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AIBU?

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AIBU to ask for my son's ASD diagnosis to be reassessed?

141 replies

sleepertraintomorrow26 · 17/08/2026 00:09

My son is 7 and was diagnosed with ASD almost two years ago. His assessment consisted of an appointment at home, questionnaires completed by both school and home, and a SALT (speech and language therapist) visit to observe him at school.

After that, I was asked to attend an appointment with the doctor without my son, which I did. During that appointment, he was formally diagnosed with ASD.

My older son was diagnosed at the age of 3, but his assessment was much more thorough. He had lots of different assessments and testing, was observed in several different settings, and also had a medical examination. To be fair, my older son is quite severely autistic and is still non-verbal at 11, so I appreciate that his needs were very different.

However, I have been wondering whether it would be possible to have my youngest son reassessed. His school were also quite surprised by his diagnosis, which has made me question whether the original assessment was thorough enough.

Has anyone else been in a similar situation or had their child reassessed after an ASD diagnosis? If so, how did you go about it?

I wrote the post out on chatgpt and asked it to fix grammar etc as im dyslexic.

OP posts:
tulippa · 17/08/2026 05:36

Who instigated and pursued the first assessment?

Mumdiva99 · 17/08/2026 04:47

If you think he may still get a diagnosis with a new assessment then you are wasting the nhs time and money redoing this. (That's in response to your last post).
Do what you want privately but don't waste NHS resources for no direct benefit.

sleepertraintomorrow26 · 17/08/2026 01:23

Oliveoy · 17/08/2026 01:09

He's 7. You don't know what support he may need as he reaches his teens and life becomes more complicated.

If he has autism he would still get a diagnosis with a new assessment. So would still gain support when needed.
I'm also aware of another parent who had a similar assessment but his son didn't get a diagnosis. Which they dont believe is right.

OP posts:
Oliveoy · 17/08/2026 01:09

sleepertraintomorrow26 · 17/08/2026 00:38

His diagnosis doesn't benefit him whatever. It quite literally is a label on his medical records. My main concern was the actual assessment. If his assessment was like his brothers I would accept it.

He's 7. You don't know what support he may need as he reaches his teens and life becomes more complicated.

avilsdedvocate · 17/08/2026 00:47

I would say many/?most autistic people not diagnosed til adulthood would probably have benefited from knowing that about themselves earlier

SkippingItAll · 17/08/2026 00:47

It’s fairly common for an autistic child not to need much or any extra support age 7, but they often do by 12/13 due to expectations increasing. You may already be giving extra support compared to other 7 year olds without realising.

There must have been issues for him to have been assessed.

avilsdedvocate · 17/08/2026 00:45

The assessment report should explain the tests used e.g. ados and how he met the criteria. If it doesnt, yanbu. Were you in agreement to have him assessed? Bear in mind autism presents in so many different ways, the core diagnostic criteria are the same and it has a profound impact but the person may not appear 'disabled' or autistic compared to other children

Floppyearedlab · 17/08/2026 00:41

sleepertraintomorrow26 · 17/08/2026 00:36

He currently doesn't need any kind of extra support at school or home.

But he may do later
So much better to have it now than have to go through the process when he is older
As he isn’t showing signs of there being anything wrong with him now, let him live and let live!
The diagnosis doesn’t benefit him but neither does it negatively affect him

sleepertraintomorrow26 · 17/08/2026 00:38

His diagnosis doesn't benefit him whatever. It quite literally is a label on his medical records. My main concern was the actual assessment. If his assessment was like his brothers I would accept it.

OP posts:
sleepertraintomorrow26 · 17/08/2026 00:36

Mumdiva99 · 17/08/2026 00:13

Do you want his diagnosis gone?
What do you think is wrong?
Is he getting the help and support he needs in life?

He currently doesn't need any kind of extra support at school or home.

OP posts:
Ponderingwindow · 17/08/2026 00:27

In what way are his needs not being met by the current diagnosis? What do you think needs to change?

If his diagnosis is changed, is the school able to provide services your child needs (aka, even if it is not perfect, is keeping it practical)?

Think about all of these issues before acting.

ifonlytheydlisten · 17/08/2026 00:25

What benefit?

fryfryfry · 17/08/2026 00:15

If both you and school think the diagnosis is wrong then yes, request a reassessment though they may assume you’re in denial (I’m not saying you are but in my experience women tend not to be taken seriously in medical settings!)

Mumdiva99 · 17/08/2026 00:13

Do you want his diagnosis gone?
What do you think is wrong?
Is he getting the help and support he needs in life?

FlamingoFloss · 17/08/2026 00:12

Sorry, I’m not understanding why you want your son reassessed when he has a diagnosis?

sleepertraintomorrow26 · 17/08/2026 00:10

his appointment was in clinic not home

OP posts: