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AIBU?

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AIBU to ask why ADHD and autism are dismissed as disabilities?

287 replies

SummerAtaris · 24/06/2026 16:12

There’s been a tonne of threads about benefits recently and there seems to be a recurring theme that ‘only the most severe disabilities should get any help’ and they almost always mention that people suffering with MH health issues, or ‘non issues’ like ADHD should be cut off from help. I’d like to know what those people in particular think adhd is, and why they don’t consider it to be a disability.

I am 44 years old, I have level 1 autism and ‘combined type’ adhd. I have worked since I left school at 16. I raised my eldest 3 children from my first marriage by myself, all 3 are diagnosed with varying degrees of neurodivergences (didn’t know that at the time)

I am now married to a wonderful man, and we have children together, they are also ND.

It is a challenge every single day to just make myself wash & brush my teeth. And I need to try and herd 2
other people with the same issues to do the same.

I am massively in debt, because the filter that everyone else seems to have that tell you, no don’t do it, just isn’t there.

I literally cannot sleep. I try. But my brain is almost always stuck in a loop of catastrophising, and is running a chorus of a song that I hate over and over and over and there’s nothing I can do about it. When I do sleep I’m still catastrophising and have incredibly vivid nightmares and wake up sad, anxious and depressed and I can’t shake off my dreams easily.

I go from 7 or so days of zero sleep, then pass out and am comatose for 48-72 hours approx.

I forget to eat, I forget to drink water. I don’t know that I need the bathroom until my bladder is literally about to burst.

I suffer from boredom so extreme that I’ve attempted suicide multiple times.

‘Masking’ takes everything that I have. By the time I get home after any social event (by event I mean anything that needs me to present as a ‘normal’ person, school drops offs, appointments etc) leave me gasping for breath, physically stimming to the point my muscles are crying out and I still can’t stop, endlessly ruminating over conversations I had to participate in against my will.

This is not a comprehensive list. I’ll remember this post for the rest of my life and there will always be things I should have added to it.

My body is perfectly fine. I’m not disabled in that way. But my brain, my bodies operating system, IS disabled. I’m so tired of hearing that adhd and lower levels of autism are not disabling. They absolutely fucking are. I manage the school run these days and that’s pretty much it. I haven’t been able to work for around 8 years now.

Go ahead. Tell me how you’d employ me.

OP posts:
SilverLining77 · 26/06/2026 04:18

Because, as mentioned, either diagnosis does not automatically mean disability. If you disagree, google Tony Attwood and his diagnosis of autism.

Geoprint · 25/06/2026 22:01

Mondaymorningblue · 25/06/2026 21:54

The fact that the autism diagnostic criteria require “clinically significant impairment” for diagnosis does not mean the same thing as the Equality Act criteria. They are related concepts, but they are not the same. The Equality Act looks specifically at whether the condition has a substantial and long term adverse effect on a person’s ability to carry out normal day to day activities in their actual circumstances.Outside of a small number of conditions, which do not include autism, no condition automatically qualifies someone as disabled under the Equality Act. The burden is still on the individual to show how their condition affects their day to day life and whether that impact reaches the legal threshold. That is why an autism diagnosis alone is not automatic proof of disability. Equally, someone can still be considered disabled under the Equality Act without having a formal diagnosis of any specific condition at all.The autism diagnostic criteria themselves also recognise that autistic people vary greatly in presentation and support needs. Many autistic people are able to mask traits, develop coping strategies, and structure their lives around their strengths. Many people, particularly those with lower support needs, may function very successfully in careers and lifestyles well suited to their strengths and live fully independently without experiencing substantial impairment in the legal sense. In those circumstances they may not meet the Equality Act definition of disability, and many would not personally consider themselves disabled either. This is also why many people end up having to go through employment tribunals and other legal processes specifically to establish that, in their particular case, their autism amounts to a disability under the Equality Act. The diagnosis itself is not enough. I'm not sure how many other ways I can try to explain it, so I'm going to leave it here.

Yes you better had as you’re continuously contradicting yourself and nitpicking unnecessarily.

