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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to feel he should have told me about this health condition before we married

341 replies

RachelWardd · 15/06/2026 15:50

We met when I was 23 and he was 30.

I was swept off my feet at first meet, he was tall dark handsome romantic funny kind gentle brave .....etc.

We dated for two years and married when I was 25, my parents were strict catholic and I never lived with him back then (we're talking 20+ years ago now) before we married, just dated , never went away together really either.....stayed over at his at the time, he lived very close to his parents, but said it was cos he loved that part of the city /country growing up and all his friends were there etc so that made sense at the time. I moved in with him after we married.

Long story short. In the first two three years, I knew I had married someone with a very very low fuse (as I called at in my twenties) - prone to anger, somewhat selfish, very focused on his needs, very quick flight or fight responses to any changes in plan

Turns out one of the many reasons he was popping in every evening at his parents' for at least 10 minutes on way home was - they were (well in to his 30s) still monitoring and administering sodium valporate pills to him. I opened the packet once when his dad left it out accidentally and I had popped over.

Slowly it came out in the open that he had been diagnosed with a benign reflex form of epilepsy ( he got partial focal type seizures when taking a hot shower or hot bath and almost always or always only then) from when he was less than 10 years old. But 'DH' still said it was fully under control with medication and he had been 'episode free' since 2001 and we met in 2002 and married in 2004.

Eventually he got off the meds completely in 2008 and as far as I know has not had any more episodes just by being careful I think while in the shower or bath
I still think he should have told me - he grew up going to epilepsy clinics, top neuro consultants, thinking life would not be normal as he was still having seizures, falling in the shower leading to head injuries (multiple) , trips to hospital in the ambulance as a teen.

A big part of his life for the first 30 years - and defined his relations with his parents and siblings - and his outlook on life. At the very least he should have told me as he knows this is sometimes genetic and there is a 30pc chance yet that our teen DC could still go on to develop this and have to go through the same to find the right meds and then to learn how to self limit it.

with all the knowledge we have now online, I do think all his flight or fight dysregulation, responses to stress, conflict, self focus are linked. At least armed with this information, I could have approached our marriage with more empathy and compassion if nothing else.

AIBU for me to still feel angry now and then when I remember this lie by omission and his excuses that it wasnt relevant information to tell me.....I am 48 now, he is 55

OP posts:
ChateauMargaux · 17/06/2026 11:29

You don't need a reason to take a look at your life and wonder if there might be changes you can make to allow yourself to put yourself at the centre, do things that bring you joy and generally spend more time being content.

Fill your life with things that bring you joy - if you find yourself pushing your needs aside - think about how you can change this.. you don't need to get too hung up on whether it is your husband's illness or his personality - if you don't love the way your life is, and he is not willing to make changes together - make changes on your own.

Toooldtocare25 · 17/06/2026 08:10

It sounds to me like unregulated bipolar. It is linked with fits and I speak from experience. I was lucky that I was told about it by my hubby straight away or else we wouldn’t have been married. He is prone to selfish behaviour and has a quick temper but just walks out never abusive or violent. I’ve worked hard to get him the right meds and he is so much better now he is stable. When he is not stable I can only describe as zero accountability and irrational. It doesn’t matter what I say he would be the victim. He has some sort of shadow on the brain which caused him to have the similar fits to your hubby. If he gets too hot now he has night terrors or sometimes what I think are fits in his sleep. We sleep with a fan. There are quite a few similarities here.
I think I would be as annoyed as you but personally probably wouldn’t have made as far as you without knowing.
it’s extremely difficult to navigate, but he needs meds and he needs to take ownership of it in order for you to move forward.

FourSevenThree · 17/06/2026 08:05

I've learnt that PMS rage is often a way how to notice things which actually bother me, but I didn't pay attention to them or suppress them for quiet life the rest of the time.
It's not always literal, sometimes the rage focuses on one small aspect, but looking at the broader topic or issue, it often is a real issue which needs addressing.

You don't have to take a big action today. Just don't brush it off.
The lying before the wedding is one thing.
Training you to walk on the egg shells about him is worse.
Hitting you? Really bad
Not owning any of the abuse? Sign that it's definitely not just the epilepsy wiring. If it was, he would feel really bad after the situation is over. And, if he valued you, he would be trying to work on his health problems to make sure he doesn't do it again. He doesn't. He doesn't see what he is doing to you as bad. Even when it is.

