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Whole families on UC, PIP, DLA and carers' allowance for each other?

578 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

OP posts:
Thread gallery
5
Kirbert2 · Yesterday 15:04

Harry12345 · Yesterday 14:22

Everyone should google or use chat gpt to look into what families are actually getting before jumping on people who have an opinion about it being too much. There’s no doubt that their are families are struggling, need benifits and can never work but their has also been a culture of relying on it and staying on it as it’s a better income than working. I know people deliberately working 16 hours so then to claim UC for the rest, they have no disability’s at all. There is definitely people playing the system and as I say using asd and adhd as an excuse from the get go not to work instead of trying everything for them to get into the job market. I saying that I work with parents who are trying to do that but there older child will never be able to work and they can find that hard to accept. Again I just do not think you should be better off not working and that is the case for many.

Several people on this thread don't need to google to have an opinion because they are either disabled themselves and/or have a disabled child.

It's my life. I know I'm not living in luxury and I know that having a disabled child is expensive.

x2boys · Yesterday 15:04

OneLilacHedgehog · Yesterday 14:59

My point was loads of people with disabilities have nowhere near a £1000 a month costs quoted.

And loads of people with disabillities will get no where near £1000/ month some wont get anything .

SlugJam · Yesterday 15:07

x2boys · Yesterday 15:04

And loads of people with disabillities will get no where near £1000/ month some wont get anything .

Do any? My son receives the highest rate DLA and it’s nowhere near £1000 per month.

Kirbert2 · Yesterday 15:08

TigerRag · Yesterday 14:47

Not my experience. I was told they don't supply things like electronic magnifiers.

Disability aids are far more than a wheelchair

Not in my experience either.

Or it is provided but not enough e.g incontinence pads, physio.

FirmSnake · Yesterday 15:09

Nottodaythankyou123 · Yesterday 15:03

Yeah but how do you draw the line? I think that’s the difficulty!

Very difficult, and I am glad it isnt my job. But it must be done.

Owninterpreter · Yesterday 15:10

OneLilacHedgehog · Yesterday 14:56

Why are you doing this? I said costs ramp up when you need carers and then you fire back and example of someone who has to pay for carers? It's a perplexing response.

By the way loads of people not entitled to pip are too ill or disabled to decorate or do DIY, that is not uncommon.

I hadn't picked up the carers exclusion element. I'd only picked up the bit where someone said what costs are associated with being in a wheelchair other than the cost of a wheelchair. So I was giving examples of costs that wheelchair users have other than the wheelchair. My aunt wouldnt need carers if she didnt use a wheelchair so it feels nonsensical to rule out the main costs commonly associated with wheelchair use. And I dont think she views cleaners and hair washing as care to be honest although the hairdresser looks like carer its a hairdresser not a carer..

Yes I am sure there are many people not entitled to pip who pay people to do decorating tasks that they are not fit or safe to do. That is an additional cost of a disability, regardless of the lack of pip.

I repeat it is an imperfect benefit and currently the government has set the threshold where it is. So if your disability doesnt meet the threshold you pay it yourself and if it does you get support But either way its a cost of being disabled and people are disputing that there isnt much cost with disability - just a cane or some batteries apparently.

x2boys · Yesterday 15:11

The cost of disabillity is going to vary from person to person
My sons DLA goes into the family pot wih everything
But we spend a fortune
Clothes for example he tends to disrobe wherevr he feels like so im constantly replacing lost or damaged clothes
Hes obssessd with water and extremely destructive
So we have had floods
I have to replace things hes broken
I cant tell you how many washing machines we have gone through due to the huge amount of washing i do.

Harry12345 · Yesterday 15:13

Kirbert2 · Yesterday 15:04

Several people on this thread don't need to google to have an opinion because they are either disabled themselves and/or have a disabled child.

It's my life. I know I'm not living in luxury and I know that having a disabled child is expensive.

Yeah same, I am disabled and have a disabled child too. I am talking about people denying that many on benifits get more than people in full time jobs which I disagree with!! If you agree then fine but that’s my opinion!

x2boys · Yesterday 15:13

SlugJam · Yesterday 15:07

Do any? My son receives the highest rate DLA and it’s nowhere near £1000 per month.

I i know i was assuming other benefits too like universal credit has a disabillity element.

