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AIBU?

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With dementia on the increase, AIBU to think that many overestimate the amount of inheritance they may receive?

344 replies

EndlessSeaViews · 24/04/2026 09:50

I can't help but wonder if people (who currently don't have an elderly or unwell parent) realise just how expensive care fees are in this country?

I see so many inheritance threads on here and people getting upset because they have discovered a sibling or other relative is set to benefit more from a potential will or that a parent or in-law has suggested they should add this person in or take that person out and see threads stating 'We are set to inherit this or dc will be rich at 25 with this big inheritance from their gp' etc?

I can't help but wonder with an ever growing ageing society and diseases like dementia being the biggest killer in this country that many people will have a shock when their parent or grandparent ends up in a care home and all of 'their' inheritance is swallowed up.

I'll be honest, up until a few years ago, I too had no idea just how expensive care costs are to the individual or to society in general.

My parents are in their 80's and mum is (now) in advanced Alzheimer's disease having suffered for the last 8 years and even though she also has cancer, heart disease and osteoporosis her poor body must have a strong will and desire to keep on living because despite succumbing to various infections and a couple of falls over the last year, one which saw her fracture her neck (a fracture that most elderly osteoporosis sufferers die from), she keeps on going.

Due to her frailty and double incontinence she requires carers 3 times a day which is currently costing mum £4k per month (almost £40k so far). Thankfully my parents can afford this. Post hospital discharge mum had 6 weeks of 'free' LA funded care and it was dreadful, so we are thankful there are funds for private care and I will forever be grateful for that. This current care though is really not enough so between my elderly father, my sister and I we fill in the rest of the time (carers only here for a maximum of 3 hours per day, usually less) and it is beyond stressful. Eventually and probably sooner rather than later we will have to conclude we just can not keep mum at home any longer and she will most probably have to go into a care home and with her growing complex needs it will more than likely cost £1600+ per week, so at least £70k per year. Dad is 85 this year and although he is in physical good health we are concerned that his cognition is declining too so who knows what the future lies ahead for him and how much care he may need?

DH's uncle had a stroke two years ago and has been in a care home, on end of life care, for the last 18 months, this has so far racked up a bill of £150k.

Personally, I have never relied on an potential future inheritance and I am thankful that my parents have enough funds to be able to pay for the best care their money can buy, I know many are not so lucky. But I could never rely on my parents money coming my way and so dh and I have long ago made our own provisions for the future but reading so many of the inheritance threads here with siblings squabbling over wills whilst their (often not yet too elderly) parents are still in fine fettle makes me wonder how many will be in for a big shock should either of their parents or relatives become one of the many who are diagnosed with dementia every year and need lots of care?

OP posts:
Papyrophile · 24/04/2026 15:35

We're 70. DH's parents are both dead: FIL went first, assiduously nursed by DMIL, who subsequently developed vascular dementia. Just pre-COVID, SIL needed a new knee, so MIL went into respite care for six weeks while sister recuperated, and couldn't leave on schedule. She spent the next 30 months in two different care homes (at £4500 per month) before a fall put her in hospital, where she deteriorated. Finally discharged by the NHS who admitted they couldn't do anything more back to the care home, where she died six hours later.

My DM died suddenly in her sleep, without any serious health issues. My DF is 92, and is very well looked after despite having no memory of his first family, by his second wife and their children who live close enough to help her out.

There have been fairly modest inheritances on both sides, both shared with siblings. We have handed it all over to our child, plus a good half of our pension lump sum, so he can buy a modest terraced house outright. As long as one of us lasts another six years, that will be free of inheritance tax.

Our house may have to be sold to pay for our care, who knows, so this route is our solution to giving security now, when it is needed.

Utopiaqueen · 24/04/2026 15:34

I'm fortunate I'm in Scotland and we get free personal care and free nursing care so while that won't pay the full cost of a private nursing home, it certainly helps keep the cost down.

Though who knows what it will be like by the time I'm elderly! Because as we know, money has to come from this from somewhere!

GnomeDePlume · 24/04/2026 15:32

I agree with you @EndlessSeaViews . So many people are horribly unprepared for the realities of dementia.

The main problem is that people are being kept alive longer than they should be. Clinically, XYZ might be the appropriate treatment but is it right for someone who no longer knows what is going on?

My DM is bedbound with late stage vascular dementia plus a whole host of other problems. But still we have to argue with the GP to prevent her being dragged from her comfortable CH bed to spend hours if not days in hospital for no good purpose.

