Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To try and get my Dad back to the UK so he can die here

258 replies

Ataloss23 · 10/05/2026 20:14

I am looking for a bit of support with this, as I don't really know where to start!

My Dad lives in the USA, born in Scotland but moved over in 2019 when he married his wife who he met whilst traveling over there.

18 months ago he was diagnosed with stage 4 pancreatic cancer. He tolerated treatment well, and we have been lucky to get more time with him.

He decided he wanted to move back to Scotland, so he could live out his days here. He sought advice from lawyers and they began the immigration process for his wife, which has been long winded. She has paid all of her fees, including NHS fees and had her embassy interview 9 weeks ago. We have been told it takes up to 12 weeks to get a response.

His treatment over the past few months hasn't gone as well as it has been, and he has taken a real decline this week. I've ended up flying over to America to be with him as we don't know how much time he has left. We are discussing hospice options, and he has said that he would much rather find a way to get back to Scotland, because he still wants to die back home. So I am trying to do everything I can to get him home, but would really appreciate some guidance.

His Dr here has said that he may be able to discharge him for flying, if he feels he would be able to manage the whole flight and we can manage his pain. My concern is how quickly could we access services in the UK? We live quite rurally, so not the same issues for getting access to GP as people in larger populated areas experience. I'm more concerned about how we would access District Nurses, pain relief, stuff like that rather than home support/hospice/care home, as we will be providing his care at home and should manage it all between us.

And regarding the Immigration process - his wife is unable to travel to the UK while immigration clearance is ongoing. Is there a way to expedite this to get him home this week does anyone think? As much as he wants to be here to die, he doesn't want to be here without her. I have plans to phone Immigration in the morning from over here to see what we can do, as I feel this is the biggest challenge we are going to face.

I know this isn't a very common situation, but does anyone have anything similar that they could share with me, or have any professional insight regarding accessing District Nurses or Immigration?

I'm also trying to suss out what services we will need to get him home - private ambulance from the hospital to my house, a hospital bed (can I even get one of these in the house if I don't have access to OTs? Pain management in the community etc. Is there anything else I haven' considered that I need to look into?

I know we are probably chasing something that isn't possible, but I want to make sure I'm doing everything I can to meet his wishes.

Any thoughts or advice would be great please!

OP posts:
Soontobe60 · 12/05/2026 17:05

Blushingm · 11/05/2026 18:19

All that can be put in place within 24 hours here. It is possible. I’ve arranged it for patients

Most people can’t even get an urgent GP appointment within 24 hours!

Bananasareberries · 12/05/2026 16:52

askmenow · 12/05/2026 14:33

That's my understanding aswell. You have to have been a resident here.
It seems somewhat cruel given how ill he is. Sorry for your plight here OP.

It is one of the significant ways we differ to the states. Americans know that medical care is something you have to pay (a lot) for or you don’t get.

Thechaseison71 · 12/05/2026 16:09

Arran2024 · 12/05/2026 13:03

Yes but she has already applied for a different visa and you can't come on a tourist visa while this application is under way

Oh that's a pain

Allseeingallknowing · 12/05/2026 15:46

askmenow · 12/05/2026 14:33

That's my understanding aswell. You have to have been a resident here.
It seems somewhat cruel given how ill he is. Sorry for your plight here OP.

I’ve said this and others berated me for it!

askmenow · 12/05/2026 14:33

Bananasareberries · 12/05/2026 10:57

There is also a big question of whether returning to the uk like this would count as being ordinarily resident within the uk. You are not entitled to free nhs care just because you are a British citizen, you must be ordinarily resident here.

That's my understanding aswell. You have to have been a resident here.
It seems somewhat cruel given how ill he is. Sorry for your plight here OP.

suki1964 · 12/05/2026 13:35

BurnoutGP · 11/05/2026 20:23

Well that's not true. Im sorry you had a bad experience but that's not how it works. Usually a syringe driver is used. If not anticipatory/ just in case meds arw prescribed and issued and kept at home. The district nurses come out to give them. It is indeed possible to have a "good" pain free death at home. Im sorry you had a bad experience. But I have been involved in 100s of deaths at home and almost all have been well managed and dealt with.
Its really irresponsible and daft to assume because you had a bad experience that's what happens in every case.

