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What’s wrong with me, hospital clueless

757 replies

elm26 · 26/03/2026 15:24

Yesterday at 1pm, I put my 6 month old on the rug with his toys and went for a wee.

As I was walking back I had a sudden severe pain in my right side radiating into my lower back and up to my shoulder, I was in agony.

I called DH who was luckily only on a job 15 mins away, he came straight home and took one look at me and called ambulance, I was shouting out in pain they gave me gas and air and morphine.

I had an emergency CT when dye last night and also have a catheter as lost the ability to wee. Nothing showed on CT, they got me settled on morphine and today I’ve had a transvaginal scan which shows ovaries and womb look normal.

Gynae can’t find a reason so they’ve stopped painkillers and just giving me paracetamol but somethings wrong I feel like somebody’s twisting my insides. The gynae consultant was horrible and said the surgical team will come see me if they think it’s worth it?? So I’m waiting for that if they come.

I’m in so much pain and genuinely scared they’ll send me home not knowing what is wrong with me.

Has anyone has anything similar?

OP posts:
Thread gallery
17
Aluna · 27/03/2026 11:43

elm26 · 27/03/2026 10:55

Gallbladder scan clear so now what? She said she’s not scanning my kidneys.

Can you pee again yet?

PeopleWatching17 · 27/03/2026 11:31

Sensiblesal · 26/03/2026 17:17

I don’t think your pain is gyno.

the back pain & radiating down your leg sounds like sciatica/nerve pain.

the loss of bladder control alongside could be Cauda Equina, thats really serious and could leave you paralysed.

its really hard to get the dr/pretend dr thats ‘helping’ you to listen and understand your symptoms but they need to do a test to at least rule it out

edit sorry re read & saw its pain going to the shoulder. This is more likely gall bladder related. Do you have like radiating pain or feel like you had a heart attack?

either way they need to do more testing

Edited

Pretend doctor?

herbetta · 27/03/2026 11:21

Ask to invoke Martha's rule / law - you are entitled to a review or second senior opinion.

herbetta · 27/03/2026 11:17

Sensiblesal · 26/03/2026 17:17

I don’t think your pain is gyno.

the back pain & radiating down your leg sounds like sciatica/nerve pain.

the loss of bladder control alongside could be Cauda Equina, thats really serious and could leave you paralysed.

its really hard to get the dr/pretend dr thats ‘helping’ you to listen and understand your symptoms but they need to do a test to at least rule it out

edit sorry re read & saw its pain going to the shoulder. This is more likely gall bladder related. Do you have like radiating pain or feel like you had a heart attack?

either way they need to do more testing

Edited

I also am thinking need to rule out both Cauda Equina and Cardiac event.

BlueMum16 · 27/03/2026 11:15

Glad your DH is on his way. Hopefully with his support you can insist on more tests.

They are looking at gynae due to your history.

Have they done an ultrasound?

Keep advocating for yourself.

rainbowunicorn22 · 27/03/2026 11:13

A similar thing happened to me when I had my youngest. It was a kidney stone stay put until you get results

thanks2 · 27/03/2026 11:10

what sort of scan did you have on your gall bladder? I had severe pain, my bloods and ultrasound were clear so drs thought I was mad and keep me in the waiting room for 22 odd hours - it was not until they agreed to do an CT scan with contrast did they fund fluid at the base of my gall bladder and then within 30mins were apologising and put me down for urgent removal.

Doteycat · 27/03/2026 11:09

I am stunned. Stunned. The level of not giving a shit is appalling. Wtf. Are these people human?
An utter refusal to look after you? Wtf.
I presented to a and e a at 7 pm awhile back with dreadful left quadrant pain. By midnigh i had bloods, full ultrsound and an xray with an mri scheduled for 8 am.
I was diagnosed and sent home at 6 am with a full diagnosis and meds.
Im not uk obvs and our health system has its problemw but they did everyrhing to find out my problem.

I cannot believe the absolute disgraceful way you are being treated. I know your nhs is on its knees but i always thought the people working were still good decent people in a shitty environment.

This is fucking barbaric. Im so sorry and i hope to god u get sorted.

