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What’s wrong with me, hospital clueless

757 replies

elm26 · 26/03/2026 15:24

Yesterday at 1pm, I put my 6 month old on the rug with his toys and went for a wee.

As I was walking back I had a sudden severe pain in my right side radiating into my lower back and up to my shoulder, I was in agony.

I called DH who was luckily only on a job 15 mins away, he came straight home and took one look at me and called ambulance, I was shouting out in pain they gave me gas and air and morphine.

I had an emergency CT when dye last night and also have a catheter as lost the ability to wee. Nothing showed on CT, they got me settled on morphine and today I’ve had a transvaginal scan which shows ovaries and womb look normal.

Gynae can’t find a reason so they’ve stopped painkillers and just giving me paracetamol but somethings wrong I feel like somebody’s twisting my insides. The gynae consultant was horrible and said the surgical team will come see me if they think it’s worth it?? So I’m waiting for that if they come.

I’m in so much pain and genuinely scared they’ll send me home not knowing what is wrong with me.

Has anyone has anything similar?

OP posts:
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17
StarryPeck · 28/03/2026 19:14

This could be caude equine syndrome. It is extremely rare but is caused by compression of nerves from your back that lead to your bladder and bowel. It is usually associated with back problems and herniated disks. It is regarded as serious and NHS staff need to perform tests immediately to diagnose this and prevent permanent nerve damage.

Tinytimmy123 · 28/03/2026 19:14

Makes me wonder if it was a man pain the surgical team would be dealing with this differently.

Rhibledd · 28/03/2026 19:06

I get pain like this with endometriosis depending on the time of the month. It won’t show on a TV scan unless something like your ovaries are stuck to something. My endometriosis only started after I had my baby. Def refuse to leave until they’ve found out the pain. Hope you’re ok

VimtoDemon · 28/03/2026 19:03

BristolHelp · 28/03/2026 12:45

Don't leave. Get a family member to speak to the ward manager and invoke Martha's rule. There should be a phone number for them to call and an independent review has to be done.

I have never heard of this but I really hope she did it!

ThamesLondon · 28/03/2026 18:59

elm26 · 26/03/2026 15:24

Yesterday at 1pm, I put my 6 month old on the rug with his toys and went for a wee.

As I was walking back I had a sudden severe pain in my right side radiating into my lower back and up to my shoulder, I was in agony.

I called DH who was luckily only on a job 15 mins away, he came straight home and took one look at me and called ambulance, I was shouting out in pain they gave me gas and air and morphine.

I had an emergency CT when dye last night and also have a catheter as lost the ability to wee. Nothing showed on CT, they got me settled on morphine and today I’ve had a transvaginal scan which shows ovaries and womb look normal.

Gynae can’t find a reason so they’ve stopped painkillers and just giving me paracetamol but somethings wrong I feel like somebody’s twisting my insides. The gynae consultant was horrible and said the surgical team will come see me if they think it’s worth it?? So I’m waiting for that if they come.

I’m in so much pain and genuinely scared they’ll send me home not knowing what is wrong with me.

Has anyone has anything similar?

I guess you have a kindney stone. That's very painful.

TheBroonOneAndTheWhiteOne · 28/03/2026 18:55

@MooseJuice before you wrote all that you should have RTFT.
OP has been discharged.

