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Madmouse's open letter to MNHQ about the treatment of those with disabilities on MN

555 replies

madmouse · 20/06/2012 19:05

Dear MNHQ

I joined MN when I was pregnant with my lovely ds. That heady autumn with bump before such words as NICU, neonatal seizures, brain damage, cerebral palsy, speech delay, special school entered my vocabulary.

That was 5 whole years ago - and all that time MN has been a part of my life. Got a lot of support from my ante- and postnatal buddies and from experienced SN mums. Gave back where I could. Became ill with PTSD, found the MH threads, recovered, started to give support on the MH threads.

Now I've come to the point that the only thing stopping me from leaving MN is that I would let down people on the MH threads. Other than that your (MNHQ) behaviour today has been an eye opener and a bit of a final straw.

MN has become, like RL, a place where disabled people and people with disabled children are not safe, not treated equally and not extended the same courtesy and respect as those without disabilities.

What happened today is just a tip of the ice berg. Day in day out threads appear with the same old theme. AIBU to use this disabled space because my baby's maxi cosy is too big and the P&T spaces are full, AIBU to use the wheelchair space on the bus (those two appear weekly by and large), AIBU to think it's nice to be disabled because you get lots of benefits, AIBU to think disabled people have it easy, AIBU to think I should have a free car too seeing as that I pay taxes.

It goes on and on and on. And none of it is ever challenged other than by a small group of us who do all this fighting in RL too - because it affects us and our children.

There is such thing as discrimination. And you do have a duty to stamp it out. Hand off moderation is no excuse certainly seeing how quick you were to delete 2shoes thread when some of us started fighting back against the endless threads of threads which in turn are copies of last week's threads.

I am very disappointed. And I think you have some thinking to do.

Best wishes

OP posts:
EXmrsmascarahead · 20/06/2012 23:26

Make way for the crutches that are coming on the bus.
Make way for the Zimmer frame
Make way for the walking stick
Make way for the guide dog

Each one of these aids has a human attached to it, they are the priority not the aid. Referring to someone as their aid and not as a person dehumanises them.
As for buggies most people refer to the parent pushing a buggy and not just the buggy

dottyspotty2 · 20/06/2012 23:26

Was stuff on the channel 4 news debating this tonight

Maryz · 20/06/2012 23:25

This reply has been deleted

Message withdrawn at poster's request.

RandomNumbers · 20/06/2012 23:25

Which bit don't you get?

Please, tell me, which bit are you having trouble with? Please

CelineMcBean · 20/06/2012 23:24

Shock Seriously Maryz? Seriously?

Although why I'm surprised I don't know. I posted on the first wheelchair thread photographs of the stickered instructions actually displayed on London buses. Despite spelling it out for the hard-of-thinking people still argued and claimed superiority of need. Or worse, said that the stickers were different where they lived Hmm despite it being a thread about a London bus and the stickers being those issued by TFL (transport for London).

dottyspotty2 · 20/06/2012 23:23

Well since theres no specific space for a buggy and you only pay for parent buggy gets folded and child goes on knee its not rocket science

ItsAllGoingToBeFine · 20/06/2012 23:20

So it is also offensive to make space for "a buggy to come onto the bus"?

dottyspotty2 · 20/06/2012 23:20

Of course silly me I forgot that wheelchairs magically propel themselves and park in a space without a disabled person occupying them. Hmm

Maryz · 20/06/2012 23:19

This reply has been deleted

Message withdrawn at poster's request.

RandomNumbers · 20/06/2012 23:18

no it's not acceptable shorthand

I can't believe you find it acceptable

No, just no

CelineMcBean · 20/06/2012 23:17

It is a space for a wheelchair user. It is not somewhere to park a wheelchair.

To elaborate, the person in the chair needs to use the space because s/he cannot sit on a normal seat (of which there are usually about 77) or stand. S/he can only sit in their wheelchair in the space specifically designated for a wheelchair user. Those wheelchair users who can sit elsewhere due to limited mobility still have to sit in the chair because otherwise they would be taking up a seat and a large space where the chair's parked.

Does that make more sense?

