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To wish I could stop paying into the utterly broken NHS black hole

357 replies

Juanhundred · 29/08/2024 14:38

The last few years have really opened my eyes to the utter chaos of the National Health Screwers

If you've not needed them or only needed them for minor things, you honestly have no idea how bloody scary it is to be seriously ill and under the "care" of people I wouldnt usually trust to look after a dog

Every month I pay out about a weeks worth of wages in tax towards the NHS, then I pay a bit off my staggering credit card debt thats accumulated on going private when the NHS fail at life (rheumatology, gynaecology, dermatology, podiatry, basic antibiotics when my GP insisted an infected tick bite was "just allergies", the list is endless!)

I'm not rich, I earn less than 30k. Some days towards the end of the month I literally cant afford to eat what or when I want

20 years ago (when the NHS was actually the envy of the world) I had cervical cancer. Caught early by a smear test and treated in time to save my life. I was told by the consultant, "Another 6 months and your chances wouldn't have been good. Be very mindful of any changes moving forwards, and act on them immediately"
It was around the same time that Jade Goody died; she was told if she'd been seen 6 months earlier, her chances would have been infinitely better.
That brush with the Big C scared me shitless, and as per the advice given I'm super mindful of any changes and take them seriously.

Well I've probably just saved my own life this time by getting a private smear test, because despite my history and all the symptoms I am now experiencing (irregular heavy bleeding, random spotting, discharge, bleeding after intercourse, tummy and back pain), I was refused an NHS smear as I'm "not owed one" until three years after my last test, history / symptoms be damned.

The system was "reformed" in 2017. The NHS no longer do proper smear tests, just HPV tests. If you have HPV, you get a smear, if you dont, its off you go we'll see you in 3 years.

My private test showed major cell changes but HPV negative. My NHS GP surgery refused to acknowledge it or record the results on my medical record.
Luckily I'm already under an NHS gynaecologist (due to my symptoms), who initially agreed to refer me for colposcopy off the back of my private smear, but the referral was "triaged" and then rejected. My gynaecologist is just like 🤷🏻‍♀️ "You dont have HPV and around 50% cell changes rectify themselves without treatment. So yeah, bye."

50%? So 50% DONT rectify? And you think I'm betting my life on being in the lucky 50%, with my history and current symptoms? Is 50% really a good enough percentage to deny women with symptoms any further investigations? I dont think so, but apparently the NHS now does.

The NHS insists that as most (not all!) cervical cancers are caused by HPV, the women who fall into the grey area who have bad cells but no HPV are pretty rare, therefore our lives dont matter. Thats the message I'm getting.

Basically, I've just been abandoned by the NHS until I've got full-blown Big C, then maybe they might do something, if I'm lucky?

They can fuck off. I have two DDs who need their mum!

So here I am faffing around online trying to up my credit card limit so I can book myself in for a private colposcopy, and thinking to myself "If I didnt have to pay all this fucking money towards the NHS every month, I'd be able to afford this without credit!"

Sorry for the rambling ranty post I'm just stressed scared skint and at the end of my fucking tether

OP posts:
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Boomer55 · 29/08/2024 16:41

It needs root and branch reform, not more money slung at it. Whether this government is brave enough to do it remains to be seen.🤷‍♀️

GinnyPiggie · 29/08/2024 16:44

StewartGriffin · 29/08/2024 16:24

Well through my private insurance I can literally see a doctor whenever I need to, I pay a small excess for treatments in a private hospital and I am given choice and treated like an actual person.

I'm a big advocate for a national health system. What bothers me is the constant bowing and scraping as if we should be thankful for the miserly treatment we are afforded. As other posters have said-it's not a race to the bottom, and we have a right as tax paying citizens to hold the NHS to account. The NHS is meant to work for us, not the other way around.

That's fine - at the moment. But in countries where private healthcare is the norm, it only works so far: once you have X cancer, or X neurological condition, or X mental health condition, you are no longer covered and have to pay as you go. What then?

CornflowerSky · 29/08/2024 16:45

drspouse · 29/08/2024 16:41

The private healthcare we have in the UK could NEVER replace what we all need that we get from the NHS. Even the private healthcare that's available in the US couldn't (because it doesn't, because overall health is much worse there, and even those with money end up over-treated because it pays to treat - think of children with autism who get ABA which can be abusive, the trans scandals, making people lifelong patients and doing damaging surgeries, etc. etc.)