Itchthescratch · Yesterday 15:15

Harry12345 · Yesterday 14:43

I don’t think anyone is saying there is not cases of people needing the amount but there are definite cases when they do not. I was on benifits myself for years too and it is horrible to think you’re being judged but that’s not what I’m speaking about here.

More than one thing can be true at the same time:

Some people are disabled or have disabled children and need every penny and sometimes more to simply survive

Some people are disabled or have disabled children and they don't have particularly high disability related costs and essentially make a profit from their PIP/DLA.

Some people exaggerate their health issues so that they claim PIP/DLA

People in the first category waxing lyrical about their situation doesn't mean the other categories don't exist. I wish genuine claimants would get angry at those who are undermining the system and spoiling it for genuine claimants, rather than people pointing out the obvious, that many are abusing the system.

Lemonorzo · Yesterday 15:15

TheLivelyCat · Yesterday 11:20

Wow. Yes there may be an element of people like this. But to generalise in you roll is wrong, I have a DD with ASD/OCD/PDA, as well as the daily challenges, The paperwork, forms filling, parent course, school meetings, part time timetable, CAMHS ect is a full time job in itself. And next year we have senior school to deal with, which means this year I need to go speak to them etc.
On top of that I gave a younger child who also needs me.
DH works full-time, but yes people look at me and think Im lazy. As I "don't work".
Soyes I clame DLA for her. I also have ASD myself and get PIP. As the toll of it all has taken a hit on my mental health, executive functioning skills, physical health etc, if I had to work as well I eould absolutely break down, and be unable to function, the money helps me to buffer, fund support, pay for convenience, and give me some breathing space.

Edited

I’m similar. I am desperately trying to find a job that works around DD and DH. No one wants flexible employees though. I previously worked in a school who had zero flexibility.
DH (normally works FT) isn’t able to drive at the moment and had 6 appointments this week, all over the place. DD has one and I have to go into school to sort more issues. DH could take a taxi but he needs some physical help as well.
Im sure people think that I’m just hanging about a lot of the time, because I am. Part of being a carer is also about being available.

My mum worked in disabled children’s respite care in the 70s/80s. Children regularly came for the weekend, few days etc, some children came every week. This doesn’t seem to exist anymore. Instead parents can access money to employ someone to help, judging by parents I know this seems almost impossible. So much of the care has been pushed back to parents to do/organise., but also makes it much harder for them to work.

LakieLady · Yesterday 15:18

x2boys · Yesterday 11:53

Can you care for yourself
Prepare a simple meal
Travel from A to B independently
If yescl than its unlikey you will be successful

What about the other 9 descriptors for daily living? And can you both plan AND undertake a journey safely? Even if it's a journey you've never done before?

Do you have ADHD that can cause you to get distracted while your dinner's cooking so it burns, or you absent-mindedly leave a tea towel too close to the hob so it catches fire? That means you need supervision in order to cook safely, so you get 4 points and are halfway to getting the standard rate of the daily living component. So depressed that you can't motivate yourself to cook a meal from scratch and live on toast? You need prompting, 2 points.

I've got PIP for clients who have such crippling social anxiety that they got PIP just on the descriptor about mixing with other people; including the mobility element because they can't bear to go out for fear of having to talk to someone.

All my clients were referred by community mental health services, and I did a LOT of PIP applications with a success rate in excess of 90%.

Daftypants · Yesterday 15:18

I find some of this really offensive.
There might be families like this , but I don’t know them ?
I have 3 adult children, the youngest has learning disabilities and autism.
I worked off and on till I had child #3 then when it became apparent youngest had disabilities , things really changed .
I stopped working outside of the home because I had no support network.
When they did start school, it wasn’t even full time because I needed to pick up and take to different therapies x 2 a week .
I actually had no idea we could apply for any benefits at all .
After quite a few years someone remarked that it was ok , I’d be in receipt of certain benefits.
I was surprised by this so I filled out the application with all supporting reports / evidence.
The level that was awarded meant I was eligible for carers allowance and those payments made life that little bit better for us .
Husband has always worked and I’ve had to manage my children, large home , pets , elderly parents and so on .
I certainly wasn’t going back to bed or watching much TV , I can tell you that right now .
Me being at home made everyone’s lives much easier

seahorsessky · Yesterday 15:18

anonhop · 05/09/2026 23:36

Agree there is a huge issue that certain families suck up sooo many resources & often don’t help themselves

not sure what the answer is though

Yes, people are calling is "bashing", but it is true that there are families like this. Equally true that there are others, in severe pain and struggling, who get nothing. And if someone isn't able to look after themselves, and gets money for that, in most cases, it seems illogical they should get money for "caring" for someone else. But as there are so few jobs even for those with no health issues and who are very willing to work, how would you solve it, OP? Say no one who claims is allowed to have a child? Surely not.

Kirbert2 · Yesterday 15:19

x2boys · Yesterday 15:11

The cost of disabillity is going to vary from person to person
My sons DLA goes into the family pot wih everything
But we spend a fortune
Clothes for example he tends to disrobe wherevr he feels like so im constantly replacing lost or damaged clothes
Hes obssessd with water and extremely destructive
So we have had floods
I have to replace things hes broken
I cant tell you how many washing machines we have gone through due to the huge amount of washing i do.

Yep.

To compare to my son with different needs

adapted shoes/trainers
incontinence pads as the NHS doesn't provide anywhere near enough
private physio
tutor
extra washing
always having the dryer on
journeys to many appointments
hydrotherapy

I could go on and on.

x2boys · Yesterday 15:22

Itchthescratch · Yesterday 15:15

More than one thing can be true at the same time:

Some people are disabled or have disabled children and need every penny and sometimes more to simply survive

Some people are disabled or have disabled children and they don't have particularly high disability related costs and essentially make a profit from their PIP/DLA.

Some people exaggerate their health issues so that they claim PIP/DLA

People in the first category waxing lyrical about their situation doesn't mean the other categories don't exist. I wish genuine claimants would get angry at those who are undermining the system and spoiling it for genuine claimants, rather than people pointing out the obvious, that many are abusing the system.

What you seem to be missing is that those of us that are genuune know how difficult it is to claim and that you need robust evidence
So whem i read the many posters who claim that their Aunties, next door neighbours, brother claims full PIP for having a broken toe im going to challenge it.

Harry12345 · Yesterday 15:22

Daftypants · Yesterday 15:18

I find some of this really offensive.
There might be families like this , but I don’t know them ?
I have 3 adult children, the youngest has learning disabilities and autism.
I worked off and on till I had child #3 then when it became apparent youngest had disabilities , things really changed .
I stopped working outside of the home because I had no support network.
When they did start school, it wasn’t even full time because I needed to pick up and take to different therapies x 2 a week .
I actually had no idea we could apply for any benefits at all .
After quite a few years someone remarked that it was ok , I’d be in receipt of certain benefits.
I was surprised by this so I filled out the application with all supporting reports / evidence.
The level that was awarded meant I was eligible for carers allowance and those payments made life that little bit better for us .
Husband has always worked and I’ve had to manage my children, large home , pets , elderly parents and so on .
I certainly wasn’t going back to bed or watching much TV , I can tell you that right now .
Me being at home made everyone’s lives much easier

The point is there is many like this and I didn’t realise it until I worked in relation to benifits and know many families too. My main issue is having a better disposal income than those who work. I don’t understand why that’s so offensive. I’ve got a disability and so does my child, I work but even when I needed to be on benifits I did not think I should be better off than those working. Again this will not apply to many with severe disabilities so that’s not who I am talking about and people are getting offended when I am not meaning them

Pickledonion1999 · Yesterday 15:23

Harry12345 · Yesterday 14:53

for everyone I have dealt with their rent is covered

yes council and housing association rents are covered n full unless they ahve spare bedrooms and even then if there is a disability they can usually argue the need for an extra bedroom.

Kirbert2 · Yesterday 15:25

Pickledonion1999 · Yesterday 15:23

yes council and housing association rents are covered n full unless they ahve spare bedrooms and even then if there is a disability they can usually argue the need for an extra bedroom.

Not all of them are covered in full.

Itchthescratch · Yesterday 15:26

Owninterpreter · Yesterday 15:10

I hadn't picked up the carers exclusion element. I'd only picked up the bit where someone said what costs are associated with being in a wheelchair other than the cost of a wheelchair. So I was giving examples of costs that wheelchair users have other than the wheelchair. My aunt wouldnt need carers if she didnt use a wheelchair so it feels nonsensical to rule out the main costs commonly associated with wheelchair use. And I dont think she views cleaners and hair washing as care to be honest although the hairdresser looks like carer its a hairdresser not a carer..

