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To wish I could stop paying into the utterly broken NHS black hole

357 replies

Juanhundred · 29/08/2024 14:38

The last few years have really opened my eyes to the utter chaos of the National Health Screwers

If you've not needed them or only needed them for minor things, you honestly have no idea how bloody scary it is to be seriously ill and under the "care" of people I wouldnt usually trust to look after a dog

Every month I pay out about a weeks worth of wages in tax towards the NHS, then I pay a bit off my staggering credit card debt thats accumulated on going private when the NHS fail at life (rheumatology, gynaecology, dermatology, podiatry, basic antibiotics when my GP insisted an infected tick bite was "just allergies", the list is endless!)

I'm not rich, I earn less than 30k. Some days towards the end of the month I literally cant afford to eat what or when I want

20 years ago (when the NHS was actually the envy of the world) I had cervical cancer. Caught early by a smear test and treated in time to save my life. I was told by the consultant, "Another 6 months and your chances wouldn't have been good. Be very mindful of any changes moving forwards, and act on them immediately"
It was around the same time that Jade Goody died; she was told if she'd been seen 6 months earlier, her chances would have been infinitely better.
That brush with the Big C scared me shitless, and as per the advice given I'm super mindful of any changes and take them seriously.

Well I've probably just saved my own life this time by getting a private smear test, because despite my history and all the symptoms I am now experiencing (irregular heavy bleeding, random spotting, discharge, bleeding after intercourse, tummy and back pain), I was refused an NHS smear as I'm "not owed one" until three years after my last test, history / symptoms be damned.

The system was "reformed" in 2017. The NHS no longer do proper smear tests, just HPV tests. If you have HPV, you get a smear, if you dont, its off you go we'll see you in 3 years.

My private test showed major cell changes but HPV negative. My NHS GP surgery refused to acknowledge it or record the results on my medical record.
Luckily I'm already under an NHS gynaecologist (due to my symptoms), who initially agreed to refer me for colposcopy off the back of my private smear, but the referral was "triaged" and then rejected. My gynaecologist is just like 🤷🏻‍♀️ "You dont have HPV and around 50% cell changes rectify themselves without treatment. So yeah, bye."

50%? So 50% DONT rectify? And you think I'm betting my life on being in the lucky 50%, with my history and current symptoms? Is 50% really a good enough percentage to deny women with symptoms any further investigations? I dont think so, but apparently the NHS now does.

The NHS insists that as most (not all!) cervical cancers are caused by HPV, the women who fall into the grey area who have bad cells but no HPV are pretty rare, therefore our lives dont matter. Thats the message I'm getting.

Basically, I've just been abandoned by the NHS until I've got full-blown Big C, then maybe they might do something, if I'm lucky?

They can fuck off. I have two DDs who need their mum!

So here I am faffing around online trying to up my credit card limit so I can book myself in for a private colposcopy, and thinking to myself "If I didnt have to pay all this fucking money towards the NHS every month, I'd be able to afford this without credit!"

Sorry for the rambling ranty post I'm just stressed scared skint and at the end of my fucking tether

OP posts:
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Evilspiritgin · 29/08/2024 23:28

I still love how people keep saying that the nhs is the envy of the world, yet there isn't another country that has copied the idea

I know of at least one person , who has been fobbed off by gp and now is terminal , my grandparent had a heart attack in hospital and nobody told anyone in the family, strangely enough the attitude of senior nurses on the ward my dm was dying on changed after I noticed she had been given the wrong medicine and pointed it out, the only member of staff on that ward that was worth anything was a healthcare , she was so caring , this was the same hospital that put my dm on a ward with d&v when she had sepsis, a week after her first chemo, oh and my dm worked for the nhs

MissTrip82 · 29/08/2024 23:43

It should be better.

If you think a private system would deliver better care to more people across a broader range of conditions including life-threatening emergencies…….you’re deluded

MissTrip82 · 29/08/2024 23:46

Evilspiritgin · 29/08/2024 23:28

I still love how people keep saying that the nhs is the envy of the world, yet there isn't another country that has copied the idea

I know of at least one person , who has been fobbed off by gp and now is terminal , my grandparent had a heart attack in hospital and nobody told anyone in the family, strangely enough the attitude of senior nurses on the ward my dm was dying on changed after I noticed she had been given the wrong medicine and pointed it out, the only member of staff on that ward that was worth anything was a healthcare , she was so caring , this was the same hospital that put my dm on a ward with d&v when she had sepsis, a week after her first chemo, oh and my dm worked for the nhs

You think the UK is the only place with universal health care predominantly funded by government?

