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Whole families on UC, PIP, DLA and carers' allowance for each other?

578 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

OP posts:
Thread gallery
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Ethelspagetti · Yesterday 08:08

TigerRag · Yesterday 08:01

Then you do it all benefits. Why should I as a disabled person have no say in how I spend my money, yet a single parent is free to spend their money on whatever even if DC go without?

You are free to think and want that, it doesn’t offend me in the slightest.

Simonjt · Yesterday 08:09

Happytaytos · Yesterday 08:02

Yes. Some people use it to support work, great they can carry on. Some use it to not work, they need to be doing something.

I'd actually also have people signing in/on daily. If via PIP that can be from home if your mobility doesn't allow, but a daily 9am up and dressed zoom call would force some kind of routine on to people.

OP is describing what she has seen. She has not attributed it to all parents, but we do a disservice to dismiss her experience.

How will my quadraplegic mate be up and dressed a full hour before his carers arrive?

DestituteDesperate · Yesterday 08:10

This thread is rather tacky. At one point due to a SERIOUS condition which almost cost me my life, I was signed off work for more than 3 months and have to rely upon a modest amount in benefits, as I had a mortgage at the time, I didn’t qualify for anything else during that period and that didn’t cover half my mortgage costs. However, the contempt and sheer elitist attitude I encountered from the job centre staff down to every day folk when my I mentioned I was currently on benefits was absolutely appalling.

Despite having multiple surgeries and still no long term fix, I’ve gone back to work full time (against my consultant advice) because I can’t afford to live, feed my son and function (racked up so much credit debts to keep my head above water) and having to wear adult nappies, I then get even more appealing comments directed at benefit claimants. They’ll say ‘see, you’re really sick but if you can work, why can’t they?’

In both situations I felt like crap, one as direct result of being on benefits and second for people using me as a reason to continue to bash people on benefits.

FYI I am struggling to physically and mentally do it all but as long as I get a slap on the back from people like the OP, it makes my chronic pain, indignity and mental and physical burn out, OK.

I am sick of people making threads and lying about their intentions.

OP you can absolutely have your opinion and I advocate it but say it with your chest.

Busybeemumm · Yesterday 08:12

Burnedbyquestions · Yesterday 07:54

This is so sad. I wonder what age kids are when they realise they’re in a problematic environment, if there’s a window to help them see that they don’t have to follow the same path, before it’s too late for them to break out of that cycle?
It would doubtless be way younger than the age these issues are covered currently in PSHE lessons as by say 13-15 many of these kids will already be detached and disengaged from learning, have solidified their behaviour patterns and on the same path.
Or is it just so difficult to help kids break the cycle when their parents and home environment are basically their entire world when they’re young?
Like the plot of Matilda - she sees it from so young and disengages from her parents to read etc by herself but that’s so unlikely IRL.

The school environment can be very mixed with parents on benefits and those who work.

Sadly though by the end of Autumn Reception term there seems to be cliques formed with parents on benefits and working parents hanging out separately so the kids don't tend to mix outside of school. This means disadvantage kids have even less exposure to extra curricular activities and opportunities while working parents and going from club to club and theatre shows at the weekends.

Maybe some kind of support to get the kids to all these opportunities so they can see themselves what they could achieve and break the cycle.

Beepen · Yesterday 08:13

Simonjt · Yesterday 08:09

How will my quadraplegic mate be up and dressed a full hour before his carers arrive?

I would rather he had more money and less went to the people who claim they are very disabled and need PIp while simultaneously claiming they are a carer for someone else who is very disabled and needs Pip.

Pip and carers allowance should be mutually exclusive. That would put an end to a fair amount of the scamming

Happytaytos · Yesterday 08:13

Simonjt · Yesterday 08:09

How will my quadraplegic mate be up and dressed a full hour before his carers arrive?

Obviously that's an exception.

About 40% of PIP claimants are psychiatric conditions. Granted some of those will be very high level need, possibly impatient care level. However I'd wager a lot of those claims are people who could offer some sort of work. We've all got stories of neighbours, acquaintances etc claiming who don't really need to. But perhaps they are the smart ones because they take home more than my FT teacher wage once housing etc is considered.

