What’s wrong with me, hospital clueless

If you’re concerned then consider asking for a review under Martha’s rule

Do you know what your heart rate and temperature are?

OP, those sats are low and your BP has been low. Could you ask a nurse what your NEWS score is? They should know what you mean

Yes I know this but they also use the info you put in for training/machine learning.

so one thing that will happen is it will continue to scrape wrong info based on people inputting other peoples info.

but thats not the point the OP is asking for help not for her info to be put into AI, she could do that herself.

as you can see from all the people replying with similar experience of the symptoms & pain, it could be a multitude of different things.

still wanna know how people get morphine for gallstone attacks cos I got no painkillers at all. Though they did misdiagnose me to start and made things worse.

add to that you reach a certain age & everythung is attributed to gyno/peri/menopause and drs do not listen to you. Its an endemic at this point & the poor OP is going through it

Have they done a chest xray and are you having breathing difficulties? Pneumonia can be very painful.

With regards to gallstones- your symptoms sound pretty identical to mine.
1-3% of all women need to have their gallbladder removed in the year post-partum, and it’s a fucking mystery why no one working in healthcare seems to know this. A scan could show no stones but if it shows sludge you can get horrific attacks.
https://www.sciencedirect.com/science/article/pii/S1665268119309755

You do realise that AI just scrapes information off the internet including mumsnet?

All those are side effects of being in morphine! However if the pain isn’t settling you must ask for a second opinion. Get your husband to quote Martha’s Rule at them, and that should get them moving!

I don’t know & its kinda disgusting that people are putting other peoples personal medical info/symptoms into AI. I don’t think that is OK

I had some of those symptoms and it was a kidney stone. Although they could see my kidney was massive on the CT scan and the urethra was swollen from where it had passed.(they didnt see the stone) The pain came on suddenly, I think they took me more seriously as my blood pressure sky rocketed and didnt come down for ages. Good luck with getting to the root cause.

I couldn’t remember the name, still can’t the ones that are/were nurses with extra training/authority & that you generally see thinking its a dr when its not

Yes. This was me about 10 years ago. Terrible abdominal pain, pain in right shoulder, couldn't pee etc. Then the rigours started... ambulance in and then a flock of very junior doctors in A&E, poor things had been left in charge for the night. They noticed I was going yellow, blood pressure through the floor, O2 88. Blocked bile duct, rancid gall bladder, pancreatitis and sepsis. I was very lucky they acted so fast, several antibiotics in a drip and up to the ward. I signed myself out after 5 days AMA because my experience on the ward was horrific. The registrar was vile, truly the nastiest doctor I have ever come across. They refused to remove my gall bladder as it was "No longer an emergency" and I was told I'd have to be that ill at least 2 or 3 times more before they would remove it. I had it taken out privately about 6 weeks later. I couldn't really afford £6000 but had to scrape it together somehow.
Those junior doctors saved my life and I will be forever grateful. They were also incredibly kind. The surgeon who took my gall bladder out promised he would track them down and tell them how wonderful they were.

Bloods would not be normal.

Yes I wondered this too. Worth asking op?

Haven't read every post but wanted to echo lots I have seen that this absolutely sounds like they should be ruling out/in gallstones. It took 8 years of this before one GP sent me for a scan...

The pain you are describing sounds like gall bladder pain. Ask to have it checked out.

Yes, I was going to suggest pancreatitis too, OP, especially as you mentioned diarrhoea after your meals. They can do a test on a stool sample initially, I think.

Could be cauda equina (you’ll need to google it!)

I don't know if it's much help or would be much help in your situation. But the hospital may have "Martha's rule" in place. If they do this allows you to get an independent review by another clinician if you feel something is being overlooked.

I had a ruptured ovarian cyst last week and the pain from that was utterly excruciating. I had massive internal bleeding that wasn’t initially identifiable on a scan, and I wasn’t able to wee as a result. I assume they’ve checked for this?

As an endo sufferer, you could've had what they call a chocolate cyst burst. Incredibly painful and can cause real issues.. Hope you get some answers soon. Take care.

Could you ask them to make sure they record on your notes that they are refusing an MRI / further investigations and why they’re doing this? It won’t necessarily help you now (although you may find they’d rather just do it than put it in writing that they’ve refused to!) but always helpful to have a paper trail to refer back to.

They need to do your CRP blood test (infection marker) and - if they did it the other day - do it again now. The results “lag” so if it didn’t show infection before they need to check again to see if it’s risen.

Under Martha’s Rule you have the right to a second opinion if you feel they aren’t taking you seriously

You need an ultrasound scan to check for gallstones, CT scan doesn't always pick these up.

I agree they’ve taken this seriously and run a barrage of tests. It’s frustrating for you and the idea that anyone is giving you the impression they think you are time wasting is horrible but what you are describing is exactly what I would expect. Lots of scans, bloods, pain relief, catheter to protect your kidneys/bladder and supervision over night.

OP with sats and bp like that you need to ask them about sepsis