Please dont tell me what my truth is

Mother was admitted on a Tuesday, spent the next 2 nights in A&E - luckily she got a bed and not a trolley , then transferred to Antrim on the Thursday . She took a heart attack on the Saturday and transferred then to a mixed medical ward where she was monitored for 4 days. That was when I was given the diagnoses and I asked about what care was available. Home they said, and at that stage she was still mobile and self toileting . The fourth day on that unit was the last time she was able to get out of bed - with 2 nurses. Back on gynae she started to deteriorate and had a catheter / driver/ and oxygen

Social services rang me that Friday to tell me they were looking for a care package - 2 carers twice a day, air bed , oxygen , commode etc and asked if we had a downstairs room large enough of which I did and we did indeed start moving furniture about and that weekend she was given the walker by the physio department and we were sent home with the toilet raiser

Come the Tuesday, it was obvious to a blind man that mum wasnt fit to be moved. SS rang me on the Wednesday to say they hadn't been able to find a care package and were looking for a nursing home . Friday morning I was called to come asap, she was wanting me. Mum never opened her eyes again.

So they had to move her to a side room, the screams of that woman will haunt me. Do not tell me that a driver works controlling the pain, it does if regulary monitored and adjusted. Macmillan team came in, said they had a bed and would I agree to her being moved because although she might not survive the short trolly push to it, if she did they could look after her better there. Again, the screams of her being transferred.

Mum spent a lot of that day in pain , it was probably midnight before they got a good cocktail in place. She was mostly peaceful during the Saturday, probably going 4 hours before getting agitated . The nurses always gave her a wee top up before they attempted personal care to keep her as peaceful as possible

She passed at 3am Sunday . I was with her the whole time

I am forever grateful for the care she and I received.

Dont you sit and say that isnt how it works, because that is the reality of the NHS in NI - its beyond being on its knees

Saddest thing is mum who was mobile and driving right up till the day before admission had been trying for a week to get to see a GP, the earliest appointment was 3 weeks. She posted on her FB page , saying "Three weeks? Ill be dead by then " She was

Arran2024 · 12/05/2026 13:03

Thechaseison71 · 11/05/2026 21:39

I thought us citizens could come for 6 months on a tourist visa

Yes but she has already applied for a different visa and you can't come on a tourist visa while this application is under way

Allseeingallknowing · 12/05/2026 12:09

KilkennyCats · 11/05/2026 23:33

Or that any doctor would pronounce him fit to fly.

Apparently the doctor said he was fit to fly- that could change rapidly though. No update from OP yet. She must be in turmoil with all these conflicting posts.

Allseeingallknowing · 12/05/2026 12:06

Bananasareberries · 12/05/2026 10:57

There is also a big question of whether returning to the uk like this would count as being ordinarily resident within the uk. You are not entitled to free nhs care just because you are a British citizen, you must be ordinarily resident here.

I said that and was told I was “ spouting nonsense” In Scotland it is a different story, apparently!

Bananasareberries · 12/05/2026 10:57

There is also a big question of whether returning to the uk like this would count as being ordinarily resident within the uk. You are not entitled to free nhs care just because you are a British citizen, you must be ordinarily resident here.

Puzzledandpissedoff · 12/05/2026 09:27

Bananasareberries · 12/05/2026 08:28

Travel (or any other insurance) is for insuring against the risk that something might happen. You can never insure something that will definitely happen as the insurer knows they will be definitely paying out - so if they were to offer insurance the premium would have to be more than the cost you are insuring against.

You're right of course, though there's no actual knowing that he'd become critically ill during the journey and require all the things which would cost so much

There's obviously a very high chance however, and that alone would cause many insurers to refuse cover; after all one of the many questions is whether you have a terminal iagnosis and OP can hardly say no

Bananasareberries · 12/05/2026 08:28

knitnerd90 · 12/05/2026 03:06

if he is retired I assume he is on Medicare (Medicaid is for the poor). It does not cover international travel. You need travel insurance for that, and I don't know who would cover in this scenario.

damn it I hit the gif thing by mistake and can't delete it on edit. Please ignore!

Edited

Travel (or any other insurance) is for insuring against the risk that something might happen. You can never insure something that will definitely happen as the insurer knows they will be definitely paying out - so if they were to offer insurance the premium would have to be more than the cost you are insuring against.

jerkchicken · 12/05/2026 05:57

BurnoutGP · 11/05/2026 20:23

Well that's not true. Im sorry you had a bad experience but that's not how it works. Usually a syringe driver is used. If not anticipatory/ just in case meds arw prescribed and issued and kept at home. The district nurses come out to give them. It is indeed possible to have a "good" pain free death at home. Im sorry you had a bad experience. But I have been involved in 100s of deaths at home and almost all have been well managed and dealt with.
Its really irresponsible and daft to assume because you had a bad experience that's what happens in every case.

This is a really shitty thing to say to someone who had a bad experience.

Watcher2026 · 12/05/2026 04:30

My ml was diagnosed and given 3 months, gps, nurses,care teams were all great. Sorted all bed etc to be brought to the house within 24hrs..Sadly she only made it 2 weeks from diagnosis but she died happy as she wanted with her family...Was quite amazed it all got into our tiny living room plus all the gear but clearly the teams know what there doing..Wishing you all the best during this hard time.

knitnerd90 · 12/05/2026 03:06

if he is retired I assume he is on Medicare (Medicaid is for the poor). It does not cover international travel. You need travel insurance for that, and I don't know who would cover in this scenario.

damn it I hit the gif thing by mistake and can't delete it on edit. Please ignore!

Bored Cabin Fever GIF
sittingonabeach · 12/05/2026 00:36

Blushingm · 11/05/2026 23:03

No - unknown to us til this morning

Wow that’s impressive. Took local GP service a week to add my DM to my NHS App and a further week to process a prescription, since the pharmacies no longer accept paper prescriptions.

How do you get everything through the system if you don’t have their records?

sittingonabeach · 12/05/2026 00:26

Would insurance cover as well? I know he wants to come back to Scotland but is that a viable reason for insurance to cover when potential costs could be huge

Supersimkin7 · 11/05/2026 23:38

This.

Find out if he can move then set the care in place, see if it’s manageable/any good, then decide. What plans have you made if he lasts longer than expected?

KilkennyCats · 11/05/2026 23:33

Bananasareberries · 11/05/2026 23:26

If he is as poorly as you suggest, I would be surprised if an airline would allow him on a standard flight:

Or that any doctor would pronounce him fit to fly.

Bananasareberries · 11/05/2026 23:26

If he is as poorly as you suggest, I would be surprised if an airline would allow him on a standard flight:

KilkennyCats · 11/05/2026 23:19

You’re determined to convince us that the NHS operates exactly as it should, @Blushingm
You can see why some may be somewhat sceptical…

Blushingm · 11/05/2026 23:06

ThisHazelPombear · 11/05/2026 21:37

@Blushingm Its like you were there with us.

His consultant knew more than you.

Stop gaslighting me I was there.

I’m just saying that it’s incorrect what you say about the drugs in a SPD - there’s no max and a nurse couldn’t set it up off her own back

im not gaslighting anyone.

Blushingm · 11/05/2026 23:03

sittingonabeach · 11/05/2026 22:05

@Blushingm was that person in the system already though?

No - unknown to us til this morning

Pallisers · 11/05/2026 22:30

No it is not. Its balancing the usual MN hysterical scaremongering that everything NHS related is just awful.

And in doing so you told a woman who clearly DID have a really bad experience that she is being irresponsible and daft (and now scaremongering) to talk about it. If she is irresponsible and daft to assume that her experience might mean others have the same - then surely that applies to you too?

The issue here to me isn't the NHS anyway. It is getting this poor man across the atlantic - at the very least a 10 hour gruelling journey door to door (if he is on the US east coast). NHS provision for a new patient newly arrived in the country with no local medical notes, diagnosis or history will be the least of the OP's problems.

sittingonabeach · 11/05/2026 22:05

@Blushingm was that person in the system already though?