Mondaymorningblue · 25/06/2026 21:54

Geoprint · 25/06/2026 19:55

Nope

Under the UK Equality Act 2010, an autism diagnosis qualifies as a disability, provided the condition has a long-term (lasting 12 months or more) and substantial (more than minor or trivial) adverse effect on your ability to carry out normal day-to-day activities.

Autism is for life and under formal diagnostic frameworks like the DSM-5 and ICD-11, symptoms must cause"clinically significant impairment" in important areas of life (such as social, occupational, or educational functioning) to receive an autism diagnosis. That’s way more than minor or trivial and substantial.

The fact that the autism diagnostic criteria require “clinically significant impairment” for diagnosis does not mean the same thing as the Equality Act criteria. They are related concepts, but they are not the same. The Equality Act looks specifically at whether the condition has a substantial and long term adverse effect on a person’s ability to carry out normal day to day activities in their actual circumstances.Outside of a small number of conditions, which do not include autism, no condition automatically qualifies someone as disabled under the Equality Act. The burden is still on the individual to show how their condition affects their day to day life and whether that impact reaches the legal threshold. That is why an autism diagnosis alone is not automatic proof of disability. Equally, someone can still be considered disabled under the Equality Act without having a formal diagnosis of any specific condition at all.The autism diagnostic criteria themselves also recognise that autistic people vary greatly in presentation and support needs. Many autistic people are able to mask traits, develop coping strategies, and structure their lives around their strengths. Many people, particularly those with lower support needs, may function very successfully in careers and lifestyles well suited to their strengths and live fully independently without experiencing substantial impairment in the legal sense. In those circumstances they may not meet the Equality Act definition of disability, and many would not personally consider themselves disabled either. This is also why many people end up having to go through employment tribunals and other legal processes specifically to establish that, in their particular case, their autism amounts to a disability under the Equality Act. The diagnosis itself is not enough. I'm not sure how many other ways I can try to explain it, so I'm going to leave it here.

Geoprint · 25/06/2026 20:54

likelysuspect · 25/06/2026 20:53

Yes those that struggle with 1 children shouldnt have a 2nd child, of course. Is that a serious question?

Then hardly anybody would have children.

likelysuspect · 25/06/2026 20:53

Geoprint · 25/06/2026 19:06

She has the kids and that wasn’t what some of the posts were saying. All sorts of people have children and struggle, even some that just have 1 or 2. Shoild those that struggle with 1 not have a second? Funny that wasn’t said. Some of those posts very much pin pointed that the disabled shouldn’t have children.

Yes those that struggle with 1 children shouldnt have a 2nd child, of course. Is that a serious question?

Sweepyed · 25/06/2026 20:47

@StartingFreshFor2026 exactly. Mine fell in a pond on holiday just wouldnt listen or hold hands and ran off. I was sooo thin from all the running.
At 1yo or so eldest put stones in mouth including on the sandy beach, where did it even come from!?
We tried a nursery at 14m and the supervision wasnt close enough. So had to quit work. So at school age 5 put something up nose and had GA.But she knew not to do that as had been through a few month spate at age 3..
The joy of adhd doing things they know are dangerous or told off for before

WhatNoRaisins · 25/06/2026 20:17

As for 5 children. I think that big families were all well and good in the times when you could just send kids out to play by themselves. Now with all the parental input required it's not a good idea unless you've got some outside support. The only people I see coping with that many kids are people who are not only in good health but have much less need for sleep and down time than average. I think that we need to be more honest about this.

Bellic · 25/06/2026 19:57

TigerRag · 25/06/2026 18:34

If we can afford to remove the 2 child cap we can afford disability benefits

We cannot afford to do this though!

Geoprint · 25/06/2026 19:55

Mondaymorningblue · 25/06/2026 19:48

No, the clinical threshold for diagnosis is lower than the threshold for disability under the equality act. The threshold for diagnosis just requires clinically significant impairment in social, occupational, or other important areas of functioning, which can be limited to specific situations. To qualify as disabled under the equality act, the condition must have a substantial and long term adverse effect on the person’s ability to carry out normal day to day activities (such as eating, washing, dressing, shopping, or talking). As a result, some diagnosed autistic people meet the legal definition of disability and some do not. You'd be perfectly entitled to think it should be different, but that reflects how the law currently stands.