Newlittlerescue · 27/03/2026 11:02

As it came on immediately following a wee (and it affected your ability to wee) I would have thought a kidney scan would be the first thing they did!

Chaotica · 27/03/2026 10:57

For back problems, you need a spinal MRI. The CT won't show it. But they can do some other tests for Cauda Equina.

Chaotica · 27/03/2026 10:56

I came on here to say back problems and potentially cauda equina. I can see I'm not the first to mention it - they need to check. Even if it isn't that, you might have a prolapsed disc.

That said, I'd want to follow everyone else's advice about the other things it might be too.

That said, I took DS to hospital with sudden onset abdominal pain which had him screaming and passing out (normally stoical teenager) and we still don't know what it was. Probably related to an infection in his case, which eventually got treated.

elm26 · 27/03/2026 10:55

My DH is on his way ASAP just sorting childcare x

OP posts:
elm26 · 27/03/2026 10:55

Gallbladder scan clear so now what? She said she’s not scanning my kidneys.

OP posts:
Ineffable23 · 27/03/2026 10:51

Is there a way your husband or another family member or a friend can come and help you advocate for yourself? I can see it's really hard to be super pushy when you're in such a lot of pain. I think many struggling organisations behave better with witnesses.

Oceangrey · 27/03/2026 10:45

I'm sorry, this sounds horrible. The pain sounds similar to when my husband had kidney stones, he was screaming in pain and throwing up. Clearly they need to run proper tests.

Smittenkitchen · 27/03/2026 10:40

Just want to wish you so much love and strength to get you through until you get the tests and treatment you so clearly need. It must be terrifying feeling like you're being dismissed. Absolutely no people-pleasing and accepting what's said without challenge!

Cocktailsandcheese · 27/03/2026 10:39

It doesn't sound like a gynae issue, it sounds like spine/nerve pain or damage that has caused issues with urinating.

Abcmum34 · 27/03/2026 10:34

I have just read through your posts not other replies so forgive me if someone as said similar. But I had the exact same issues - twisting feeling, agonising pain, being sick after 2 nights in hospital and gynae also pushing the contraceptive pill ?!! I booked a consultation with a private gynaecologist who booked me in for a laparoscopy straight away and they found I had severe adhesions and part of my bowel had become attached to a muscle and had in fact twisted. There were other issues but that was the most serious and he said he was sure that was what had caused the acute episode of sudden pain. I’ve never had any issues since. But I had all the scans in the hospital, countless ultrasounds and none had showed my bowel had twisted. Have you had previous c sections? Although I read you have had previous endo surgeries so they could cause adhesions. I had no idea scar tissue could cause so many problems. I was assessed by the surgical team also but as soon as they ruled out appendicitis they referred back to gynae. Its such an awful feeling not knowing what’s wrong. Sending you love x

GreenGodiva · 27/03/2026 10:34

elm26 · 27/03/2026 08:52

I’m not very good at advocating for myself I just kind of shut down and do what they say as they are the medical professionals but I feel really strongly that something is not okay with me. Now the pain is under my ribs and central to right and into my back and it goes between sharp to dull to achy. I still haven’t seen a pain management team or even a surgical team. Only a gynae team yesterday who told me it’s nothing gynae and she doubts the surgical team will even want to see me because I’m not rolling around screaming in pain anymore. I’ve been dosed up to the eyeballs on morphine overnight but I’m not sure how to word it/stand my ground if they try and discharge me. I’ve still got catheter in place.

This is your gall bladder. I was also vomiting after meals. Tell them that you will only be discharged after a liver scan and liver bloods are done. Mine was rammed with stones, I had a blocked duct and my fb had started decomposing when I finally got surgery. The surgeon said I was days away from dying and he had no idea how I walked into the operating room. But I’d been so gas lit into believing the amount of pain I was in was normal I just forced myself to get on every day.

Specialneedsnightmare · 27/03/2026 10:31

Surely they can't send you home if you can't wee,?!

What the hell is wrong with the NHS these days?

user58643296 · 27/03/2026 10:27

Can you have someone else there with you to help advocate for you, OP? It can be very difficult when you're ill and in pain and feeling vulnerable and the system seems disinclined to take you seriously.

34feeling54 · 27/03/2026 10:23

elm26 · 27/03/2026 10:15

They’ve just sent the gynae team around again and I actually can’t believe it? She’s talking to me both different contraceptive pills I said is anyone at all listening to what I am saying I want a scan on my gallbladder/kidneys whatever and I want it today I was quite angry and now I feel bad because I’m not a rude person but why are they talking to me about contraceptives right now?????? I feel like as a woman I’m just being gaslit at this point. They’re taking my catheter out to see if my bladder has started working.

Sorry to say it sounds a typical experience as a woman. It's always put down to hormones, women's health issues don't seem to be real or important to some healthcare professionals.
Stand your ground and keep on at them to get tests or scans done.

FairKoala · 27/03/2026 10:22

elm26 · 27/03/2026 08:52

I’m not very good at advocating for myself I just kind of shut down and do what they say as they are the medical professionals but I feel really strongly that something is not okay with me. Now the pain is under my ribs and central to right and into my back and it goes between sharp to dull to achy. I still haven’t seen a pain management team or even a surgical team. Only a gynae team yesterday who told me it’s nothing gynae and she doubts the surgical team will even want to see me because I’m not rolling around screaming in pain anymore. I’ve been dosed up to the eyeballs on morphine overnight but I’m not sure how to word it/stand my ground if they try and discharge me. I’ve still got catheter in place.

It seems they have got stuck on it’s not gynae related and don’t seem to understand that they need to look at other possibilities

TBH I don’t really rate most of the medical professions ability to diagnose anything

Dh’s diagnosis of Stress turned out 6 months later and multiple visits to the GP to be stage 4 bowel cancer

My diagnosis of anorexia turned out to be stomach ulcers

16 year old Dds diagnosis of pregnancy turned out to be gastritis

elm26 · 27/03/2026 10:15

They’ve just sent the gynae team around again and I actually can’t believe it? She’s talking to me both different contraceptive pills I said is anyone at all listening to what I am saying I want a scan on my gallbladder/kidneys whatever and I want it today I was quite angry and now I feel bad because I’m not a rude person but why are they talking to me about contraceptives right now?????? I feel like as a woman I’m just being gaslit at this point. They’re taking my catheter out to see if my bladder has started working.

OP posts:
oatmilk4breakfast · 27/03/2026 10:10

I ran this through Claude for you. Even if it's wrong it gives you something to insist on. Don't say it was from AI....

Synthesized symptoms to identify likely gallbladder or kidney pathology

This is a really distressing situation, and her instinct that something is genuinely wrong deserves to be taken seriously. Based on the symptoms described, here are some possibilities worth considering — though of course only her medical team can diagnose her.

The most likely candidates given the full picture:
Gallbladder/biliary issue is a strong contender. The combination of right-sided pain radiating to the back and up to the shoulder (classic biliary referral pattern), pain under the ribs, diarrhea after evening meals (a hallmark of fat intolerance linked to gallbladder problems), nausea and vomiting all fit. Crucially, gallstones are frequently missed on CT — they're much better detected on a dedicated abdominal ultrasound. It doesn't sound like she's had one specifically targeting the gallbladder.

Kidney stone/ureteric colic is also very possible — sudden severe flank pain, inability to urinate, and radiation to the back are classic. CT with contrast should catch this, but timing matters and small stones can occasionally be missed.
Intermittent ovarian torsion can show completely normal on a scan between episodes, because the ovary untwists. Her endometriosis history increases her risk.

What she should specifically ask for or say to advocate for herself:
"I have not had an ultrasound specifically of my gallbladder. I have right shoulder pain, right-sided pain under my ribs, and diarrhoea after every meal — can this be ruled out before I'm discharged?"

"I still have a catheter in because I cannot urinate. I do not feel safe going home unable to urinate and in uncontrolled pain."

"I would like it documented in my notes that I am refusing discharge while I still have a catheter and undiagnosed uncontrolled pain."

That last point is important — hospitals are much more careful about discharging someone who formally refuses and has it noted.
She is right to be worried, and the fact that she needed morphine and is still in significant pain with a catheter in place is not nothing. She deserves a proper answer before going home.

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