Swiftie1878 · 17/06/2026 07:54

RachelWardd · 17/06/2026 07:49

Woke up this morning feeling silly, like I have blown it all out of proportion the med history and all of it , just because I was having a couple of days of feeling bad, possibly even hormonal as have not had a period in 4 months , but feel one coming on now.....

You are absolutely NOT being silly.
Your life is miserable and unsustainable.
You need to either get your ‘D’H to sort himself out, or you need to leave. You can’t go in like this.

RachelWardd · 17/06/2026 07:49

Woke up this morning feeling silly, like I have blown it all out of proportion the med history and all of it , just because I was having a couple of days of feeling bad, possibly even hormonal as have not had a period in 4 months , but feel one coming on now.....

OP posts:
RachelWardd · 17/06/2026 00:20

Managed to find some info today (this evening) about which hospital it was that he went to 'at least once every couple of months' from the age of 10 to 30....

The website says it was a psychiatric hospital but also had a neurosciences unit.

OP posts:
Chamallo · 16/06/2026 23:56

ScaredButUnavoidable · 16/06/2026 15:56

Do you know how offensive this might sound to people with epilepsy?

You seem to want to blame his behaviour on something you’ve read on the internet and by constantly repeating it you are basically stigmatising a whole group of people who have to live with a really shitty and debilitating health condition.

Why can’t you just accept you married a violent and abusive man? Can you not bring yourself to acknowledge that? Why are you trying to absolve him of his actions by claiming he was wired wrong?

People with epilepsy aren’t wired wrong or “not pathologically correct”.

I’m pretty sure 99% of people with epilepsy go through life without choosing to be being violent and abusive towards other people.

Edited

100% this. I hope OP leaves this abusive man, and educates herself about epilepsy. She is so offensive and ignorant.

WeightLossGoal2024 · 16/06/2026 23:54

RachelWardd · 16/06/2026 14:42

Thanks @bumblebee3122 , no I want him to apologise to me for not telling me before the wedding. I mean like I want him to stop feeling shame about the childhood diagnosis which he does, and I want him to feel shame for his lies, which he does not.

You cannot control his actions or feelings. You only control the choices make

EvieBB · 16/06/2026 23:29

kirinm · 16/06/2026 22:59

Collapsing, convulsing, incontinence - a seizure isn’t pretty or delicate. They’re scary to witness. I felt totally embarrassed when I knew people had seen me wet myself as an adult or fall and smash my head open. I’d feel embarrassed now as you lose control over your body and just have to hope someone helps you.

It shouldn’t make you feel embarrassed but it definitely did when I was younger.

Oh darling...that sounds so hard and scary to deal with. Thank you for sharing/explaining xx
I do remember witnessing a boy having a seizure at high school in a biology class and the teacher trying to deal with it the best he could....but if it's any consololation not one of the kids mocked him at all, we were all just concerned.

kirinm · 16/06/2026 22:59

EvieBB · 16/06/2026 22:09

Why would you be embarrassed about a condition you literally had no control over?
I had/have depression (controlled now by meds) but noboby in my world talked about it back in the 80s ...and by the time we go to the 90s I kept it to myself as you were labelled as 'mad'....plus I thought it was my fault, if only I could "think more positively" ha.
I can understand why I was embarrassed about that due to the backwards culture/understanding we had then, but surely epilepsy doesn't fall in to that category? I'm just curious x

Collapsing, convulsing, incontinence - a seizure isn’t pretty or delicate. They’re scary to witness. I felt totally embarrassed when I knew people had seen me wet myself as an adult or fall and smash my head open. I’d feel embarrassed now as you lose control over your body and just have to hope someone helps you.

It shouldn’t make you feel embarrassed but it definitely did when I was younger.

InspectorDuckedCantBeFooked · 16/06/2026 22:20

RachelWardd · 16/06/2026 18:35

Thank you, no not happy to stay in my corner forever, I am also worried menopause and all of it (ovarian cysts, bladder incontinence, etc), is making it harder for me to do so even I was in theory happy to.

No, not content to live in unpredictability ...scared of it actually, very much so.