Nope

Under the UK Equality Act 2010, an autism diagnosis qualifies as a disability, provided the condition has a long-term (lasting 12 months or more) and substantial (more than minor or trivial) adverse effect on your ability to carry out normal day-to-day activities.

Autism is for life and under formal diagnostic frameworks like the DSM-5 and ICD-11, symptoms must cause"clinically significant impairment" in important areas of life (such as social, occupational, or educational functioning) to receive an autism diagnosis. That’s way more than minor or trivial and substantial.

Mondaymorningblue · 25/06/2026 19:48

Geoprint · 25/06/2026 19:00

“Many autistic people do not experience a substantial negative impact on their daily lives that meets the legal threshold, though many autistic people do.” That is incorrect.

Under formal diagnostic frameworks like the DSM-5 and ICD-11, symptoms must cause
"clinically significant impairment" in important areas of life (such as social, occupational, or educational functioning) to receive an autism diagnosis.

No, the clinical threshold for diagnosis is lower than the threshold for disability under the equality act. The threshold for diagnosis just requires clinically significant impairment in social, occupational, or other important areas of functioning, which can be limited to specific situations. To qualify as disabled under the equality act, the condition must have a substantial and long term adverse effect on the person’s ability to carry out normal day to day activities (such as eating, washing, dressing, shopping, or talking). As a result, some diagnosed autistic people meet the legal definition of disability and some do not. You'd be perfectly entitled to think it should be different, but that reflects how the law currently stands.

Geoprint · 25/06/2026 19:06

Firefly1987 · 25/06/2026 19:02

Five kids is far more than most people have. And just the school run severely impacts her. Telling people to have as many kids as they'd like without thinking through the practicalities isn't having their best interests at heart.

She has the kids and that wasn’t what some of the posts were saying. All sorts of people have children and struggle, even some that just have 1 or 2. Shoild those that struggle with 1 not have a second? Funny that wasn’t said. Some of those posts very much pin pointed that the disabled shouldn’t have children.

Firefly1987 · 25/06/2026 19:02

Geoprint · 25/06/2026 06:14

So disabled people shouldn’t have children now- on a parenting forum!!! MN hits a new low.

Five kids is far more than most people have. And just the school run severely impacts her. Telling people to have as many kids as they'd like without thinking through the practicalities isn't having their best interests at heart.

Geoprint · 25/06/2026 19:00

Mondaymorningblue · 25/06/2026 18:50

You seem to be confusing the clinical threshold for a diagnosis with the legal threshold for a disability. Just because someone has an autism diagnosis does not mean they are automatically considered disabled under the Equality Act.
The law does not grant automatic disability status to an autism diagnosis, or to the vast majority of other conditions. It applies a functional test, someone has to show that in their specific case their impairment has a substantial and long term adverse effect on their ability to carry out normal day to day activities.
Because autism is a spectrum, it affects people in vastly different ways and with varying levels of severity. Many autistic people do not experience a substantial negative impact on their daily lives that meets the legal threshold, though many autistic people do.
Similarly, someone with cerebral palsy who is mildly affected likely would not meet the criteria of being disabled under the Equality Act, whereas someone with more severe cerebral palsy would. Someone with mild cerebral palsy still meets the criteria for having cerebral palsy, just not for having a disability. The same applies to conditions like migraines, or arthritis, or depression, or a hearing impairment. That is exactly why the law requires a case by case assessment rather than treating every diagnosis as an automatic disability.

“Many autistic people do not experience a substantial negative impact on their daily lives that meets the legal threshold, though many autistic people do.” That is incorrect.

Under formal diagnostic frameworks like the DSM-5 and ICD-11, symptoms must cause
"clinically significant impairment" in important areas of life (such as social, occupational, or educational functioning) to receive an autism diagnosis.

