Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to feel he should have told me about this health condition before we married

341 replies

RachelWardd · 15/06/2026 15:50

We met when I was 23 and he was 30.

I was swept off my feet at first meet, he was tall dark handsome romantic funny kind gentle brave .....etc.

We dated for two years and married when I was 25, my parents were strict catholic and I never lived with him back then (we're talking 20+ years ago now) before we married, just dated , never went away together really either.....stayed over at his at the time, he lived very close to his parents, but said it was cos he loved that part of the city /country growing up and all his friends were there etc so that made sense at the time. I moved in with him after we married.

Long story short. In the first two three years, I knew I had married someone with a very very low fuse (as I called at in my twenties) - prone to anger, somewhat selfish, very focused on his needs, very quick flight or fight responses to any changes in plan

Turns out one of the many reasons he was popping in every evening at his parents' for at least 10 minutes on way home was - they were (well in to his 30s) still monitoring and administering sodium valporate pills to him. I opened the packet once when his dad left it out accidentally and I had popped over.

Slowly it came out in the open that he had been diagnosed with a benign reflex form of epilepsy ( he got partial focal type seizures when taking a hot shower or hot bath and almost always or always only then) from when he was less than 10 years old. But 'DH' still said it was fully under control with medication and he had been 'episode free' since 2001 and we met in 2002 and married in 2004.

Eventually he got off the meds completely in 2008 and as far as I know has not had any more episodes just by being careful I think while in the shower or bath
I still think he should have told me - he grew up going to epilepsy clinics, top neuro consultants, thinking life would not be normal as he was still having seizures, falling in the shower leading to head injuries (multiple) , trips to hospital in the ambulance as a teen.

A big part of his life for the first 30 years - and defined his relations with his parents and siblings - and his outlook on life. At the very least he should have told me as he knows this is sometimes genetic and there is a 30pc chance yet that our teen DC could still go on to develop this and have to go through the same to find the right meds and then to learn how to self limit it.

with all the knowledge we have now online, I do think all his flight or fight dysregulation, responses to stress, conflict, self focus are linked. At least armed with this information, I could have approached our marriage with more empathy and compassion if nothing else.

AIBU for me to still feel angry now and then when I remember this lie by omission and his excuses that it wasnt relevant information to tell me.....I am 48 now, he is 55

OP posts:
RachelWardd · 15/06/2026 17:08

clarifying the above to say I feel anger and familial affection at the same time

I think the romantic love was all a lie

OP posts:
Beachforever · 15/06/2026 17:08

RachelWardd · 15/06/2026 17:01

when did your DH tell you , if you dont mind sharing.....

We got together when we were 18 and his epilepsy wasn’t controlled back then and he was still having seizures if he hadn’t had enough sleep or was under stress, which was pretty much all the time in uni. So he had to tell me straight away. There were plenty of times I had to put him in the recovery position and look after him.

Had I met him a few years later, once he had grown out of it a bit and his medication dosage was settled, maybe he wouldn’t have told me straight away?

He hasn’t had a seizure now for about 25 years. He still takes 2 pills before bed every night. But other than that, there is no sign that he has epilepsy.

RachelWardd · 15/06/2026 17:05

Think him saying this morning for the first time on one of our rare almost annual chats about this for 5 mins before he changes topic ofc - ' I always told all my gf's except you' has triggered me.....

I feel anger and love at the same time, and it is very painful feeling both IFYSWIM

OP posts:
RachelWardd · 15/06/2026 17:04

wherearethesnacks · 15/06/2026 16:54

Yes, he tricked you into marrying him. You still aren't sure if he has epilepsy or bipolar and your children were put at risk from his medication.

Why are you so quick to attribute his temper and selfishness to epilepsy? He could just be a jerk. Well, you already know he is because of the lying.

Are you thinking of separating?

Yes it's the thought of 'being tricked' in a sense ...although I try to frame it with more empathy than that most good days......