Oh @RachelWardd I could cry for you just reading this.☹️ You must try to leave him and plan how to do so carefully. You have the right to be happy, safe and to live without fear. I couldn’t imagine being stuck with him, even, god forbid, having to care for him (or be cared for by him) in my later years.

You clearly have wonderful children who have the measure of their dad; they can see him for the arsehole he is.

Hugs to youxx🫂

EvieBB · 16/06/2026 22:09

kirinm · 15/06/2026 15:54

Was he controlled when he met you? It is odd not to tell anyone but I’m also epileptic and I was embarrassed about it for a really long time.

Why would you be embarrassed about a condition you literally had no control over?
I had/have depression (controlled now by meds) but noboby in my world talked about it back in the 80s ...and by the time we go to the 90s I kept it to myself as you were labelled as 'mad'....plus I thought it was my fault, if only I could "think more positively" ha.
I can understand why I was embarrassed about that due to the backwards culture/understanding we had then, but surely epilepsy doesn't fall in to that category? I'm just curious x

Swiftie1878 · 16/06/2026 20:30

RachelWardd · 16/06/2026 16:48

@InspectorDuckedCantBeFooked , any thoughts on the two incidents? It is a grey area for me as I was so foolish and horrible myself in my emotional intelligence that for many many years I did fully believe I deserved to be slapped, pushed, hit. After the fact. I believed him when he said someone who did not trust was a sick person

OMG. This made me cry.
Your religion, as important as it may be to you, is totally distorting the reality of the situation you are in. This is NOT your fault. You do NOT deserve this. Your children do NOT deserve to see their mother treated like this.

He is a grown up. He has ALL the agency he demands. He has done NOTHING to address his issues. It’s really irrelevant what is causing his behaviour - epilepsy or arseholery - he’s not sorting it out. You deserve BETTER.

Gong to dry my tears and hope this thread helps you see the light. 🧎‍♀️‍➡️🙏

RachelWardd · 16/06/2026 20:09

FourSevenThree · 16/06/2026 20:07

I am sorry that I said I might not have married him at the time if he had told me, I was an immature superficial 24 , maybe I deserved not being told - it doesn't excuse him not telling me, he's still an asshole for that

If you were immature, the right thing would had been to give you more time, not throwing you into a marriage with an abusive lier.

I understand that religion of any kind might lead people to think more about "deserving" and something being good for something else, looking for deeper meaning in different aspect of their lifes. However, you shouldn't use it to gaslight yourself.
No, you haven't deserved this. It just happened, because he & his parents engineered this marriage for your husband without giving a thought to whether it was right for you.

Thank you....

OP posts:
RachelWardd · 16/06/2026 20:08

@kirinm , did you hear back on the genetic testing? Hope it was good news.

OP posts:
FourSevenThree · 16/06/2026 20:07

I am sorry that I said I might not have married him at the time if he had told me, I was an immature superficial 24 , maybe I deserved not being told - it doesn't excuse him not telling me, he's still an asshole for that

If you were immature, the right thing would had been to give you more time, not throwing you into a marriage with an abusive lier.

I understand that religion of any kind might lead people to think more about "deserving" and something being good for something else, looking for deeper meaning in different aspect of their lifes. However, you shouldn't use it to gaslight yourself.
No, you haven't deserved this. It just happened, because he & his parents engineered this marriage for your husband without giving a thought to whether it was right for you.

RachelWardd · 16/06/2026 19:34

ScaredButUnavoidable · 16/06/2026 19:01

I live with my husband and our two children. I don’t work as my health is too bad.

Thank you for your lovely words and kind thoughts earlier, I have only just seen them x

Thank you for sharing. I did pull up all your posts meanwhile to check you hopefully were not alone and I felt better when I read your husband is a good man .....and you have two beautiful angels also who love you....

I am sorry that I said I might not have married him at the time if he had told me, I was an immature superficial 24 , maybe I deserved not being told - it doesn't excuse him not telling me, he's still an asshole for that, but I can understand why God might have done that to me, to learn to be less superficial? But I can do that without giving into an abuser like people on here are saying rightly so and you are saying that too to me.

You are so lovely , I read some of your posts. This is a safe space anytime you want to share , and I will come by yours too if that is okay.....I just got yelled at by him for 2 whole minutes (called me a bitch) because I accidentally pulled the door handle the wrong way and it has been damaged, I apologised profusely then he softened and went away. None of this is to do with the epilepsy is it, thanks for helping me move towards being able to see that, you and all the others on here today.....

