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SEND - children’s needs to be reassessed from year 6 2029?

883 replies

missbish · 23/02/2026 06:07

Are they taking the piss? After the struggles parents have trying to secure support for their child, they’re then going to threaten to take it away once they’re due to go to secondary? Ds goes to secondary this year so I don’t think it will effect him but I am so angry for those it does effect.

OP posts:
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7
StartingFreshFor2026 · 23/02/2026 16:29

Playingvideogames · 23/02/2026 16:14

Ok well watch Kelly Bright’s Panorama on iPlayer. Etta’s mum - very nice caring lady, a loving mum but flailing around with zero boundaries allowing herself to be pushed around by a 6 year old. Seems utterly unconfident and almost nervous of her.

You don't know what has been tried though! I honestly used to think the same, and then I had my own disabled children. They have severe learning disabilities so we get beaten with the 'soft parenting' stick (slightly) less often. I used to use traditional parenting, firm boundaries, etc etc and it just did not work. It escalated and escalated and everyone was miserable.

It's only now that I have been immersed in the community fully for a decade, have had intimate access to SEND families' lives (because most of our friends have SEND children), that I can truly understand.

BigSENfamily · 23/02/2026 16:26

Kirbert2 · 23/02/2026 16:23

My son is a wheelchair user and if his EHCP is taken away because he's in mainstream, he won't be able to physically enter school either because his 2:1 support would end and he can't push himself in his wheelchair.

Are the government trying to to say though that needs such as this will be met automatically rather than only via EHCP? The feeling I get I that it may be easier to access support needed without the cost of an EHCP ?

N0m0rerain · 23/02/2026 16:25

Playingvideogames · 23/02/2026 16:20

If the colossal amount we are currently spending is not ‘meeting their needs’ we never will, and need to get the costs under control as it’s not even producing results.

At the end of the day you can’t not provide provision for SEN. If you do everybody loses:- other pupils, the SEN gets worse, prisons fill up, MH needs get worse, there’s more reliance on benefits, less tax being paid…

It’s in everybody’s interest to make send a priority and to provide good provision.

SleeplessInWherever · 23/02/2026 16:24

Playingvideogames · 23/02/2026 16:20

If the colossal amount we are currently spending is not ‘meeting their needs’ we never will, and need to get the costs under control as it’s not even producing results.

That depends what we mean by results.

My son won’t pass his GCSE’s, but he has learned a great deal at school. His communication is vastly improved, he is emerging onto the EYFS curriculum, he can recognise shape and number. That progress is a result.

For others, their child is able to engage with education because their physical needs are catered for, and if that wasn’t the case their education wouldn’t be happening. Their children being able to access education, is a result.

missbish · 23/02/2026 16:24

Playingvideogames · 23/02/2026 16:00

The diagnoses are always pending while the EHCP process happens.

I actually don’t think the parents think they’re doing all this. They’re too emotional and too close to the situation to be able to see it in the cold light of day, and they’re urged on by others online to view their child as disabled rather than a child that needs a different parenting approach or simply firmer boundaries. They’re then catapulted into the role of ‘protector’ fighting for their child’s rights and once they start, as a parent they keep going and going. I do get it, I would do anything for my children. But sometimes that parental love can cloud what is best for them
in the long run.

Have you read the ‘birthday cake’ thread on here at the moment? Mum complaining she’s being treated like shit by young adult daughter after running herself ragged to give her the perfect birthday, 2 cakes etc - only for DD to tantrum over the lot. Magically her DD can deal with her ‘triggers’ when doing something she wants to, but is ‘triggered’ by her servants aka parents not doing what she wants. OP explained it all away as ‘her autism’ because over the years she’s totally lost sight of the fact she’s being played like a fiddle and current groupthink is to have no boundaries or demands ‘so as not to put them in meltdown’.

Have a read, it’s very interesting.

Just to say my son was not waiting on a diagnosis when we got his EHCP. He was diagnosed with asd age 4, the August before he started primary. It took the school 6 months to put him on the Sen register, even though on his first day I took his diagnosis letter from the consultant in and handed it to the senco, who was also his new reception teacher. We didn’t get the EHCP until year 4 !

OP posts:
ElishaFelisha · 23/02/2026 16:24

Playingvideogames · 23/02/2026 16:23

Then there should be a basic online package with self lead tuition offered. They can take it or leave it, and do it at their own pace.

This is a great idea.