My own plan is an advanced directive. Once I am diagnosed with dementia I do not want to even be offered ABs for a UTI. I would far rather die too soon than too late. FOLO (Fear of Lingering On) rather than FOMO.

tara66 · 24/04/2026 15:19

I have had contact this week with NHS district nurse and NHS physiotherapist -talking about the elderly and they both did not have much to say in support of care homes - especially the costs. Though nurse said there were good ones.

powershowerforanhour · 24/04/2026 15:17

A fistful of pills and a bottle of whisky is the only sensible answer, but I don't know if I'll have the fortitude to do it while I still have the ability to do it.

SurferRona · 24/04/2026 15:16

Badbadbunny · 24/04/2026 10:30

This is why we've been helping our son during his Uni years and first few years of working. Far better to help him setting out in life and making him self-sufficient with a good education/good career than leaving him to fend for himself in minimum wage work having to wait for his inheritance before he can buy a house, have expensive holidays, etc. We've helped set him up so that he can earn enough to look after himself and have a good life, then he won't "need" any more inheritance from us. "Teach a man to fish and he'll never be hungry, give a man a fish and he'll be hungry the next day"

We both "suffered" because neither of our parents gave us any financial support when we were young and we had to fend for ourselves in low paid crap jobs due to effectively not being allowed to have a better education. That had knock on effects, such as compromising on what adult/further education we could do and what jobs we could do. It took us both many years to scrabble some qualifications together to get into better professions and then years more doing self study to get professional qualifications alongside full time work. It meant we delayed getting married and delayed starting a family. It meant we couldn't buy a house near either set of parents. Ultimately it meant our parents only had one grandchild as I was too old to have a second after having my first at nearly 40! It meant they didn't see as much of their grandchild as they wanted because we didn't live close and they became too old to drive long distances.

By the time we got our respective inheritances, it did us no good as we were approaching retirement ourselves and had paid off our mortgage etc. The money is literally sat in the bank unspent - except for amounts given to our son so he didn't need to take out maximum student loans, amounts we've filtered into his ISA accounts and amounts we paid to help set him up in his unfurnished rented flat in the city he first started working (hundreds of miles away) for furniture, utensils, F&F etc. We encouraged him to move away for work so that he wouldn't be limited by poor career/job availability in the crap run down region we live in and the only way to do that was to subsidise the costs of him relocating! We've both said we'd wished our grandparents had left their estates directly to our son, but they didn't, so we've been drip feeding their money to him ourselves to help him when he needs, not make him wait until we die!

Had our respective parents given us some financial support, even small amounts, our lives, and those of our parents could have been so different. We didn't want to impose that on our son. I'm sure our parents would have preferred for us to have lived closer to them, given them more grandchildren, been close enough for them to have had more "fun" with the grandchildren, etc., than just watching numbers get bigger in their building society passbooks!

I cant tell whether this post is showing more resentment or entitlement. I’m not sure what the actual facts are behind We both "suffered" because …… our parents ……effectively not being allowed to have a better education, sounds like you are saying parents should have done private education or tutoring? would have improved your lot in life, made the difference and you and or DH would be rolling in it now.

For comparison, I’m a daughter of economic migrants, essentially unschooled parents who worked manual jobs. Working class. I went to a bad comprehensive in a suburb of a very large city, expectations were very low. But I was top stream for academic subjects, worked hard ish and got a full set of GCE exams, A levels and went to uni. Then a PhD and a switched direction to a different role with a steady career. Not megabucks, but rewarding and challenging. Since then bcs of life long learning, I have qualified with a PG Dip and a Masters. Promoted a few times and moved around.

I have paid off my house, no debt, and very comfortable. Pension ok (but I would certainly feel any means testing of State Pension!). Similar to OP and PPs, I encouraged parents to spend what they had on themselves. They were self funding for care too, it was costly, as was the down size to a disability sensitive bungalow.

I didn’t need or expect parents to facilitate my life choices, I had out educated them aged 13. I made my own choices and built my own life, it’s odd that an adult thinks parents not providing a better education is to blame for their life. I sometimes fear for the independence of younger people and their generation and it doesn’t help social mobility that some look to the bank of mum and dad so much to get by. 😔. I may have mis understood the intent behind the post, in which case apologies!

whymadam · 24/04/2026 15:15

EndlessSeaViews · 24/04/2026 14:42

The most popular care home in our town is owned by Barchester Homes which, until late last year was owned by three billionaires, so that tells you something.

It's no wonder entrepreneurs like Duncan Bannatyne started off on their quest for fortune by owning care homes. It's very lucrative creaming off other people's misery.