We as a family could never, ever afford the healthcare we've had under the NHS if we had to go private. Most of what we get wouldn't be covered, anyway - my DS has had a hospital admission for his epilepsy and we get immediate access to the epilepsy nurse when we call, she emails the consultant and he got back to us immediately even though he was on holiday! We don't even have a private children's hospital closer than an hour and a half from us. And that's without the exclusions for pre-existing conditions - my DD might be just about insurable but she's 10, and it's hardly worth it, the rest of us would be refused care for everything that ails us.

Private healthcare is also not joined up. We forgot a new medication that the hospital had prescribed for DS, which DH had put down in a different spot to the others. We rang 111, who rang the prescribing team, who rang a pharmacy in our destination in another English region, and we picked up the meds in 4 hours. If you sign up for one healthcare company, you aren't going to get the permission to see another company in the same way that it's impossible to get "out of network" care in the US unless you either beg and plead and get lucky, or pay through the nose.

Do you realise there are many, many alternative systems that aren't simply 100% private or 100% state funded?

In Germany insurance is compulsory, but it's underwritten by the government so that if you can't afford it it's covered. No one falls through the gap. It's affordable and works incredibly well.

People seem to think it's either the NHS or the American system which simply isn't true.

CornflowerSky · 29/08/2024 16:45

GinnyPiggie · 29/08/2024 16:44

That's fine - at the moment. But in countries where private healthcare is the norm, it only works so far: once you have X cancer, or X neurological condition, or X mental health condition, you are no longer covered and have to pay as you go. What then?

Which countries are you referring to? This certainly isn't the case in France and Germany.

drspouse · 29/08/2024 16:47

CornflowerSky · 29/08/2024 16:37

We have some of the worst cancer survival rates in the developed world despite it taking such a high portion of GDP.

The system is simply no longer fit for purpose. We need to stop mythologising the NHS, stop pouring money into it, and switch to a different system that is proven to work better (such as that of Germany).

There is nothing romantic or inherently good about a system that is killing people. It does NOT need more funding. It needs scrapping. But no political leaders dare touch it because it's been romanticised to such a sickening extent.

Taking on a German model would work if we were all German and didn't insist on e.g. painkillers for every little twinge!

One of the reasons we have much higher healthcare costs than we used to is because of longer life expectancy. However, another one is higher expectations of quality of life. There is nothing wrong with having a high expectation of quality of life, but we do have higher expectations than some other developed nations.

We also are much, much less active than Germans and have higher average BMI/rates of obesity despite lower calorie consumption.

drspouse · 29/08/2024 16:48

CornflowerSky · 29/08/2024 16:45

Do you realise there are many, many alternative systems that aren't simply 100% private or 100% state funded?

In Germany insurance is compulsory, but it's underwritten by the government so that if you can't afford it it's covered. No one falls through the gap. It's affordable and works incredibly well.

People seem to think it's either the NHS or the American system which simply isn't true.

I don't know much about the German health insurance system but see my later post about German health, healthcare, and expectations.

StewartGriffin · 29/08/2024 16:50

"That's fine - at the moment. But in countries where private healthcare is the norm, it only works so far: once you have X cancer, or X neurological condition, or X mental health condition, you are no longer covered and have to pay as you go. What then?" Well @GinnyPiggie I will leave it to @CornflowerSky as she has responded much better than I can.

But to reiterate: our only options are not a failing NHS or an abusive US-style private system.

VickyEadieofThigh · 29/08/2024 16:52

National Insurance contributions don't only fund the NHS.

Yes, the NHS needs better funding (and better management). But nobody wants to pay more - do they? Hence the very long threads about rumoured tax increases.

Prawncow · 29/08/2024 16:53

My mother had cancer treatment in 2008 and it was dealt with so quickly from concern to referral to surgery to chemo. It was actually very tricky to pick up and the GP was 50:50 about the referral. The consultant found it straight away and confirmed it with tests.Waiting times were short. Then in 2010 we had Cameron, Osborne and austerity. By 2011 when she saw her consultant for her regular check up, she told my mother that the trust was cutting back her NHS clinical hours. After going to a couple more check ups and being examined by more junior doctors because the consultant was so jammed for time, my mother ended up switching to seeing her privately for check ups through health insurance.

If you cut funding, over time, this is what happens. Missed diagnoses and policies that take referrals out of the hands of experts and put them in the hands of accountants.

Prawncow · 29/08/2024 16:55

CornflowerSky · 29/08/2024 16:40

It's one of the best-funded health services in the world and yet one of the worst performing. Pouring more money into it is only making it worse. It needs to go.

That’s just not true.

ThePure · 29/08/2024 16:56

Why do you think that paying for it in a different way would automatically make it better?

Would you not wind up paying the same or more for care in an insurance system as a taxation funded system?

The NHS monopoly purchase power reduces drug prices which is in itself a huge good.

sleepyscientist · 29/08/2024 16:57

The NHS is evidence based invasive surgery when 50% self rectify sounds like a bad idea. What have they proposed as a plan? Watch and wait I'm guessing. You can ask for a second opinion.

I've always found secondary care in the NHS excellent it's primary care that is difficult to access in our area.

TheYearOfSmallThings · 29/08/2024 16:58

If you're earning 30k you aren't paying much at all, and it is worth it in case you have an accident. I broke my arm last year and I must say the care was better than I expected and my arm is fixed with pins etc.

I understand how frustrating it can be though.

TheYearOfSmallThings · 29/08/2024 16:59

I've always found secondary care in the NHS excellent it's primary care that is difficult to access in our area.

Agreed.

GinnyPiggie · 29/08/2024 17:00

ThePure · 29/08/2024 16:56

Why do you think that paying for it in a different way would automatically make it better?

Would you not wind up paying the same or more for care in an insurance system as a taxation funded system?

The NHS monopoly purchase power reduces drug prices which is in itself a huge good.

Yes, this is part of the frustration of these conversations: countries with different models are largely just paying for a similar thing (massive monopoly) but perhaps separate it from government, for example - which is a good thing, as it can enable long-term planning. But you've still essentially got a state-wide system.

pinkfleece · 29/08/2024 17:00

How do you work out that one quarter of your wages goes to the NHS? You are a net beneficiary by miles.

Demonhunter · 29/08/2024 17:02

For starters, health tourists need to be turned away if they don't have the relevant insurance to cover them.

Wolfpa · 29/08/2024 17:05

I understand the need to rant but I think you have misunderstood how taxes work. There is no way that you are being charged a weeks worth of wages every month for the NHS.

Beekeepingmum · 29/08/2024 17:06

If you earn less than £30k you aren't really a net contributor so an average will be getting more benefit from government services that you pay for. Private Healthcare is all well and good until there is an emergency when you are shipped straight back to the NHS in ambulance.

Prawncow · 29/08/2024 17:07

I’m sure there are lots of different ways that healthcare could be delivered in the U.K. and changes will be made over time. It may be that the NHS can’t deliver what we expect from it under the current funding model.

Decisions should be made based on facts not feelings or ideology. There seems to be a gap between public perception of NHS funding and our own contributions to it and actual funding.

Butterflies878 · 29/08/2024 17:08

Some of your comments are unreasonable particularly around the finances of it all but on the whole you’re not. I’ve had similar issues with GPs and smear tests. I’ve recently gone private for a birth injury (that the NHS missed) and was told by the gyno that due to my history of grade 3 abnormal cells I should be having a smear test every year for 10 years. I specifically asked about this at my post natal check up having read it online and was told by my GP I was wrong - but I’m not. That was after having to go private for my smear test that highlighted the cells in the first place due to an inability to get an appointment. The grade of my cells meant I should have been seen on the 2 week pathway and AGAIN the GP told me I was wrong (when I was right). When I finally heard from the hospital about an appointment for a colposcopy they told me that it was delayed because my GP didn’t make the referral at all until they chased it up as I’d gone to PALS there directly.
My child was also recently very ill and whilst most of the professionals on the ground were incredible at their jobs, I saw complete incompetence in management and communication that put her life at risk. I can now see why people die who shouldn’t, including young children, and I felt very fearful for anyone who is not able to push back, ask questions or does not speak English very well.
My birth and the births of almost all my friends have been a total shit show but I won’t go into that.

Haggia · 29/08/2024 17:10

Sorry you’re going through such a stressful time.

I don’t understand why your GP isn’t referring you for the symptoms you are having? My relative had spotting and had all manner of scans and examinations (with a biopsy) at our local hospital. Surely it’s not about a smear test battle - it’s a referral on a potential cancer pathway?

MouseofCommons · 29/08/2024 17:16

(Not read whole thread).
Why won't they just do a hysterectomy? I had one 15yrs ago after two bouts of severe CIN and having two dc's. I'm glad it's been ticked off my to do list.

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