MooseJuice · 28/03/2026 18:54

Grok says this:-

Most likely possibilities (not exhaustive)
Renal colic / small or passed ureteric kidney stone (very common match)
Classic for sudden, excruciating flank pain radiating to back (sometimes groin/shoulder if severe irritation). Pain can feel colicky/"twisting." Acute pain or morphine itself often causes temporary urinary retention. Standard gold-standard imaging is non-contrast CT KUB—your "CT with dye" (IV contrast) is excellent for other abdominal issues but can miss small/non-obstructing stones or ones that have recently passed. No fever fits (stones aren't always infected). Many cases resolve spontaneously once the stone passes.
Next steps to ask for: Urine dip/microscopy (for blood/crystals—even if dipstick was done), renal ultrasound (quick, no radiation, detects hydronephrosis), or repeat non-contrast CT if pain persists.
Biliary colic or gallbladder issue (e.g., stone/sludge or acalculous cholecystitis)
Right-sided pain radiating to back and right shoulder tip is textbook (Kehr's sign from gallbladder irritation of the diaphragm). Can be triggered suddenly and feel twisting/colicky. Your post-evening-meal diarrhoea could hint at fat-related biliary dysfunction. Contrast CT can miss early/mild cases without obvious stones or wall thickening.
Next steps: Dedicated right upper quadrant ultrasound (far better than CT for gallstones/sludge—cheap, quick). Liver function bloods if not already repeated.
Ruptured ovarian cyst or endometriosis flare/deep infiltrating endo (especially with your laparoscopy history)
Sudden severe pain + peritoneal irritation (shoulder tip) fits a cyst rupture; fluid/blood can irritate the diaphragm but often absorbs quickly, leaving normal TVUS/CT. Bladder or deep pelvic endo can cause urinary retention and "twisting" pelvic pain flares (even postpartum). Gynae scans miss deep endo without laparoscopy.
Next steps: Urology/gynae review for cystoscopy or consider diagnostic laparoscopy if history suggests endo. Repeat pelvic US in a few days.
Less common but worth ruling out (given normal CT)
Early/mild appendicitis or other bowel issue (CT is good but can miss very early cases).
Postpartum ovarian vein thrombosis (right-sided common; contrast CT usually shows it but can be subtle).
Rare things like renal infarction or referred musculoskeletal/spinal (e.g., postpartum-related strain + pain-induced retention), though shoulder radiation makes these less likely.
Urinary retention was likely from the extreme pain/spasm or morphine—good it's resolving with bladder scan confirmation. No temperature/low HR is reassuring against major infection/sepsis.The gynae consultant's attitude sounds unhelpful—advocate for yourself. Ask the surgical team (when they come): "What exactly was ruled out? Why not renal/gallbladder ultrasound? Can I have urology input or non-contrast imaging?" Mention your endo history and post-meal symptoms. Request better analgesia (you were on oramorph/codeine before) and a clear follow-up plan if discharged (e.g., outpatient urology/gastro, urine tests, pain management).Plenty of people on forums (including that Mumsnet thread) report similar "mysterious" episodes that turned out to be a stone that passed, a cyst that ruptured, or biliary issues—often after pushing for the right scan. You're not alone, and it's valid to be scared with a 6-month-old and toddler at home.Please update the thread or speak to your team immediately if pain worsens, you get fever/vomiting/new symptoms, or they try to discharge prematurely. Get a friend/family to help advocate if needed. This isn't something to "wait and see" at home without answers. Take care—hoping they get to the bottom of it quickly so you can get home to your little ones.

Doobi999 · 28/03/2026 18:53

This may sound daft. But I know from personal experience that liver problems can cause pain in the shoulder..I've had three liver biopsies and always been warned this before. I don't know if your liver is also creating the gut pains. Like I said..maybe daft.

HappyMargarita · 28/03/2026 18:49

Haven’t RTFT but blood clots stick out immediately - I had shoulder tip radiating pain and had multiple blood clots in my lungs. Please ask if they’ve done a D-Dimer (blood test). Mine were small and missed on CT but caught on VQ scan.

ArtfulJadeBee · 28/03/2026 18:43

elm26 · 26/03/2026 15:24

Yesterday at 1pm, I put my 6 month old on the rug with his toys and went for a wee.

As I was walking back I had a sudden severe pain in my right side radiating into my lower back and up to my shoulder, I was in agony.

I called DH who was luckily only on a job 15 mins away, he came straight home and took one look at me and called ambulance, I was shouting out in pain they gave me gas and air and morphine.

I had an emergency CT when dye last night and also have a catheter as lost the ability to wee. Nothing showed on CT, they got me settled on morphine and today I’ve had a transvaginal scan which shows ovaries and womb look normal.

Gynae can’t find a reason so they’ve stopped painkillers and just giving me paracetamol but somethings wrong I feel like somebody’s twisting my insides. The gynae consultant was horrible and said the surgical team will come see me if they think it’s worth it?? So I’m waiting for that if they come.

I’m in so much pain and genuinely scared they’ll send me home not knowing what is wrong with me.

Has anyone has anything similar?

Kidney stones or appendicitis? Check WBC count and if high, consider uti or kidney infection. Ovarian torsion another possibility

ArtfulJadeBee · 28/03/2026 18:41

Kidney stones or appendicitis? Check WBC count and if high, consider uti or kidney infection. Ovarian torsion another possibility

Pearmain · 28/03/2026 18:40

Discitis?

Climbinghigher · 28/03/2026 18:35

MyObservations · 28/03/2026 18:27

Sorry to hear about your pain. It's difficult to know what to say other than I wouldn't pay too much attention to the "mum's net college of medicine" diagnoses. The doctor's will have done their best to find out what the problem is and you can always ask for a second opinion. There will be various consultants on duty or standby. Bon courage

You have more confidence in medics than me. It took 5 years of arguing, complaints, genuinely making a nuisance of myself and repeated visits to ED before they would even start to look at what might be going on with my learning disabled son.

The NHS works well if there is a clear pathway or protocol for what is going on. If there isn’t good luck.

Devonshiregal · 28/03/2026 18:34

ThatBusyRedWriter · 28/03/2026 18:24

Not had similar but do not go home! Stand your ground. I had meningitis a few months ago, went to A&E and told multiple people o think it might be meningitis….doctor tried to send me home saying it was anxiety and stress. I am a nurse aswell, which I told them and they still didn’t consider what I was telling them

So they do this to nurses too? Which area do you work in? Is it because you’re not an and e nurse or something that made them dismiss your nursing experience? Like I’m just trying to understand why this is happening everywhere?! I’ve had an awful time with this lately and I’m so sick of it.