Exactly this! Care fees are massive. Carers themselves though are often on minimum wage. Go figure.

Fooledaroundandfellinlove · 24/04/2026 15:15

@Destiny123you don’t get continuing healthcare just for having dementia. There has to be a number of other factors. It’s a high threshold.

Ifyounevergiveup · 24/04/2026 15:14

I see someone mentioned continuing healthcare; I must admit I was wondering about that in respect of your dh’s uncle. He must be receiving nursing, as opposed to general, care surely? You don’t hear much about continuing healthcare but if nursing homes are getting paid anyway (by the family) I have always wondered if they’re entirely on it when it comes to telling residents and families that continuing healthcare is now appropriate.

And I absolutely agree with your post btw

CaptainMyCaptain · 24/04/2026 15:12

FrenchandSaunders · 24/04/2026 10:06

It should never be relied on or form part of future financial planning ... anything left to you is a bonus, not a right.

This.

PopcornPoppingInAPan · 24/04/2026 15:11

EndlessSeaViews · 24/04/2026 09:50

I can't help but wonder if people (who currently don't have an elderly or unwell parent) realise just how expensive care fees are in this country?

I see so many inheritance threads on here and people getting upset because they have discovered a sibling or other relative is set to benefit more from a potential will or that a parent or in-law has suggested they should add this person in or take that person out and see threads stating 'We are set to inherit this or dc will be rich at 25 with this big inheritance from their gp' etc?

I can't help but wonder with an ever growing ageing society and diseases like dementia being the biggest killer in this country that many people will have a shock when their parent or grandparent ends up in a care home and all of 'their' inheritance is swallowed up.

I'll be honest, up until a few years ago, I too had no idea just how expensive care costs are to the individual or to society in general.

My parents are in their 80's and mum is (now) in advanced Alzheimer's disease having suffered for the last 8 years and even though she also has cancer, heart disease and osteoporosis her poor body must have a strong will and desire to keep on living because despite succumbing to various infections and a couple of falls over the last year, one which saw her fracture her neck (a fracture that most elderly osteoporosis sufferers die from), she keeps on going.

Due to her frailty and double incontinence she requires carers 3 times a day which is currently costing mum £4k per month (almost £40k so far). Thankfully my parents can afford this. Post hospital discharge mum had 6 weeks of 'free' LA funded care and it was dreadful, so we are thankful there are funds for private care and I will forever be grateful for that. This current care though is really not enough so between my elderly father, my sister and I we fill in the rest of the time (carers only here for a maximum of 3 hours per day, usually less) and it is beyond stressful. Eventually and probably sooner rather than later we will have to conclude we just can not keep mum at home any longer and she will most probably have to go into a care home and with her growing complex needs it will more than likely cost £1600+ per week, so at least £70k per year. Dad is 85 this year and although he is in physical good health we are concerned that his cognition is declining too so who knows what the future lies ahead for him and how much care he may need?

DH's uncle had a stroke two years ago and has been in a care home, on end of life care, for the last 18 months, this has so far racked up a bill of £150k.

Personally, I have never relied on an potential future inheritance and I am thankful that my parents have enough funds to be able to pay for the best care their money can buy, I know many are not so lucky. But I could never rely on my parents money coming my way and so dh and I have long ago made our own provisions for the future but reading so many of the inheritance threads here with siblings squabbling over wills whilst their (often not yet too elderly) parents are still in fine fettle makes me wonder how many will be in for a big shock should either of their parents or relatives become one of the many who are diagnosed with dementia every year and need lots of care?

My DSiS works for an IFA. She’s concluded that middle class families can either take responsibility for looking after elderly parents themselves and then get some inheritance or the parents can go into a care home and fund it with the inheritance (probably the family home).

But they can’t have care home care and leave any inheritance for the kids.

godmum56 · 24/04/2026 15:09

Popplebeetle · 24/04/2026 14:37

Yes, this is from the Office for National Statistics although a few years out of date

"The majority of older people live independently in their own homes. As of 2021, there were 278,946 individuals aged 65 and over living in care homes in England and Wales, representing 82.1% of all care home residents. This accounts for approximately 4% of the total population aged 65 and over, increasing to 15% among those aged 85 and over. "

yup its definitely true. If you count in people who are receiving in home care either from paid carers or family or a mixture, the number goes up a bit but not hugely. Actually the number in res care has gone down a tiny bit, it used to be around 5%

Theeyeballsinthesky · 24/04/2026 15:08

Destiny123 · 24/04/2026 15:03

Dementia patients shouldn't have to fund care home costs. Google continuing healthcare it should be covered by the local authority

CHC funding is NHS funding controlled by the ICB. It is not local authority funding - and thank god it isn't, local authorities are on their financial knees already with the amount of their budget that has to be spent on social care

Monty36 · 24/04/2026 15:05

You are correct OP. Costs for private social care are an outrage. We have limits for energy etc but social care, no.
It might not be so bad if the care was exceptional. But standards, like much, are low.