OP posts:
Greyblueeyes · 16/06/2026 19:31

You have become obsessed with making excuses for this man. You’re doing that so you don’t have to face the fact that he’s an abusive asshole. You’ve wound yourself in circles over and over for a man who treats you badly.

You have clearly been excusing this behavior for years and you’re posting now because the little sniffles of doubt have gotten too big to ignore. And now you’re focusing on the lie about epilepsy instead of the true problem here. You are so desperately trying to ignore the truth, OP.

Pinkdayss · 16/06/2026 19:28

There will be no custody battle.
Your children will decide when and if they will see him.

He has stolen years from you with his lies and violence.

Start planning your exit and let him sort himself out.

He is not your responsibility.

bigboykitty · 16/06/2026 19:20

RachelWardd · 16/06/2026 15:56

Thanks @InspectorDuckedCantBeFooked , @Pinkdayss and @HelenHywater

My dad was one of those gentle souls and I never saw this dynamic of an abusive and/or angry man growing up...he did have a stroke in his 40s that he recovered from and went back to work within 2 months fully mobile and active as ever ....but I did see personality change I suppose, him dull and quiet during those few months, apathetic - my mother was fully supportive and his rock. I never witnessed any aggression from him toward her or us during this time, but he did seem far less eloquent with his words, no nuance etc.

I guess there is history of brain damage - personality affect and family needing to support through - my anger still remains more that he did not tell me beforehand and give me a chance to be supportive and let me find my way in the dark, rather than anger about the temper itself.

Going to do another post with the violence incidents for further context, as the responses on here have been so insightful and made me think on new pathways that I had not considered before - he still maintains that any man , even a saint would have been driven to violence with my shrew like behaviour in those incidents, though he also had bouts of crying and apologising and pleading

Yes, that's what all abusers say!

Violinorbanjo · 16/06/2026 19:18

He trapped you. It is not the end of the world and divorce is something normal these days. Not sure what more someone can say

ScaredButUnavoidable · 16/06/2026 19:01

RachelWardd · 16/06/2026 18:39

Tried to DM you @ScaredButUnavoidable but my DM function never seems to work :-( , on this laptop at least .....or maybe as I do not have paid sub.

Do you have a husband/partner/OH or other family or do you live alone. Are you wfh....

I live with my husband and our two children. I don’t work as my health is too bad.

Thank you for your lovely words and kind thoughts earlier, I have only just seen them x

HelenHywater · 16/06/2026 18:45

RachelWardd · 16/06/2026 17:14

He came up to me just a half hour ago and said he panicked every time someone at work did not reply promptly on Teams app - and also that he felt disrespected. I soothed with ' don't worry it's not a sign of disrespect, they were probably busy, breathe'

I am the only one he has ....in a way ...if I had left right away, he would have had the past 20 years to find someone too......

I am his victim but also his only support except an almost 100 year old dad, and a sister who lives all the way in America thousands of miles away.

If I wanted to leave, I should have left ages ago........

My angry ex was also obsessed with people not showing him the respect that he thought he needed, and he was also terrified of rejection (I too diagnosed him with rejection sensitive dysphoria). Oh I also diagnosed him with ADHD. It's really common to look for some cause. But I ask again, even if he does have this mythical link with his old condition (that he grew out of many many years ago), what does it matter? He won't get help, he won't stop being angry, you're walking on egg shells constantly, and he shows no remorse. Why are you staying?

HelenHywater · 16/06/2026 18:39

RachelWardd · 16/06/2026 16:14

You see based on those above two incidents, why it took me a very long time to first off all forgive myself (work in progress, actually still) for escalating instead of walking away in quiet dignity

But I do now believe nothing justifies physical violence

But don't you think that if it was epilepsy, he would feel remorseful afterwards? Not justify your "shrewlike" behaviour as a inescapable cause of him hitting you?

RachelWardd · 16/06/2026 18:39

Tried to DM you @ScaredButUnavoidable but my DM function never seems to work :-( , on this laptop at least .....or maybe as I do not have paid sub.

Do you have a husband/partner/OH or other family or do you live alone. Are you wfh....

OP posts: