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See all MNHQ comments on this thread

Original poster

Mumsnet is an amazing place

39 replies

saintlyjimjams · 04/11/2011 14:06

Thank you (you know who you are). DS1 will be stoked. And you've made me cry, but in a very very nice way.

I'll add more as I know/organise more over the next week or so, (and so this will make more sense to others - suffice it to say right now that there are some very, very generous mumsnetters). I'll do my best as well to make sure others benefit by way of sharing how it benefits ds1 (via a blog I think) and also campaigning for more public funding for others. I actually had to submit a complaint this week because we tried to submit the funding application to our local authority and they refused to even give us a name to send the report to. I ended up laughing that I'd had to officially complain before anyone had even read the application.

Sorry I know this will be gobbledigook to nearly everyone, but I really wanted to say thank you, (although am finding it hard to find the words) and I wasn't really sure how else to do it.

xxxx

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Original poster
saintlyjimjams · 04/11/2011 22:02

Well that's me in tears (again). Such a lovely person - and I don't really have the words to say thank you.

I asked ds1 which colour he wants and he's chosen (very firmly) bright green when he saw the pictures he said 'mmba' (talker) and pointed at himself repeatedly. I can't wait to see his face when he realises he has one.

He'll be using an approach called LAMP - I'll write lots more about it on the blog - but he's the thirty something'd person to trial it in the UK. He flew with it during his three week trial, in a way I haven't really seen him take to anything before. We've tried other systems in the past but it's been a case of hovering over him and making him use the systems which have been slow, and frustrating for him. Using this LAMP approach he wanted to use the talker, fetched it, and brought it to us. It's fast and it's very flexible and will give him access to a vocab of something like 6000 words! I'll put a lot more about it on the blog, as it's quite different to other approaches and from what I've seen with ds1 I'm convinced and would love to see it more widely available in the UK!

The funniest thing he did during the trial was the second day he had it. I had a social worker visit to try and cut his care package. Ds1 turned up in the room talker in hand and repeatedly said 'go go go go go go go go go' 'goodbye' 'stop' 'go go go go go' Grin (When that didn't work he handed her her handbag).

My Mum btw is completely overwhelmed by the generosity. She has a very close relationship with ds1 - and she is so happy for him and really touched that someone would be so thoughtful.

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MNHQ
RebeccaMumsnet · 04/11/2011 21:40

Hi saintly,

We sent a link to this thread over to the very lovely MNetter and she asked us to post this on her behalf. I will c&p what she has said:

"Thank you very much for the link - I'm all teary myself!

Could you do me a favour? Would you mind posting on that thread and telling jimjams that I'm watching it - very moved by what she has sent through, and I will watch his progress with love and interest.

I don't want to keep pestering MNHQ, but she should know that I will
continue looking for her posts/blogs etc, even if I don't make contact."

Lovely Smile

Original poster
saintlyjimjams · 04/11/2011 19:47

And you BarryKent Smile

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BarryKent · 04/11/2011 19:23

This reply has been deleted

Message withdrawn at poster's request.

Original poster
saintlyjimjams · 04/11/2011 19:00

Oh Barry would love to hook up with you and will do what I can to help and also yes publicise and campaign. Have replied.

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BarryKent · 04/11/2011 18:39

This reply has been deleted

Message withdrawn at poster's request.

StewieGriffinsMom · 04/11/2011 18:30

This reply has been deleted

Message withdrawn at poster's request.

Original poster
saintlyjimjams · 04/11/2011 18:13

Justine has been in touch Rebecca :)

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MNHQ
RebeccaMumsnet · 04/11/2011 17:44

@saintlyjimjams

Yes I'll see whether it can be a mumsnet blog as well - I'm not entirely clear how they work. I'll probably talk a bit about surfing on it as well Grin. Actually ds1 will probably end up talking about surfing as well - it's his main topic of conversation - every day starts with 'narheen?' It isn't a core vocab word Grin but I think we'll have to add it. :)

Please do saintly just send us a mail when it is all up and running and we will forward it over to our Bloggers team.

So happy for you and your DS.

Blu · 04/11/2011 14:34

That news has made my day - very happy for you and your DS, SaintlyJimJams. I hope the kind person responsible gets as much enjoyment from reading the blog (if that's what you decide to do) as you and your family will get from your DS being able to use this wonderful device.

Original poster
saintlyjimjams · 04/11/2011 14:29

Yes I'll see whether it can be a mumsnet blog as well - I'm not entirely clear how they work. I'll probably talk a bit about surfing on it as well Grin. Actually ds1 will probably end up talking about surfing as well - it's his main topic of conversation - every day starts with 'narheen?' It isn't a core vocab word Grin but I think we'll have to add it. :)

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silverfrog · 04/11/2011 14:26

how exciting Grin - he will be over the moon! - please can you link to your blog (or whatever) - I really look forward to seeing what your ds has to say about, well, anything, tbh.

MN really can be amazing - I (and dd1) had sponsorship for a funrun to fundraise for her iPad. that has changed her life immeasurably.

god knows where we (dd1 and I) would be without this place.

Original poster
saintlyjimjams · 04/11/2011 14:20

Yes communication device - and just one mumsnetter, a truly lovely (anonymous) one. So I need to say thank you from the bottom of my heart to whoever it is.

Will think of ways to promote AAC - it is so underused in the UK. DS1 has been shoving the advert at me frequently (he was gutted when his trial finished and the talker was taken away) so he will be so delighted.

Yes council have already told us we wouldn't get it funded as 'things have changed these days' - but we needed a no from them before we could approach charities. They have been taking 18 months to say no in other cases Hmm which was why it was essential to get a name to hassle

Someone on here really is just about to change ds1's life.

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silverfrog · 04/11/2011 14:14

oh, how lovely saintly.

I take it there has been some fundraising for your ds1? I wish I had known, as I would have liked ot contribute. You have, over the years, given so much advice to others, and my dd1 would not be where she is today without the help I have received from you many times (neitehr would dd2, actually, come to think of it)

I hope ds1 has a ball (is it to do with a communication device? I do hope so. although whatever it is, you and ds1 thoroughly deserve it)