ItsAllGoingToBeFine · 20/06/2012 23:09

But surely in this particular case "saying a wheelchair needs on the bus", is acceptable shorthand as the wheelchair is the specific thing that is entitled to the specific space on the bus?

It is not a space for the disabled
Or for people with LDs
Or people with MS
It is specifically labelled as a space for wheelchairs.

CelineMcBean · 20/06/2012 23:02

Woah! Don't shoot off yet - I think you're winning at the moment although obviously still in the midst of the current battle.

Take heart. You have a lot of support.

Glitterknickaz · 20/06/2012 23:02

I already left for this same reason.
Guess what? MNHQ did not give a shit.

RowanMumsnet · 20/06/2012 23:00

@2shoes

thats it for me, I have emailed mn hq and been ignored, I have asked them on here and been ignored. my thread was deleted. yet a newer one was left!! bye

Very sorry 2Shoes - service hasn't really been normal tonight because of this and the other Site Stuff thread, so reports and correspondence are backing up a bit. We will take a look as soon as we possibly can.

CelineMcBean · 20/06/2012 23:00

I meant I'm glad people asked because I find the posts where people say "I can't see anything wrong with saying she's a diabetic, because she is". Not because I wanted an opportunity to lecture Blush

It's a brave thing to ask for more information or admit ignorance and anyone who is genuinely asking should be treated respectfully and generously. I can see a point to that. Educating bigots... not so much.

madmouse · 20/06/2012 23:00

You are right 2shoes. The other thread is still there and the same cr*p is spouted on it. Let's get out of here. See you on fb.

OP posts:
PurplePidjin · 20/06/2012 22:53

ItsAll, the same would have been said of terms like Little Lady, Spacker, Nigger, Raghead, Yid, Cripple, Half Caste etc at some point in the last 50 years.

Tell me what's offensive about Coloured other than historical context? Then say it to dp's face and see what happens. He's lucky enough to have the verbal (and, unfortunately, physical) skills necessary for self defence. Can a chair user return a punch? A person using a communication device reply with a cutting put down? A visually impaired person describe their attacker to the police?

2shoes · 20/06/2012 22:50

thats it for me, I have emailed mn hq and been ignored, I have asked them on here and been ignored.
my thread was deleted. yet a newer one was left!!
bye

RobinGoodfellow · 20/06/2012 22:50

Well said.

CelineMcBean · 20/06/2012 22:48

For those that have asked (and I'm glad you did) it is considered very offensive to reduce people to their condition. For example, someone has diabetes but that is not all they are so solely describing someone as diabetic is quite rude or occasionally dismissive. The equivilent would be to describe someone as "the blonde" or "the gay" or "the black". Wheelchair is even more offensive because it isn't even part of the person and we should always be talking about people first and foremost because that is respectful and how we all like to be treated. Common courtesy.

I admit sometimes I say someone is a diabetic instead of has diabetes or similar when having a relevant conversation because it used to be considered perfectly acceptable to talk about people like that and it's habit and lack of opportunities to change my behaviour (I don't have many chats about disability). I try not to do it and pull myself up when I do because it is rude.

The more we all strive to get it right the more automatic it will become and the less acceptable reducing someone to their condition will become.

RobinGoodfellow · 20/06/2012 22:46

Itsallgoingtobefine - yes, it's the weakness of the internet and written communication. Makes for crappy constructive dialogue on 99% of issues.

2shoes · 20/06/2012 22:46

ItsAllGoingToBeFine that post of yours sums it all up

ItsAllGoingToBeFine · 20/06/2012 22:44

robin I am not going to tritely say I understand, as obviously I can't not really.

However it seems that some posters are a bit oversensitive and choose to interpret ambiguous comments in a negative way rather than choosing to assume the positive.

RowanMumsnet · 20/06/2012 22:43

@CelineMcBean

I do think postings should stand for the most part - I like to know who is an ignorant twat - but sometimes it would be useful to have an official clarification of the law, acceptable language and the reminders on a thread are good for this. It's not the job of those already living difficult lives to have responsibility for managing the ignorance of some posters.

Yes, this a fair point and we should try to do this more often.