DestituteDesperate · Yesterday 08:13

Happytaytos · Yesterday 07:58

It's time that UC and PIP required some sort of labour. There should be some sort of community service type work done by people on UC and PIP. Don't turn up, don't get paid.

Surely you can not be serious?

TigerRag · Yesterday 08:14

Happytaytos · Yesterday 08:13

Obviously that's an exception.

About 40% of PIP claimants are psychiatric conditions. Granted some of those will be very high level need, possibly impatient care level. However I'd wager a lot of those claims are people who could offer some sort of work. We've all got stories of neighbours, acquaintances etc claiming who don't really need to. But perhaps they are the smart ones because they take home more than my FT teacher wage once housing etc is considered.

But you can already work and claim pip?

Beepen · Yesterday 08:14

DestituteDesperate · Yesterday 08:10

This thread is rather tacky. At one point due to a SERIOUS condition which almost cost me my life, I was signed off work for more than 3 months and have to rely upon a modest amount in benefits, as I had a mortgage at the time, I didn’t qualify for anything else during that period and that didn’t cover half my mortgage costs. However, the contempt and sheer elitist attitude I encountered from the job centre staff down to every day folk when my I mentioned I was currently on benefits was absolutely appalling.

Despite having multiple surgeries and still no long term fix, I’ve gone back to work full time (against my consultant advice) because I can’t afford to live, feed my son and function (racked up so much credit debts to keep my head above water) and having to wear adult nappies, I then get even more appealing comments directed at benefit claimants. They’ll say ‘see, you’re really sick but if you can work, why can’t they?’

In both situations I felt like crap, one as direct result of being on benefits and second for people using me as a reason to continue to bash people on benefits.

FYI I am struggling to physically and mentally do it all but as long as I get a slap on the back from people like the OP, it makes my chronic pain, indignity and mental and physical burn out, OK.

I am sick of people making threads and lying about their intentions.

OP you can absolutely have your opinion and I advocate it but say it with your chest.

I am guessing you wouldn't be able to care for someone else who was disabled enough to qualify for PIP though?

GreatWideOcean · Yesterday 08:14

I'm a qualified social worker with four disabled children. Medically disabled with genetics that didn't manifest until they were into their teen years. We had no idea. Me and my DH are educated very highly, but I won't give those details.

I have seen families with generations of challenges to overcome and none of it was ever related directly to disability. Disadvantage takes several generations to really overcome.

I am not working as I am caring for my children myself. I'm not in the UK so the same criteria doesn't count to qualify for benefits. I am very capable of supporting my children practically and do all the way. I don't get a carer payment because my DH earns way too much. I don't work in paid employment because I have way too many days where I wake up and my well planned day is suddenly changed to having to go to emergency. I do lots to help my children (two of whom do get disability payments) and I do it well.

Do you know why I can do it well and more than meet the standards you have laid out? Because my DH earns a lot of money to enable me to do that. Supports are expensive. Many are not so lucky to be that capable of self-sufficiency either through income or lack of skills. It's a privileged position to be able to say parents need to help their own disabled children more. It's expensive, time consuming, takes skills a lot don't have. Then some parents just don't have the personal capacity to do it day in day out.

I think you are being judgemental and don't really have in depth knowledge of this area, OP. It's not that simple.

Happytaytos · Yesterday 08:15

Busybeemumm · Yesterday 08:12

The school environment can be very mixed with parents on benefits and those who work.

Sadly though by the end of Autumn Reception term there seems to be cliques formed with parents on benefits and working parents hanging out separately so the kids don't tend to mix outside of school. This means disadvantage kids have even less exposure to extra curricular activities and opportunities while working parents and going from club to club and theatre shows at the weekends.

Maybe some kind of support to get the kids to all these opportunities so they can see themselves what they could achieve and break the cycle.

Because the benefits parents are on the gate every day, they go for coffee together because they aren't at work, they go to each others houses in the day because they aren't at work. Wheras the working parents are at work.

5128gap · Yesterday 08:15

Ethelspagetti · Yesterday 07:49

I think it’s a generational thinng that impacts how they see education. I come from a family who are all disabled but could work. They struggled to find work or it never lasted long because they have learning difficulties as well as a shared disability. They are all on long term benefits. I do not share the disability gene. When I got Bs in my GCSEs my parents didn’t congratulate me. They stared at me blankly when I told them I was going to college. They were unhappy when I went to university because it was a “waste of time”. When I got a well paid job and bought a house they seemed genuinely surprised! They truly didn’t understand that education can lead to well paid jobs and buying a home.
i have encouraged my children to do well and plan ahead education wise, because I know it matters. One of my siblings actually said to me that she wouldn’t get out of bed as early as me for a salary. I thought she was stupid and far too comfortable on her benefits. Her £4,000 per month on benefits made her ignorant to the real world in terms of minimum wage and living in a budget. She has no rent or council tax to pay. She is comfortable in her little bubble. She has made 4 children who all have the same disability therefore PIP. She doesn’t care about their education at all. Her only concern is if they’ll get a council house in the future as it’s more difficult now! I would prefer to see the disability benefits overhauled. Instead of giving them money, to give them access to things they need e.g a voucher book to pay for interpreters for deaf people, another voucher book to a taxi service or mobility car for physically disabled people, a carer for people who need it. Not cash thrown at them. My sister gets £4,000 per month from benefits and everyone’s PIP combined. That’s £48,000 per year. Many disabled people I knew through the family did work at the local sure start centre run by the government for disabled workers only. The government closed all of them down back in 2000s to save money, putting millions of disabled workers out a job. The disability benefits needs an overhaul and those factories need to open up again.

Voucher schemes are more expensive to administer. They achieve no benefit to the public purse and would be just empty appeasement to people who don't like the thought of disabled people receiving money. I'd take a very dim view of a government who caused a higher cost to the tax payer just as a sop to these people.

Livelovebehappy · Yesterday 08:15

Simonjt · Yesterday 08:09

How will my quadraplegic mate be up and dressed a full hour before his carers arrive?

You’re being silly. The comment wasn’t directed at all claimants, but at those who are able contribute to some type of work. Clearly there will be instances where a claimant cannot work. Obviously the comment was not directed at someone quadriplegic……..

Happytaytos · Yesterday 08:15

TigerRag · Yesterday 08:14

But you can already work and claim pip?

But there's little point when PIP pays enough to survive without working.

Monty36 · Yesterday 08:16

Lougle · Yesterday 00:06

The care needs can't conflict. It's possible that, say, claimant 1 is paralysed and needs physical care, but claimant 2 has depression and anxiety so needs psychological support.

In which case you would have to wonder if the person with depression was best placed to be a carer.

MyGodMyThighs · Yesterday 08:17

Anyone denying the existence of families like this hasn’t spent enough time in SEND circles or around schools in deprived areas.

Both my children have disabilities. One attends a special school and the other I had to home ed through secondary school years.

I am fortunate to have had a solid upbringing and excellent education. My husband the same. We have fought tooth and nail to hold onto our careers, and keep developing them, through 16 extremely challenging years managing health crises, juggling hundreds of different doctors / OTs / physios / etc etc, adapting our home and lives around one child’s physical disabilities and learning disabilities, and the other’s neurodivergence, connective tissue disorder, and epilepsy.

It has been an uphill battle all the way but in some ways we have had good support and generally ok services.

So on one hand I say ‘there by the grace of god go I’.

On the other, it has been a lonely ride. I have tried attending a few SEND parent / parent carer meetings ups over the years. As has my husband. Taking time off work to make connections with others in similar circumstances and to contribute to advocacy efforts. Yet each time, the groups are without fail overwhelmingly attended by the same types. The ones there for the free biscuits and the £10 ASDA voucher.

And don’t get me started on ‘home ed’ groups. What I saw there was truly frightening.

Somethinggg · Yesterday 08:17

People often have bright ideas about conditionality that obviously haven't had much thought put into them. The quadriplegic point has already been made. Another issue is the failure to explain what sort of community work do we have that would be suitable for all claimants, fit around work for those already in employment, that could be supervised and that wouldn't become more expensive than it is just to pay them what we do now. Wanting people to work more doesn't in itself create roles where the value of their labour outweighs the costs of extracting it. And then there'd still be people who can't or won't do the work, as there always have been, so we'd still need some kind of solution for them.

It's a difficult situation, but the reality is that we have a society that isn't constructed in a way allowing all of us to earn enough through our work to live on. This is likely to get worse, not better.

TigerRag · Yesterday 08:17

5128gap · Yesterday 08:15

Voucher schemes are more expensive to administer. They achieve no benefit to the public purse and would be just empty appeasement to people who don't like the thought of disabled people receiving money. I'd take a very dim view of a government who caused a higher cost to the tax payer just as a sop to these people.

I wonder if anyone's considered that some people would just sell the voucher and get the money that way

Beepen · Yesterday 08:18

Monty36 · Yesterday 08:16

In which case you would have to wonder if the person with depression was best placed to be a carer.

Quite. Because you have to be so depressed you can barely function to get PIP (if you are honest on the form)

Simonjt · Yesterday 08:18

Happytaytos · Yesterday 08:13

Obviously that's an exception.

About 40% of PIP claimants are psychiatric conditions. Granted some of those will be very high level need, possibly impatient care level. However I'd wager a lot of those claims are people who could offer some sort of work. We've all got stories of neighbours, acquaintances etc claiming who don't really need to. But perhaps they are the smart ones because they take home more than my FT teacher wage once housing etc is considered.

What about all the employed people claiming PIP, to attend your meetings would likely mean losing their jobs as they’re no longer available to work.

My husband has a severe physical disability, he also has a mental health condition, when he was in receipt of PIP he would have counted under claimants with mental health conditions. I’ve never met anyone who receives PIP who doesn’t need it.

ExpectMore · Yesterday 08:19

likelysuspect · 05/09/2026 23:57

I work with service users who are very similar, in front line work

One thing that I have always found baffling, is that 2 people can claim carers allowance for caring for the other. So you need a carer, so the state pays carers allowance for that. But equally you are also a carer and the state pays you carers allowance as well.

Its a pittance obviously but the concept is flawed.

Seriously? That’s ridiculous. It won’t be a pittance on the national scale. This needs stopped. How can anyone claim to need a carer whilst also claiming to be someone else’s carer without feeling disingenuous is beyond me.

Nowdontmakeamess · Yesterday 08:20

dizzydizzydizzy · Yesterday 08:05

agreed! I highly doubt OP has that much insight into so many people’s lives.

I live on benefits. I look very well. I’m not (and it’s not MH). I’m sure there are plenty of people who think that I could work. I can’t.

They aren’t bashing everyone on benefits, just a specific group of people that have no motivation or need to push themselves or their children towards a life where they don’t need them. You can’t seriously believe they don’t exist - generations of people on benefits, living in council houses, not valuing education - I know plenty in the area I live. They are a drain on society, not contributing anything positive.

TotaleclipseinFrance · Yesterday 08:20

With the thought that this sometimes is the case in my mind, I think it's a case of shit life syndrome.

People tend to form relationships with those in similar circumstances. That's the crux of it.

It really is best to try to hang out with people who are better than you. They will raise you up. If only by a fraction.

Unemployed man, living at home lazy as hell or just a bit strange meets unemployed single mother who is on benefits (yes obviously some single mothers work. Obviously.) not working when she could.
He cocklodges as he has a certain charm while she thinks she's lucky as she's not as attractive as him.
They are already trying to get the kid diagnosed with autism etc for more money.
She 'accidentally' gets pregnant (at 30).
Yet another child is born to this.

Neither have any particular loyalty to each other.
Her because deep down she's been used. Him because he's an user.
So one of them cheats eventually.
The cycle continues until they age themselves out of the situation.

Meanwhile predators sensing the weakness of the 'family unit' abuse the children.
The children go on to have shit life syndrome.

DestituteDesperate · Yesterday 08:20

Beepen · Yesterday 08:14

I am guessing you wouldn't be able to care for someone else who was disabled enough to qualify for PIP though?

Well, having a child who was less than 3 years old when I was on benefits, there was an element of caring I had to do irrespective of bleeding out my back passage, having malignant tumours removed, having ongoing bowel surgery.

So I will always have an element of care giving, my child was born before I became unwell and becoming disabled and sick doesn’t mean it exempts me from such duties. Yes, I relied upon my elderly widow mother and siblings to provide support when I physically was in hospital etc.

So the snarky point you’re trying to make is a moot point with me.

Marycontrarygarden · Yesterday 08:20

randomchap · 05/09/2026 23:09

Not benefit bashing? Really?

So you're not just doing a benefit bashing thread while the mods are asleep

So blatant

But unfortunately so true.