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AIBU?

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What’s wrong with me, hospital clueless

757 replies

elm26 · 26/03/2026 15:24

Yesterday at 1pm, I put my 6 month old on the rug with his toys and went for a wee.

As I was walking back I had a sudden severe pain in my right side radiating into my lower back and up to my shoulder, I was in agony.

I called DH who was luckily only on a job 15 mins away, he came straight home and took one look at me and called ambulance, I was shouting out in pain they gave me gas and air and morphine.

I had an emergency CT when dye last night and also have a catheter as lost the ability to wee. Nothing showed on CT, they got me settled on morphine and today I’ve had a transvaginal scan which shows ovaries and womb look normal.

Gynae can’t find a reason so they’ve stopped painkillers and just giving me paracetamol but somethings wrong I feel like somebody’s twisting my insides. The gynae consultant was horrible and said the surgical team will come see me if they think it’s worth it?? So I’m waiting for that if they come.

I’m in so much pain and genuinely scared they’ll send me home not knowing what is wrong with me.

Has anyone has anything similar?

OP posts:
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MysticChevron · 07/05/2026 02:10

I’m so sorry you and your family have been through such a tough time. Many of your symptoms sound similar to the experience of my cousin who, after fighting tooth and nail for years, was finally diagnosed with a rare condition called Muckle-Wells Syndrome. I couldn’t read and run without suggesting possible testing for this. I wish you all the best and a very speedy recovery X

Christmasbear1 · 07/05/2026 01:45

Any update?

Timetochillnow · 21/04/2026 20:12

How is your husband now? Did he need hospital treatment for kidney stones- they can be so painful

Cranarc · 20/04/2026 17:45

I'm so sorry this is still not resolved and that your husband has health issues too. I hope things improve soon.

BeAzureRaven · 20/04/2026 02:33

Sending good wishes your way--thats a LOT of stress.
xo

Washingupdone · 20/04/2026 01:21

I am so sorry that you are still suffering but pleased to learn that your gp is putting you forward for more tests. Flowers

Weenurse · 20/04/2026 01:09

I am so sorry you are going through all of this and don’t have any answers yet. 💐

elm26 · 20/04/2026 00:15

Hello

I’m so sorry I haven’t got back for an update.

2 days after I came home from hospital, DH woke me shouting in pain at 2am (this is a man who won’t take paracetamol for a headache) begging for pain relief/help/ambulance. He had a kidney stone that was making its way down and it’s been a really stressful time for us with juggling an almost 3 year old and a baby too.

My GP confirmed that one of my incisions was infected and prescribed antibiotics but it’s still ongoing, it’s still infected and horrible, my belly button looks botched. I’ve had planned laparoscopes for my endo before and I’ve never been left looking like this and with a constant infection.

He referred me straight away for endoscopy and colonoscopy so I’m waiting for my appt letters.

We’re both still not 100% but I’m feeling okay although beginning to get a bit worried due to my bowel habits suddenly changing too.

Thanks to you all that cared and have asked how I’m doing x

OP posts:
VimtoDemon · 12/04/2026 09:42

elm26 · 02/04/2026 22:39

Faecal calprotectin came back high and quite a lot of blood in it, they won’t repeat colonoscopy that was done 2 years ago due to fact that it’s likely to be the diverticulitis they saw the first time around getting worse, they wouldn’t even come and see me on the ward they refused to take me off of gynaes hands.

I waited all day yesterday for a repeat scan of my kidneys but got to 7pm and then they said it would be today then gynae came do see me around midday to tell me that urology had refused to scan me again so no repeat scan was happening and I was being discharged (I needed oramorph 3x in the night to get the twisting pain under control) but when I argued this they said it’s bank holiday weekend then dr strike so I am likely to spend 5 of 6 days sitting around any way, I packed my stuff in tears, waited for them to prescribe me 5 (?!) diclofenac and after being told by the gynae yet again that unfortunately some women just don’t find out the cause of the pain and learn to live with it as well as giving me a website about 10 steps of learning to live with and manage pain with no obvious cause (I think anyways I’d stopped listening at this point) my DH turned up and took me home to be with my babies. I’m in bed sweating with the twisty pain but just topped up co-codamol and have a wheat bag so hoping for some sleep.

Thank you everyone who’s been so kind the past week xx

How are you now OP? 💐

Lougle · 11/04/2026 22:31

weirdoboelady · 11/04/2026 22:13

Where? Not in list of OP's posts....

Yesterday on a nub theory thread.

It's probably best if people assume that @elm26 got the support she needed from this thread when she was in hospital.

Hobsonschoiceofhob · 11/04/2026 22:24

Hope Op is ok

weirdoboelady · 11/04/2026 22:13

justasking111 · 11/04/2026 21:58

@elm26 posted yesterday.

Where? Not in list of OP's posts....

justasking111 · 11/04/2026 21:58

@elm26 posted yesterday.

Specialneedsnightmare · 11/04/2026 21:30

Op hasn't updated since the 2nd. I hope this means she's ok and getting the right help at last and not thinking about going online. All the best to her.

Vez79 · 11/04/2026 20:33

How are you doing OP?

Fairy25 · 10/04/2026 14:44

I hope the OP is ok

CocoQueen2024 · 10/04/2026 11:57

Ive been thinking about you and sincerely hope that you are better and have got some answers. ❤️

Lilacblu · 10/04/2026 11:06

elm26... Hi, how are you now? Hope you've recovered and feeling better now... but what was it that was so painfull? And did you feel you were treated better in the end?

StampOnTheGround · 09/04/2026 06:50

Hope you’re doing okay @elm26

Tiredhotmess · 08/04/2026 20:06

Hi OP
Did you get any answers in the end? Have been thinking about you this week because a colleague of mine has been admitted with very similar symptoms - severe abdominal pain and cramping - and has been diagnosed with diverticulitis. Fortunately for her they took her seriously and did a CT scan, amongst other tests which showed it up. Hope you're feeling better now.

Flowerpot36 · 07/04/2026 13:05

Can you pay for a private appt? I know you shouldn’t have to but I think if I could afford it I would

Dizzywizz · 07/04/2026 11:30

How are you doing @elm26 ?

hardworker6 · 06/04/2026 16:22

Thinking of you @elm26

FFSToEverythingSince2020 · 06/04/2026 13:20

Happy Easter @elm26 . I so hope things have gotten a bit better for you.

PoppySaidYesIKnow · 04/04/2026 23:30

Hope everything is ok OP. Been wondering how you are.

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