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AIBU?

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AIBU to worry about how I'll manage financially when I'm older?

180 replies

ShiteWithSugar · 17/07/2026 13:48

And to be absolutely terrified?

I'm 56. Haven't worked since DS was born in 2000. Originally the plan was to go back part time when he went to school then more hours as he got older. Unfortunately I was diagnosed with rheumatoid arthritis 25 years ago which put the kybosh on that plan. DH has been the breadwinner and is on an okay wage (about £30k) but not enough to pay into a workplace pension or anything. We don't have any savings to speak of (about £2k for emergencies).

I have tried to find very flexible, part time work for years but it's absolutely impossible with no references etc and knowing I'll need time off sick several times a month when my symptoms are at their worst and/or the side effects from the drugs I take are particularly bad. I did have a job briefly (a few weeks) in a shop in 2011 but they let me go when I couldn't stand behind the counter and was off sick for a week, which I completely understand even though it was heartbreaking. I have applied for PIP but was turned down. I did not reapply because it was so dehumanising and stressful and we could manage on DH's salary just about.

What will happen when I/we reach pension age? DH is five years younger than me if that makes any difference. I'm so terrified of getting older that sometimes I think it would be better if I didn't. No money and health that is already declining makes for just such a bleak prospect. I think of the retirement my parents had - little UK breaks, days out, the occasional treat for DS, not well off by any means but comfortable and happy - and think what the future holds for me in comparison and it's so frightening. I've never been on holiday in my life and we have never been able to afford driving lessons let alone a car!

AIBU to be terrified of the future?

OP posts:
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7
Comeonelieen · 21/07/2026 12:49

HumberSquid · 17/07/2026 14:12

Terrified? You live in a country which will ensure you have a roof over your head, food on your plate and free healthcare. If you pay your NI contributions you can get state pension too, if not you'll get a range of other benefits. If you can't afford social care, so w will be provided for you. And all this will happen without you working. So yes, YABU.

That’s all very well but I’m not sure I’d count on it tbh

fundamentallyauthentic · 21/07/2026 08:34

I really don’t think it’s great advice to plan to obtain Pension Credit, for people in their 50s.

Enrichetta · 21/07/2026 08:34

HumberSquid · 19/07/2026 21:51

I'm sorry your nhs trust is so crap. My ds takes methotrexate weekly for crohns disease and his side effects are nasty enough but not as bad as yours and we were told he'd be taken off it if they were any worse (he's also on a biologic, as am I -also for crohns).

If I were you I'd challenge the biologics decision. Partly because of the side effects and partly because your RA doesn't sound that well controlled anyway - its preventing you working and you need to emphasise that. (My consultant was equally luke-warm about putting me on biologics until I ended up with a small bowel blockage and needed surgery. I wish I'd pushed him harder before things got so bad).

I totally agree. Please challenge your consultant re. biologics, @ShiteWithSugar .

Biologics are a long established treatment of RA and represent the standard of care for this horrible disease. It is simply unacceptable that you should be left in so much pain and subjected to the debilitating side effects of your current inadequate treatment.

Legallygrey · 21/07/2026 08:31

Agree with the advice to seek expert advice regarding benefits for yourself. if your condition means you are unable to work then you should be able to apply for the health element of UC and be assessed for LCWRA. As you have described RA is a debilitating disease with prominent pain and fatigue impacting function. You need some financial independence OP as nobody knows what the future may hold and you are in a potentially vulnerable position being financially dependent. Good luck!

Bluenose1966 · 21/07/2026 07:59

stargirl1701 · 20/07/2026 20:57

You will be entitled to pension credit which is the same as the State Pension. You will be entitled to have your rent paid via UC. You don’t need to worry. You may end up with more disposable money than you do now. Council Tax will be your biggest bill.

That is good advice but note you can’t claim pension credit until the youngest partner is 67. When your husband retires you would have to claim Universal Credit until then.

Sorry you are going through this OP.
I would definitely reapply for PIP and get advice from CAB etc on completing form. Make sure you fully highlight severity of condition. Also not sure it would be of any benefit to increase your state pension contributions even if you could afford it as benefits likely to exceed what you would get with state pension.

likelysuspect · 21/07/2026 07:48

AgilePearlTraybake · 21/07/2026 01:46

These well-paid physical roles aren't actually open to new people who've just got standalone qualifications and no physical work history, network, or industry connections.

Especially the start. The young guys starting out will be on low wages to start off. OPs husband cant afford to be the trainee or the apprentice for a while.