Yes I am sure there are many people not entitled to pip who pay people to do decorating tasks that they are not fit or safe to do. That is an additional cost of a disability, regardless of the lack of pip.

I repeat it is an imperfect benefit and currently the government has set the threshold where it is. So if your disability doesnt meet the threshold you pay it yourself and if it does you get support But either way its a cost of being disabled and people are disputing that there isnt much cost with disability - just a cane or some batteries apparently.

There is an element of taking responsibility for your own issues yourself though.

I have terrible eyesight and would be legally blind without glasses. I still have to pay for my own eye sight checks and glasses. I want contact lenses so that I can live without having the inconvenience of wearing glasses all the time just like people with naturally excellent eyesight. I have to pay for my contact lenses, the solution and the contact lens checks. Are these are costs of a disability? I'm only not disabled by my eyesight because I pay for all these things myself. I think that's fair enough because I have the money to do this and it would cripple the NHS to pay for all this stuff for everyone.

Suddenly though when PIP is mentioned there seems to be a concept that nobody should be financially disadvantaged by their disability or health when we know that virtually everyone in society is struggling with expensive health related issues all the time. People paying a fortune at the dentist because they need loads of fillings. People paying for specialist shoes. People paying for physiotherapists as the NHS list is insanely long. The list goes on and on.

Harry12345 · Yesterday 15:26

Pickledonion1999 · Yesterday 15:23

yes council and housing association rents are covered n full unless they ahve spare bedrooms and even then if there is a disability they can usually argue the need for an extra bedroom.

In Scotland there is a fund to mitigate that for people who meet the criteria

WorthItLongTerm · Yesterday 15:28

GiaGia16 · Yesterday 11:53

Nope, no one ever checks either the caring or the hours.

Part of dla does ask for times and duration of care, so they do check. To be then awarded certain rates they can see how much care above normal is needed.

Or Would you prefer some kind of care auditing ? Can you imagine the cost to do that ? It’s like when people
say to means test prescriptions for pensioners they don’t realise how much that would actually cost!

FirmSnake · Yesterday 15:29

WorthItLongTerm · Yesterday 15:28

Part of dla does ask for times and duration of care, so they do check. To be then awarded certain rates they can see how much care above normal is needed.

Or Would you prefer some kind of care auditing ? Can you imagine the cost to do that ? It’s like when people
say to means test prescriptions for pensioners they don’t realise how much that would actually cost!

Edited

Means testing isnt expensive any more. Its all digital. It isnt done because it is unpopular.

Itchthescratch · Yesterday 15:30

x2boys · Yesterday 15:22

What you seem to be missing is that those of us that are genuune know how difficult it is to claim and that you need robust evidence
So whem i read the many posters who claim that their Aunties, next door neighbours, brother claims full PIP for having a broken toe im going to challenge it.

I'm not missing anything. The system is absolutely open to abuse and the evidence you need is nowhere near as robust as you claim.

roaringdragon · Yesterday 15:30

OneLilacHedgehog · Yesterday 14:21

Honestly the average disability does not cost that.
Being deaf you have to pay for hearing aid batteries for example. But any aids are usually free.
DH who uses an NHS wheelchair has to pay for taxis, but nowhere near that amount and not entitled to pip.
Mental health issues that mean you rarely go out might require taxis to gp apps and ready meals. Nowhere near the figure you quote.
It's when you employ carers the costs ramp up.

Being deaf you have to pay for hearing aid batteries for example. But any aids are usually free.

There are other aids that some people with a hearing impairment need. For example, adapted smoke detectors, adapted security alarm, adapted doorbell, adapted alarm clock, speech to text software… Some have to spend more on microsuctioning. Some need to pay for care in order to be able to interact with parts of the everyday life.

Mental health issues that mean you rarely go out might require taxis to gp apps and ready meals.

There can be other costs. For example, some people with mental health conditions need have higher utility bills because e.g. they can’t regulate their temperature so need more heating and in the summer more fans/AC &/or they can sometimes have higher water bills. If they can’t go out, they might need the heating on for longer during the day than those who do go out. If they can’t go out, they may have the costs of deliveries and returns. Some people with mental health conditions aren’t able to shop around for the best deals/tariffs because of their mental health conditions. Some people with mental health conditions might need to pre-chopped vegetables or easy cook foods/microwave meals or have sensory related food difficulties. They might pay privately for more therapy.