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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think this is the most awful thing to say to a parent

442 replies

Kate8889 · 09/07/2026 11:56

My mom has a husband she's been with for about 12 years, they're in their 60s.

He has a sister and their father recently died after a very difficult few years of Alzheimer's disease (he was physically combative on the daily).

This sister (in front of everyone) told her mom that if a person gets a diagnosis such as Alzheimer's it is the person's responsibility that they don't become a burden on their loved ones and they should end their life. I cannot imagine saying that to anyone but especially my parents.

OP posts:
BIossomtoes · 11/07/2026 12:24

It’s not ageism or ableism. It’s first hand experience.

OneDearPeach · 11/07/2026 12:14

I'm sorry if this has already been shared, but all those sympathetic to the idea that people with dementia should kill themselves after diagnosis, should read this article. People with dementia are not defined by their condition. There are approaches such as cognitive stimulation which can stave off decline and even reverse it. It is a toxic combination of ageism and ableism that means dementia is treated very differently from other conditions such as stroke.
https://www.theguardian.com/society/2026/jun/09/dementia-rebels-diagnosed-determined-change-peoples-minds?CMP=Share_AndroidApp_Other

‘You’re treated like this is the end’: Meet the dementia rebels – diagnosed and determined to change people’s minds

Few things are more feared than a dementia diagnosis. Now people living with the condition are fighting against damaging stereotypes and demanding proper medical support

https://www.theguardian.com/society/2026/jun/09/dementia-rebels-diagnosed-determined-change-peoples-minds?CMP=Share_AndroidApp_Other

ruethewhirl · 11/07/2026 11:22

BIossomtoes · 11/07/2026 09:51

A doctor friend says a syringe of insulin would do it and would be their preferred method.

The reaction of someone expecting and dreading dementia wouldn’t be “the cheek!” if their offspring told them early enough. It would be profound gratitude.

Edited

I don't think you can state that quite so categorically; it's a very subjective thing. And not everyone would make the decision to end things should that day come.

Housebashing · 11/07/2026 11:13

Kate8889 · 11/07/2026 11:11

I would definitely hesitate to put my pet down...I'd want to know there was no alternative such as surgery/pain control medication/physical therapy. Only the ln would I consider euthenasia

Really ? Animals have no concept that what you’re trying to do might be in their interests but actually usually it’s in the interests of the Vet and the drug companies pocket and the pet owner wanting to prolong the inevitable
Plenty of times I’ve thought the kindest thing to do would be to let the animal go and when people are spending eight £9000 on operations when there are children in this world that are going without an ice cream today cause mum and dad haven’t got the money we’ve got to consider whether our priorities are right

Kate8889 · 11/07/2026 11:11

PeoplesNet · 11/07/2026 00:21

It helps to understand what you find wrong with this statement. There are people out there who actively believe in hell / think and say 'sinners will burn in hell'.

If your loved pet were suffering, you (hopefully) wouldn't hesitate to euthanise. What is it specifically that horrifies you about the view that people should be exercising their free will and ability to reason, to choose euthanasia for themselves too.

Why is it more selfish to want people to make that choice than to refuse to make it. Just questions.

I would definitely hesitate to put my pet down...I'd want to know there was no alternative such as surgery/pain control medication/physical therapy. Only the ln would I consider euthenasia

OP posts:
BillieWiper · 11/07/2026 10:43

TheignT · 10/07/2026 17:17

Thank you. He's nearly 80 so generation of men who don't really share their feelings. It certainly scared him and pain control is a real issue. It does make life pretty miserable and I have to admit it changes the relationship when you are a long term carer.

You sound like a total hero! X

FiveShelties · 11/07/2026 10:32

thejelliclecats · 09/07/2026 12:49

She’s not wrong, though she could have been more sensitive.

My dad has always said he’d rather be smothered by a pillow than forced to live with dementia.

I wish I had been brave enough to end my Dad's suffering from dementia. He was terrified, saw dead bodies under the hospital and care home beds.

It was bloody awful. I would not wish it on anyone.

oldmoaner · 11/07/2026 10:26

Whatever she thinks/thought is her business but she should have kept it to herself. Maybe she should have said, if I'm diagnosed with it I would want to end my life and not put anyone through the ordeal of looking after me. No need to say any more, unless to the one doing the caring, I'm so sorry you had to go through that, all the stress and hard work, you must be shattered, try and take time for yourself now.