BeAzureRaven · 28/03/2026 18:34

Also: At age 42 I had a history of random sudden pain (often associated with coffee or wine, but not always) in upper abdomen, radiating to centre of back. This had been happening for roughly 10 years. I had cat scans, lab work, etc nothing showed anything. Finally, I told my GP that I was pretty sure it was my gallbladder (I'm an RN and even though I am dark haired and normal weight--so not the 'fat, fair and 40' I knew that my symptoms most closely matched gallbladder disease). She ridiculed me saying 'we've tested for that, and you are wrong.' I saw another doctor and insisted on more tests (This was really getting old after 10 years). Finally, I had a HIDA scan (radioactive) done, and guess what? My gallbladder was literally rotting. Had it removed and problem solved.

Climbinghigher · 28/03/2026 18:32

appalling that you are being sent home still in such pain and with no diagnosis. I would get in contact with PALS to complain and if you need to call an ambulance again do. How the hell would you know whether it was life threatening.

MyObservations · 28/03/2026 18:27

Sorry to hear about your pain. It's difficult to know what to say other than I wouldn't pay too much attention to the "mum's net college of medicine" diagnoses. The doctor's will have done their best to find out what the problem is and you can always ask for a second opinion. There will be various consultants on duty or standby. Bon courage

ThatBusyRedWriter · 28/03/2026 18:24

Not had similar but do not go home! Stand your ground. I had meningitis a few months ago, went to A&E and told multiple people o think it might be meningitis….doctor tried to send me home saying it was anxiety and stress. I am a nurse aswell, which I told them and they still didn’t consider what I was telling them

BeAzureRaven · 28/03/2026 18:23

Did they check for kidney stones?

AliTheMinx · 28/03/2026 18:22

Sorry. I haven't RTFT, but I immediately thought kidney stone. Absolutely excruciating pain. Really hope you get some answers soon x

AliTheMinx · 28/03/2026 18:21

Sorry. I haven't RTFT, but I immediately thought kidney stone. Absolutely excruciating pain. Really hope you get some answers soon x

TeethAreImportant · 28/03/2026 18:20

elm26 · 26/03/2026 15:24

Yesterday at 1pm, I put my 6 month old on the rug with his toys and went for a wee.

As I was walking back I had a sudden severe pain in my right side radiating into my lower back and up to my shoulder, I was in agony.

I called DH who was luckily only on a job 15 mins away, he came straight home and took one look at me and called ambulance, I was shouting out in pain they gave me gas and air and morphine.

I had an emergency CT when dye last night and also have a catheter as lost the ability to wee. Nothing showed on CT, they got me settled on morphine and today I’ve had a transvaginal scan which shows ovaries and womb look normal.

Gynae can’t find a reason so they’ve stopped painkillers and just giving me paracetamol but somethings wrong I feel like somebody’s twisting my insides. The gynae consultant was horrible and said the surgical team will come see me if they think it’s worth it?? So I’m waiting for that if they come.

I’m in so much pain and genuinely scared they’ll send me home not knowing what is wrong with me.

Has anyone has anything similar?

Could be kidney stone, worst pain ever. Peoole pass out front it. Ask for an ultrasound, this would also pick up other potential causes. You couldn't possibly be pregnant could you? I know you said you have a 6 month old, but it is possible (have they ruled out ectopic). Hope you get to the bottom of it.

ChicPeer · 28/03/2026 18:18

It can be trapped nerve hun. It can be painful and explain radiation and twisting feeling. Doctors can be clueless sometimes. I would ask for a blood test to see if your calcium levels are low. Muscles do struggle to react if your calcium levels are low and as a result trapped nerves.

Solibear · 28/03/2026 18:12

Probably sounds like a weird suggestion but could it be severe trapped wind? After my second c-section I also had excruciating back and shoulder pain, as did the woman in the bed next to me, and that’s what it was in both cases! Appreciate you’re 6 months pp so not exactly the same scenario, but it could be something similar? Drinking a lot of peppermint tea helped me to relieve it

TerminallyScunnered · 28/03/2026 18:12

elm26 · 28/03/2026 10:03

They’re sending me home. Surgical team refusing to see me even though I’ve been promised for the last 3 days they’ll come and review. I’ve asked for it to be noted on my notes that they’ve refused. They don’t know what’s wrong with me, said the scans would have shown any kidney stones, gallstones, pancreas issues, bladder issues but they can’t find anything. Referred me back to gynae for a new type of contraceptive pill for those with endo. Still don’t know what that’s got to do with anything. Discharging me with paracetamol even though I’ve needed oramorph 3 times since 10pm last night. I’ve given up. I’m so fed up. In pain. She said if I get another “attack” like I did, to go to A&E and not to ring an ambulance unless life threatening.

How would you know if it was life threatening, they don't even know what it is, so they can't even say that. Do you have any other hospitals near by? Just if you go home and obviously its not going to go away, I wouldnt fancy going back to that hospital after being treated that way. I hope you find out what is going on soon