Aluna · 24/04/2026 15:04

Destiny123 · 24/04/2026 15:03

Dementia patients shouldn't have to fund care home costs. Google continuing healthcare it should be covered by the local authority

Why not? Why should the state pay? The state already funds attendance allowance. Fact, is state can’t afford to pay.

ForCosyLion · 24/04/2026 15:04

MaturingCheeseball · 24/04/2026 11:03

This is all nothing new: has nobody read Dickens?!

Most people have not read Bleak House unless they're especially interested in literature, no. Otherwise, most people's exposure to Dickens is A Christmas Carol and Oliver Twist. Your pearl-clutching is funny!

TorroFerney · 24/04/2026 15:03

It’s not a situation I find myself in so it’s quite hard to relate to. I suppose it’s the house isn’t it in a lot of these cases that’s worth loads and I don’t have that with my remaining parent, lovely new build three bed semi but shared ownership so won’t be worth a lot (and will be a pain to sort out). I spend more on her than she does on me, I think my birthday present from her was a tenner, i probably spend nearer to £100 on hers and take her out for meals where it wouldn’t occur to her to even bring her purse.

She has said a couple of times something about me inheriting (only child) and when I said you may need it all for care costs she was horribly offended.

Destiny123 · 24/04/2026 15:03

EndlessSeaViews · 24/04/2026 09:50

I can't help but wonder if people (who currently don't have an elderly or unwell parent) realise just how expensive care fees are in this country?

I see so many inheritance threads on here and people getting upset because they have discovered a sibling or other relative is set to benefit more from a potential will or that a parent or in-law has suggested they should add this person in or take that person out and see threads stating 'We are set to inherit this or dc will be rich at 25 with this big inheritance from their gp' etc?

I can't help but wonder with an ever growing ageing society and diseases like dementia being the biggest killer in this country that many people will have a shock when their parent or grandparent ends up in a care home and all of 'their' inheritance is swallowed up.

I'll be honest, up until a few years ago, I too had no idea just how expensive care costs are to the individual or to society in general.

My parents are in their 80's and mum is (now) in advanced Alzheimer's disease having suffered for the last 8 years and even though she also has cancer, heart disease and osteoporosis her poor body must have a strong will and desire to keep on living because despite succumbing to various infections and a couple of falls over the last year, one which saw her fracture her neck (a fracture that most elderly osteoporosis sufferers die from), she keeps on going.

Due to her frailty and double incontinence she requires carers 3 times a day which is currently costing mum £4k per month (almost £40k so far). Thankfully my parents can afford this. Post hospital discharge mum had 6 weeks of 'free' LA funded care and it was dreadful, so we are thankful there are funds for private care and I will forever be grateful for that. This current care though is really not enough so between my elderly father, my sister and I we fill in the rest of the time (carers only here for a maximum of 3 hours per day, usually less) and it is beyond stressful. Eventually and probably sooner rather than later we will have to conclude we just can not keep mum at home any longer and she will most probably have to go into a care home and with her growing complex needs it will more than likely cost £1600+ per week, so at least £70k per year. Dad is 85 this year and although he is in physical good health we are concerned that his cognition is declining too so who knows what the future lies ahead for him and how much care he may need?

DH's uncle had a stroke two years ago and has been in a care home, on end of life care, for the last 18 months, this has so far racked up a bill of £150k.

Personally, I have never relied on an potential future inheritance and I am thankful that my parents have enough funds to be able to pay for the best care their money can buy, I know many are not so lucky. But I could never rely on my parents money coming my way and so dh and I have long ago made our own provisions for the future but reading so many of the inheritance threads here with siblings squabbling over wills whilst their (often not yet too elderly) parents are still in fine fettle makes me wonder how many will be in for a big shock should either of their parents or relatives become one of the many who are diagnosed with dementia every year and need lots of care?

Dementia patients shouldn't have to fund care home costs. Google continuing healthcare it should be covered by the local authority

Aluna · 24/04/2026 15:03

Moanranger · 24/04/2026 14:45

I spoke to my IFA about this, to get the statistics. Going into a care home is the most expensive risk in old age. However, less than 10% of the elderly will need this. In my & my partner’s family no parent/grandparent went into a care home. This contrasts to the stories above.
Of the 10% that do go into care, the average stay before death is 2 years. Therefore, he advises clients who are interested in protecting their estates against this to have £80k per annum in reserve, so around £160k.
As discussed by previous posters, there are exceptions to this, but they are statistical outliers. Of my IFAs 150 clients (all retired) he has 1 in a care home & 1 heading that way.
I do agree that no one should “expect” an inheritance. I am especially concerned about the tax implications for my heirs. On that basis I am setting up a trust for my heirs which will lie outside of my estate & cover the likely tax.

What he doesn’t say, and may not realise, that which I highlighted earlier - many people choose to have care at home costing as much if not more than care fees.

80k pa is entry level now, doesn’t take inflation into account and that’s only one person’s set of care fees. I’d keep in reserve 2 years for 2 people - so 400k.

EndlessSeaViews · 24/04/2026 15:01

Popplebeetle · 24/04/2026 14:26

At the same time, you need to remember that only something like 5% of over 65s end up in a care home.

People keep spouting this statistic out but the overall stats for at home care are skewed because the truth is that we don't know exactly how many unpaid carers there really are in this country or how many people are paying for private carers coming into their homes.

And regardless of the above that figure will change. Dementia is on the fast increase and neither a cure or decent medication is going to be available to us anytime soon. The next generations now go off to uni a lot more and are settling away from home, there will be many future elderly people struggling with these health issues alone and with care work being so poorly paid and very few wanting to go into that industry I personally find it frightening.

OP posts:
LindorDoubleChoc · 24/04/2026 14:54

For pp who mentioned insurance:

My mother took out insurance incase she should need care in the future. It turned out to be quite an expensive insurance and for reasons that I can't quite fathom, she stopped paying into it after a number of years.

However, for the last 13 months of her life she did indeed need to live in a care home and the insurance she'd paid into previously covered a large portion of her total bill and would have continued to pay out until her death had she lived longer. It was very helpful to her.

Monolithique · 24/04/2026 14:46

I often want to say to my parent and MIL - who are both skinflints* that they may as well spend their ££ now as it may well end up going on care fees.

( *one won't put the heating on, the other won't pay for trades people/ or many other things that would make life easier) .

Both think they will go quickly of a heart attack or a stroke, but I personally don't know many of my late relatives who haven't spent some time in very poor health.

Moanranger · 24/04/2026 14:45

I spoke to my IFA about this, to get the statistics. Going into a care home is the most expensive risk in old age. However, less than 10% of the elderly will need this. In my & my partner’s family no parent/grandparent went into a care home. This contrasts to the stories above.
Of the 10% that do go into care, the average stay before death is 2 years. Therefore, he advises clients who are interested in protecting their estates against this to have £80k per annum in reserve, so around £160k.
As discussed by previous posters, there are exceptions to this, but they are statistical outliers. Of my IFAs 150 clients (all retired) he has 1 in a care home & 1 heading that way.
I do agree that no one should “expect” an inheritance. I am especially concerned about the tax implications for my heirs. On that basis I am setting up a trust for my heirs which will lie outside of my estate & cover the likely tax.

EndlessSeaViews · 24/04/2026 14:45

TheyGrewUp · 24/04/2026 14:00

I don't think many people have actually seen the end stages of alzheimers/dementia. I hope they never will. Most people with dementia/Alzheimers die of something else before the bastard disease takes them.

Edited

I will be so bereft when my dear mum does eventually die but I truly hope it's something quick and not from the very end stage of her dementia. I dread that, live daily with that dread.

OP posts:
EndlessSeaViews · 24/04/2026 14:42

hoardingwealth · 24/04/2026 13:58

I think the real question is, why on earth does a care home cost circa £1600 a week? That's an absolute piss take. Now, £500 a week would be entirely reasonable. Where on EARTH is the money going? Someone is lining their pockets, surely? I checked our local home, as we thought Dad might need it....the rooms are tiny and not expensively furnished. It was like a Premier Inn room that had been put through a shrinking machine. WHY is it so expensive??

The most popular care home in our town is owned by Barchester Homes which, until late last year was owned by three billionaires, so that tells you something.

It's no wonder entrepreneurs like Duncan Bannatyne started off on their quest for fortune by owning care homes. It's very lucrative creaming off other people's misery.

OP posts: