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Whole families on UC, PIP, DLA and carers' allowance for each other?

578 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

OP posts:
Thread gallery
5
Itchthescratch · Yesterday 17:55

This is such a strange debate. There is no universal presumed frequency of admission for such a specific condition. I stated that it seldom happens, implying it's rare, you have argued with me all this time but when I suggested that you thought it was pretty common you take exception to that. So do you think it's rare too?

You did presume they had a disability. I stated that they were temperature sensitive in my opinion due to an ND trait. You then wrote:
So despite what you portrayed in your post, your in laws aren’t actually making a choice. If they can’t do something or need something because of their disability it isn’t a choice. That was the point I was making
They aren't disabled. Their choices are influenced by their limitations and traits as are everyone else's. The inability to accept that the concept of 'choice' is nuanced and often influenced by limitations is frustrating. Something can ostensibly appear to be a choice but actually there is something else driving it. This is true for people that are disabled and non disabled people. My sister was another example I used. She won't drive long distances because she feels so anxious doing this and feels unsafe. Is this a choice or a symptom of unusual anxiety? Anxiety is a normal part of the human condition but most people can drive long distances.

If a disabled person with an anxiety disorder stated that their PIP was used to pay for taxis as they couldn't drive far then I imagine you would view this differently than my sister's anxiety but can we be absolutely sure they are not the same thing? Some people just experience fewer traits and symptoms than others but the problem is widely prevalent in the population.

My overall point is that people are incurring extra costs for traits and symptoms outside of their control all the time. Some of these can be extremely costly and yet they won't qualify for PIP. The cost of the disability isn't assessed when awarding PIP. This leads to huge grey areas and incentives to lean into difficulties to make sure the claim is successful.

roaringdragon · Yesterday 18:06

As I said, it isn’t as rare as you/people think. That was what I specifically said. Multiple times. Nothing more, nothing less. I stand by that. It isn’t as rare you/people think it is.

I presumed the person who had something that was “hugely impacting their decision making” has a disability. If that isn’t your in-laws then I’m not sure why your paragraph included them in the next sentence. It was like you were using them as an example.

As I said if someone can’t do something, it isn’t an active choice they are making. As I said, that applies whether they meet the definition of being disabled or not. It also applies whether they are in receipt of PIP or not. So, you imagine wrong.

SkinnyCigarette · Yesterday 18:13

Harry12345 · Yesterday 13:44

No id rather keep going until I can’t any longer

Then don’t complain about people on benefits getting “the same” as your full time wage.

Harry12345 · Yesterday 18:17

SkinnyCigarette · Yesterday 18:13

Then don’t complain about people on benefits getting “the same” as your full time wage.

I can complain all I want! Most people would agree you should not be better off financially on benifits as there is no incentive to work! I am quite proud of what I have achieved despite my disability and when the time comes I need to be on benefits I do not think I should be getting the same as a full time professional worker to live on

emuloc · Yesterday 18:36

Itchthescratch · Yesterday 15:15

More than one thing can be true at the same time:

Some people are disabled or have disabled children and need every penny and sometimes more to simply survive

Some people are disabled or have disabled children and they don't have particularly high disability related costs and essentially make a profit from their PIP/DLA.

Some people exaggerate their health issues so that they claim PIP/DLA

People in the first category waxing lyrical about their situation doesn't mean the other categories don't exist. I wish genuine claimants would get angry at those who are undermining the system and spoiling it for genuine claimants, rather than people pointing out the obvious, that many are abusing the system.

I could waste energy getting angry at posts like yours, that pedal stupid, dangerous lies, but instead I just roll my eyes.

SerendipityJane · Yesterday 18:38

Has anyone remembered that pensioners are net benefit recipients yet ?

SkinnyCigarette · Yesterday 18:40

Harry12345 · Yesterday 18:17

I can complain all I want! Most people would agree you should not be better off financially on benifits as there is no incentive to work! I am quite proud of what I have achieved despite my disability and when the time comes I need to be on benefits I do not think I should be getting the same as a full time professional worker to live on

Can you give an example of someone who is “better off financially” than you who is on benefits compared to your full time wage?

Harry12345 · Yesterday 18:41

SkinnyCigarette · Yesterday 18:40

Can you give an example of someone who is “better off financially” than you who is on benefits compared to your full time wage?

I have throughout this post if you look back

SkinnyCigarette · Yesterday 18:46

Harry12345 · Yesterday 18:41

I have throughout this post if you look back

Im not trailing through 22 pages I’m afraid.

If you know which page you posted your comparison breakdown I’ll gladly have a read.

babyproblems · Yesterday 18:49

Palomiino · Yesterday 08:47

How are they ‘generational’? What evidence is there for this?

Disabilities are sometimes hereditary, yes.

@Palomiino the culture of families I mean; not genetic conditions, although you are right these are occasionally hereditary. They’re not at all the same thing.
People with genuine need should have all the support they require.
Op is talking about learned behaviours. These are generational and are passed down through families. The problem today is that some of the diagnostic criteria for some conditions potentially crosses over into learned behaviours; and so it’s not a medical condition or disability that is responsible for those behaviors. ADHD is a particularly strong example of this where some of the behaviors that can suggest ADHD are actually learned rather than as a result of actual ADHD. The diagnostic criteria is so large that the net is huge.
I don’t know if this has already been shared but there is some research that shows correlation between ‘chaotic’ home environments and ADHD behaviors in other settings for example.

pmc.ncbi.nlm.nih.gov/articles/PMC9796059/

SerendipityJane · Yesterday 18:49

SkinnyCigarette · Yesterday 18:40

Can you give an example of someone who is “better off financially” than you who is on benefits compared to your full time wage?

I don't think facts are any use here.

Harry12345 · Yesterday 18:55

SkinnyCigarette · Yesterday 18:46

Im not trailing through 22 pages I’m afraid.

If you know which page you posted your comparison breakdown I’ll gladly have a read.

This is 2 examples

Whole families on UC, PIP, DLA and carers' allowance for each other?
Whole families on UC, PIP, DLA and carers' allowance for each other?
SkinnyCigarette · Yesterday 19:11

Harry12345 · Yesterday 18:55

This is 2 examples

Thanks. But these are just second hand anecdotes though.

These aren’t full comparison breakdowns between your income and outgoings against the benefits and outgoings of these people supposedly “better off financially”.

Are you able to provide a full breakdown comparison to truly back up your claims?

There’s a benefit cap on the total amount of welfare a household can receive. Single parents, like the single mum you “know”, are capped at £1,835 a month (or £2,110 in London)
Claiming that a single mum receives £2,400 in benefits without a sever disability exemption is impossible under the DWP rules.

Also PIP isn’t means tested, it’s awarded and based on sever physical and mental limitation supported by comprehensive medical evidence. It is not awarded for personal preferences such as “disliking touching food”.

Regarding your cousin, “not needing to pay council tax or rent”, you are aware that UC includes the ‘housing element’ meant to cover rent. If your cousin gets Hugh monthly totals then that figure already includes their rent money which is immediately paid out to their landlord or council. It isn’t kept as disposable income “for more weed and takeaways”. Council tax reduction is a localised reduction not a cash payment.

You also seem to not include the fact that full time workers in a professional role (yourself) retain long term earning potential, pension contribution, career progression and access to tax free allowances that state benefits don’t offer. You don’t explain how your job security means that YOU are actually financially better off than people on benefits for ailments.

Palomiino · Yesterday 19:20

Harry12345 · Yesterday 18:55

This is 2 examples

Anecdotes and stories are not proof.

Ever heard of urban legends?

Palomiino · Yesterday 19:22

babyproblems · Yesterday 18:49

@Palomiino the culture of families I mean; not genetic conditions, although you are right these are occasionally hereditary. They’re not at all the same thing.
People with genuine need should have all the support they require.
Op is talking about learned behaviours. These are generational and are passed down through families. The problem today is that some of the diagnostic criteria for some conditions potentially crosses over into learned behaviours; and so it’s not a medical condition or disability that is responsible for those behaviors. ADHD is a particularly strong example of this where some of the behaviors that can suggest ADHD are actually learned rather than as a result of actual ADHD. The diagnostic criteria is so large that the net is huge.
I don’t know if this has already been shared but there is some research that shows correlation between ‘chaotic’ home environments and ADHD behaviors in other settings for example.

pmc.ncbi.nlm.nih.gov/articles/PMC9796059/

So you are only talking about ADHD?

And the thing about ADHD is that it’s 1 genetic and 2 untidiness is a symptom so arguably it’s not the chaos that causes the ADHD,it’s the ADHD that causes the chaos…

cornflakecrunchie · Yesterday 19:40

What a strange thread.
No one has any answers, just wanting to argue with others.
I'm out.

frozendaisy · Yesterday 19:40

Surely the discussion about the increase in the benefits bill, because no one can say that the numbers of people claiming sick benefits and universal credit has increased exponentially over the past decade.

It is unsustainable to keep the projected increase at the same level of benefit income.

So what should be done? How do you address this as a bulk economic problem? It’s impossible to govern by individual cases.

The pension part of the welfare bill can be partly addressed by increasing the pension age, freezing pension credit levels and letting the standard state pension catch up so effectively you phase out pension credit and cut off a year from claiming.

What are the options to fairly reduce the other half of the welfare bill. These are the decisions that need to be made. Do you reduce the amount each claimant gets but allow all who need to claim? Do you tighten up the criteria for sickness and disability?

Too many people just don’t want to work. Why would they? Their benefits pay enough why bother with the stress and constrictions of a minimal wage job?

No one would go to work for more stress and less money than you are given for not going to work. If you can feign symptoms and conditions to prevent being made to work you are going to do it. And to think that many people don’t play the system is naive. It might not be your household but those chancers, the ones who exaggerate and know they aren’t as disabled as they can make out, why are there videos telling people what to write to get payouts? The system can be played. And these chancers could be the reason that the whole benefits system comes crashing down and becomes much less generous for those in genuine need.

Whether it’s true or not, there are videos of people flaunting their benefit lifestyle online. And people believe them. It doesn’t take much to push people to vote for politicians who say they will get rid of these claimants flaunting their day shopping whilst you have been out in the winter weather putting in a 10 hour shift.

It won’t be good for anyone.

Harry12345 · Yesterday 19:49

Palomiino · Yesterday 19:20

Anecdotes and stories are not proof.

Ever heard of urban legends?

Look it up what the benifits are! I see this constantly in my work and have numerous family members and people I know. What do you not agree with? That’s how much people on benifits get, you can find out for yourself, why on earth would I make it up?
again for the 20th time I am not against benifits but think it’s shouldn’t be the same as working full time

VeneziaJ · Yesterday 20:09

likelysuspect · 05/09/2026 23:57

I work with service users who are very similar, in front line work

One thing that I have always found baffling, is that 2 people can claim carers allowance for caring for the other. So you need a carer, so the state pays carers allowance for that. But equally you are also a carer and the state pays you carers allowance as well.

Its a pittance obviously but the concept is flawed.

Not really no! A person (for example) with severe mental health issues might be capable of the physical tasks that a person say in a wheelchair might require, but struggle with things like phone calls, financial management social interactions, memory loss etc which the partner in the wheelchair might take on! So two people with different needs can be carers and also people in need of care

ExpectMore · Yesterday 21:17

LakieLady · Yesterday 08:37

It's not flawed at all. Different disabilities have different needs, so it's possible that each can meet the needs of the other.

The best example of this that I've come across was a couple where the man was visually impaired and his wife was a wheelchair user. He was her mobility, she was his eyes. I used to see them in the supermarket, she would direct him to reach the right products by telling him "left a bit, no too far, right a bit, that's the one".

But why as a couple, who are presumably both already on PIP, do they need carers allowance for one another?

They already get PIP as they can’t work, and would presumably look after one another as a couple, so why do we need to pay them more?

nocoolnamesleft · Yesterday 21:23

ExpectMore · Yesterday 21:17

But why as a couple, who are presumably both already on PIP, do they need carers allowance for one another?

They already get PIP as they can’t work, and would presumably look after one another as a couple, so why do we need to pay them more?

You can't live on maximum PIP, and you're not meant to. PIP is meant to pay for the extra living expenses of being disabled.

roaringdragon · Yesterday 21:27

ExpectMore · Yesterday 21:17

But why as a couple, who are presumably both already on PIP, do they need carers allowance for one another?

They already get PIP as they can’t work, and would presumably look after one another as a couple, so why do we need to pay them more?

It isn’t just about the money, PIP doesn’t pay NI credits, CA does.

PIP isn’t because they can’t work. It is a disability benefit, not an out of work benefit.

HouseBee · Yesterday 21:29

MrsPapillon · Yesterday 11:51

I get PIP and my DH claims CA. I have to say, I can’t understand how two people can claim CA for each other if they’re both on PIP. I get PIP because I can’t do things for myself, DH has to do them. If he were also disabled I couldn’t do things for him that I can’t do for myself.

I may be able to prompt him to take medication or offer encouragement but given the marked deficits across the board you need to get PIP in the first place, I doubt anyone would be able to claim it if they just needed mental support. I’d imagine those cases were very few and far between.

I know a couple in that position. They have very different issues.
One has no energy due to a very long list of illnesses so her DP does all the cooking etc…
Her DP has huge issues with anxiety so can’t go out alone etc… she supports him in doing that.

likelysuspect · Yesterday 21:30

roaringdragon · Yesterday 21:27

It isn’t just about the money, PIP doesn’t pay NI credits, CA does.

PIP isn’t because they can’t work. It is a disability benefit, not an out of work benefit.

If someone is out of work, then their NI credits are paid via UC in any case, the CA doesnt need to fulfil this role

If someone is in work then their NI credits are dealt with via that way.

ChloeKellys · Yesterday 21:34

If you're disabled I can't blame them. I also can't blame someone who is caring for disabled children. Some health issues can be managed, but there are some that can't be powered out off. I think it MND, cancer, CFS etc.

But I only think to myself where OP has health issues, so does her DH. And they produce not one, not two but three DCs who are ALL disabled.

I also think to myself many MNers heavily disapprove of cousin marriages don't they? Due to the issues with the kids and the cost to the taxpayer with their care.