What’s wrong with me, hospital clueless

Sending hugs 💐

I have endometriosis too, so I know all too well about gynaecology thinking the pain is “all my in head”.

I would request another transvaginal ultrasound. I had one last year after awful pain and they found a large complex ovarian cyst.

Hope they get you sorted soon. A few days in hospital can genuinely feel like months.

I ended up in hospital like you in severe pain. Then the pain went off after about 6 hours.They couldn't find anything wrong on the scans either. I was fine for about 6 months then had exactly the same excruciating pain again. This time they scanned me my ovaries were massive and one of my fallopian tubes was twisted cutting off the blood supply.They said then that that was the pain before but as it had corrected itself it didn't show up.

I had very similar pain. It was ovarian cysts . The pain was the fallopian tubes twisting then going back. They cant see them twisting if they aren't twisting at the time.

Yes same

I havent read all comments but ask them to rule out Cauda Equina syndrome which is a back problem causing nerve damage pain which effects bladder and bowel use

The times I’ve had similar it was an emergency ectopic (I also have endo) and kidney stones-excruciating pain, not sure which is worse that or endo period pain, but both worse than childbirth!
Please get them to check these two things, hope youre ok op

OP, sorry if I missed the info - I'm tried to speed-read the thread, and look at your own posts.

When I had a similar, sudden, violent pain and referred shoulder pain, it took a LOT of similar gynae/urological investigations before finally being diagnosed with a ruptured ectopic pregnancy. I've never known pain like it. Has this been discounted?

Where are you in your cycle could be endometriosis related? A cyst could have burst - they can be incredibly painful and don’t show up on scans.

Sorry not rtft, it sounds very much like cauda equina, I’ll bet there’s plenty of others that have suggested this.

Reminds me of 2 ovarian cysts on the outside of ovaries and endometriosis. Didnt show up on scan.
Same pain as you. Could be kidney?

Yes, had it this fast from normal to more pain than labour in a 5 minute window, after I bent over to pick up something on the grass. Instant very high blood pressure as well. Sent to hospital.
It was a kidney stone, small, in tube, and one kidney backed up with urine. Sometimes the stone can be gone by the time you are scanned although mine was still visible.
Try urine tests, even if you have to buy them, and see whether any of the readings are out of the norm. Mine have been for ages (even after being treated and technically ok).

Gall bladder pain causes pain in shoulder.

Came here to say the same thing @LovingLimePeer . As if doctor google was not enough, now we have sycophant Doctor AI.

OP in view of your pain, together with your low O2 saturations and low BP they need to monitor you. Is your pulse raised at all?

Ask them what they think your NEWS score is. It’s an early warning for conditions like sepsis and whilst you don’t currently have a high score, combined with your pain and difficulty passing urine, they need to keep investigating.

Hope they get to the bottom of it very soon and you start to feel better.

Where exactly in the abdomen was the pain?
Did they check your blood pressure on both arms?
Was the scan with dye a kidney scan?
Did they check for aortic dissection?
Are they querying a PE if your sats are low?
Is there back pain, neck pain or genital numbness/numbness or tingling lower limb/loss of power lower limb?

Sats low is a worry.
Have they done a d-dimer/cardiac markers.
Have they done a CTPA? Was this the dye test you had?

Sudden tearing pain and changes to blood pressure can be caused by aortic dissection. It can also cause urinary retention

Use Martha's law to request urgent surgical review. This may not be a gynae problem depending on the pattern of symptoms.

Ignore all the AI crap responses from people who clearly don't have any idea what they're talking about

I think it's unhelpful for people to be suggesting diagnoses based on the description of severe pain on the right side going up to the back and up to the shoulder, with urinary retention. It could be so many things.

@elm26 has had a CT with contrast, and a transvaginal ultrasound, so she hasn't been ignored. Her gallbladder has been deemed 'clear'.

Low blood pressure, decreased respiratory function and urinary retention can all be side effects of morphine and codeine (which metabolises to morphine).

This is why the medical team treating @elm26 need to evaluate her symptoms, current treatment regime, blood results, and imaging results to decide what the most likely diagnosis is.

No doctor on this planet would want to miss cauda equina syndrome, which is a medical emergency. They will have assessed the presence or absence of sensation.

If sepsis is a concern, there will be raised infection markers, lactate, etc. If they suspected any type of infection, they would give antibiotics.

@elm26 it sounds like you've been in a lot of pain and it's naturally really worrying. I don't think the hospital are clueless, though. Medicine just doesn't work as quickly as we're led to believe, thanks to programmes such as Casualty and Grey's Anatomy.

Could it be sepsis? Low blood pressure and abdominal pain - ask them what your white cell count it, your lactate and CRP. If you are not satisfied with response, activate Martha’s rule. The hospital will provide you with a phone number and you can be clinically reviewed by another team which is usually someone with ICU experience.

Many years ago I had an ectopic pregnancy. The pain you're describing is exactly how I felt.
A few weeks earlier I'd been to see my GP as I was spotting and had recently found out that I was pregnant. The GP sent me to A and E . I explained that I was only about 8 weeks pregnant. I was given lots of water to drink despite mr explaining that I was too early into the pregnancy for an abdominal ultra sound to detect anything.
After the abdominal ultrasound, the consultant ( male) said that I wasn't pregnant and that women of my age ( 32) are often so desperate for a baby they develop symptoms. I explained that I had taken a pregnancy test and that it was positive.
A few weeks later after feeling really under the weather,I collapsed in agony with what I thought was trapped wind.
I was in hospital for a week ,had a blood transfusion,and due to complications and developing peritonitis I was off work for 3 months.
Please beg for another scan. If the gynaecologist had listened to me when I first went to hospital I would have been treated there and then and would not have had to suffer the way I did.

Me neither. Sat in a corner until they sent me home.

Yes I had similar pain ; TRIGGER ALERT......I was producing Bl**d instead of urine. It was diagnosed as KIDNEY INFECTION and with admittance to the ward, too, took 2 days before ANBX started to work till the extreme pain subsided.