I have walked on eggshells forever now, and I will never know how much of it was because of this , or as some PPs have said, is nothing related to this

I do wish I could let it go, but sometimes my mind says ..leave him now , don't wait till your dying day to try to leave , Do I want to die with him beside me? Or do I want to die alone? How many more years do I myself have at 48, a few or many? Is it worth the pain and trouble? Should I do it on principle

Dunno

OP posts:
mondaytosunday · 15/06/2026 17:02

It is bizarre not to tell you as what if he’d had an episode while he and you were alone together? Weird. But how long have you known now? Yes it’s something to be upset about but if it was years and years ago that ship has sailed. Unless something else is going on and it’s reminding you of this ‘betrayal’?
My DD (21) has MS. She doesn’t tell anyone about it. But if she became romantically involved and it was starting to become serious of course she would, as it’s not curable and likely to have an impact on her life eventually. As would I tell people that I’m a Type 1 diabetic. Partners need to know the signs, what to do and what the eventual responsibilities might be living with someone aging with a chronic condition.

Beachforever · 15/06/2026 17:02

RachelWardd · 15/06/2026 16:47

Yes I did conceive while he was on sodium valproate , please share if you have any risk factors info , should I be getting some tests done for the DC are mid to late teens

We all conceived whilst taking sodium valproate. The advice has only just changed and is still under review for men taking SV. Don’t worry about that.

Ritasueandbobtoo9 · 15/06/2026 17:02

Ritasueandbobtoo9 · 15/06/2026 16:33

He was unreasonable not to tell you as Sodium Valporate can affect children. epilepsysociety.org.uk/news/men-valproate

Here!

AImportantMermaid · 15/06/2026 17:02

OP, I have a relative who has been on sodium valproate for over 30 years. She’s nothing like your DH. Sometimes illness and/or medication can make people unpleasant and difficult to be around and sometimes they’re just dicks.

RachelWardd · 15/06/2026 17:01

Beachforever · 15/06/2026 16:59

As someone who is married to a man with epilepsy who has also taken sodium valproate for as long as I’ve known him, I think you are conflating separate issues.

It sounds like your DH is a bit of a dick with an anger problem. That is not related to his epilepsy. Just who he is.

Is it odd that he didn’t tell you about it? Yes, it is a bit odd. But if it was controlled and he’d not had any type of seizures for an awfully long time, then I can kind of see why. What’s more odd is that he and his parents actually lied as opposed to just not mentioning it. I assume they must have felt some stigma which is quite sad.

Personally, I don’t think it’s a massive deal he didn’t tell you. The risk of it being inherited by your children is very small. So small, I didn’t give it any thought when we decided to have children.

when did your DH tell you , if you dont mind sharing.....

OP posts:
Beachforever · 15/06/2026 16:59

As someone who is married to a man with epilepsy who has also taken sodium valproate for as long as I’ve known him, I think you are conflating separate issues.

It sounds like your DH is a bit of a dick with an anger problem. That is not related to his epilepsy. Just who he is.

Is it odd that he didn’t tell you about it? Yes, it is a bit odd. But if it was controlled and he’d not had any type of seizures for an awfully long time, then I can kind of see why. What’s more odd is that he and his parents actually lied as opposed to just not mentioning it. I assume they must have felt some stigma which is quite sad.

Personally, I don’t think it’s a massive deal he didn’t tell you. The risk of it being inherited by your children is very small. So small, I didn’t give it any thought when we decided to have children.

TessSaysYes · 15/06/2026 16:59

I agree with you, it's definitely something that should have been men tioned. It's really good he has it very much under control.
Don't like the sound of a short fuse!

wherearethesnacks · 15/06/2026 16:54

Yes, he tricked you into marrying him. You still aren't sure if he has epilepsy or bipolar and your children were put at risk from his medication.

Why are you so quick to attribute his temper and selfishness to epilepsy? He could just be a jerk. Well, you already know he is because of the lying.

Are you thinking of separating?

kirinm · 15/06/2026 16:51

RachelWardd · 15/06/2026 16:47

Yes I did conceive while he was on sodium valproate , please share if you have any risk factors info , should I be getting some tests done for the DC are mid to late teens

Avoid asking strangers on the internet about the implications associated with sodium valproate. I was still on it when I was pregnant and my son didn’t suffer.

theresnolimits · 15/06/2026 16:50

I couldn’t be holding on to this 20 years later OP. For whatever reason, it was done but things are very different now. You’ve had a life and a child together. TBH, I bet even if they’d told you, you would have married him anyway.

If it is symptomatic of your dislike for your DH now and you’re looking for an excuse to leave him, then own that.

QuaintBeaker · 15/06/2026 16:48

I don't think it's unreasonable to still keep thinking about it.