Playingvideogames · 23/02/2026 16:23

CactusSwoonedEnding · 23/02/2026 16:19

There isn't a "cobble along" option for a child who cannot enter the school premises because of the overwhelming sensory overload and trauma that they experience there when there are no adjustments. Refusing to make adjustments for a child who cannot enter the school premises due to how they are affected by ASD is ethically exactly the same as refusing to make adjustments for a child who cannot enter the school premises because they are using a wheelchair and the school is up a flight of stairs. The latter case is clear discrimination and the LA must provide a place at a school that is wheelchair accessible. A child who is highly intelligent and capable of getting qualifications but who cannot cope with the noisy and busy atmosphere of being in a room with 29 other kids is still entitled to an education and we cannot say that we are providing them with an education if all we are doing is making a place available for them in a classroom that they cannot bear to be in and which makes them ill.

Then there should be a basic online package with self lead tuition offered. They can take it or leave it, and do it at their own pace.

MrsMurphyIWish · 23/02/2026 16:23

I don’t understand the timeline either. DS has an EHCP and we applied for his secondary school before the rest of the LEA through the special needs team rather than the LEA portal.

I’m lucky with the school I sent him to - they have made so many adjustments for him and it could have been a nightmare going from a one form primary to a school that has 300 students in a year group.

Kirbert2 · 23/02/2026 16:23

CactusSwoonedEnding · 23/02/2026 16:19

There isn't a "cobble along" option for a child who cannot enter the school premises because of the overwhelming sensory overload and trauma that they experience there when there are no adjustments. Refusing to make adjustments for a child who cannot enter the school premises due to how they are affected by ASD is ethically exactly the same as refusing to make adjustments for a child who cannot enter the school premises because they are using a wheelchair and the school is up a flight of stairs. The latter case is clear discrimination and the LA must provide a place at a school that is wheelchair accessible. A child who is highly intelligent and capable of getting qualifications but who cannot cope with the noisy and busy atmosphere of being in a room with 29 other kids is still entitled to an education and we cannot say that we are providing them with an education if all we are doing is making a place available for them in a classroom that they cannot bear to be in and which makes them ill.

My son is a wheelchair user and if his EHCP is taken away because he's in mainstream, he won't be able to physically enter school either because his 2:1 support would end and he can't push himself in his wheelchair.

N0m0rerain · 23/02/2026 16:23

Playingvideogames · 23/02/2026 15:51

Sorry but that’s rubbish. The last ‘asylums’ closed in the early 80s, all this ‘they were locked away’ stuff is just a myth.

You are the one talking absolute rubbish. There is a whole government program designed to try to stop the high numbers of autistic people ending up in inpatient- Dynamic Support Register .

Research and data show that
autistic people are significantly more likely to be admitted to and "stuck" in inpatient mental health hospitals compared to the general population. While autism is a developmental disability, not a mental illness, many autistic individuals end up in these units, often due to a lack of proper community-based support.
Springer Nature Link +3
Key Findings on Autism and Inpatient Care

  • Over-representation: A meta-analysis estimated that while autism affects roughly 1% of the general population, autistic people represent approximately 10% of patients in psychiatric inpatient settings.
  • Increased Admissions: In England, the number of autistic people without a learning disability in mental health hospitals increased by 116% between 2017 and 2024.
  • Long Stays: Autistic people often face extremely long, inappropriate, and sometimes damaging inpatient stays, with average lengths of stay reported at over 4.5 to 5 years.
  • Youth Vulnerability: Autistic youth are hospitalized for mental health reasons at dramatically higher rates than their non-autistic peers, accounting for 36% of admissions compared to 21% for non-autistic youth.
  • National Autistic Society +4
Reasons for High Inpatient Rates
  • Lack of Community Support: Many are admitted not because they need hospital-level care, but because of a lack of appropriate social care, housing, or specialized community support.
  • Crisis Situations: Autistic individuals may be in crisis (meltdown/shutdown) and are sent to hospital because community services cannot manage their needs, often leading to them being "stuck" in hospitals for years.
  • Misinterpretation of Behaviors: Staff in general mental health units may not be trained in autism, often interpreting sensory overload or extreme stress as "challenging behaviors" requiring sedation or restraint.
  • Diagnostic Overshadowing: Co-occurring conditions, such as anxiety or schizophrenia, are common, and in some cases, the autism itself is mistakenly treated as a mental illness that requires detention.
  • National Autistic Society +5
Risks in Inpatient Settings Inpatient units are often noisy, bright, and unpredictable, which can be detrimental to an autistic person's wellbeing, potentially worsening their mental health and leading to further restrictions. National Autistic Society +1 Efforts for Change Campaigners and organizations like the National Autistic Society have highlighted this as a "national scandal" and are fighting for legislative changes to the Mental Health Act to stop people from being detained simply for being autistic, aiming to ensure proper community care instead. National Autistic Society +1

