Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To request DD be assessed for autism?

65 replies

iCantStopScranning · 12/09/2026 10:44

DD is 17, a smart and socialable girl, and is extremely high functioning (cooks dinners every night, grooms our dog, washing etc). You probably wouldn’t think she could have autism - this is where i wonder if it is worth testing her.

She thinks she could have autism, but be well adapted. She shows many traits: She is a huge masker (was a completely different child when she went to her dads house, even down to the voice), sensitive to loud noises, doesn’t know when to stop talking, overshares almost any detail in anything, feels insignificant to/scared of CERTAIN other people - especially in lessons/classroom, really struggles when plans change even when minor, and she really struggles talking. Her struggle with talking is not a confidence thing though- she will talk to strangers in the shops/new people perfectly fine and even outgoing, and can usually make conversations with new friends, but her actual stringing together of sentences is not great. She is able to write down beautifully, but eg in an english lesson she cannot then explain what she has written down without losing the main point/saying gibberish/etc. This is similar but not as severe in conversational settings; she struggles to say what she would want to.

The main thing is masking, she acts different towards different teachers, being nervous in front of one of her teachers, worrying about what she thinks of her, and then being full of banter and joking with another - she recently “broke the mask” in front of the teacher 1, whilst talking to the other, and cried to me about how know she knows “that’s not her”.

I think it’s really difficult for her, because we honestly don’t know that she would be seen as autistic if she had it, as i think she seems so neurotypical, even to a doctor she would be confident, smiley and probably hold eye contact.
A diagnosis would of course help with school, but do you think she would get a true diagnosis- what’s the testing like for 17-18yo girls?

I just want to emphasise that she really does seem neurotypical, but she feels completely different to others.

sorry for the long read.

OP posts:
Favouritefruits · 13/09/2026 09:18

She won’t get an NHS diagnosis till she’s an adult as some areas have a 5year wait list and school have to have agree with you as they will come to school to assess her and they’ll need to fill in paperwork. If you go private make sure they use the NICE guidelines as otherwise it’s just junk and schools and universities don’t need to accept it which are more expensive around £2.5k

This is purely my personal experience.

greenbird123 · 13/09/2026 09:28

This is quite a good paper explaining the issues with the idea of masking.

“in a preliminary study of the 25-item Camouflage Autistic Traits Questionnaire total score (CAT-Q; Hull et al., 2019), correlations with a social anxiety measure were as high or even higher than those with an autism measure, suggesting confounding by co-occurring social anxiety as further illustrated by some item content (e.g., ‘I am always aware of the impression I make on other people’).”

https://pubmed.ncbi.nlm.nih.gov/32658354/

by Prof Fombonne

Boxoffrogs21 · 13/09/2026 09:42

Wingingit73 · 12/09/2026 12:40

You need to speak to GP. If she is high functioning she will probably be allowed extra processing time in exams and extensions for written work but nothing else. It may give her a greater understanding of herself. She's almost 18 so i would kindly suggest this is all up to her and for her to disclose should she choose it. The whole process is about 18-24 months

Autism and ADHD do not automatically result in any extra time in exams. A test specifically for slow processing would be needed. You may get allowances for rest breaks (usually about 5 minutes per hour) if it is demonstrated that you would benefit from these. The school would have to provide evidence that you need these accommodations as part of your normal way of working. There has been a tightening of the rules, rightly in my opinion, around exam concessions.

QuirkyHorse · 13/09/2026 09:49

Just be aware that she may get a diagnosis of ASD but that will be it.
There will be no follow up or anything.
If she is suicidal you may get some help but it will be short and ineffective if our experience is anything to go by.

She may get more time in exams, she may not.
It might all be a little late though to get a diagnosis before mocks/exams, referral into CAMHS and a diagnosis took about 18 months for us.

KindlySurfiingPlatypus · 13/09/2026 09:55

I would encourage you to support her in seeking a diagnosis. I first suspected I might have autism when I first heard of the existence of the concept in my early 20s but didn't pursue or do deeper research at that point and didn't actually get a diagnosis until my 40s. Many of the complicated things that happened in the intervening decades might have come out more positively with the knowledge and understanding I subsequently gained and I wish I had sought out more information sooner. A diagnosis isn't a label, it's a signpost to help you understand what to look for when things are difficult.

tripleginandtonic · 13/09/2026 09:56

Passaggressfedup · 12/09/2026 12:37

I don't know why people think that masking is a sign of autism/ADHD. Everyone around me, when they are comfortable to open up with admit that they mask in certain situations. I've spent all my life masking. It's mainly about appearing more confident than what we truly feel inside.

Your girl sounds like a typical 17yo. Something's she's good at, others she is still finding her way with. Why wanting a diagnosis?

This

Passaggressfedup · 13/09/2026 10:08

she still needs to learn some strategies to help her navigate life around the issues she has.
Diagnosis is a double edged sword; it can sometimes cause nocebo effects where the issues become magnified. Especially if the individual is seeking the diagnosis themselves

Exactly that! Diagnosis or not, we have a responsibility to learn to adjust. Too often it seems, people seek a diagnosis to be relieved of responsibility and for others to bathe adjustment to suit them.

I've had ADHD all my life. I don't need an official diagnosis for it. It didn't exist 30, years ago. I learned to adapt all on my own. Self reflection, putting strategies in place etc... at almost 60 years, I still have to use the strategies and come up with new ones.

That's life and no diagnosis will change it.

Whatafustercluck · 13/09/2026 10:25

There are a few things in your posts, op.

Firstly, the autism spectrum isn't a linear scale. It's more like a dartboard.

The assessment process now includes questionnaires designed to consider masking behaviours. It also includes retrieving evidence from parents, teachers, other professionals where relevant, which build a fuller picture of the individual than a single ADOS assessment can determine. An individual may not meet the diagnosis threshold on the ADOS due to masking, but still reach the threshold on the basis of other evidence.

What level of impairment is there in your dd's every day life? Does she have mental health difficulties? Friendship problems? Executive funciion weaknesses that make it hard for her to process information? Communication difficulties? You say she's interested in seeking diagnosis to help her with school, but what does that actually mean and look like?

Then there's the assessment waiting time. If she's already 17 and wanting an assessment to help with school, then I'm sorry to say but I think that ship has sailed. It could of course still help if she has aspirations of higher education, but even then you may need to consider paying for a private assessment.

A diagnosis would help her to understand herself and develop strategies to cope with situations she finds particularly hard. I'm just not sure of the level of impact here?

For context, my 9yo dd was diagnosed in March. She's 'high functioning' (for want of a better description because she's not 'profoundly' autistic) but she's had severe mental health problems since starting school, 3 episodes of school avoidance, and two episodes of agoraphobia due to burnout. She 'functions' for periods of time, then falls apart when the understanding and support falls away because she doesn't seem to many to be 'autistic enough'. She's also had very noticeable sensory differences which have been very apparent to us since she was a toddler, but which she hides at school.

Pumpkindice · 13/09/2026 10:38

tripleginandtonic · 13/09/2026 09:56

This

Masking as an autistic person isn't the same thing as a neurotypical person adapting to different social situations. The fact that a neurotypical person can read the social situations and understand what is required and react appropriate pretty much subconsciously is the whole bloody point, an autistic person cant do that.
Instead we think ahead, plan, rehearse, act and are happy if we're 50% as successful as the NT person. And that's forgetting that there's tonnes of other compensations that autistic people have to manage to get through the day.

Honestly there's comments in here about NT resenting having to adapt or make concessions, yet I bet I'm not supposed to point out that as a ND person I have to continuously make concessions for NT who are incapable or unwilling to do basic fucking research or think they should comment on concepts where they understand 10% of what they're talking about. Complete failure to use logic or analysis, wouldn't happen in a ND world yet you think you're the ones making concessions!

Ikeepforgettingmykeys · 13/09/2026 11:56

With much kindness, there is not much in your description that is clearly pointing to autism?

iCantStopScranning · 13/09/2026 12:42

@Ikeepforgettingmykeyshence us asking whether it is worth it or not Smile

OP posts:
iCantStopScranning · 13/09/2026 12:56

@WhatafustercluckYes, she struggles maintaining friendships (and always has), has bad mental health, and often has episodes where it is worse, struggles going into school/had severe anxiety every day of school from reception to around 2 years ago. I think a diagnosis would help in accommodating her attendance issues too/justifying it for references etc.

OP posts:
2manyEnergyDrinks · 13/09/2026 13:00

she sounds normal to me. Why does everything need a label.

Pumpkindice · 13/09/2026 13:13

2manyEnergyDrinks · 13/09/2026 13:00

she sounds normal to me. Why does everything need a label.

Because if you find that you can't seem to get better at certain things, no matter how hard you try, and other people seem to make progress in the same area, it can be helpful to know that there's a reason why, and that you need to approach it differently. In the same way that many people in my parents generation grew up not knowing they were dyslexic and grew up with the shame of feeling that they were 'stupid' or 'lazy' because that's what teachers and society around them impressed on them. Instead there would be posters on here scoffing that they wanted excuses or a label for 'being a bit bad at spelling'.

SeraphinaRainbird · 13/09/2026 19:54

DooDallyHallie · 13/09/2026 07:32

Well if theu are getting 25% more time in exams than everyone else then I am not surprised!
When Reform gets in that nonsense will stop!

Spoken like a true reformer!

New posts on this thread. Refresh page