It was a big deal. It could have been passed to your children. And it meant you didn't get to make an informed choice.

All of those things are very real. And it's a shame he isn't willing or able to talk it through with you.
Counselling would give you the opportunity to explore that with someone though. Sometimes what we need must is to feel validated and told that how we feel matters.

RachelWardd · 15/06/2026 16:47

britnay · 15/06/2026 16:18

Please tell me you didn't conceive while he was still on this medication.

Yes I did conceive while he was on sodium valproate , please share if you have any risk factors info , should I be getting some tests done for the DC are mid to late teens

OP posts:
Indianajet · 15/06/2026 16:44

He was wrong not to tell you, but it is many years since you found out. You can't keep bringing it up if you want to stay married- time to deal with it or let it go.

RachelWardd · 15/06/2026 16:44

The first time , The day I saw the sodium valproate tabs labelled 'epilex' my his suitcase, when he and his dad came to the hospital to see my dad , whom I had stayed overnight at the hospital with - that same day I found what the man I married was taking this medication was the same morning the doctor told me that my 56 year old relatively healthy, very active Banker dad had pancreatic cancer and had only 6 months more max

Life got really real that day........

OP posts:
RachelWardd · 15/06/2026 16:42

QuaintBeaker · 15/06/2026 16:37

The only unreasonable thing you've done is marry someone who went every night to their parents' house for "vitamins" into their 30's. That would have given me immediate ick.

I wonder if the reason he didn't tell you after telling other girls is that he liked you that much more and didn't want to risk losing you over this? People can be weird about illness, especially unpredictable types, and maybe he thought you wouldn't want him if you knew?

Doesn't make what he did ok though.

Do you think some counselling would help you with it? Just on your own i mean?

Edited

Yes counselling just for myself might be of help to me....will look into that

Didnt know re his parents giving him meds every night, maybe he used to forget to take it in his teens so they continued monitoring well into twenties or maybe he moved the meds to theirs before i moved in, they were enroute from work to home

OP posts:
RachelWardd · 15/06/2026 16:40

EmailsaysOOO · 15/06/2026 16:36

Your feelings are valid. What are you going to do now ? Perhaps the real question you are asking is - are you unreasonable to split up for this reason. In which case we need to know what the position is for the children, do they love him, how would you separate and so on. Feels like you've not asked exactly what you are questioning

I am still at that point where I am wondering if I am completely AIBU to still be upset about this.....20 years on.

I don't know ....I think I want him to talk about it openly much more, get counselling or therapy as his parents taught him a shame response rather than shining a light on it so he felt he had to hide it.....his world view is not the same as mine as a result. or our priorities individually on some very very important values.

OP posts:
QuaintBeaker · 15/06/2026 16:37

The only unreasonable thing you've done is marry someone who went every night to their parents' house for "vitamins" into their 30's. That would have given me immediate ick.

I wonder if the reason he didn't tell you after telling other girls is that he liked you that much more and didn't want to risk losing you over this? People can be weird about illness, especially unpredictable types, and maybe he thought you wouldn't want him if you knew?

Doesn't make what he did ok though.

Do you think some counselling would help you with it? Just on your own i mean?

kirinm · 15/06/2026 16:36

RachelWardd · 15/06/2026 16:31

Would you do similar if you fell in love with someone genuinely then? Would you not want them to still want to marry you with the full information?

No I wouldn’t but then I’ve never been in a position where I’m being taken off medication - and therefore no longer being treated for epilepsy. Given the timings you’ve referred to, he hadn’t had a seizure since he met you so the lie is that he previously had seizures but was seizure free with medication.

I don’t understand the references to you having a Disney world upbringing and him having experience or hospitals. You’re trying to find an answer as to what you consider his personality flaws and you’re linking them to a condition he had 25 years ago when there may be no such link.

EmailsaysOOO · 15/06/2026 16:36

Your feelings are valid. What are you going to do now ? Perhaps the real question you are asking is - are you unreasonable to split up for this reason. In which case we need to know what the position is for the children, do they love him, how would you separate and so on. Feels like you've not asked exactly what you are questioning

RachelWardd · 15/06/2026 16:35

Thank you for the links and the info ...

:-(

OP posts:
Ritasueandbobtoo9 · 15/06/2026 16:33

He was unreasonable not to tell you as Sodium Valporate can affect children. epilepsysociety.org.uk/news/men-valproate