I dated an offshore guy who was thinking about transferring to a well-paid job on dry land (including driver and train driver). There's a waitlist and non-paid training period for these, not like he could just walk into a role.

Plus for someone whose been a 9-5 office manager a physical shift would be pretty challenging.

It's not being lazy - if you're not physically co-ordinated or resilient enough to safely do your driving or loading you get sacked or it's dangerous.

These physical jobs for men tend to be like coding bootcamps for women - no 50k job at the end. Unless it's something you were already doing or you're prepared to give it 2 years to train and network and work your way up whilst not earning a lot.

Exactly this, there are so many fantasists on this site where jobs are concerned. Everyone can just 'retrain' and progress and move up the career ladder blah blah blah

Im waiting for the poster to provide details of the driving on a building site jobs where you only need a few days training and walk into a job on 40k, I would like one of those. Of course I have not a jot of knowledge about how to maintain a vehicle and arent strong enough to manouvre equipment etc, but you know, I only need a few days training and I can get one of these jobs, Im sure they'd give it to me in a climate of high unemployment.

AgilePearlTraybake · 21/07/2026 01:46

These well-paid physical roles aren't actually open to new people who've just got standalone qualifications and no physical work history, network, or industry connections.

Especially the start. The young guys starting out will be on low wages to start off. OPs husband cant afford to be the trainee or the apprentice for a while.

I dated an offshore guy who was thinking about transferring to a well-paid job on dry land (including driver and train driver). There's a waitlist and non-paid training period for these, not like he could just walk into a role.

Plus for someone whose been a 9-5 office manager a physical shift would be pretty challenging.

It's not being lazy - if you're not physically co-ordinated or resilient enough to safely do your driving or loading you get sacked or it's dangerous.

These physical jobs for men tend to be like coding bootcamps for women - no 50k job at the end. Unless it's something you were already doing or you're prepared to give it 2 years to train and network and work your way up whilst not earning a lot.

category12 · 20/07/2026 22:17

ShiteWithSugar · 20/07/2026 20:46

Neither of us drive. DH walks to work when he's in the office (literally five minutes away) so no commuting costs, but he works from home three days a week anyway. He is an office manager and has always done this sort of work, since university.

We live in a small town and his salary is really not bad at all for where we are.

It sounds like a good position for him.

It's all a bit farfetched to suggest he magic up a few thousand to retrain in something he knows nothing about and has no experience in or interest in at 50-odd.

Chewbecca · 20/07/2026 21:23

stargirl1701 · 20/07/2026 20:57

You will be entitled to pension credit which is the same as the State Pension. You will be entitled to have your rent paid via UC. You don’t need to worry. You may end up with more disposable money than you do now. Council Tax will be your biggest bill.

I wouldn't assume PC will exist in its current form in 15/20 years time.

And isn't UC for working age only? You may be able to apply for Housing Benefit as a pensioner.

stargirl1701 · 20/07/2026 20:57

You will be entitled to pension credit which is the same as the State Pension. You will be entitled to have your rent paid via UC. You don’t need to worry. You may end up with more disposable money than you do now. Council Tax will be your biggest bill.

ShiteWithSugar · 20/07/2026 20:46

Bjorkdidit · 20/07/2026 08:13

£35k is significantly more than £30k, especially given the effect in increased disposable income. So worth him looking for a better paid job. Or one with a shift allowance, access to overtime, or if he's travelling, one that's closer to home with lower commuting costs. Or if he did something like a supermarket delivery driver, they'd get a discount on their groceries that helps with costs.

There's always been a shortage of lorry drivers, so that could be a route to better paid work that's got a low barrier to entry. Likewise building site machine drivers. Significantly above NMW, only needs a few days training and once you get a foot in the door, you can earn £40/50k pa or more.

Given we know nothing about where they live, qualifications, skills etc it's just as valid to say 'can he earn more' as it is 'ooh, they must live somewhere where everyone earns NMW if they're lucky'.

Neither of us drive. DH walks to work when he's in the office (literally five minutes away) so no commuting costs, but he works from home three days a week anyway. He is an office manager and has always done this sort of work, since university.

We live in a small town and his salary is really not bad at all for where we are.

OP posts:
ShiteWithSugar · 20/07/2026 20:42

herbetta · 20/07/2026 11:07

At 56 you should be taking HRT - it will help with some of the peri & post menopausal symptoms you are describing. Oestrogen is also anti-inflammatory.

Those are symptoms of my RA/side effects of the medication I take for it, not menopause. I can't take HRT, which is fine as I've never really needed to. I might have other health issues but menopause was thankfully pretty straightforward.