Mondaymorningblue · 25/06/2026 18:50

Geoprint · 25/06/2026 16:07

It is true.Under both UK law (e.g., the Equality Act) and global medical guidelines, autism is recognized as a disability. To get a diagnosis it needs to have a substantial and long term negative effect on day to day life.

You seem to be confusing the clinical threshold for a diagnosis with the legal threshold for a disability. Just because someone has an autism diagnosis does not mean they are automatically considered disabled under the Equality Act.
The law does not grant automatic disability status to an autism diagnosis, or to the vast majority of other conditions. It applies a functional test, someone has to show that in their specific case their impairment has a substantial and long term adverse effect on their ability to carry out normal day to day activities.
Because autism is a spectrum, it affects people in vastly different ways and with varying levels of severity. Many autistic people do not experience a substantial negative impact on their daily lives that meets the legal threshold, though many autistic people do.
Similarly, someone with cerebral palsy who is mildly affected likely would not meet the criteria of being disabled under the Equality Act, whereas someone with more severe cerebral palsy would. Someone with mild cerebral palsy still meets the criteria for having cerebral palsy, just not for having a disability. The same applies to conditions like migraines, or arthritis, or depression, or a hearing impairment. That is exactly why the law requires a case by case assessment rather than treating every diagnosis as an automatic disability.

Restlessdreams1994 · 25/06/2026 18:42

There is a perception that ADHD = disability when in fact some people can function very well with it whereas others are significantly impacted. For some people the condition is disabling, others don’t feel disabled by it and dislike being labelled as such. This is true of a lot of medical conditions but for some reason neurodivergence seems to get treated in this all or nothing way which is unhelpful and probably where a lot of the stigma comes from.

TigerRag · 25/06/2026 18:34

Bellic · 25/06/2026 17:05

I think you have a very naive idea about what’s affordable and what isn’t. Some people actually think we can afford to spend to meet an endlessness booming disability and pensions bill. We can’t, which is why Keir Starmer ended up resigning. He couldn’t fund defence without cutting welfare and backbenchers wouldn’t let him cut welfare. And it’s why Andy Burnham will end up resigning too.

If we can afford to remove the 2 child cap we can afford disability benefits

Geoprint · 25/06/2026 17:08

Bellic · 25/06/2026 17:05

I think you have a very naive idea about what’s affordable and what isn’t. Some people actually think we can afford to spend to meet an endlessness booming disability and pensions bill. We can’t, which is why Keir Starmer ended up resigning. He couldn’t fund defence without cutting welfare and backbenchers wouldn’t let him cut welfare. And it’s why Andy Burnham will end up resigning too.

That wasn’t why Keir Starmer resigned. I doubt very much that AB will resign and your ludicrous posts were about who should get PIP. Saying anybody intelligent or eloquent shouldn’t get PIP is beyond ridiculous.

Bellic · 25/06/2026 17:05

Geoprint · 25/06/2026 16:53

😂😂😂😂 no all intelligent eloquent people can’t get a job. You’re just sounding silly now.

You do realise there are many,many severely mentally disabled people in hospitals or under services and with very high support needs who are highly intelligent and eloquent.

I think you have a very naive idea about what’s affordable and what isn’t. Some people actually think we can afford to spend to meet an endlessness booming disability and pensions bill. We can’t, which is why Keir Starmer ended up resigning. He couldn’t fund defence without cutting welfare and backbenchers wouldn’t let him cut welfare. And it’s why Andy Burnham will end up resigning too.

XenoBitch · 25/06/2026 16:56

Bellic · 25/06/2026 16:24

I don’t think PIP should be for wide ranging things. What absolutely STAGGERS me is the people that appear in documentaries about PIP who have depression or ADHD, and who are eloquent, intelligent, make great points to the camera and yet are too ill to work. These people who’ve been clearly told that their claims are justified when they don’t seem to be whatsoever. We’re institutionalising these people by not making them work. We’re making them benefit dependent. We’re certainly not helping them.

You are seeing one tiny snapshot of their lives.

Geoprint · 25/06/2026 16:53

Bellic · 25/06/2026 16:45

If you’re intelligent and eloquent you can get a job. You might be ‘disabled’ but not disabled enough for the government to need to fund you. You’re not severely mentally disabled. You’ve not got a few months to live with MND or cancer? You can get a job or resort to friends / family / charity.

My opinion. But I’d put good money on that that’s where we’ll be with PIP in 5 years time because through my work I know enough about the state of the nations finances to know just how unaffordable the UK’s current situation is.

😂😂😂😂 no all intelligent eloquent people can’t get a job. You’re just sounding silly now.

You do realise there are many,many severely mentally disabled people in hospitals or under services and with very high support needs who are highly intelligent and eloquent.

Bellic · 25/06/2026 16:45

Geoprint · 25/06/2026 16:29

Wow so if you’re intelligent or eloquent you don’t get PIP. WTAF ,how clueless can you be?

Disability cuts across all levels of intelligence.

If you’re intelligent and eloquent you can get a job. You might be ‘disabled’ but not disabled enough for the government to need to fund you. You’re not severely mentally disabled. You’ve not got a few months to live with MND or cancer? You can get a job or resort to friends / family / charity.

My opinion. But I’d put good money on that that’s where we’ll be with PIP in 5 years time because through my work I know enough about the state of the nations finances to know just how unaffordable the UK’s current situation is.

Geoprint · 25/06/2026 16:29

Bellic · 25/06/2026 16:24

I don’t think PIP should be for wide ranging things. What absolutely STAGGERS me is the people that appear in documentaries about PIP who have depression or ADHD, and who are eloquent, intelligent, make great points to the camera and yet are too ill to work. These people who’ve been clearly told that their claims are justified when they don’t seem to be whatsoever. We’re institutionalising these people by not making them work. We’re making them benefit dependent. We’re certainly not helping them.

Wow so if you’re intelligent or eloquent you don’t get PIP. WTAF ,how clueless can you be?

Disability cuts across all levels of intelligence.

Bellic · 25/06/2026 16:24

TigerRag · 25/06/2026 15:56

And the massive in between who still need support?

I don’t think PIP should be for wide ranging things. What absolutely STAGGERS me is the people that appear in documentaries about PIP who have depression or ADHD, and who are eloquent, intelligent, make great points to the camera and yet are too ill to work. These people who’ve been clearly told that their claims are justified when they don’t seem to be whatsoever. We’re institutionalising these people by not making them work. We’re making them benefit dependent. We’re certainly not helping them.

Geoprint · 25/06/2026 16:22

Passaggressfedup · 25/06/2026 08:57

People only see the slightly unusual, slight weird autistic variety. They don't see the more severe who tend to be forgotten
Absolutely! I worked with autistic children in the 90s when 'autism' was a newer diagnosis. These were children severely impacted by it. No way they could have gone to a standard school. These were children who needed 1:1 care 24h a day.

Yet the parents of these children seem much less vocal and expecting sympathy than parents of autistic kids who manage school, activities, friendships, but just find it a bit harder than average Jo.

I taught in the 90s. Children with SEND were being moved out of a rigid segregated special school system into a more integrated system. We have also become better informed re autism. Women and girls were shut out before, now they’re not.

Autistic kids don’t manage school or just find it a bit harder than the average Jo. That is the whole point. Your ignorance is palpable.

Geoprint · 25/06/2026 16:11

Bellic · 25/06/2026 15:54

ADHD / ASD can be under diagnosed but over-PIP’d. If your ASD leaves you non-verbal, incontinent, need permanent carers etc then yes, PIP’s needed. If like my child you go through clothes a lot quicker because sensory issues (keeps changing their mind about what is and isn’t acceptable) and diet is extremely limited, suck it up. Life can be hard. You don’t need to be compensated to the last penny for any form of hardship. I’d far, far prefer more of my taxes went to help the former in my example and not the latter. Benefits money is limited. We need to prioritise.

Incorrect. Going through clothes and having sensory issues is not going to get you PIP. My autistic child is verbal and continent. She gets and is very much entitled to full PIP.