Endlesscold · 11/07/2026 10:23

MaturingCheeseball · 11/07/2026 09:04

Precisely. Imagine now if your dcs told you they suspected dementia. The cheek! you’d probably say. And that’s the problem - if you have dementia your awareness goes and if anything like mil you’d be hotly denying it. Fil was convinced mil would “pull through” and be back to normal.

In addition, some forgetfulness is a normal part of aging. You can't be sure early on. Even medics will dismiss until it more advanced and all their peers reassure them "oh that's just getting older, we are all like that".

TheignT · 11/07/2026 10:07

mrsmalcolmreynolds · 11/07/2026 07:43

Because the sister is saying it's a duty to kill yourself, not just a valid option.

Exactly. People saying they'd do it are missing the point. Commit suicide if you want but don't tell other people it is their duty to do it.to

BIossomtoes · 11/07/2026 09:51

Ladygodalmighty · 11/07/2026 09:43

Some of you Mumsnet followers must have the medical knowledge on how to obtain the appropriate medication and in what quantity to allow me to go to sleep permanently. Which is what I would want if I was diagnosed with early stage dementia. I'd put my affairs in order ensuring minimum trouble for family and drift off this mortal coil.

A doctor friend says a syringe of insulin would do it and would be their preferred method.

The reaction of someone expecting and dreading dementia wouldn’t be “the cheek!” if their offspring told them early enough. It would be profound gratitude.

Ladygodalmighty · 11/07/2026 09:43

Some of you Mumsnet followers must have the medical knowledge on how to obtain the appropriate medication and in what quantity to allow me to go to sleep permanently. Which is what I would want if I was diagnosed with early stage dementia. I'd put my affairs in order ensuring minimum trouble for family and drift off this mortal coil.

MaturingCheeseball · 11/07/2026 09:04

Endlesscold · 10/07/2026 08:52

Ah yes, that reminds me of my Aunt who worked in a shop. She told her daughters she often saw "poor old forgetful ladies coming in" looking dishevelled, unkempt and instructed my cousins to tell her if they ever noticed that in her. When they did she went ballistic and didn't believe them. That's the lack of insight

Precisely. Imagine now if your dcs told you they suspected dementia. The cheek! you’d probably say. And that’s the problem - if you have dementia your awareness goes and if anything like mil you’d be hotly denying it. Fil was convinced mil would “pull through” and be back to normal.

SurferRona · 11/07/2026 08:49

Justbecauseyoucandoesntmeanyoushould · 09/07/2026 12:19

While I don't think she's right to say that, I understand her point of view. s someone who has lost and is losing close family members to dementia-causinflg diseases, should I be diagnosed with any of those, I will absolutely end my own life rather than put my DC through more years of hell. I've told them - I'll be on a plane to Switzerland.

I know there is a lot of fear around this but you should educate yourself a little more about the disease before saying people should die once diagnosed. It’s not always the horror you are envisaging. There is a range of experience.

My grandfather died with it (aspiration pneumonia in the end), my MIL also had it. Very different experiences- it effectively reduced and revealed them each to their truest core characters. MIL a depressive, bitter, critical and unhappy woman. DGF a happy, joyful and joyous man. Grateful for everything and saw the joy and took pleasure in everything- a chat with someone, seeing a toddler playing, the most awful unfunny ‘sit coms’, food, good fudge. The friends he had at the care home at the end, the care staff. The passing of them both was peaceful too.

It truly may not be the horror story you are so sure would happen. We’d have been deprived of many years with DGF if he had followed your suggestion and I’m grateful for that time and how he was.

OP, you are right. It is disgusting to say. Does she think the same of terminal cancer? People die in horrific pain with that if palliative pain meds don’t work- and they quite often do not at the end. If not, why not?

HumberSquid · 11/07/2026 07:55

mrsmalcolmreynolds · 11/07/2026 07:43

Because the sister is saying it's a duty to kill yourself, not just a valid option.

This, in a nutshell, is the issue. All those stating they'd choose to end their lives if they had dementia are missing the point.

supersop60 · 11/07/2026 07:46

CaptainMyCaptain · 09/07/2026 12:51

I don't think you can opt for voluntary euthanasia if you have dementia as you are not of sound mind. Having seen my mother with it I would do that if it was possible but I don't think you can specify in advance at what stage of the disease you want to be euthanised . My mother never believed there was anything wrong with her so wouldn't have asked for it.

It's terrible to make a decision on someone else's behalf though and this idea is one of the reasons holding the legalisation back

Thank God the legislation didn’t go through. The fear of pressure from family members is very real.

mrsmalcolmreynolds · 11/07/2026 07:43

PeoplesNet · 11/07/2026 00:21

It helps to understand what you find wrong with this statement. There are people out there who actively believe in hell / think and say 'sinners will burn in hell'.

If your loved pet were suffering, you (hopefully) wouldn't hesitate to euthanise. What is it specifically that horrifies you about the view that people should be exercising their free will and ability to reason, to choose euthanasia for themselves too.

Why is it more selfish to want people to make that choice than to refuse to make it. Just questions.

Because the sister is saying it's a duty to kill yourself, not just a valid option.

PeoplesNet · 11/07/2026 00:21

Kate8889 · 09/07/2026 11:56

My mom has a husband she's been with for about 12 years, they're in their 60s.

He has a sister and their father recently died after a very difficult few years of Alzheimer's disease (he was physically combative on the daily).

This sister (in front of everyone) told her mom that if a person gets a diagnosis such as Alzheimer's it is the person's responsibility that they don't become a burden on their loved ones and they should end their life. I cannot imagine saying that to anyone but especially my parents.

It helps to understand what you find wrong with this statement. There are people out there who actively believe in hell / think and say 'sinners will burn in hell'.

If your loved pet were suffering, you (hopefully) wouldn't hesitate to euthanise. What is it specifically that horrifies you about the view that people should be exercising their free will and ability to reason, to choose euthanasia for themselves too.

Why is it more selfish to want people to make that choice than to refuse to make it. Just questions.

Mackerelfillets · 11/07/2026 00:10

Me and DH have agreed that if either of us gets to a point that we cant remember each other or any point of being together the one unaffected should try to carry on with their life. In effect the other person has died but we've never discussed dignitas or similar.

VanessaFence · 10/07/2026 23:16

It's an awful thing to say I agree. However, I do believe people have a responsibility to put things in place for their future e.g. Advanced Directives and have a mature conversation about it. I've been through it with multiple family members and it is unfair on the children if there's been no thought given to end of life (especially when the person is in denial).

That said, the glib "I'll just top myself" responses on this thread are silly. I had a conversation with my grandma about this before she died (and was still lucid) and she said she'd thought about it many times but couldn't go through with it. The survival instinct and the fear of dying is strong.

What's even more silly is my MIL saying things like "if I get like that just put a pillow over my head". As if you'd expect your own child to end your life and risk a prison sentence.

walkingmyway · 10/07/2026 23:02

cornflakecrunchie · 10/07/2026 18:55

NRTFT but those saying they'd off themselves if they got dementia.. how the hell would you KNOW you had dementia?
Plus the tablets under the mattress.. those are found quite regularly - the people who put them there either can no longer get to them or have forgotten..

My mum had dementia for years, so I do know what I'm talking about.

my mum got a diagnosis fairly early on. She was well aware she had early onset and was still using Facebook, able to work, talk to people about it etc

BIossomtoes · 10/07/2026 22:46

cornflakecrunchie · 10/07/2026 22:44

@Blossomtoes My mum got a diagnosis ok.. her GP decided she was deaf & that was the cause of her not recognising family members etc..
You couldn't make it up. :-(

So sorry. That’s dreadful.

cornflakecrunchie · 10/07/2026 22:44

@Blossomtoes My mum got a diagnosis ok.. her GP decided she was deaf & that was the cause of her not recognising family members etc..
You couldn't make it up. :-(

ruethewhirl · 10/07/2026 22:34

Frostyloz · 10/07/2026 22:04

Have I misunderstood or have the majority of posters missed the point here? This isn’t about the trials of dementia or whether euthanasia should be legal. This is about a daughter effectively telling her mother, that if she (the mother) gets dementia, she has a responsibility to kill herself so that the daughter doesn’t have to deal with it. If the majority think that’s ok, I despair at humanity.

Well, I for one agree. I can't believe anyone's making excuses for this woman.

SquirrelGG · 10/07/2026 22:15

buffyajp · 09/07/2026 13:20

I do know what I’m talking about as I work as a senior in a dementia care home as welll as having had a grandparent with the disease. Yes it’s a horrible disease and fair enough if as an individual you would not want to be a burden but I still think that is a disgusting and inexcusable thing to say. We work really hard to try and give our residents as good a quality of life as possible for them and their loved ones. Nice
to know a lot of people think they should just be put down instead. Nobody gets to tell someone else what they should do if they develop dementia.

I agree. My late DM was in a rest home, she had mild dementia so wasn't too bad, but there were people a lot worse. The staff were lovely and the residents so obviously well cared for and I used to enjoy my visits there.

YANBU OP, it was a dreadful thing to say.

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