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What’s wrong with me, hospital clueless

757 replies

elm26 · 26/03/2026 15:24

Yesterday at 1pm, I put my 6 month old on the rug with his toys and went for a wee.

As I was walking back I had a sudden severe pain in my right side radiating into my lower back and up to my shoulder, I was in agony.

I called DH who was luckily only on a job 15 mins away, he came straight home and took one look at me and called ambulance, I was shouting out in pain they gave me gas and air and morphine.

I had an emergency CT when dye last night and also have a catheter as lost the ability to wee. Nothing showed on CT, they got me settled on morphine and today I’ve had a transvaginal scan which shows ovaries and womb look normal.

Gynae can’t find a reason so they’ve stopped painkillers and just giving me paracetamol but somethings wrong I feel like somebody’s twisting my insides. The gynae consultant was horrible and said the surgical team will come see me if they think it’s worth it?? So I’m waiting for that if they come.

I’m in so much pain and genuinely scared they’ll send me home not knowing what is wrong with me.

Has anyone has anything similar?

OP posts:
Thread gallery
17
Randmsdad · 28/03/2026 18:02

cauda equina syndrome?

do you have numbness where you would sit on a saddle?

Flipflopflipflapper · 28/03/2026 17:00

Could is be MSK origin op? Trapped nerve in the middle back referring around the rib cage? Does the pain feel nervy?

Smittenkitchen · 28/03/2026 13:09

So sorry. Sounds like you might need surgery to see if it's endo adhesions.

BristolHelp · 28/03/2026 12:45

elm26 · 28/03/2026 10:03

They’re sending me home. Surgical team refusing to see me even though I’ve been promised for the last 3 days they’ll come and review. I’ve asked for it to be noted on my notes that they’ve refused. They don’t know what’s wrong with me, said the scans would have shown any kidney stones, gallstones, pancreas issues, bladder issues but they can’t find anything. Referred me back to gynae for a new type of contraceptive pill for those with endo. Still don’t know what that’s got to do with anything. Discharging me with paracetamol even though I’ve needed oramorph 3 times since 10pm last night. I’ve given up. I’m so fed up. In pain. She said if I get another “attack” like I did, to go to A&E and not to ring an ambulance unless life threatening.

Don't leave. Get a family member to speak to the ward manager and invoke Martha's rule. There should be a phone number for them to call and an independent review has to be done.

elm26 · 28/03/2026 10:03

They’re sending me home. Surgical team refusing to see me even though I’ve been promised for the last 3 days they’ll come and review. I’ve asked for it to be noted on my notes that they’ve refused. They don’t know what’s wrong with me, said the scans would have shown any kidney stones, gallstones, pancreas issues, bladder issues but they can’t find anything. Referred me back to gynae for a new type of contraceptive pill for those with endo. Still don’t know what that’s got to do with anything. Discharging me with paracetamol even though I’ve needed oramorph 3 times since 10pm last night. I’ve given up. I’m so fed up. In pain. She said if I get another “attack” like I did, to go to A&E and not to ring an ambulance unless life threatening.

OP posts:
MrsLizzieDarcy · 28/03/2026 09:33

I don't know why on earth Doctors have 10 to 16 years of training to fully qualify when there are such available experts for free on Mumsnet Hmm

NiceCupOfChai · 28/03/2026 09:16

RosesAndHellebores · 28/03/2026 09:11

That may all be so, but it seems a great poty that findings and plan are not being clearly shared with the op. As.so often, it's about communication and in my experience patient /carers questions are papered over and not clearly answered until the patient or carer is very firm and digs in their heels. Too often in hospitals every person on shift has a different version of the "facts" or what next.

Which findings haven’t been shared? I’m sure I read that OP said CT scan, USS pelvis and USS liver/gallbladder were normal as were urine dips and bloods (though granted OP has shared with us which bloods were checked, and that’s absolutely fine!). I also read the plan is for surgeons to see her today. What hasn’t been communicated?

RosesAndHellebores · 28/03/2026 09:11

Lougle · 28/03/2026 07:01

Martha was rapidly deteriorating and all the evidence showed that she needed critical care. Her death was a preventable tragedy.

@elm26 has said that she's improving. All of her observations could be the result of morphine. Or they might be something else. But taking this thread as her advice, she's either got a PE, gallstones, pancreatitis, cauda equina syndrome, an aortic dissection, a slipped disc, an ectopic pregnancy, or a burst fallopian cyst.

The team that is treating her will have all of her history, her observations, her blood tests, and her scan results.

That may all be so, but it seems a great poty that findings and plan are not being clearly shared with the op. As.so often, it's about communication and in my experience patient /carers questions are papered over and not clearly answered until the patient or carer is very firm and digs in their heels. Too often in hospitals every person on shift has a different version of the "facts" or what next.

Lougle · 28/03/2026 07:01

Thisle · 28/03/2026 04:33

Tell all that to Merope Mills.

Martha was rapidly deteriorating and all the evidence showed that she needed critical care. Her death was a preventable tragedy.

@elm26 has said that she's improving. All of her observations could be the result of morphine. Or they might be something else. But taking this thread as her advice, she's either got a PE, gallstones, pancreatitis, cauda equina syndrome, an aortic dissection, a slipped disc, an ectopic pregnancy, or a burst fallopian cyst.

The team that is treating her will have all of her history, her observations, her blood tests, and her scan results.

Seabreeze18 · 28/03/2026 06:17

I feel for you op but keep pushing or get a friend/family member to push for you!

Thisle · 28/03/2026 04:33

Lougle · 27/03/2026 18:21

I think it's unhelpful for people to be suggesting diagnoses based on the description of severe pain on the right side going up to the back and up to the shoulder, with urinary retention. It could be so many things.

@elm26 has had a CT with contrast, and a transvaginal ultrasound, so she hasn't been ignored. Her gallbladder has been deemed 'clear'.

Low blood pressure, decreased respiratory function and urinary retention can all be side effects of morphine and codeine (which metabolises to morphine).

This is why the medical team treating @elm26 need to evaluate her symptoms, current treatment regime, blood results, and imaging results to decide what the most likely diagnosis is.

No doctor on this planet would want to miss cauda equina syndrome, which is a medical emergency. They will have assessed the presence or absence of sensation.

If sepsis is a concern, there will be raised infection markers, lactate, etc. If they suspected any type of infection, they would give antibiotics.

@elm26 it sounds like you've been in a lot of pain and it's naturally really worrying. I don't think the hospital are clueless, though. Medicine just doesn't work as quickly as we're led to believe, thanks to programmes such as Casualty and Grey's Anatomy.

Tell all that to Merope Mills.

babyproblems · 27/03/2026 23:22

Have you had an MRI? I also wondered if it was spinal - slipped disc / pinched nerve. I have low grade slipped disk and it’s been a rollercoaster.. I could see bending down for baby and loo etc might bring it on..

Nutsabouttopic · 27/03/2026 22:54

I had a scan on my gallbladder on a Thurs evening, just an ordinary pregnancy type scan. Was told that everything was clear no sign of any gallstones. The following Thursday evening I ended up in a+e with horrendous pain. Told doctors about scan, my GP was convinced I had gallbladder issues hence the scan. I was sent for a MRI on Friday morning which showed my gallbladder was " chock a block full of stones". I was told the original type of scan didn't show up enough details to determine if there were stones present

Tiredhotmess · 27/03/2026 22:54

MrTiddlesTheCat · 26/03/2026 15:37

Have they ruled out kidney stones? The pain from that comes on suddenly and is excruciating. My normally stoic DH was on his knees, crying like a baby when he had them.

Same with my DH. He was on the floor literally screaming with pain. I've never seen him like that before.

Sensiblesal · 27/03/2026 22:25

OP hold on in there, sure your kiddies are missing you too but you need to stay where you are & get this pain under control & a reason for it so you are in best shape for them.

fingers crossed you get some answers in the morning!

ImGoneUndeground · 27/03/2026 22:08

YourWildAmberSloth · 27/03/2026 21:24

Another vote for gallbladder or gallstones, especially given that you have recently had a baby. Gallbladder problems are very common following pregnancy.

Agree with this as a possibility. Any signs of jaundice - yellowish skin & eyes? Just saying, as I had terrible pains (rolling on the floor pains) totally out of the blue, (which nothing at all would relieve) - felt like a belt made of barbed wire was squashing my entire ribcage area + back & neck - it was diagnosed as a gallstone stuck in the bile duct causing acute pancreatitis. This did pass by the time I had a full MRI 2 days later, after intravenous fluids & antibiotics, & some morphine which did eventually help, but I had a CT scan first that showed there was something there. My bloods were OK .Good luck 💐

ThatLemonBee · 27/03/2026 22:07

Kidney stones , if it wasn’t for the wee thing I would say gallbladder as the pain of an attack is excruciating

Sunbeam01 · 27/03/2026 21:45

I have no idea OP but wanted to say well done for fighting your corner.

Keep it up!! Get PALS involved if you need to.

Be strong. Take care xx

FFSToEverythingSince2020 · 27/03/2026 21:38

JulietteHasAGun · 27/03/2026 21:27

Yes. I guess it’s maybe how you worded it. 😀. I think most HCPs wouldn’t term it a diagnostic test because it doesn’t diagnose. It’s an investigation. Sorry, don’t mean to sound snarky at all. 👍🏻

Oh no, it doesn’t sound snarky at all! And thanks to you and @Greybeardy (I saw your response too) and it makes a lot of sense because I have chronic illness and often have a slightly raised D-dimer (only high enough that they did further investigations for a clot once). Yes, I suspect I’m using the term diagnostic incorrectly based on what it means to me as a layperson, which sounds like it’s incorrect in medical terminology. Sorry about any confusion and thanks for the knowledge!!!

JulietteHasAGun · 27/03/2026 21:27

FFSToEverythingSince2020 · 27/03/2026 20:53

Hey sorry, we cross posted. I think we’re saying the same thing and wording it differently, or that I’m still misunderstanding? I’m sorry about that; normally I can understand these things. To me, that is a diagnostic test - if it’s positive, then they can consider a possible blood clot (and yes, possible other others). If it’s negative, then a blood clot isn’t possible. I think maybe this is the part I’m misunderstanding: so a blood clot is possible without a raised d-dimer? And yes, unfortunately, had a few “raised but okay” D-dimers, which is maybe why I’m confused (and sorry about this @elm26 - it wasn’t my intent to derail the thread and I really appreciate @Greybeardy and @JulietteHasAGun sharing their knowledge with me. ♥️

Yes. I guess it’s maybe how you worded it. 😀. I think most HCPs wouldn’t term it a diagnostic test because it doesn’t diagnose. It’s an investigation. Sorry, don’t mean to sound snarky at all. 👍🏻

Greybeardy · 27/03/2026 21:25

FFSToEverythingSince2020 · 27/03/2026 20:53

Hey sorry, we cross posted. I think we’re saying the same thing and wording it differently, or that I’m still misunderstanding? I’m sorry about that; normally I can understand these things. To me, that is a diagnostic test - if it’s positive, then they can consider a possible blood clot (and yes, possible other others). If it’s negative, then a blood clot isn’t possible. I think maybe this is the part I’m misunderstanding: so a blood clot is possible without a raised d-dimer? And yes, unfortunately, had a few “raised but okay” D-dimers, which is maybe why I’m confused (and sorry about this @elm26 - it wasn’t my intent to derail the thread and I really appreciate @Greybeardy and @JulietteHasAGun sharing their knowledge with me. ♥️

if someone scores as being high risk for a DVT/PE then they should be having imaging, not a d-dimer. If they don't score highly then a d-dimer may be helpful - if it's negative that's reassuring and if it's not that needs more thought. Many of the things that can cause slightly low sats will also cause a raised d-dimer in the absence of PE. Unfortunately when a d-dimer's done for the wrong reasons and comes back mildly positive (because for example they have an infection, or a ruptured cyst) it then often commits you to exposing that person to a chunk of radiation/the risk of a reaction to contrast/therapeutic anticoagulation that they don't need while they're waiting for the scan, so doing it inappropriately comes with some risk. Quite a lot of the possible diagnoses that could be behind OPs symptoms could cause a raised d-dimer in the absence of PE/DVT so it's probably not a helpful suggestion here.

YourWildAmberSloth · 27/03/2026 21:24

Another vote for gallbladder or gallstones, especially given that you have recently had a baby. Gallbladder problems are very common following pregnancy.

Runkle · 27/03/2026 21:20

elm26 · 27/03/2026 20:12

Not that I know of, should I ask? It never crossed my mind to be a blood clot

Have they done a D-Dimer blood test? That would help to investigate blood clot

Shiticandowithout · 27/03/2026 21:17

RosesAndHellebores · 27/03/2026 21:07

@elm26 in my opinion, if they suggest discharge, simply say "I very much want to go home and will do so when the cause of the pain has been diagnosed and next steps have been agreed with an implementation plan." If they continue to be unhelpful, plump up your pillows and ask to discuss the next steps with the hospital's clinical director.

I hope it all gets sorted put quickly.

I’d like to be a fly on the wall for that speech

RosesAndHellebores · 27/03/2026 21:07

@elm26 in my opinion, if they suggest discharge, simply say "I very much want to go home and will do so when the cause of the pain has been diagnosed and next steps have been agreed with an implementation plan." If they continue to be unhelpful, plump up your pillows and ask to discuss the next steps with the hospital's clinical director.

I hope it all gets sorted put quickly.