What’s wrong with me, hospital clueless

I had this - my symptoms were similar to a urine infection and I had a fever (freezing cold rather than hot) a few times. This was on my right hand side, I had everything removed from that side and was ok for a bit but then I had similar issues on the left (not affecting my ureter the second time, but with adhesions to my bowel) and had to go back and have that side done too. If your ureter is getting blocked, your kidney will be in distress. Mine had shrunk a fair bit as it took a while for the symptoms to effect me badly and then it took a while to get it fixed due to my life being a bit complicated at the time. Sooner the better is best, otherwise your kidney will stop working completely.

It's absolutely kidney stones. I've been there.

There may be blood in your urine they can pick up with dip stick + scan.

> lost the ability to wee

That is the most concerning thing
It sounds like cauda equina syndrome needs to be eliminated as a cause by having an MRI
If you are unable to pee for 48 hours you need to emphasise this to whoever is looking after you

I think you go home and return if the pain returns. There’s nothing they can do really.

Were you ok before you sat on the loo OP? Honestly, your back can go into unbearably painful spasms if you’ve moved the wrong way at all. My lower back did once after I shook up the duvet. All it takes is just to move in the wrong way. I’m not being flippant btw and the not being able to wee could be pressure on a nerve 💐

depends on how you word the prompts and you can tell it to cover a wide range of sites and sources to get the best match etc

Why is everyone recommending this now? AI makes mistakes a lot as it wants to please you/keep you talking. People not feeling well might not think to mention certain medications or relevant history.

This sounds how I was with a severe muscle spasm in my back after a slipped disc I was also in so much pain I couldn’t wee. Diazepam to relax off the muscles was the answer.

Sadly I'm not stunned as in some hospitals this is normal. They don't listen and go for the easiest option.

I've just lost my mum as a result of poor medical care. Ended up in a&e in rhe middle of rhe night. Dr came in and said she just needs to eat. 15 days later they found out she actually had a perforated ulcer. I'm fuming at the moment and I'd advocated and told them they weren't listening.

OP if they try to discharge you ask them to note that you're not happy and still in the same amount of pain.

Do you have any numbness/tingling in legs, or change in sensation in your 'saddle area'? If not unlikely to be cauda equina, especially this is more likely to cause urinary incontinence rather than withholding.

If blood results normal, unlikely to be a kidney infection.

Gallbladder attacks tend to subside after a few hours, although are horrendous at the time.

I would be tempted (if you are able) to reduce pain relief so they have a true idea of what's going on. They kept telling me I was fine as the morphine was masking my symptoms so I didn't look too bad. But when they took me off it, and then saw me profusely sweating and unable to speak, they started to take me seriously.

This isn’t true. The reason you get shoulder pain after gynae procedures is because they pump you full of gas which tries to escape upwards into your shoulders. Lie flat with your bum higher than your head and it will come out the other way.

Apologies i used Grok for this analysis

Urinary Tract Endometriosis (Bladder/Ureter Involvement or Deep Infiltrating Endo Flare/Obstruction) — Strongest overall fit now.

• Why it aligns best: Known endo + multiple surgeries increases likelihood of deep infiltrating disease affecting ureters (causing compression, hydroureter, flank/back pain, hydronephrosis) or bladder wall (pain on filling, retention, "twisting"/spasm sensation). Flank radiation, inability to wee, and visceral pain match; shoulder referral possible with peritoneal irritation from inflammation. Pain can be relentless or fluctuating; post-meal diarrhoea if bowel endo coexists. Normal standard imaging is classic—endo implants often invisible on routine CT/US without expert protocols or MRI; ureter assessment on TVUS can help but isn't always done. Acute severe flare (worse than prior) can occur post-period or with triggers like bladder emptying shifting tissues.
• Nuances/edge cases: Can be silent until obstruction advances; rare kidney endo causes cyclical flank pain. Retention from bladder endo or reflex spasm. Diarrhoea could tie in if rectosigmoid involvement. Patient stories (forums) frequently describe ER visits with retention/catheter, "normal" scans, dismissal as "just endo," then specialist confirmation via MRI/laparoscopy.
• Implications: Risks silent kidney damage (hydronephrosis) if ureter compressed. Needs urology + endo specialist input; possible stents, hormones, or surgery. Not "not gynae"—deep endo often requires multidisciplinary care (gynae-urology).

Yes it is barbaric, and hard to believe they won't scan kidneys with inability to wee as a major issue.

Hopefully DH will advocate for you, and honestly he shouldn't have to, but he's a man and they listen to men you know. What an awful state of affairs, I can hardly believe it.

I had a sudden pain that had me on my knees, it was worse than labour. Gallstones! Two attacks, one of which I went to A&E on 111 recommendation as pain was so bad I couldn't keep still, was writhing round the car seat as I was taken in and I'm not someone who would make a fuss normally! I felt rhe stone pass as I was there, immediate relief, so I left.

Haven't had any since thankfully but a scan showed I had them, and that I had had an infection caused by a blockage as some of my gallbladder wall is thickened. I'm on the waiting list to have it removed, 12 months apparently. I thought I was dying, heart attack or something I didn't know what was going on, thankfully my husband was home or my toddler would have been terrified!

Kidney stones?

If you have issues peeing (which you clearly do) I would be asking for an immediate referral to urology.

I would also ask how they have ruled out cauda equina give that that is a medical emergency and should be ruled out asap if there are any symptoms. I would ask for these questions and their answers to be documented in both your medical and nursing notes as you don’t feel that you are being listened to. You are not there to make friends. It’s ok to hold them to account, and I say that as a HCP.

So have they not ruled out kidney stones yet?! From the pain you describe it sounds very likely to be that. I haven't had it but have read a lot about.

It sounds like you have fallen down the wrong "funnel" and they aren't looking at anything other than gynae for some reason.

I'd try and see an a and e consultant somehow but no idea how you could go about that. You need someone more open minded than a gynae focussed consultant.

They won't send you home if you can't wee.
Does your bloodwork show any inflammation (CRP level) or infection (white blood cell level)? .