To think this is a shocking waste of taxpayer’s money??

The day a money tree is invented, this can all be paid for, until then the money needs to go to the rest of the population and they need to face the music on moving to institutions.

That cost is completely disproportionate.

This is how taxpayers' money is going to get spent now. It is so far beyond unsustainable. Essentially private companies are going to charge ££££££ for such services and the council/govt are just going to cough up without much critical thought.

I've name changed to put this, but I know of a private school that has literally just closed due to VAT and subsequent pupil number decline. The people in charge have hatched a plan to get mega money instead of operating the private school. They are going to make it in to a sort of special school, which is private and they are going to be collecting between 50,000 to 100,000 per child per year from the council as the parents will not be charged.

This is just a new way for the government to hemorrhage money and for private individuals to benefit to the tune of millions. I absolutely don't deny that children with SEN are in dire need of help (my own ds has autism). But the help does not need to be into 6 figures for a few weeks for one child.

The day a money tree is invented, this can all be paid for, until then the money needs to go to the rest of the population and they need to face the music on moving to institutions.

That cost is completely disproportionate.

Yes - my friend ( who is a senior commissioner for the ICB) says if we stopped paying out for those 0.2 % of the population with extreme needs we would have enough money to fund all the other health needs of the local population. I know it sounds awful to say, but up until very recent history- nature meant these people with very high challenging behaviours didn’t survive to adulthood (or were highly medicated / in institutions). I know institutions weren’t great but cheaper than these huge individual costs to people whom mostly are distressed a lot of the harm & mostly cause harm to others/self & property on a continual basis all their life. My commissioner friend said they were cutting back on other CAHMs/LD services for the majority to fund these few minority (15 million yearly cost for 12 ppl just in our local city - not even the whole of the ICB patch.

Yes - my friend ( who is a senior commissioner for the ICB) says if we stopped paying out for those 0.2 % of the population with extreme needs we would have enough money to fund all the other health needs of the local population. I know it sounds awful to say, but up until very recent history- nature meant these people with very high challenging behaviours didn’t survive to adulthood (or were highly medicated / in institutions). I know institutions weren’t great but cheaper than these huge individual costs to people whom mostly are distressed a lot of the harm & mostly cause harm to others/self & property on a continual basis all their life. My commissioner friend said they were cutting back on other CAHMs/LD services for the majority to fund these few minority (15 million yearly cost for 12 ppl just in our local city - not even the whole of the ICB patch.

Yes - my friend ( who is a senior commissioner for the ICB) says if we stopped paying out for those 0.2 % of the population with extreme needs we would have enough money to fund all the other health needs of the local population. I know it sounds awful to say, but up until very recent history- nature meant these people with very high challenging behaviours didn’t survive to adulthood (or were highly medicated / in institutions). I know institutions weren’t great but cheaper than these huge individual costs to people whom mostly are distressed a lot of the harm & mostly cause harm to others/self & property on a continual basis all their life. My commissioner friend said they were cutting back on other CAHMs/LD services for the majority to fund these few minority (15 million yearly cost for 12 ppl just in our local city - not even the whole of the ICB patch.

That’s ridiculous. What a complete waste of money for someone who will never contribute anything tangible to society.

Yes I’m similar re Adults with profound Autism & LD with complex (highly challenging & aggressive) Needs. I know of a number on 1million + packages of care a year to care for them in their ‘own’ house (a house paid for by the council with a yearly 250k budget to constantly repair it and their own mini vans (they continually tear/smash apart both weekly) . I know also of 1x 17 year old Autistic girl with ED & extreme self harm whom was sent to a private MH Hospital placement on her 18th birthday costing the NHS ICB 3 million a year.

I would feel differently about this package if it were due to disability rather than shit behaviour occasioned by a terrible upbringing

That’s not unusual. I work in health that funds complex care packages. I know of young people and adults who are in long term placements or have care packages that cost £10k+ a week. I can think of 5 or 6 off the top of my head in our county alone. Still cheaper than the children who are stuck in critical care beds in children’s hospitals because they can’t find specialist placements.

I read time and time again on mumsnet about these children who are unwell to staggering amounts. Unable to speak or ever look after themselves, getting sent in taxis to special placements that cost hundreds of thousands of pounds. Violent, smearing shit everywhere and all kinds of stuff. Attacking their siblings, mum having nervous breakdown and no life of her own.

Thats another thing where has this even come from?! I hate sounding like some kind of pearl clutching Karen, but I don’t remember a single case of this nonverbal autism when I was a kid. Now I know 3 or 4 in real life, loads more on here. Of course we had Down syndrome and things like that but this seems rampant all of a sudden. Is it just me?!

Tend to find that the majority of kids in SCH have a degree of LD or undiagnosed mental health disorders along with challenging home lives

Well, this post isn't a show of complete ignorance at all...

I would feel differently about this package if it were due to disability rather than shit behaviour occasioned by a terrible upbringing

I would feel differently about this package if it were due to disability rather than shit behaviour occasioned by a terrible upbringing

Many of the young people with these types of packages are there because of profund autism, severe LD's etc. No amount of early intervention, supporting the family etc will solve the issues. What do we do for them?

Yes support for the families I agree, the cycle needs to be broken . There are cheaper ways of managing this and in my view we need to prevent the situation getting to this point, I know easier said than done, more intervention and more social worker involvement.

Yes support for the families I agree, the cycle needs to be broken . There are cheaper ways of managing this and in my view we need to prevent the situation getting to this point, I know easier said than done, more intervention and more social worker involvement.

So for this child, criminally exploited, previously hospitalised with knife wounds, what would you do? What cheaper rehabilitation would you choose?

And why is the school the focus for early intervention? Why not the chaotic, alcoholic family?

No, I don’t mean the kind of autism that flies under the radar.

Spending huge amounts of money for what seems to be a short-term solution is in my view a huge waste of money. Agreed there needs to be some form of rehabilitation. The problem is that earlier intervention should have happened. Schools have been unable to uphold societal norms and have been stranglehold by the agenda that’s not allowed students from an early age to set the agenda, we all live in a society and that means we have rights but also responsibilities and schools can’t enforce this due to constant requirement to accommodate the different and varied demands which is simply impossible. At the end of the day the average, quiet, well behaved children are looked over - their potential is ignored . More support in schools but also clearer expectations.

So what do you think should happen with them. Be left at home with minimal care until they kill someone? Because that is the reality of the level of violence some of these young people are capable of through no fault of their own. Often funding decisions are not lead by quality of life, or providing an education but by keeping the young person and the people around them safe from harm.

Part of prevention is financial in the home too. Which is why when I see benefit bashers I just think STFU. If there is less pressure financially in the household, then there is less risk of dysfunction and bad outcomes.

Disgraceful to spend that amount on 1 person, as it will be at the expense of others.