OP posts:
likelysuspect · 20/07/2026 18:32

Bjorkdidit · 20/07/2026 08:13

£35k is significantly more than £30k, especially given the effect in increased disposable income. So worth him looking for a better paid job. Or one with a shift allowance, access to overtime, or if he's travelling, one that's closer to home with lower commuting costs. Or if he did something like a supermarket delivery driver, they'd get a discount on their groceries that helps with costs.

There's always been a shortage of lorry drivers, so that could be a route to better paid work that's got a low barrier to entry. Likewise building site machine drivers. Significantly above NMW, only needs a few days training and once you get a foot in the door, you can earn £40/50k pa or more.

Given we know nothing about where they live, qualifications, skills etc it's just as valid to say 'can he earn more' as it is 'ooh, they must live somewhere where everyone earns NMW if they're lucky'.

So this is a building site machine driver vacancy, paying between 30-40k

A little more than 'a few days training' needed I think

Key Responsibilities
• Operate a 14T+ excavator for foundations, drainage, and service trenches
• Fine grading, topsoil, type 1, and road formation
• Work with trench boxes, manhole boxes, and lifting operations safely
• Read drawings, interpret levels, and support site engineers
• Maintain and care for your machine, performing routine checks and greasing
Requirements
• CPCS or NPORS (CSCS Affiliated) - Excavator 360 (10T+) with Lifting Ops
• 5+ years’ experience in groundworks or civil engineering
• Team player, reliable, safety-conscious
• Right to work in the UK

teaandtoastwithmarmite · 20/07/2026 11:24

Justaquestionplease · 17/07/2026 13:52

DH has been the breadwinner and is on an okay wage (about £30k

Sorry but this is not really an ok wage...do you get top up benefits?

I think what's key here is your housing situation...do you own or rent...if the latter is it private or social housing?

I’m on 31 and it is a decent wage.

herbetta · 20/07/2026 11:07

ShiteWithSugar · 17/07/2026 17:22

Thank you everyone for your helpful posts. I will think about applying for PIP again but as a PP said telling them how I am on my worst days is fraudulent so I'm not sure if I will get it, or if I should apply at all. I have emailed NRAS this afternoon to ask for advice.

To posters saying I have family and friends - I have DH and DS and thats it, and DS lives 250 miles away so I do not see him often. Me and DH have no friends or family between us but we muddle along quite happily, although I do feel lonely and isolated a lot. So nobody to help as I/we get older.

I have applied for hundreds of jobs but I haven't had one response. I used to work as a nanny but obviously can't do that now. The thing is I know I would be unable to work on the two days after I take my medication or when I'm really unwell, which with RA is completely unpredictable. I can be relatively fine in the morning and in severe pain by the evening. It also takes me up to a couple of hours to 'get going' in the morning because of pain/stiffness. There are so many symptoms with this disease - painful dry eyes, crippling fatigue, brain fog, but worst of all the pain. I take tramadol or codeine every day for it which also makes me a bit dozy especially on bad days when I need a full dose every four hours. I hate this disease with such a passion and wish I could just the normal and work and have purpose and be able to save for the future.

Sorry for moaning. But thank you all for your helpful replies, I really appreciate them all.

At 56 you should be taking HRT - it will help with some of the peri & post menopausal symptoms you are describing. Oestrogen is also anti-inflammatory.

herbetta · 20/07/2026 10:46

ShiteWithSugar · 17/07/2026 14:24

No, I'm terrified. I have poor health that's getting worse. The disease I have and the drugs I take for it make me very sensitive to the cold so in the winter I need the heating on, at the moment we have it on for an hour in the evening and half an hour in the morning which isn't ideal but it warms the house. If we can't even afford that it will be awful. That's just one example of how disability costs more and at the moment we can just about manage, but with less money I don't know how we will.

You can get social tarriffs for heating etc, water, broadband. You can register with the companies as vulnerable/ disabled for more support.

fundamentallyauthentic · 20/07/2026 08:17

It’s also worth him looking for a job with a good pension attached.

Bjorkdidit · 20/07/2026 08:13

CoffeeAndCats3 · 20/07/2026 06:12

For those making out the husband needs to make more money - I suspect you live in London or another big cities or the SE, and the OP is somewhere like the NE or Cumbria etc. The majority of jobs in these locations (warehouse work, production line work, driving, healthcare aids, farming assistant etc etc) would pay between 25,000-35,000. That is the reality of most people's lives outside of the mumsnet bubble. Not everyone has partner who is a surgeon or finance bro in the city as seems to be the norm on here for some reason.