Number of autistic people in mental health hospitals: latest data

10 years on from the Winterbourne View scandal and over 1,000 autistic children and adults continue to be in inpatient mental health hospitals in England. In some cases, people are stuck for many years, many miles from home and even face overmedication...

https://www.autism.org.uk/what-we-do/news/autistic-people-in-mental-health-hospitals

BigSENfamily · 23/02/2026 16:22

Anyahyacinth · 23/02/2026 14:43

How much do you think these children will cost across their lives without adequate early intervention?

If the aim was early intervention then the government would introduce screening for things such as ASD routinely then real early interventions ideally before age 5 or as early as possible could make a huge difference.

Playingvideogames · 23/02/2026 16:20

Kirbert2 · 23/02/2026 16:19

This isn't about what is best for children though, is it? It's about trying to save money.

If the colossal amount we are currently spending is not ‘meeting their needs’ we never will, and need to get the costs under control as it’s not even producing results.

Playingvideogames · 23/02/2026 16:19

Peridoteage · 23/02/2026 16:17

When I was at school, I remember spending time doing PE lessons, music lessons that involved lots of movement, an art project that was making and painting a giant Noah's ark in the corner of the classroom - movement breaks were part of the lesson plan, even if not called that.

My kids state primary is like this. There's a big focus on play, music, movement. Its an ordinary one form entry school. Despite this stuff it still has seen a massive increase in children with ASD & Adhd diagnoses.

Same here. I started primary in 1996 and we had SATS, weekly spelling tests, CATS (anyone remember those?!) and learning ‘sets’. Secondary had uniform inspection (complete with a ruler to measure skirt length and baby wipes to remove offending makeup!), teachers shouting, Saturday detention and 1,200 students.

I don’t recognise these cool, chilled, devil-may-care schools of the past.

Kirbert2 · 23/02/2026 16:19

Playingvideogames · 23/02/2026 16:00

The diagnoses are always pending while the EHCP process happens.

I actually don’t think the parents think they’re doing all this. They’re too emotional and too close to the situation to be able to see it in the cold light of day, and they’re urged on by others online to view their child as disabled rather than a child that needs a different parenting approach or simply firmer boundaries. They’re then catapulted into the role of ‘protector’ fighting for their child’s rights and once they start, as a parent they keep going and going. I do get it, I would do anything for my children. But sometimes that parental love can cloud what is best for them
in the long run.

Have you read the ‘birthday cake’ thread on here at the moment? Mum complaining she’s being treated like shit by young adult daughter after running herself ragged to give her the perfect birthday, 2 cakes etc - only for DD to tantrum over the lot. Magically her DD can deal with her ‘triggers’ when doing something she wants to, but is ‘triggered’ by her servants aka parents not doing what she wants. OP explained it all away as ‘her autism’ because over the years she’s totally lost sight of the fact she’s being played like a fiddle and current groupthink is to have no boundaries or demands ‘so as not to put them in meltdown’.

Have a read, it’s very interesting.

This isn't about what is best for children though, is it? It's about trying to save money.

CactusSwoonedEnding · 23/02/2026 16:19

Playingvideogames · 23/02/2026 14:50

Nobody is saying ‘oh well’.

We’re saying there’s no other option, children that don’t have the highest level of disability will have to cobble along with some fairly rudimentary state school assistance.

That’s all there is to it now. Many services have been cut or restricted.

There isn't a "cobble along" option for a child who cannot enter the school premises because of the overwhelming sensory overload and trauma that they experience there when there are no adjustments. Refusing to make adjustments for a child who cannot enter the school premises due to how they are affected by ASD is ethically exactly the same as refusing to make adjustments for a child who cannot enter the school premises because they are using a wheelchair and the school is up a flight of stairs. The latter case is clear discrimination and the LA must provide a place at a school that is wheelchair accessible. A child who is highly intelligent and capable of getting qualifications but who cannot cope with the noisy and busy atmosphere of being in a room with 29 other kids is still entitled to an education and we cannot say that we are providing them with an education if all we are doing is making a place available for them in a classroom that they cannot bear to be in and which makes them ill.

Peridoteage · 23/02/2026 16:17

When I was at school, I remember spending time doing PE lessons, music lessons that involved lots of movement, an art project that was making and painting a giant Noah's ark in the corner of the classroom - movement breaks were part of the lesson plan, even if not called that.

My kids state primary is like this. There's a big focus on play, music, movement. Its an ordinary one form entry school. Despite this stuff it still has seen a massive increase in children with ASD & Adhd diagnoses.

Playingvideogames · 23/02/2026 16:14

StartingFreshFor2026 · 23/02/2026 16:09

I'm not sure reading one anonymous thread will change the perspective I formed from working with or for many real families.

Ok well watch Kelly Bright’s Panorama on iPlayer. Etta’s mum - very nice caring lady, a loving mum but flailing around with zero boundaries allowing herself to be pushed around by a 6 year old. Seems utterly unconfident and almost nervous of her.

N0m0rerain · 23/02/2026 16:14

Playingvideogames · 23/02/2026 16:00

The diagnoses are always pending while the EHCP process happens.

I actually don’t think the parents think they’re doing all this. They’re too emotional and too close to the situation to be able to see it in the cold light of day, and they’re urged on by others online to view their child as disabled rather than a child that needs a different parenting approach or simply firmer boundaries. They’re then catapulted into the role of ‘protector’ fighting for their child’s rights and once they start, as a parent they keep going and going. I do get it, I would do anything for my children. But sometimes that parental love can cloud what is best for them
in the long run.

Have you read the ‘birthday cake’ thread on here at the moment? Mum complaining she’s being treated like shit by young adult daughter after running herself ragged to give her the perfect birthday, 2 cakes etc - only for DD to tantrum over the lot. Magically her DD can deal with her ‘triggers’ when doing something she wants to, but is ‘triggered’ by her servants aka parents not doing what she wants. OP explained it all away as ‘her autism’ because over the years she’s totally lost sight of the fact she’s being played like a fiddle and current groupthink is to have no boundaries or demands ‘so as not to put them in meltdown’.

Have a read, it’s very interesting.

Err one thread on MN does not speak for all or even a proportion of families trying to manage SEND.

Mum18282 · 23/02/2026 16:14

Araminta1003 · 23/02/2026 10:58

“Does anyone know how it works if a child is in a special school? They wouldn’t suddenly be expected to go to a mainstream would they ?”

No, the minister on the radio this morning set children would not be forced to move setting.
I guess the only thing that could conceivably go wrong is if a special school went bust because the LA no longer funded it properly.

This is my worry. We had to choose an independent special school because there were no other appropriate state schools. With this potential cap on funding I’m now worried it’s going to go bust.

Playingvideogames · 23/02/2026 16:13

RudolphTheReindeer · 23/02/2026 16:09

Because schools were better funded so such children had better support. Support they don't get now. There was less pressure from the likes of Ofsted on academic attainment and as someone else said, we had more art/music/pe etc. Proper lunch breaks and two play times a day. Personally I think better education funding in general would be more effective than more SEND funding (and for any send funding to actually be ring fenced and someone checking where it's going).

DD’s primary has all that now.

RudolphTheReindeer · 23/02/2026 16:11

ExistingonCoffee · 23/02/2026 16:06

What do you think? You shouldn’t rely on the LA or anyone connected to them to give you accurate information. That includes the autism specialist teacher.

Agreed. My number one rule is assume anything the LA tell you is utter nonsense.

Avantiagain · 23/02/2026 16:09

"Sorry but that’s rubbish. The last ‘asylums’ closed in the early 80s, all this ‘they were locked away’ stuff is just a myth."

No it's not.

A few years ago I was told that if my son needed support beyond a certain ratio then he could not live in the community.

RudolphTheReindeer · 23/02/2026 16:09

Playingvideogames · 23/02/2026 15:33

Why do people often say ND kids coped better in the 90s then before such items existed?

Because schools were better funded so such children had better support. Support they don't get now. There was less pressure from the likes of Ofsted on academic attainment and as someone else said, we had more art/music/pe etc. Proper lunch breaks and two play times a day. Personally I think better education funding in general would be more effective than more SEND funding (and for any send funding to actually be ring fenced and someone checking where it's going).

StartingFreshFor2026 · 23/02/2026 16:09

Playingvideogames · 23/02/2026 16:06

Have a read of that thread.

I'm not sure reading one anonymous thread will change the perspective I formed from working with or for many real families.

Playingvideogames · 23/02/2026 16:06

StartingFreshFor2026 · 23/02/2026 16:03

Having been part of the SEND community and worked in SEND for several years (including reading EHCPs), it is vanishingly rare that I come across a family where I doubt their child truly has SEND and that ALL the difficulties are down to social factors or parenting. Not impossible, but very rare.

Have a read of that thread.