Why would you think that?

Evilspiritgin · 29/08/2024 23:53

MissTrip82 · 29/08/2024 23:46

You think the UK is the only place with universal health care predominantly funded by government?

Why would you think that?

Obviously as you know, you can tell me then of all these countries that have the same system as the uk

Nat6999 · 30/08/2024 00:26

There should be a tax break if you pay private health insurance. My sil was diagnosed with breast cancer earlier this year. Thanks to my brother getting private health, she was able to get her scans, tests surgery & be nearly finished with chemo since April. On the NHS she was told she would be waiting at least 8 weeks for her scans & then another wait for chemo. Her cancer is stage 3 & very aggressive, her consultant has told her that if she had waited for NHS treatment, the chances are it would have progressed to stage 4 by the time she got treated, instead she has one more chemo session, a 3 week break then starts on radiotherapy. I have seen the invoice for just what she has had up to now & the bill was shocking, over £30k up to when the bill was generated, so the NHS has been saved that much, a reduction in NIC if you have private health would encourage more people to pay it, even a 1% reduction would be worth it.

Jumpingthruhoops · 30/08/2024 00:58

TransformerZ · 29/08/2024 21:32

It helps with easing her delusion that she pays 25 percent to the NHS.
Her treatment and diagnosis delay is one thing but to say you pay a week's NHS wages, really!

25% IS what is paid in tax - which equates to a week's wages. That's according to the pie chart on the back of an annual P60. The largest portion of income tax goes on welfare, I believe.

So not totally spot on with the figures - but saying she's 'delusional' is quite a leap. And, to be fait, the tax issue is arguably the least important takeaway from the entire OP.

Jumpingthruhoops · 30/08/2024 00:59

Nat6999 · 30/08/2024 00:26

There should be a tax break if you pay private health insurance. My sil was diagnosed with breast cancer earlier this year. Thanks to my brother getting private health, she was able to get her scans, tests surgery & be nearly finished with chemo since April. On the NHS she was told she would be waiting at least 8 weeks for her scans & then another wait for chemo. Her cancer is stage 3 & very aggressive, her consultant has told her that if she had waited for NHS treatment, the chances are it would have progressed to stage 4 by the time she got treated, instead she has one more chemo session, a 3 week break then starts on radiotherapy. I have seen the invoice for just what she has had up to now & the bill was shocking, over £30k up to when the bill was generated, so the NHS has been saved that much, a reduction in NIC if you have private health would encourage more people to pay it, even a 1% reduction would be worth it.

I agree with this. It is ridiculous that some people pay twice.

Jumpingthruhoops · 30/08/2024 01:12

letmego24 · 29/08/2024 17:49

You're angry at the wrong people. Very rude about a service which is actually free. You are paying taxes like everyone else not peoples wages don't sound so entitled. Campaign for improved funding and restoration of staffing levels etc.
if you had a totally private service remember it's the same staff and services only you pay.

Quite. So a person can't get a GP appointment on the NHS... but if they've got 50 quid, they can see that same GP privately within a few hours?

TransformerZ · 30/08/2024 01:18

Jumpingthruhoops · 30/08/2024 00:58

25% IS what is paid in tax - which equates to a week's wages. That's according to the pie chart on the back of an annual P60. The largest portion of income tax goes on welfare, I believe.

So not totally spot on with the figures - but saying she's 'delusional' is quite a leap. And, to be fait, the tax issue is arguably the least important takeaway from the entire OP.

She doesn't pay a week's wages each month of her salary to the NHS on £30k. She's way off.

Maria1979 · 30/08/2024 01:36

RafaistheKingofClay · 29/08/2024 19:47

Who is giving patients a smear every year and who is paying for that? Is it the patient that pays or an insurance company or is it free?

It's free for the patient paid for by taxes.

Maria1979 · 30/08/2024 01:38

Evilspiritgin · 29/08/2024 23:53

Obviously as you know, you can tell me then of all these countries that have the same system as the uk

Germany, Italy, Sweden, Norway, Denmark, France, Greece for exemple..

XChrome · 30/08/2024 02:06

The attitude of these medical professionals makes no sense. HPV has a dormancy period in which it cannot be detected in tests. This period can be decades long. It's appalling that you have been told a negative HPV test proves you can't ever have contracted HPV.
Furthermore, if you have successfully fought off the virus, you will test negative. That does not mean the virus did not do cell damage when you had it. I'm in this position. I had it, fought it off and tested negative, but am in the high risk category for cervical cancer and have already had a growth removed.
I'm genuinely shocked at the ignorance of the "doctors" you have been dealing with. Wtf.
I don't know anything about the NHS as I'm in Canada, but I do believe strongly in socialized medicine. It does need to be sufficiently funded and properly managed. That's the solution, not getting rid of socialized medicine.

sarahzbaker · 30/08/2024 02:10

It's been underfunded by the last Government who wanted to give it over the US healthcare companies
I can understand why you are angry but getting rid is not the way to go

XChrome · 30/08/2024 02:19

piccolorhinoceros · 29/08/2024 21:37

But in the UK the HPV test is a pap smear, they just don't bother looking at the cells if HPV negative. So an unnecessarily invasive test for women, and just as labour intensive. May as well just look at the cells if you have them.

No gyn professional has been able to adequately answer this for me - if you have HPV infection and abnormal cells at 30, then biopsy (fine) and then HPV negative a year later, what's to stop the cells becoming abnormal again without another HPV infection/activation? I could test negative for HPV on smear but have abnormal cells, in theory?

Yes, there could be cell damage even if the virus has left the body.
However, I'm not understanding what you mean about the pap smear being separate from checking the cells. Looking for cell abnormalities is what a pap smear is for. If they detect an abnormality in the cells there's no way to prove HPV caused it, though my gyno did say he thought it was over 80% likely to be the cause, because most cervical cell abnormalities are caused by HPV.

ForGreyKoala · 30/08/2024 02:33

Carriemac · 29/08/2024 15:34

An average tax payer on 30 k uses more from the NHS than they contribute

So? Is this an MN thing or a UK thing? I don't live there and I have literally never heard anyone discuss how much they "contribute" to the health system - or any other system - here. Everyone expects the same treatment, as they should.

OP has had shocking treatment, and I can understand her questioning why she is paying for this - but why oh why are so many of you intent on showing how clever you are by calculating how much she actually does, or doesn't contribute. IT DOESN'T MATTER!!! The point of her post is the treatment she has not received, not the amount she has paid it. What is wrong with you all?? Some of you seem to have got your money's worth from the NHS with your empathy bypass.

Shesshinysheila · 30/08/2024 03:10

"OP has had shocking treatment, and I can understand her questioning why she is paying for this - but why oh why are so many of you intent on showing how clever you are by calculating how much she actually does, or doesn't contribute. IT DOESN'T MATTER!!! The point of her post is the treatment she has not received, not the amount she has paid it. What is wrong with you all?? Some of you seem to have got your money's worth from the NHS with your empathy bypass."

This! So many horrible posters here

coronafiona · 30/08/2024 03:42

I needed healthcare in the USA a few years ago. Broke a bone which needed pinning. $45000. I was in hospital for three days. I do not want to be on that position here, thanks.

tamade · 30/08/2024 03:59

piccolorhinoceros · 29/08/2024 14:52

This x 100.

The NHS is broken, and I say that as staff. I don't appreciate your dig at lack of care. Most of us are trying to do the best we can with a lack of resource and shitty systems (your gynaecologist, for one).

Her gynaecologist realised there was an issue and allowed the patient to be triaged out of the door by the bureaucracy. That's potentially letting someone develop cancer just for a quiet life. Shameful. I am not any kind of medic but I do have people that I am responsible for and I would never, ever take no for an answer when advocating for them.

Noras · 30/08/2024 05:00

My friend works here but is French and continues to pay her contribution to the Fre ch system for herself and family. When she had cancer she was determined to be treated in France and was despite being a UK tax payer and her Italian husband is also a higher UK tax payer.

My dad ended up paying cash for his various operations eg hernia, cataracts etc. He did get cancer treatment from the NHS but the NHS failed to diagnose his very severe back pain as a secondary tumour and gave him antidepressants to manage it rather than a CT scan! He paid a lot tax over the years and was a committed tax payer as he was born in a work house. The NHS let him down and left him in pain for about 5 years with cancer secondaries - any GP worth their salt should en aware that when someone has had cancer and then presents with severe back pain unresponsive to cocodamol secondary cancer is a pretty likely issue.

I would prefer the French system as it seems more efficient.

Whilst on my many nights in hospital with my son I was woken up by the arrival of a family from Pakistan who had flown over after a road accident and were being treated in a UK hospital. I’m not sure if they paid but it seemed like they had flown over to get NHS treatment. The car accident had been a day or so beforehand. They arrived in the middle of the night and the commotion was huge hence being told by nurses that they had just arrived from abroad.

However seemingly health tourism is not that much as it might appear and talk of people flying over when 8 months pregnant are not as much as the newspapers make out. I don’t knew what to think on that as like anything there are 2 sides to the story.

However this could not happen with the French system and health tourism does not exist as much. In the UK doctors don’t want to play the role of fund guarding but they get paid regardless in other countries they have no such scruples as their pay depends on the hospital getting the income.

The biggest issue to the NHS is life style choices and I’m shocked that crisps, cakes and ready made meals are not hit with a super tax. These things need to be luxury and not a regular thing. The aisles of crisps in the UK are astounding. I say this for my sake as when I have them in I eat them. Clearly crisp manufacturers must have a huge hold on government. A super vat of 10% in addition to the 20% would raise so much money as it would spread across a huge pool of people. In turn the money should. En used to reduce the price of fresh fruit and veg.
We need more nanny state to remove temptation.
Why don’t we have this as it makes so much sense. Also all take away owners need to pay a super tax.

Oblomov24 · 30/08/2024 05:27

I completely agree with you and am shocked at previous posters and their views. Are they based on ignorance or what? This, or similar, is going on all the time. Wait to see how posters react when it's them, or their mum!

I can only suggest going private, but also firmly requesting referral on the nhs, so your nhs record stays parallel.

Sparklesandbeer · 30/08/2024 05:46

Peopleare being so weird about National Health Service.
"well they might let you dir of cancer BUT!!! They would like... Save you if you had accident so stop complaining".

You all need to look at other European countries and their models and numbers really. People can have healthcare without debt you know. It can actually quite work. Frankly, UK NHS was already famous for beinh bit crap and just giving paracetamol well before Tories came in 2010...

There is a reason many EU immigrants in UK fly home regularly for medical stuff. And havebeen for decades

Sparklesandbeer · 30/08/2024 05:49

Maria1979 · 30/08/2024 01:36

It's free for the patient paid for by taxes.

Same where I am from. 1x a year free check. Paid via state in combination with our insurance companies (everyone has insurance paid via % of salary, state covered if cannot work, so everyone can afford it).

I had my gynecologist since 16 for yearly check ups🤷

Adviceplease2022 · 30/08/2024 05:58

newleafontheplantjohn · 29/08/2024 14:57

I've never understood that change to smear tests.

Well, I understand it's to save money, but other than that..

I'm sorry. At least you are on the ball and getting it dealt with.

Me too! In fact, I even asked my private GP this before she did my smear test. I’m hpv negative and haven’t had any new sexual partners. I asked her what the point in having a smear was if they were just going to check my hpv status and she couldn’t answer! She said it was a good question and she’d go away and research it.

Sladuf · 30/08/2024 06:18

Evilspiritgin · 29/08/2024 23:28

I still love how people keep saying that the nhs is the envy of the world, yet there isn't another country that has copied the idea

I know of at least one person , who has been fobbed off by gp and now is terminal , my grandparent had a heart attack in hospital and nobody told anyone in the family, strangely enough the attitude of senior nurses on the ward my dm was dying on changed after I noticed she had been given the wrong medicine and pointed it out, the only member of staff on that ward that was worth anything was a healthcare , she was so caring , this was the same hospital that put my dm on a ward with d&v when she had sepsis, a week after her first chemo, oh and my dm worked for the nhs

As well as being very sorry to read about the OP’s experience, I am sorry to read about your family’s experiences too, which sounded too familiar to experiences at a hospital near Windsor that my grandfather was admitted to several times and sadly died in ultimately. The only person my mother, who spent the majority of time with him there, saw who showed anything resembling “care” was from an HCA.

OP, YANBU and other PPS including @XChrome have hit the nail on the head. The ignorance from the doctors you have been dealing with is shameful. I think you should be reporting them as one or two others have said.
Your experience brings to mind what one of my lecturers said about the NHS 17 years ago: it should be renamed the National Sick Service. There seems to be massive gaps in terms of preventative care even when you have patients who are predisposed to life-threatening conditions.

I’m in complete agreement with @Nat6999 about a tax break existing if you pay for private health insurance. One of the first things I did earlier this year when eligible was opt in to the cover I can get through my work. I decided to use the 24/7 GP that’s part of the cover. I honestly think this is worth what I pay towards the cover each year alone. I managed to get a virtual appointment on Easter Monday - booked on Easter Sunday night - and the level of care was exceptional.

WhyamIinahandcartandwherearewegoing · 30/08/2024 06:27

According to WHO, 99% of Cervical cancers are due to +ve HPV, so you may be worrying unnecessarily.