£35k is significantly more than £30k, especially given the effect in increased disposable income. So worth him looking for a better paid job. Or one with a shift allowance, access to overtime, or if he's travelling, one that's closer to home with lower commuting costs. Or if he did something like a supermarket delivery driver, they'd get a discount on their groceries that helps with costs.

There's always been a shortage of lorry drivers, so that could be a route to better paid work that's got a low barrier to entry. Likewise building site machine drivers. Significantly above NMW, only needs a few days training and once you get a foot in the door, you can earn £40/50k pa or more.

Given we know nothing about where they live, qualifications, skills etc it's just as valid to say 'can he earn more' as it is 'ooh, they must live somewhere where everyone earns NMW if they're lucky'.

likelysuspect · 20/07/2026 07:20

CoffeeAndCats3 · 20/07/2026 06:12

For those making out the husband needs to make more money - I suspect you live in London or another big cities or the SE, and the OP is somewhere like the NE or Cumbria etc. The majority of jobs in these locations (warehouse work, production line work, driving, healthcare aids, farming assistant etc etc) would pay between 25,000-35,000. That is the reality of most people's lives outside of the mumsnet bubble. Not everyone has partner who is a surgeon or finance bro in the city as seems to be the norm on here for some reason.

And just to add to that, we're in the south east in a tourist town, there is high unemployment here, seasonal MW work, lots of farming MW work which is obivously not full time, usually hiring foreign workers anyway on contracts, housing is still expensive and transport virtually non existent but expensive and not fit for purpose where it does exist. A job paying 30k is considered a really good income here.

herbetta · 20/07/2026 07:16

You need to apply for PIP. Make an appointment with CAB. There is also a guidance doc on the RA charity's website. Plus lots of info if you Google. You need to fill it in talking about your worst days. Make this your priority.

It will open the door to other help & assistance too, such as food bank referral and other grants, funding or support.

CAB is good as will do a full assessment to see what else you may be entitled to. Have you applied separately for Council Tax benefit? Do you have a prescription pre-payment certificate?

CoffeeAndCats3 · 20/07/2026 06:12

For those making out the husband needs to make more money - I suspect you live in London or another big cities or the SE, and the OP is somewhere like the NE or Cumbria etc. The majority of jobs in these locations (warehouse work, production line work, driving, healthcare aids, farming assistant etc etc) would pay between 25,000-35,000. That is the reality of most people's lives outside of the mumsnet bubble. Not everyone has partner who is a surgeon or finance bro in the city as seems to be the norm on here for some reason.

AgilePearlTraybake · 20/07/2026 00:57

@ShiteWithSugar

Just saw your heating posted quoted above. Electric blankets are super cheap now due to the heat wave and season.

Here's one from Tesco at £22.

This on a chair can get you through without turning the heating on. Heat the person not the whole home.

Similarly look to buy Merino wool jumpers and dresses off eBay now so you can use them in the winter.

I have Raynauds I layer wool dresses up with tights and wear fingerless gloves and a hat in the winter.

Even rich people do these frugal tricks, (obviously it's harder when you know there isn't a lot of margin) but you can turn frugality into a game and enjoy it. The MSE website has lots of tips and tricks and the forum users are very enthusiastic.

Holidays and days out - are there free museums or places of beauty near you?

I spent loads on days out this year (been ill and wanted to "treat" myself) and honestly I didn't get any more pleasure compared to going to a pretty local park with a pack of biscuits and a Thermos and a book. Wish I'd done that instead!

nutbrownhare15 · 20/07/2026 00:02

Have you looked at the money makeover on reducing outgoings. https://www.moneysavingexpert.com/family/money-help/ the website also has useful guidance on flexible ways to earn money

Stressedandgrey · 19/07/2026 22:58

ThePeppyOpalScroller · 17/07/2026 14:31

Why isn't that an OK wages. It's slightly below the average for the UK?

Because this is mumsnet and if you earn less than 100k you are a lazy fucker who needs to pull their socks up!!!

CatesandAle · 19/07/2026 22:41

ShiteWithSugar · 17/07/2026 14:24

No, I'm terrified. I have poor health that's getting worse. The disease I have and the drugs I take for it make me very sensitive to the cold so in the winter I need the heating on, at the moment we have it on for an hour in the evening and half an hour in the morning which isn't ideal but it warms the house. If we can't even afford that it will be awful. That's just one example of how disability costs more and at the moment we can just about manage, but with less money I don't know how we will.

Ignore the horrible posts OP, I honestly cannot imagine what kind of person would come on here, read your post, and think that the appropriate response was to insult you.