened over the past couple of days has upset some of you. We at MNHQ are immensely proud of the SN boards, and of the incredible advice and support that the posters on there offer each other. (I've held meetings with some disability rights organisations/lobbying groups, and they've been open-mouthed at the quality of the postings on those boards; one of them told me that it was as good, if not better than, the advice offered by their paid phone-staffers.)

We'd hope that this goes without saying, but just in case it doesn't: we take disablism seriously, and we will delete it when it's reported to us. We also appreciate that those caring for other people with SN (or those with SN themselves) don't need any unnecessary hassle in their lives, and we try to take that into account when we consider reported posts.

All that said, we think Mumsnet is a place where people without much experience of SN should be able to explore issues around this topic (as with almost any other topic). There's a big difference between someone rocking up and posting abuse about those with SN (which would be deleted), and someone posting a genuine query about the ethics and etiquette of a situation like that described in the original thread. Those of us who've been around for a while have seen these issues rehashed time and again, but we need to bear in mind that every week we have many new members for whom these are not familiar arguments.

The original thread seemed to us at MNHQ to be a genuine query posted by someone whom we have no reason whatever to be suspicious of. The second thread was started when the first maxed out at 1000 posts; again, we think that it's not unusual, in MN terms, for follow-up threads to be started in these situations - so the second one did not seem to us to be an unreasonably bitchy thread-about-a-thread (ie the kind of thread we'd delete), nor did it seem to be unnecessarily goading.

We have been through both of those threads and deleted anything we thought to be a beyond-the-pale personal attack (if you think we've missed any, do please report them). I think I'm right in saying that we did not spot any posts that seemed to us to be disablist; but again, PLEASE report them if you think we've missed some and we will consider them carefully.

The third thread came to our notice some time after it was started; this is our bad, and we're sorry about this. Some days are heavier than others in terms of reported posts, and today was one of those days. When we got around to the reports of it, we thought that its wording - unlike those of the first two threads - was very likely to inflame the situation, and so it was deleted. This was also our reasoning with 2Shoes's subsequent thread.

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